Several people have asked about my doctor’s appointment today. Although I do have gallstones, the surgeon does not think I should have my gallbladder removed. He said that I do not have classic gallbladder symptoms. Normally, the pain would be on the right side and vary depending on what I ate. My pain is sharp, constant, in the upper left quadrant. I can not sleep on my left side, back, or stomach. Right now, I am getting 3-4 hours of sleep a night.
So, watch and wait. Blood work tomorrow to make sure I don’t have pancreatitis. Could be pleurisy, but I have had it before and it always is made worse by inhaling. This pain is constant, deep. Could be inflammation, so I am also having my SED rate rechecked to see if it has gone up. As you might remember, under 20 in the norm. Last year, my SED rate climbed to 35 and then in December it jumped from 35 to 67. This is a sign of increasing inflammation, but where?
Doctor thinks I should have CT scan or MRI repeated again if pain doesn’t go away.
Only negative was having to listen to the doctor (surgeon) lecture me about my weight. I have never seen him before. He acted like he knew everything about me. He is a big believer in calories in/calories out determining a person’s weight. His ignorance reflects his age, 63. I said nothing and let him preach his sermon. He knew I had Fibromyalgia, osteoarthritis, and neurological problems, but, in his mind, I just needed to eat less. Never mind, he didn’t ask what I did eat. Had he done so, he would have found out that 90% of the time I don’t overeat. He thought my weight loss was wonderful. Never mind it is because I have no appetite. He could see my pants were falling off of me…but hey…no Big Mac and all will be well.
I am frustrated, tired, sick, angry, pissed off, depressed, and suicidal. I have those moments where I say to myself, no more. Maybe Polly would be better off collecting the insurance and finding herself a man that isn’t a physical wreck. She deserves better.
Since November 2014, I’ve had a CT scan, MRI, ultrasound, endoscopic ultrasound, biopsies of pancreas and lymph nodes, numerous blood tests, and five office visits. Cost? My insurance paid out $25,000 of which I (we) owed over $6,000. Just today, after my latest appointment, we stopped at 1st Source in Fort Wayne, to sign papers for a $5,000 personal loan. Parkview Hospital refused to help us with the bill and demanded we pay the bill off in no more than 12 payments. To avoid them ruining our credit, we took out a personal loan.
All this money and I am not one step closer to knowing what is wrong with me. Last week, the gastroenterologist called and said he wanted the endoscopic ultrasound redone in 6-9 months. Why? I thought my biopsies were benign?
I am not writing this to solicit medical advice, money, or sympathy. This is not a cry for help. No intervention is needed or desired. This is me grabbing the hair on my hairless head and screaming ____________________. (fill blank in with appropriate swear word)
What I have detailed above has been my life since 2007. I’ve had Fibromyaglia since 1997, but, in 2007, I started having neurological problems. Numbness in my thighs, face, and feet. Burning, searing pain if I walk for every long. I’ve lost motor function and muscle strength. I can no longer drive the car and must use a cane or wheelchair to get around. The doctors initially thought I had MS, but after $20,000 worth of brain scans and tests, the doctors said “inconclusive for MS.”
Since 2007, I have also had basal cell skin cancer removed from my nose, a cyst removed from my leg, and carpal tunnel surgery. Last weekend, I had a nasty fall and almost fell down a concrete abutment into a canal filled with water. Instead of falling backwards, I fell forward, spraining my ankle and causing a huge, bloody contusion on my leg. Polly was trying to help me up the abutment when all of a sudden she lost her grip and I fell. She ended up with bruised knees. But hey, I got some great photographs.
Why are you writing this, Bruce? Beats me. Feels good. Time to play some Rage Against the Machine.
Yes, I feel like dying. Yes, I feel like throwing in towel. Yes, I feel like taking a Doctor House dosage of drugs and calling it a day never to wake up again. But, I can’t. The Reds are 3-0 and in first place. Maybe this is the year. Polly and I have tickets for Sunday’s Reds vs. Cardinals game. I can’t feel any worse than I do now…well I don’t think I can anyway, so I am going to keeping doing what I can do. As long as the sun is shining, there is gas in the car, and money in the checkbook, I plan on getting out of the house, camera in hand.
Hey, I feel better. Thanks for listening.