You Meant Well, But You Still Hurt Me

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1985 at the Clyde Theater

Today is the day. Soon we will drive from our home in Ney to Fort Wayne to attend a 1980s-focused concert at the Clyde Theater. I am in a lot of pain, so much so that if we had not already bought tickets, we would have stayed home. . .

After eating dinner at our favorite Chinese restaurant, we made our way over to the Clyde, arriving shortly before the gate opened. By this time, my body was screaming in pain, despite having already taken narcotic medications. “Such is life,” I told myself, knowing that pain is the high price I pay for admission.

The Clyde staffer who handles handicapped (ADA) seating already had three seats reserved for us at the front of the right loge section (our regular seats). By concert time, the venue was filled, ready for a wonderful night of ’80s rock and roll.

The show was everything we expected, and more. Two and half hours long, the concert took a toll on me physically. I can only imagine what the people sitting in back of us who watched me move back and front and side to side in my wheelchair trying to get comfortable must have thought. Throughout the night, I felt my partner’s hand on my leg, trying to comfort me in the midst of my suffering. A small gesture, but I appreciated it.

After the concert ended, we waited to leave the venue so we could avoid people cutting in front of me or banging into my wheelchair. Eventually, we made it to the lobby, only to find it crowded with people wanting to take a photo with the band.

My partner and our adult daughter with Down syndrome headed for the bathroom, as I sat there out of the way watching people, minding my own business. The girls returned from the bathroom. Finally . . . we are headed home. Soon I will feel the blessed heat of heated car seats on my body.

You, of course, knew none of these things. How could you? You and I don’t know each other. Outside of our common appreciation of ’80s rock music, we were total strangers. As we were walking away from the crowd, our daughter asked if she could have her picture taken with the band. I hesitated, wanting to get to the car as soon as possible . . . you know, the whole pain thing, right?

You heard my daughter’s request. Instead of letting me handle the matter, you quickly inserted yourself into our discussion.

“Come on, Dad. Let her get her picture taken.”

“Uh, no, we really need to go.”

“It will just take a minute.”

By now, dozens of people were staring at me, listening to this woman’s increasingly loud voice.

Thoroughly embarrassed, I finally acquiesced, and Bethany quickly joined the band for a picture.

But, you couldn’t leave well enough alone, could you?

“Come on Mom and Dad, you get in the picture too.”

“No, that’s okay.”

“Come on, you will be glad you did.”

“no, I . . .”

But you were insistent, and not wanting to be embarrassed any further, I said, “Fine.”

My partner started pushing my wheelchair towards the picture set, only to have me tersely say, “PLEASE STOP.” It took several pleas for the motion forward to stop. The venue was loud with conversation, so my partner could not hear me initially.

“I will use my cane instead.”

And with that, I tried to get out of my wheelchair, falling partially forward. Eventually, I made it to the front, and joined the picture. You were so happy that I played your game. Innocent or not, you showed no regard for me as a person. You decided you knew what was best for me; that I would regret not having this picture taken. What I regret is not putting you in your place. I regret not schooling you on personal space and bodily autonomy. I know you meant well, but you hurt me anyway. All I wanted to do was exit the venue, get in the car, and turn on the heated seats. Put yourself in my shoes. Is that too much to ask?

Please do better.

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Bruce Gerencser, 69, lives in rural Northwest Ohio with his wife of 48 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Comments

10 responses to “You Meant Well, But You Still Hurt Me”

  1. Avatar
    Jimmy

    Up to this point I have been fortunate to have no major health problems. This fact has led me to make the error in assuming others are in good health too. I remember a coworker who was doing his best to mask continuous pain from a botched surgery. He had so-so days and just plain bad days. My lack of perception caused me to think that he was upset with me, when in fact it had nothing to do with me at all. I try to take that as a lesson not to think that others feel okay as I do, and that it’s likely there is trial going on behind outward appearances. What happened at the concert is forgivable, but that certainly won’t ease the pain.

  2. Avatar
    John S.

    Great post, Bruce. As someone who suffered with on again off again severe lower back pain for years, I can empathize, albeit in a very small way. Other people, including loved ones, don’t understand why you aren’t enthusiastic about doing things they find enjoyable. They begin to think the issue is more emotional, related to laziness/apathy or even “spiritual”, but until they themselves get to experience the “joy” of chronic pain brought on by age and/or a decrease in overall health, trying to convince them otherwise is like trying to convince a brick wall.

    I think people overall need to do a better job of listening to others, instead of arguing with them, hectoring or berating them because they don’t want to ride on the same train they are on. Listening is respectful, even if you may not agree with the boundaries the other person is putting up, like this lady you mentioned. Usually the person has the boundary for a reason, and it’s no one else’s business as to why.

  3. Avatar
    Karuna Gal

    Having a friend in college with cerebral palsy really opened my eyes to how people with disabilities are treated. Healthy people can be clueless and insensitive in their interactions with the disabled. 😕

    1. Avatar
      matilddaa

      And also, I was at a medical appointment when a doctor was informing me I needed a major operation. A nurse sat beside me and stroked my knee all the time he was talking. I was horrified cos if she’d done that to a dear friend who was raped by her brother regularly in her fundy x-tian family during her childhood – she’d have gone to pieces at that nurse’s inappropriate and insensitive belief it would ‘comfort’ her. I was furious!

  4. Avatar
    GeoffT

    That’s a nice picture of you all, and one day one of your children or grandchildren will say “wow look at dad, doesn’t he look great, you wouldn’t believe the pain he was in to be able to pose like that”. Maybe that helps assuage, just a bit, the hurt you felt that your pain wasn’t properly appreciated. Everyone was caught up in the moment, and only later will reflect on how hard it was for you.

  5. BJW

    I’m so sorry. I think you are brave to do activities you love, in spite of the pain.

  6. velovixen

    Bruce, I admire you for living your life in spite of your pain. While I empathise as much as I can, I am sure that I’ve been tone-deaf toward people who are suffering in ways that I’m not (at least for now: we never know what the future holds!).

  7. Avatar
    amy b

    You should have mentioned to this woman that you write a blog. That way she could have read about the situation afterwards and maybe learned something about boundaries.

  8. Avatar
    CWFisherman101

    I am sorry that you are in a lot of pain I can relate I prayed for you today.

    1. Avatar

      Sorry, but your prayer didn’t work. If you have some extra narcotics , please drop them off. 🤣🤣

      I’m sure you meant well, but surely you know that telling me that you prayed or me has no value, outside of reminding me that “prayer” is literally the least thing you can do for me. Besides, didn’t Jesus command you to pray in secret? He said he would reward you openly if you did. Since your prayer went unanswered, I can only assume that this is because you disobeyed Jesus’ command. Repent! 🤣

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