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Tag: Chronic Illness

Living with Unrelenting Chronic Pain: Just Another Day in Paradise

Bruce Gerencser 8 Comments

pain-looks-good-on-other-people

I begin each day with pain. No matter how much medication I take, pain, from the bottom of my feet to the top of my head, is ever with me. There’s never a day when pain is not front and center, demanding attention. Afternoon turns to evening. Hopefully, I have felt strong enough to sit down in my office and write a few words for this blog. As I type this post, my hands remind me that osteoarthritis is my ever-present “friend.” Someday, I will push the keyboard away and say to the pain, “you win.” Not today, but no promise that tomorrow won’t be the end of my run. I fear what happens to me when I quit; when I say, “I have had enough.”

By the time the clock says 10:00 pm in the eastern time zone, my body says, “enough! I shan’t go any farther!” Two decades of struggling with fibromyalgia have taught me to recognize when it’s time to surrender for the day. “Wave the white flag, Bruce, and live for another day,” I tell myself. As I slump into my recliner, turn on Pardon the Interruption, and adjust the sound, tears come to my eyes. “Why live another day, knowing that tomorrow will be no different from today?” No matter how much I try to think happy thoughts and “put mind over matter,” reality reminds me that it is a bitch, a taskmaster with no concern for my suffering and pain. “Tough shit, Bruce. This is your life, deal with it.”

I hear the front door open. It’s Polly coming home from work. The clock strikes 2:30 am. We trade pleasantries, ask questions of one another, eat a snack, and finish the day off with The Daily Show. Now it’s time for the final act of the day, bedtime. I drag my pained, fatigued body to my side of the bed, plug my iPad into the wall charger, put on my Bluetooth headphones, and run one of the video streaming apps — usually Hulu. Of late, I am re-watching the Los Angeles police drama Southland. Polly touches me gently on my back and says, “good night.” I reply, “I love you.” Polly will quickly fall to sleep, but not me. Sleep for me will not come until pain and sleep medications do their work — that is, IF they do their work. Some nights, this process takes an hour. Other nights, it takes two, maybe three hours for sleep to win the victory.

And then, I do this all over again. There’s never a day without pain and fatigue. Never. I am not sure my family and friends understand this. Oh, they try, but for people who have not lived with never-ending, unrelenting chronic pain, there’s no frame of reference for them. How can someone “understand” that which they have not experienced? I photographed a local high school basketball game tonight — the first game of the season. As I entered the building, a school official said to me (and Bethany), “how are you folks doing tonight?” His voice rang with happiness and enthusiasm. He was what I call “chipper.” Before I could “think” of how I wanted to answer him, I blurted out, “do you really want to know?” His face told me that he was not expecting THAT answer. I quickly rescued him from the uncomfortableness of the moment. “Let me give you the standard human answer, “I’m fine. I am always fine!” And with that, I made my way to the gymnasium. Of course, I am not “fine.” I am sure some of you might be thinking, “Bruce, if you are not “fine,” why did you shoot the basketball game? “Why not stay home, rest, and take it easy?” Truth be told, it doesn’t matter where I am or what I do, I can’t escape the pain. Might as well try to do something I love to do than sit around and lose a few more brain cells watching TV. I know of only two “solutions” for my pain: death or pharmaceutical fog, neither of which I am willing to entertain. At least not today, anyway.

Knowing that the pain will never go away does give me a sense of certainty. I can’t escape the pain. All I can do is to choose what to do and where to go. Well-meaning people will say to me, “Bruce, I saw you at the store today. You must be feeling better!” “No, I am not feeling better. I feel like shit. My body feels like it has been hit by a truck — twice,” I have said to no one, ever. Instead, I pretend the well-wisher is oh-so perceptive. That’s the nature of the chronic pain game. Better to live a lie than burden (and bore) people with the truth. Rare is the person who really wants to know and understand how you are feeling. And that’s okay. I really don’t want to know about your hemorrhoids either.

Tomorrow begins the holiday season for the Gerencser family. Polly, along with our daughters, daughters-in-law, and granddaughters, will gather at our home to make pies — pumpkin, cherry, apple, and pecan — for Thanksgiving. If anything can temper my pain, it’s food, family, and football. If anything can give me a reason to punch the time clock for another day, it’s Polly, my children, and grandchildren. For them, I’m thankful.

Addendum:

The girls popped the first four pumpkins pies in the oven today and started cooking them. Fifteen minutes into the process, the power went out! We were without electricity for eight hours. We’ve had high winds today, and this led to an outage. Pie day was moved to our youngest daughter’s home. Just another story to add to Gerencser family Thanksgiving lore.

I hope you and yours have a wonderful Thanksgiving!

About Bruce Gerencser

Bruce Gerencser, 62, lives in rural Northwest Ohio with his wife of 41 years. He and his wife have six grown children and twelve grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

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Updated: Local Southern Baptist Pastor Steve Eyers Opposes Helping People Suffering From Chronic Pain

Bruce Gerencser 2 Comments
medical marijuana suffering new jersey
Cartoon by Drew Sheneman, featuring anti-marijuana crusader Chris Christie

Four years ago, the Village of Hicksville, Ohio banned the establishment of medical marijuana facilities within its borders. The Defiance Crescent-News reports:

On Monday evening the Hicksville Village Council passed an ordinance prohibiting the establishment and operation of medical marijuana facilities within the village limits.

This is in response to previous sessions in which the possibility of such facilities coming to town was addressed, although no definite plans had been revealed to council by any such entities. Council had received strong support against these facilities by Police Chief Mark Denning and pastor Steve Eyers; no one has spoken out in their favor at any recent council sessions.

In February 2019, the Hicksville village council held a hearing on the matter. The Crescent-News reported at the time:

Pastor Steve Eyers of Lifeline Connect Church stated he has done sizeable research on medical marijuana since the last meeting and believed the jury to still be out, with no solid documentation existing substantiating positive claims about such facilities; he did observe that medical marijuana is not on the “approved” list of the Food and Drug Administration.

Eyers suggested council speak to state lawmakers and those in other municipalities which have approved medical marijuana production facilities about the results of such places, noting, “Once you open the door it will be difficult to close.”

As readers will note, the main objector to medical marijuana was Steve Eyers, pastor of Lifeline Connect Church. At a previous council meeting, Eyers, a Fundamentalist Southern Baptist, used the “slippery slope” canard to argue against medical marijuana. In Eyers’ world, every perceived negative (sinful) behavior is a step farther down the slippery slope that leads to Hell. I am sure Eyers believes that marijuana is a gateway drug, and once people start toking mary jane they will soon be hooked on crack, cocaine, heroin, or other highly addictive drugs. Funny how Eyers’ “sizeable research” didn’t turn up any evidence to the contrary:

The “gateway hypothesis” or theory refers to the idea that one substance — marijuana, in this case — leads to subsequently use and/or abuse other drugs. If [Governor Chris] Christie’s point is simply that the use of marijuana tends to precede the use of other drugs, then he is correct — but that’s not the whole story.

Though studies of large populations of people have indeed found that those who smoke marijuana are more likely to use other drugs, these studies show a correlation without showing causation — a commonly misunderstood phenomenon in science. In short, just because marijuana smokers might be more likely to later use, say, cocaine, does not imply that using marijuana causes one to use cocaine.

A 1999 report from the Institute of Medicine, which is part of the National Academy of Sciences, laid out this issue clearly (see pages 100-101): “In the sense that marijuana use typically precedes rather than follows initiation into the use of other illicit drugs, it is indeed a gateway drug. However, it does not appear to be a gateway drug to the extent that it is the cause or even that it is the most significant predictor of serious drug abuse; that is, care must be taken not to attribute cause to association.”

We spoke with several experts and reviewed the available scientific literature on gateway theory. Christie’s definitive statement is unsupported by evidence — there is some evidence in favor of a gateway effect, but the scientific community shares no consensus on the issue and there is little evidence on the underlying cause of that effect. — Factcheck.org.

Evidently, the good pastor was absent the day his teacher covered correlation and causation in science class.

There is no question that medical marijuana can and does help with many medical maladies, including chronic pain. Numerous readers of this blog can testify to medical marijuana’s efficacy and how it has improved their quality of life. It is absurd to oppose any drug (or treatment) that will reduce pain and suffering. But, Bruce, people might get “addicted’ if they start using medical marijuana. So what? Should it matter that a drug is “addictive” IF it’s helpful? Shouldn’t the goal be reducing pain and improving quality of life? Besides, moral crusaders such as Eyers usually confuse addiction with dependency. Addicts misuse drugs, using them for the sole purpose of getting high. Most people who use medical marijuana (and opioids such as Hydrocodone and Oxycontin) are not addicts. They use the drugs as prescribed to relieve pain and improve the quality of their lives. Long-term users can become dependent on such drugs, but, again, why does that matter? I have been on narcotic pain management drugs for fifteen years. Does this make me an addict? Of course not. I take the medications as prescribed by my family doctor. I have taken a variety of pain relievers over the years, but I have not, one time, abused them. Using these drugs for long periods has certainly made me physically dependent on them. If I were to stop taking Hydrocodone, for example, I would go through withdrawal. And believe me, that’s not fun. Several years ago, I stopped taking Tramadol. I had been using Tramadol on and off for managing mild pain for over a decade. It took months of suffering to successfully wean myself off of the drug. The withdrawal symptoms were so severe that I had to sleep in the living room so my thrashing and crying wouldn’t keep my wife awake. Yes, I survived, but at no time was I addicted to Tramadol. Dependent, yes. Addicted, no.

Count me as one person who is fucking tired of moralizing preachers such as Steve Eyers. First, they are hypocrites. Why did Eyers decide to take a stand against medical marijuana and not the drugs that are widely abused by Hicksville residents, including nicotine, caffeine, alcohol, and religion? Alcohol, in particular, causes all sorts of physical and social problems. Yet, crusading preachers are eerily silent on the subject — outside of an occasional anti-booze sermon. Why is that? Second, they attempt to force their personal or sectarian moral codes on others. There are times I wish that the Steve Eyerses of the world would come down with a debilitating, painful disease; one where relief could only be found through using narcotics or marijuana. Then, and only then, would they understand why chronic pain sufferers need drugs. Of course, I wouldn’t actually wish that on anyone, but there’s nothing like first-hand experience for revealing ignorant beliefs.

If Eyers and others like him want to live in pain, have at it. Taken literally as a moral prescription for living, the Bible encourages enduring pain and suffering. Just pray to God and trust that Jesus will be with you every step of the way, right? No thanks. As a humanist, my goal is to reduce suffering and pain, not only for humans, but all living animals. The greater goal is happiness and well-being for all. While suffering and pain can and do teach us valuable lessons, only Evangelical/Catholic sadomasochists think pain is desirable or necessary. Of course, when you believe the world is a shit hole ruined by sin, that all humans are born sinners/haters of God, that life is to be endured until the rapture, and that the grand goal is eternal life in Heaven, it should come as no surprise, then, that you don’t put much emphasis on the here and now.

Medical marijuana sale and use is legal in Ohio, and there’s movement towards making all use of weed legal (it could be on the ballot this November), All praise be to Shiva. Sadly, some Republican state legislators — who are overwhelmingly Christians — and regulators have gone out of their way to impede the opening of medical marijuana growers, processors, and sellers. Just over the border in Michigan, marijuana use is legal and much cheaper than Ohio’s medical weed. Sellers abound. Further, here in the Land of God, Guns, and Republicans, most doctors refuse to write prescriptions for medical marijuana. The insane government war against opioids has scared the shit out of medical professionals — fearing the loss of their licenses — so they refuse to act in the best interest of their patients. Ohioans can go to one of the few doctors approved to write medical marijuana prescriptions, but this could cause them all sorts of problems with their primary care doctors — including the refusal to treat in the future. (Please see How the War on Opioids Hurts People With Chronic Pain, Please Stop the War on Chronic Pain Sufferers, Medical Marijuana and Relieving Pain and Suffering, How Fundamentalist Prohibitions Cause Needless Suffering and Pain,  and Understanding and Helping Those Who Live With Chronic Pain.)

Years ago, I helplessly watched a devout Evangelical man suffer horrific pain as he slowly died of bowel cancer. He refused to take pain medications because he believed Jesus was better than morphine; that his suffering had some sort of redemptive value. My late father-in-law often went without pain relief because he believed drug “addiction” (I tried to explain to him the difference between addiction and dependence to him, without success) was sinful. As a pastor, I watched countless dying congregants forgo narcotic pain management because they wanted to be clear-headed when they entered the pearly gates. They needlessly suffered, and for what? Remove God and the afterlife from the equation, and I suspect most people will say YES to anything that reduces their pain.

If Steve Eyers wants to suffer for Jesus, have at it. All that I ask is that he not stand in the way of other people getting the help they need. Jesus is called the Great Physician. The gospels detail many of the healing miracles the Son of God purportedly performed while walking the dusty roads of Palestine. Be like Jesus, Steve, Be like Jesus. If you can’t heal people, Steve, at least let the sick and hurting among you have access to people and drugs who can.

Pastor Eyers lost his battle against weed. Four years after his lies and distortions before the Hicksville Village Council, a new marijuana dispensary opened ten miles from his church in the village of Sherwood. Hicksville said no to the dispensary, as did the village I live in. Both Ney and Hicksville council members put their religious and personal beliefs before what was good for their communities. Tax money that could have helped fund local services went — dare I say it? — up in smoke.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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I Wish Christians Would be Honest About Jesus’ Three Day Weekend

Bruce Gerencser 8 Comments
pain and suffering

Kirsten Ryken, a writer for the Fundamentalist website The Gospel Coalition, recently wrote a post titled, Why I Thank God for Chronic Pain. Ryken’s article was part personal story and part justification for God allowing her to painfully suffer. Ryken concluded her post with this:

With the eye of faith, I saw Christ on the cross. God, in a human body, taking on physical pain far greater than my own. Thorns in his head, blood dripping down his face, nails in his hands and feet, love in his face. I felt his pain in my own body, the fire in my spine intensifying as I looked at him. But I also felt him holding me like a child.

I knew in my heart in that moment that nothing can separate me from the love of God in Christ Jesus (Rom. 8:39). I was completely overwhelmed with the knowledge that my God not only knows what’s wrong with my body even when no human doctor does, he also knows my physical pain more intimately than anyone else ever could. The loneliness of suffering and the frustration of not having answers were taken away in an instant. I felt a physical burden lifted from my body and my heart.

Until that moment, I had never understood the relevance of Christ’s death on the cross to the details of my daily life, my pains and my joys. It was only in the light of the cross that I could make sense of my own suffering. This reminder is the positive result of my pain. In moments when I feel overwhelmed, I remember Calvary. I thank God for the precious gift of my salvation, because on some (very small!) level I have begun to understand the cost of my salvation.

Chronic pain is a constant reminder that my life is not my own; it has been bought with a price.

The narrative Ryken spins is one often heard when Evangelicals try to explain pain and suffering: my suffering is next to nothing compared to the pain and agony Jesus suffered on the cross. In the minds of Christians such as Ryken, there’s no human suffering that can be compared to what Jesus faced on Calvary. This worn-out, tiresome trope gets repeated over and again by Evangelicals who never THINK about what they are actually saying. Jesus is the bad-ass suffering servant, Evangelicals would have us believe; but in fact Jesus’ suffering was minuscule compared to what countless people face every day.

Yes, Jesus was beaten and his beard was plucked from face. Yes, he was nailed to a Roman cross and suffered great indignity (that is assuming the gospel narratives are true). But how long did Jesus actually suffer? Days? Weeks? Months? Years? Nope. How about less than a day? Then he died, descended to hell and hung out with its inhabitants, and then he resurrected from the dead good as new save the nail prints in his hands and feet. Pray tell, based on what the inspired, inerrant, infallible Word of God says about Jesus’ suffering, how was his pain in any way worse than that which any human has ever experienced? By all means, compare Christ’s suffering to what children face when having radiation and chemotherapy treatments to eradicate cancer from their bodies. Go ahead, compare his suffering to that of people in burn units with third degree burns over most their bodies. Jesus may have faced intense levels of pain for a short amount of time, but how does his suffering compare to the pain of people who suffer with debilitating, chronic illnesses for years?

Jesus knew that his time of suffering would be short and sweet, and then he would die. Imagine a body wracked with pain day in and day out, years on end, with no relief in sight. I suspect such people might be willing to suffer what Jesus did if they knew afterward their bodies would be free from pain. I know I would. I would trade places in a heartbeat with the “suffering” Son of God if it meant come Sunday morning my body was no longer wracked with pain. And I suspect I am not alone in my blasphemy.

I don’t think for a moment that my short post will change Christian thinking on this subject. Ryken desperately needs a suffering Jesus to make sense of her own pain. Without Jesus, she is left with what? Shit happens? And to that I say “yes.” None of us is guaranteed a pain-free life. Genetics, environmental factors, personal choices, and yet-unknown factors go into what diseases we contract and what pain we suffer. The late Christopher Hitchens was right when he said in his book Mortality, ” . . . To the dumb question ‘Why me?’ the cosmos barely bothers to return the reply: Why not? . . .”  Why me, indeed.

Christians invoke the suffering Jesus because it covers up the fact they suffer just like the unwashed, uncircumcised Philistines of the world, and that their God, much like the cosmos, yawns with indifference. Jesus, then, becomes the hospice nurse who holds their hands as they face cruelties, indignities, and sufferings beyond imagination. Jesus has promised Christians that he will never leave or forsake them, and he will never allow them to suffer more than they are able. Thus, whatever pain and suffering comes their way, God means it for their good, either to chastise them or teach them a lesson. If Christians will but endure what comes their way, words in an ancient religious text promise that they will be given pain-free bodies after death. Better to think this, many Evangelicals say, than to believe we live in a cold, heartless universe. Why, such a belief leads to despair! Christians say. To that, I reply, maybe for you it does, but it doesn’t have to.

I find comfort in the fact that shit happens, and chronic illness and intractable pain afflict rich and poor, young and old, religious or not. I know that I am not special, and that countless other people are going through pain and suffering as bad as mine and worse. I am not owed a pain-free existence. I have been given life — just one — and it is incumbent upon me to live life to its fullest. I embrace my suffering, not looking to a mythical deity for inspiration or help. I find comfort in the fact that my wife, children, and friends deeply care about me and do what they can to lessen my pain. And I try to do the same when dealing with others who are facing troubles and trials, physical or not. Is there any more any of us can do for each other?  A kind word, a thoughtful action, a tender embrace, these are enough. It is humanism, with its goal of lessening suffering, that shines the brightest. Christianity says endure, promising a divine payoff in the sweet by-and-by. Humanism says we only have one life, let’s do all we can to lessen pain and suffering. Christianity says pain and suffering have a higher purpose, be it correction or testing. Humanism says alleviating pain allows people to live happy lives, and in this cold universe of ours, that’s the best any of us can expect. Despite my pain, or perhaps because of it, I choose Humanism.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Connect with me on social media:

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Learning to Live With Chronic Pain When You Know It’s Never Going Away

Bruce Gerencser 14 Comments
suck it up garfield

The war against chronic pain sufferers continues unabated as they face being collateral damage in the government’s attempt to combat the opioid crisis. Numerous restrictions — almost all of them unnecessary or harmful — have been enacted in the hope that they will stem the illegal use of narcotic drugs. Unfortunately, the only result of these restrictions is to make it harder for chronic pain sufferers to get the medications they need. Just this past weekend, my Hydrocodone fill date fell on Easter Sunday. Thanks to new regulations, the prescription cannot be refilled sooner than one day before it was last filled (and within a fourteen-day window from the may fill date written on the script). In years past, I would have several weeks of Hydrocodone in reserve, just in case I didn’t get the prescription filled in a timely fashion. Not anymore; not filling the prescription on its fill date could leave me without medication. Fortunately, Meijer’s pharmacy was open for a short time on Easter and I was able to refill my prescription.

Last month, I took the script for my Tramadol prescription to the pharmacy to be filled, just to find out that the doctor had written the wrong date on the script — beyond the fourteen-day refill window. The pharmacy refused to call my doctor, telling me that I would have to get a new script. I was unaware that Tramadol was being treated the same way as Hydrocodone. Had I known this, I would have paid closer attention to the date on the script. Fortunately, I had enough Tramadol to last me until my upcoming doctor’s appointment.

Today, I read an article on The Outline titled, Is Chronic Pain Something More People Should Accept?  The article states:

Research dating back more than a decade suggests  that people with chronic pain may be able to improve their quality of life if they stop trying to avoid or get rid of their pain and instead learn to live as well as they can as the pain persists, a concept referred to in clinical settings as pain acceptance. Some psychologists and psychiatrists believe that pain acceptance might even help counteract opioid abuse in the United States, a problem so severe that it has contributed to a decline in American life expectancy. The idea that pain acceptance might serve as an effective alternative to opioids is an emerging area of research and not something that has been definitively established. As the idea attracts attention in the world of pain management and in the media, it has also generated controversy.

An estimated five to eight million Americans take opioids to manage long-term chronic pain, and the number of people in the U.S. who have died from overdosing on opioids — a class of drugs that includes prescription painkillers like oxycodone and illicit substances like heroin — has risen dramatically in recent years. In 2016, prescription opioids were involved in roughly 40 percent of opioid overdose deaths, according to the U.S. Department of Health and Human Services. There are plenty of people who don’t become addicted to prescription opioids, but taking them involves serious risks, from adverse side effects to the potential for dependence. A backlash against the drugs, from state laws limiting access to federal guidelines warning of their risks, has sent doctors searching for alternative treatments. In the midst of the crisis, some pain and addiction researchers are interested in determining whether pain acceptance could help people cut back on opioids.

Several studies have raised the possibility that people who are less accepting of pain may be more likely to become dependent on painkillers. A 2015 article in the journal Drug and Alcohol Dependence found that people who were better able to live with pain without attempting to reduce or avoid it had less severe problems with opioids. The study reported that pain intensity itself was not significantly associated with the severity of problematic opioid use. That led the authors to conclude that the extent to which a person accepts and adapts to pain, or doesn’t, may be “more important as a risk factor for the misuse of prescription opioids or heroin than is the actual severity of pain.”

In September 2017, an article in the Clinical Journal of Pain found that people who were more accepting of chronic pain used less pain medication, including opioids, regardless of the severity of their pain. “We think that’s a good indicator that increasing pain acceptance in people with chronic pain might reduce their reliance on pain medication,” said Dr. Anna Kratz, an assistant professor of physical medicine and rehabilitation at the University of Michigan who helped carry out the study. “They might turn less to medications on a day-to-day basis if they have more pain acceptance.”

….

It may not be surprising that people with chronic pain don’t necessarily like the idea of accepting it. When researchers at the University of New Brunswick asked women with chronic pain from arthritis and fibromyalgia what they thought about pain acceptance, many had a negative reaction. Most of the women associated acceptance with “giving up or giving in to their pain,” the researchers wrote in the journal Pain Research and Management in 2008. But many of the women had learned to live with their pain in a way that roughly aligned with the concept of pain acceptance: They were determined to live as well as they could despite their conditions. Rather than describing that as acceptance, the women preferred to use words like “embracing,” “coming to terms with” or “dealing” with their pain.

There’s no one way that people learn to accept and live with chronic pain. What works for one person might not work for another. But some individuals participate in a form of therapy called acceptance and commitment therapy — commonly referred to as ACT. Developed in the 1980s and 1990s, acceptance and commitment therapy emerged out of the tradition of cognitive behavioral therapy. In contrast to traditional cognitive therapy, acceptance and commitment therapy asks people to accept thoughts, feelings, memories, and bodily sensations that are beyond their control, rather than attempt to change or get rid of them. The therapy then encourages people with chronic pain to take part in activities that add value and meaning to their lives, even as pain persists.

….

In other words, people with unrelenting chronic pain just need to suck it up and embrace the fact that their pain is never, ever going away. The false assumption here is that chronic pain sufferers are not already doing this. They are, and reaching out to a broader pool of pain sufferers would have revealed this to the article’s author, Clare Foran. While a tip of the hat is given to the idea that the goal should be pain elimination, the gist of the article is the importance of chronic pain sufferers doing their part to combat the opioid crisis. Again, it is people who are on pain management regimens that are being singled out and expected to forgo needed pain meds, not because this would be better for them, but in doing so they give the appearance that something concrete is being done about the opioid crisis.

Most of the chronic pain sufferers I know are already “living” with their pain.” They have been sucking it up for so long that they have concave chests. Here’s a grossly under-reported fact: narcotic drugs, when taken as prescribed, do NOT take pain away. What these drugs are meant to do is level out what are called pain spikes. When this occurs, chronic pain suffers achieve a certain quality of life, often allowing them to work and do other things they would not be able to do without taking narcotic prescription drugs. Without taking them, life is unbearable, leading to depression and, at times, suicide.

I was diagnosed with Fibromyalgia in 1997. Since then, my health has deteriorated ever-so-slowly. As I have aged, osteoarthritis has spread from joint to joint, and today it’s found in my spine, shoulders, neck, hands, knees, and feet — pretty much everywhere. And then there’s a neurological problem that causes burning pain in my thighs, face, and lower back. There’s not a day or an hour that goes by where I don’t feel pain somewhere from the top of my head to the bottom of my feet. I take narcotics, then, so I can have some semblance of a life. Without these drugs (and others), I would not be able to write, shoot photographs, or attend my grandchildren’s sporting events. It’s the drugs that level off the pain highs so I can do these things, even though I know there is a price to pay for doing so. You see, all narcotics do is mask (reduce) pain. The underlying diseases are there, and, in my case, they are exacerbated when I do anything more than lie in bed and wish I could die. I know that doing physically active things aggravates my joints, nerve endings, and muscles. I ignore this outcome because taking photographs, going out on the town with my girlfriend, or attending a sixth-grade softball game are more important to me. I want to do these things, knowing that by doing so I will pay what I call “the price of admission.” The days after attending such events are, on a pain scale of 1 to 10, off the charts. All I can do is pray to Zeus, curl up in my recliner, and cry my way to a better day. On these kinds of days, narcotics do not give the advertised relief. They help, but not enough to allow me to do much of anything. I have to wait until pain levels reach “normal” levels.

Earlier this year, I agreed to take photographs for the local high school’s spring sporting events. I did the same for winter sports. The difference between shooting a basketball game and photographing a softball game is that for the former, I can sit, but for baseball and softball games I must stand.  And standing for longer than fifteen minutes is a big problem for me. If you have ever seen me walking through one of the local stores you’ve likely noticed that I am often hunched over the shopping cart (pride keeps me from using a battery-powered scooter). After about fifteen minutes of walking, my thighs and face turn numb and begin to burn. Hunching over the cart, brings some relief. In 2007, when this problem first appeared, I had an extensive neurological workup — $20k worth of tests. Doctors thought, at the time, that I had Multiple Sclerosis (MS). The tests came back negative or inconclusive. I have had three brain scans since then, but still no definitive signs of MS. So, for now, I live with the effects of an unnamed affliction (not that naming it would make a difference). Personally, I think the numbness and burning is related to my lower back and a narrow disc space I have had for twenty-five years.

Standing, of course, is impossible to avoid if I want to be a photographer, grandfather, or a living, breathing human being. So, I stand, and when the numbness and burning pain screams in my ears, I put a mental stick in my mouth, bite down, and bear it. I’ve done this countless times over the years, knowing that if I do this or that the pain — narcotics or not – is going to come in waves with no possible relief, save death. I wonder if the twenty-eight-year-old Clare Foran has ever experienced pain such as this? I doubt it. Had she experienced it, I suspect she wouldn’t have been so quick to preach the gospel of suck-it-up.

I wrote the above to say this: I have been “sucking it up” for two decades. I have made peace with the fact that my pain problem will be with me until I die. And I am fine with that. I am quite stoic about life. It is what it is. I accept that life for me means living with chronic pain and illness. There are no cures on the horizon, no magic drugs that will make life’s boo-boos go away. All that I ask is that the government and so-called experts quit fucking around with my pain management regimen. I am not an addict. I don’t abuse the narcotics I take, nor do I use illegal drugs. Am I drug dependent? Sure. How could I not be after a decade of taking narcotics. But dependency is not the problem, addiction is. I am dependent on blood pressure drugs too. Should I just suck it up and live with high blood pressure? Of course not. These drugs have likely added years to my life, as has taking narcotics. Without pain medication, I would have long ago put an end to my suffering. With the drugs, I am able to carve out a decent life for myself, not without pain, but with pain that is, on most days, manageable. I don’t expect doctors to fix what can’t be fixed. All I ask of them is that they do what they can to improve my quality of life. And for now, quality of life requires narcotics, along with anti-inflammatory drugs.

For those who say, just suck it up, I say, walk in my shoes and then we will talk. Until then, talk to the hand. Until you have experienced and lived with long-term, unrelenting pain, there’s really no frame of reference for you to understand how it is for chronic pain sufferers. And I hope you never have to experience such a life. I wouldn’t wish this on anyone. I don’t want pity, and I sure as hell don’t want lectures about what’s “best” for me (as a pharmacist and an optometrist once tried to do). I have a primary care doctor whom I trust to do what is best for me. I also have specialists I can see, if needed. I am in good hands, even if there are days when I can hardly bear to have those hands touch me. I will soon be sixty-one-years old. I know most of my life is now in the rear-view mirror. All I want now is to live what life I have left to its fullest, hoping that I see the Cincinnati Reds win the World Series before I die. Well, that and see my grandchildren graduate from college. I can then go to the happy hunting grounds in peace.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Living with Chronic Pain and Disability: “It’s Not Too Far Away, You Can Walk it”

Bruce Gerencser 14 Comments

girls high school basketball february 24 2918What follows is a letter I wrote  several days ago to the athletic director at Miller City High School and the Ohio High School Athletic Association (OHSAA):

February 27, 2018

Dear Deb,

Today, I attended the Fairview vs. Spencerville High School Tournament basketball game. I arrived at the venue seventy-five minutes before the doors opened. I asked the parking lot attendant to point me to the handicapped parking spaces nearest the gymnasium. He had me park in the handicapped spots in front of the main entrance. Indeed, this allowed me a short, easy path to my seat.

After the game, attendees were required to exit via the doors opposite of where I entered. When I realized that this path was going to take me away from where I was parked, I asked a man handling crowd control to tell me the best way to get to where I was parked. I told him exactly where I was parked. Instead of allowing me (or anyone else who parked in the front handicapped spaces) short, easy access to my parking space, he told me I had to exit the far side of the building. He then said, and I quote, “it’s not too far away, you can walk it.”

First, how did he know what “not to far away” was for me? There was a reason I parked where I did, and I expected to be able to return to my vehicle via the same path I entered the venue. Second, how did he know I could walk it? Did he have magic powers that enabled him to divine my handicap and physical abilities? Not wanting to press the matter further, I walked the long hallway to the far exit and exited the building. I then had to walk around the building to the front where my car was parked. Needless to say, I was exhausted by the time I reached my vehicle.

I am writing this letter to make you aware of this issue, asking that you please address my concerns with the relevant people. In the future, if people parking in handicapped spaces are expected to exit the far side of the building, then the parking spaces should be on that side. If the parking spaces remain at the front of building, then handicapped attendees parking in them should be able to exit the venue the same way they entered.

Thank you for taking the time to read my letter.

Bruce Gerencser
345 East Main Street
Ney, Ohio 43549

I received a prompt reply from Miller City’s athletic director. She assured me the matter would be looked into and changes made so handicapped people don’t face this or similar problems in the future. I appreciated Deb’s thoughtful reply. As of the writing of this post, I have not heard back from the OHSAA.

I am a professional photographer. During the winter months, I attend local high school basketball games. I take numerous photographs, sharing them with the players and their families on Facebook. On a few occasions, I have even made a few bucks off my work. I thoroughly enjoy watching high school sports (both boys’ and girls’), so attending the games and photographing them provides a brief respite for me as I struggle with chronic pain and disability.

This past season, I attended thirty or so games. It’s tournament time now, so opportunities to see local teams play are becoming fewer and fewer. I have grandchildren in the Tinora and Stryker school districts, and my oldest granddaughter plays for Stryker, so I try to attend as many Tinora and Stryker games as I can. I live in the Fairview school district, so I try to attend their games as well. During the latest holiday season, I donned my red stocking hat as I attended games, leading to countless adults calling me Santa Claus, and more than a few children wondering if I was the “real” Santa. (Seriously, if I was Santa Claus, would I be spending winters in Ohio? Not a chance!) Bit by bit, high school players I have photographed have struck up conversations with me. I have learned much about high schoolers through these conversations. Attending games gives me opportunities to get out of the house, even when I don’t want to. As people with chronic pain and illness will tell you, they have to battle the tendency to want to curl up in a corner and be left alone. In my case, I know it’s good for me to be out and about, even if it causes my pain levels to rise.

In 1997, I was diagnosed with Fibromyalgia. Since then, the list of my afflictions continues to grow. I daily battle unrelenting chronic pain from the top of my head to the bottom of my feet. Over the weekend, I was sitting in my recliner watching TV with lover, friend, and caretaker, AKA Polly. All of a sudden, my left foot felt like it had been repeatedly hit with a hammer. My toe, if you can imagine this, was pulled back to about the ten o’clock position. For thirty or so minutes my foot throbbed with pain. I tried to walk, but I couldn’t. Finally, the pain subsided, the tears dried, and I returned to watching TV. Just another day in the life of a chronic pain sufferer. You never know what you’ll face on any given day.

I also have osteoarthritis in my neck, hands, hips, shoulders, upper back, lower back, knees, and feet. In other words, Uncle Arthur is my constant companion. Throw in high blood pressure, diabetes, incontinence, and bowel problems . . . well, life is grand. It is what it is. I embrace every day as it comes, grateful that I am still among the living.

When I attend public events such as the aforementioned basketball game, I plan my day carefully. I always arrive at least an hour early. This allows me to get parking close to the entrance, and it helps me avoid dealing with rude and inconsiderate people as they push and shove their way towards their seats. Arriving early also allows me to find seating that accommodates my handicap. At basketball games, I prefer to sit on the first row at floor level. I haltingly walk with a cane, so it is best for all involved that I don’t attempt to walk up or down bleachers. I have fallen on more than a few occasions. I suspect if three-hundred-and-fifty-pound Bruce Gerencser landed on someone it would cause serious harm. I do all I can to avoid contact with others.

Seating, of course, is not my only concern. I also have to contend with access to concession stands and bathrooms. I try to go to the concession stand when there are not a lot of people in line. Bathrooms provide a unique and, at times, harrowing experience. Public school bathrooms are supposed to be ADA compliant, but older schools are not required to follow the code. On several occasions I have had to back into stalls, shut the door, and then turn around just be pee. Zeus help me if my bladder is screaming, Gotta go NOW! Accidents happen, and all I can do is hope that no one notices the dark wet stain on my blue jeans. And going #2, as my grandchildren say? I avoid that like the plague. Everything from small stalls, cheap single-ply toilet paper, and my suspenders coming loose, conspire to make taking a dump — another euphemism for defecation which my grandchildren use — a nightmare.

I write all this to give some context as to why someone saying to me, “It’s Not Too Far Away, You Can Walk it” is a big deal. The last thing I need is for someone to dismiss my disability — even if the person does so innocently — because he was in a hurry, or just following the “rules.” I have learned that the only way for disabled people to be heard is for them to shout loudly above the noise of the crowd. In my case, shouting loudly means writing letters, emails, or blog posts. By doing so, I hope that people will be educated about the difficulties the disabled face when attending public events.

How NOT to Talk to Someone With Chronic Pain or Debilitating Illness

Bruce Gerencser 28 Comments

new pain schedule

Several days ago, I received an unsigned letter from a sixty-four year old atheist woman. After reading my member introduction in the September 2017 Freedom From Religion Foundation newsletter, Freethought Today,  and rooting through my blog looking for personal health information, this woman decided to send me a typed two-page letter detailing her uneducated, ill-founded opinion of my weight and health, along with numerous paragraphs detailing what I should do to regain the Bruce of the 1970s.  At the end of her deconstruction of my physical being, she spent thirty-eight words complimenting me on my beard and thanking me for my story in the newsletter.

I sat on this letter for several days, waiting for my anger to calm before answering it. Yesterday, I talked to my counselor about the letter and why it is that people who don’t know me and don’t know my health background think it is appropriate to send me letters such as this one. It would be one thing if someone who was close to me talked to me about this or that health matter, but even then, no one, not even my wife, knows the depth and complexities of my health problems. People only know what I tell them, and trust me, there is a lot I don’t talk about. That I am willing to talk about my struggles with chronic pain and debilitating illness at all is deemed by zealots and nuts as an opening for them to preach their gospel — complete with shaming me for “sin” and using my children and grandchildren as bait to attract me to their particular way of life or “cure.”

I have received numerous letters from people offering unsolicited medical and lifestyle advice. Over the years, I have been told that the following will “cure” me or transform my pain and illness to a mere afterthought: essential oils, chiropractic care, magnets, acupuncture, reiki massage, homeopathic remedies, meditation, getting my chakras aligned, drinking magical shakes, and taking this or that supplement — more times than I can count. According to many of the people offering advice, Western medicine is evil, drug companies are out to kill me, and medical professionals are deliberately withholding care and treatment  that would cure me because they want to make money off my pain and health.

My latest letter writer takes a more simplistic approach, albeit she is every bit as ignorant of the latest science related to my health as the purveyors of the woo mentioned above. She contends that if I would just exercise more, lessen calorie intake, and not drink soda pop my life would be transformed. She assumes, of course, that I am NOT already doing these things, choosing instead to look at my photograph, seeing that I am fat/overweight/obese, and conclude that I am not following her prescription for having a born-again experience. The letter writer assumes that what worked for her will work for everyone else. She ignores the fact that human bodies are complex and what may work for one person won’t work for others.. She also ignores genetic and environmental factors, choosing instead to focus on my body size. In many ways, she is much like Evangelicals who attempt to deconstruct my life, refusing to allow me to tell my own story. Instead she takes her atheistic religious health experiences and uses them as a standard by which to judge me.

Simply put, the letter writer is not in the position to make ANY judgments about my health or offer ANY advice as to proper treatment. I have a primary care doctor, along with medical specialists who provide me necessary and adequate care. I am satisfied with their care, knowing that the health problems I have, for the most part, cannot be cured. All my doctors can do for me is try to improve my quality of life and lessen my pain. I have told my primary care doctor several times that I don’t expect him to fix what can’t be fixed. I have accepted that this is my life — live with it, Bruce! I know that my health problems began when I was a slim, trim athletic fourteen-year-old teen. Genetics, exposure to dangerous chemicals that landed me in the emergency room, and communicable diseases set the stage for how things are for me today. A near-death experience with mononucleosis in 1991 and two bouts with pneumonia left my immune system wrecked beyond repair. The letter writer understood none of these things, choosing instead to just see a fat guy who, she thinks, eats too much.

The letter writer is offended by my stoic, matter-of-fact approach to my life and health. I was diagnosed with Fibromyalgia twenty years ago, and with neurological problems in 2007. For a time, doctors thought I might have multiple sclerosis. The symptoms fit, but the tests, so far, are inconclusive. Over the past two decades, osteoarthritis has slowly marched its way through my skeletal system. A visit to an orthopedic specialist last year revealed osteoarthritis in my hands, knees, feet, lower spine, neck, and shoulders. In other words — everywhere. The combination of these three diseases (and joint injuries) has left me disabled — another word the letter writer hates. Tough shit. That’s what I am: d-i-s-a-b-l-e-d.  Most days, I walk with a cane, steadying myself so I don’t fall and break something. Sometimes, I use a wheelchair — a sign to the letter writer that I am giving up. (Want to guess how many times I wanted to say go fuck yourself as I read her letter? You will need all your fingers and toes.)

The letter writer spends most of her sermon preaching about my weight. Evidently, she doesn’t care for fat people, nor does she understand that body shaming is no longer considered acceptable conduct in polite company. Friends accept people as they are. I know I would never, ever write someone a letter like the one this woman wrote to me. Perhaps she thinks that because she is in her sixties, she has earned the right to say whatever she wants. I want to give her the benefit of the doubt, but it is hard to do so when I view her letter as a personal attack — an assault on who and what I am.

The letter writer reveals that she really doesn’t understand current scientific evidence about body weight and weight loss. She wrongly says that weight loss is as simple as reducing caloric intake. This thinking is patently false, and can, at times, be dangerous or even life-threatening. She also assumes that I don’t manage caloric intake and eat healthily. I do, about ninety-five percent of the time. Since last November, I have lost forty pounds. Massive bowel movements? Fluid loss? I don’t really care. I try to eat healthily, and when I do not, I don’t lose one moment of sleep over it. Life is too short. If eating ice cream is going to be the end of me, so be it. Praise Jesus, I will leave this life with the sweet taste of rocky road ice cream on my lips!

The letter writer tells me in capital letters, DO NOT EAT IN RESTAURANTS. This must be one of her religion’s commandments, and if it is, NO THANK YOU. Polly and I spent the first twenty-five years of marriage rarely eating out. We couldn’t afford it. Now we can, and me and the Mrs. plan on enjoying as much good food (and wine) as we possibly can. At home, my wife is a first-rate gourmet cook. She has the pans, knives, oven and cookbooks to prove it. Only food zealots would have a problem with what we eat.

The letter writer also shows a lack of understanding about pain and how narcotics work — wrongly believing that narcotics make pain go away. Sorry, but that’s not how it works. Massive amounts of narcotics might take pain away, but they also render people unable to do much of anything but sleep. I have been on a pain management regimen for twelve years. The goal is to break the pain cycle so I can have a better quality of life. Pain levels, rise and fall, but the pain never goes away. I haven’t had a pain-free day in years.

The letter writer tells me that a pain-free life is overrated, that I shouldn’t take narcotics (take aspirin or ibuprofen instead), and that since I AM taking narcotics I shouldn’t need to use a cane or wheelchair. According to her, if I would just lose weight, exercise more, all would be well and I would no longer have to use my cane or wheelchair. Calling my pain medications a crutch, she implores me to let pain have its way with me. This woman has serious health problems herself, including a major bout with cancer. I wonder how she might have felt had I come into the room after her surgery and told her what she had told me about pain. No need for morphine! Own your pain! Just take Aleve!

I am of the opinion that there is little value in ignoring pain or embracing it because there is some sort of nobility gained from not taking pain medications. Sorry, but I choose to live as pain-free of a life as possible. I choose to embrace my pain, but I am sure as hell not going to let it ruin my life by reducing me to an old man curled up in a fetal position wishing he could die. By properly managing my pain (and other aspects of my health), I have the ability most days to do the things I want to do. Some days, the pain meds simply don’t work. On such days, I endure, knowing that surely better days lie ahead. And if they don’t? Then I will embrace the present as my new normal.

you can do it

Finally, the letter writer should have plumbed the depths of my personality before sending her sermon my way. Had she done so, she would not have taken the motivational YOU CAN DO IT, OH YES YOU CAN approach. I loathe such approaches to life, and when someone tries to “motivate” me this way, their attempt always fails. I am a rationalist who approaches life in a matter-of-fact way. I don’t need anyone to cheer me on. I am quite capable of determining for myself what I need to do, and then doing it. And if I do ever need a bit of Richard Simmons-like motivation, I look to my wife, children, and grandchildren for reasons to get up in the morning and keep moving. I drove my ex-daughter-in-law crazy (as did her husband) because I wasn’t happy as a seal with a ball at parties and family events. I tend to be quite reserved emotionally, choosing to show my gratitude or praise with words such as fine, that’s good, good job, thank you, or I appreciate it. I don’t get all wide-eyed and slap-happy. People who know me understand that when I say something is fine, that is a high praise coming from me (except when I say fine when answering, How are you doing? Then, I am usually lying). I, for one, am quite tired of being treated as if there is something wrong with me if I don’t have excitable emotional outbursts when expressing my approval of people or events. Who decided that being all jacked up on Mountain Dew is the only proper way to respond to things?  (Please read Bright-sided: How Positive Thinking is Undermining America by Barbara Ehrenreich.) Fuck that. I am who I am, and I am quite happy with being the one and only Bruce Gerencser on planet earth. Woo! Hoo! Ain’t I a special snowflake!

Let me be clear, when it comes to my health and the medical treatment I receive, please keep your thoughts, opinions, sermons, and dogma to yourself. You may have stayed in a Holiday Inn, but you are not my doctor. I’m fine with close friends or family members sending me links and asking me if I have read this or that report or study. Most often, since I am an INFORMED sufferer of chronic pain and debilitating illness, I have already read the report/study. I appreciate that they genuinely care about me and hope that something will come along and improve my lot in life (money, lots of money – that will work). For everyone else? Please don’t. Don’t email me, don’t write me letters, and don’t post on my Facebook wall whatever it is you think will transform my life. Chances are it won’t, or I have already tried it without success. Love me as I am and when you hear of my demise, be it today, tomorrow, or ten years from now, I hope you will remember me for the good I have done. Like everyone else, I want acceptance and respect from others. This letter writer demonstrated neither.

About Bruce Gerencser

Bruce Gerencser, 60, lives in rural Northwest Ohio with his wife of 39 years. He and his wife have six grown children and eleven grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

Bruce is a local photography business owner, operating Defiance County Photo out of his home. If you live in Northwest Ohio and would like to hire Bruce, please email him.

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Better to Try and Fail Than Not Try at All?

Bruce Gerencser 15 Comments

failure-homer-simpson

People who suffer with chronic illnesses are often accused of giving up or giving in. Irrational hyper-optimism has so infected the American psyche, that those who embrace their lives as they are often are looked down upon. Put mind over matter; never give in; be pro-active, always hope for a better tomorrow; these and other cheap clichés are often recited to the chronically ill, implying that their illnesses are somehow their own fault. If they would just take this drug, have this treatment, or see this doctor, then all would be well. An unwillingness to do these things is often viewed as laziness or giving in. Often, people take their own experiences and project them onto others, thinking that their outcomes would be the same for everyone if they would just follow the same course of treatment. People who think in this manner can often oppress and hurt chronic-illness sufferers, even when they don’t intend to do so. A recent health-related dust-up on social media has left me wondering if I should continue to write about my health problems and my battle with chronic pain. While I find writing about these things to be psychologically and physically helpful, sometimes the responses from readers can undo any of the health benefits gained from the writing.

I’ve repeatedly been told that I need to keep trying; that it is better to try and fail than not try at all. While I am sure people who say this to me mean well, I wonder if they have ever considered how such cheerleading can actually hurt those who are struggling just to make it to another day. I was diagnosed with Fibromyalgia 18 years ago. Since then, the laundry list of health problems I have has continued to grow. No matter how many doctors I see, how many tests I have, or how many different drugs I try, I still wake up every morning in pain. I know that there is no cure on the horizon. No magic potion is going to undo the damage done by two decades of fighting with the medical equivalent Mohammed Ali.

I have moments when I pretend that I can ignore my body and do what I want. Thanks to a decade of medical treatment, we are swimming in medical debt. Because of changes in our medical insurance, twenty-five to thirty percent of our income is spent on medical bills — mostly mine. I find it almost unbearable to watch Polly walk out the door every day, knowing that 25% of that day’s earnings will go towards my medical expenses.

Recently, I once again ignored reality and decided that I would get a job so I could help pay the medical bills. I need employment that will allow me to sit while I work and take frequent breaks. Showing up for an interview in a wheelchair or haltingly walking with a cane usually results in the interviewer telling me, thanks for applying. We will keep your application on file. So, as I did recently with an interview with Meijer, I pretended that I am not a cripple. And just like that they offered me a job. Would they have offered me the job if I was in a wheelchair or walk with a cane? I doubt it. I’m sure if I told them that I have arthritis of the spine and can only stand for 15 or so minutes at a time, they would have politely told me that they had no job for me. Yes, the law says employers must accommodate the handicapped, but in the real world a 60-year-old cripple has little chance of winning a job over a healthy 25-year-old. Discrimination against the handicapped and older prospective employees happens without employers ever saying a word. I try to remember back when I was young man responsible for hiring employees for the various companies I worked for. Young and able-bodied were always preferable to old and crippled. In the case of Meijer, they are so desperate for workers, that they were willing to hire a broken-down old man such as I. As my orientation day drew near, Polly and I had a heart-to-heart talk about whether I could really do this job. Mentally, I told myself, sure, I can do this. But, knowing that I can’t stand for longer than 15 minutes at a time means that it’s impossible for me to work the floor or run a cash register at Meijer. Polly, who knows better than anyone (including myself) what I can and can’t do finally persuaded me to not take the job. As is often the case when it comes to my health, she has a lot more sense than I do. I can deceive myself into thinking that I can do something, when Polly knows I can’t. This is not me giving up or giving in as much as it is accepting things as they are.

After turning down Meijer, I decided to try my hand at a work-from-home job with Amazon. I entered training with grand ambition, thinking that I had finally found something that I could do. Amazon’s training was quite extensive and grueling, yet I passed all the exams and was in the top five percent of my class of 650. Based on several conference calls with other new hires and management, I determined I was by far the oldest man in my group. Most of the new hires were in their twenties and thirties, as were many of the members of management.

Encouraged by Polly and my counselor, I continued to slog through the training even though I was worried about remembering everything I had learned. Both of them told me they were sure I could do the job.  After completing the  training, I was deemed a newly-minted customer service representative — ready to start taking live calls. I thought, I know I can do this. A part of me knew better, but all I could think of was our increasing debt, so I pushed my better judgment aside and answered my first call. The call started well — a man wanting to know why his order hadn’t been delivered — and then what I feared would happen, did. I couldn’t remember what I needed to do next. My mind literally froze — covered with a pain-laden, fatigued cloud. The customer became frustrated with me and hung up. After emotionally regrouping from my failure,  I took another call only to have continued cognitive problems. I could not remember what I needed to do. This customer, instead of hanging up on me started screaming, so much so that I hung up on her. After this call, I mentally collapsed, knowing that I was unable to do what the job required. Several days later, Amazon and I agreed that it was best if I resigned, and so I did.

The Amazon catastrophe has caused great psychological damage and pain. Pushed to the very edge of the abyss, my thoughts turned to suicide. While the suicidal thoughts faded after a couple of days, the assault on my mind remains the same. It’s hard not to feel worthless, that I am little more than a burden on my wife and family. They will certainly tell me that I am not, but it’s hard not to think that I am. This is usually the point where well-meaning people interject one of their cheap clichés about making lemonade when life gives you lemons. I am always polite when people say one of their Oprah-like maxims, but there are days when I want to tell them, until you’ve walked in my shoes, shut the fuck up.

If you’ve noticed in recent months that the volume of my writing has diminished, now you know why. Things are better than they were a month ago, but I’m far from being ready to tackle another job opportunity. I do have thoughts of trying to make some money using my photography skills. In particular, I am considering starting a real estate photography business. Several of my children have recently bought homes, and the common denominator with all the homes they looked at was that the property photographs were terrible. I mean a-w-f-u-l. I plan to send out letters to local realtors offering to do their property photography. Several years ago, I applied for such a job with a local realtor only to be told by her that I was so overqualified that she didn’t believe I would keep the job for long. I tried to explain to her that she need not worry about that, but her mind was made up.

I hope this new business venture will prove to be viable and profitable. If it’s not, we will be forced  to make some serious cuts in our budget. Hoping for a better day doesn’t change the fact that there are bills to pay. It used to be that it was easy to work out payment plans for medical debt, but now the physicians group my doctors are a part of will only make a payment arrangements for up to 12 months. After that, they demand you borrow the money to pay the debt. Last year, we had to borrow $5,000 to pay for my previous round of tests and procedures. While I’m not ready to throw in the towel, the daily pressure of these things makes it hard to focus on a better tomorrow. For those who have walked a similar path, you know what I’m talking about.

[signoff]

Chronic Pain and a Football Game

Bruce Gerencser 12 Comments

tinora-vs-ayersville-2016

It is a beautiful Friday night in rural Northwest Ohio. Football weather — the time of year when I go to local high school football games with my sons. While none of my grandchildren is old enough to play football, I do enjoy watching young men battle it out on the gridiron, each hoping to be that night’s victor.

On this Friday, the game of choice is Ayersville vs. Tinora — billed as THE must-see game. I arrive early at the field so I can secure a good seat. Second row up, 50 yard line, perfect for viewing and photography. As always, I have brought my camera, hoping to shoot a few keepers before the darkness of the night forces me to stop.

I am the first person in the stands, but not for long. Soon the bleachers start to fill. By game time, late arrivers will be forced to stand along the fence that cordons off the stands from the field. I smile as I think of those who will have to park great distances away from the stadium. The early bird gets the best seat, I think to myself, and Bruce Gerencser is ALWAYS early.

I soon settle into my seat. I sit, thinking of nothing but how nice the weather is for a September football game. By the time the Ohio High School Athletic Association crowns its divisional champions, the weather will have turned cold and snow will blanket the landscape. Today, I will enjoy the warmth of the sun and the balmy breeze that make it a perfect night for a football game.

Eyes closed and head tilted slightly towards the sun, I bask in the nothingness of the moment; that is, until my state of mindfulness is rudely interrupted by an elementary school boy. A younger family with children arrived a few minutes ago, taking up seats several rows above mine. Their restless son, unable to contain his energy, jumps from his row to mine, landing on the metal stands with a big thud. My seat bounces as his feet hit my row, causing me to abruptly return to reality. Not thinking, I said, quite loudly JESUS! Better than a swear word, right? The mother is offended by my utterance, choosing to ignore how her son actions in using the stands as a trampoline might affect others.

The young family soon moves to different seats. Did my taking the Lord’s name in vain cause them to move? I don’t know. Not that I care. As the stands continue to fill, an elderly man and his forty-something son make their way into the bleachers. I always sit on the end of the row. This allows me to control who sits next to me and it also allows me to stand up and move when people need to go to the bathrooms or concessions. I know I am a big guy, and not wanting a night filled with lap dances, I prefer to stand up and move into the common aisle so people can get by me.

Sitting on the end of the row has its disadvantage too. Over the years, I have been repeatedly beaten with purses, coolers, and the like as people make their way to their seats. Some people say sorry, but most often they ignore their personal assaults on my body. I accept that this is the price I pay for sitting near the common aisle. Tonight is no different. As the father and the son make their way up to their seats, both of them plow into me as if I didn’t exist. Soon they settle into their seats right in back of mine. This begins what will be a night-long beating from both of them. I have suffered many such beatings before, so I smile, grit my teeth, and say nothing. I am still the polite Christian, I think to myself. I want to tell my oppressors, Dammit, PLEASE stop hitting me. But I say nothing, choosing instead to slide forward on my seat, hoping that the extra distance will keep me clear of their feet and knees.

The son brought with him an oversized stadium seat, a seat so large that my son asks him to move it so he can sit next to me. My sons are far less “Christian” than I am these days and are quite willing to ask people to remove themselves from their personal space. The man quickly complies, but as he does, his metal-framed chair smashes into my back, causing my pain-wracked body to scream its objection. Before I can turn towards the man and give him my really, asshole? face, he slaps me hard on the back twice and says, sorry ’bout that.

I can feel my face flushing with anger. I want to tell the man what I think about his assaults on my body and personal space, but I say nothing, choosing instead to weakly say, that’s okay. It’s not okay, I tell myself, but what’s to be gained by telling this man what I really think? My grandchildren are sitting next to me, and their friends’ families sit nearby. What will they think of me and our family if I give this man the verbal lashing he so richly deserves?

I reach for my pain medication, taking a double dose, choosing to suffer in silence. I am here to watch the game, my inner Bruce says. Ignore this asshole. Half time arrives and the game of the year is a blowout. The Tinora stands are quiet, shocked by the beat-down Ayersville is putting on the home team. With four minutes left in the game, I decide to leave, hoping to escape the throng that will soon pour from the stands.

I gingerly make my way down the stands to the walkway that leads to the parking lot. I walk haltingly, relying on my cane to keep me from falling over. Free from the man who assaulted me, I wrongly assume that I am safe from further indignities. As I walk slowly to my car, filled-with-life teens run into me. With a quick sorry uttered to a stranger, these youths continue to playfully run, hoping to catch friends. I don’t blame them for running into me. I remember when I was their age. I had little thought of others and how my actions might affect them. I don’t, however, have the same sympathies for the adults who rush by me, hoping to beat the traffic. Surely, they know better, I think to myself. By the time I reach my car, I have been run into countless times. I feel as if I have been forced to run a gauntlet. I unlock the car door, open it, and slowly pull myself into seat. I sit for a few moments, a tear of exhaustion in my eye. I can’t do this anymore, I tell myself.

In a few moments, my mind and body settle down enough for me to start the car and head for home. Several hours later, I text my son: “Tinora vs. Holgate next Friday. Want to go?”

We’ve Only Just Begun

Bruce Gerencser 14 Comments

bruce and polly gerencser 2015
Bruce and Polly Gerencser, Summer 2015

Forty years ago, a young man from the flatland of rural northwest Ohio moved to Pontiac, Michigan to study for the ministry. Also enrolled at Midwestern Baptist College was a young woman who hailed from Bay City, Michigan. What follows is their story.

The young man packed his worldly goods into his beater of a car, and waving goodbye to his Mom, drove out of the trailer park, turned east on U.S. Hwy 6 and set a course for Pontiac, Michigan. His mother had kissed him goodbye, letting the young man know how proud she was that he was the first Gerencser to go to college. He pushed her away, uncomfortable with her display of affection, a behavior he would one day regret. The young man thought, finally, away from the craziness and the drunkard husband.

Two-and-a-half hours later, the young man turned off of Golf Drive onto the driveway for Midwestern Baptist College. He stopped his car in front of the dormitory so he could unload his belongings and move them to his assigned dorm room — room 207. On that day, the young man wore a maize and blue shirt with the number 75 on the front and the word REV on the back. This shirt was a gift from a young woman who hoped the young man would remember her. He didn’t, knowing that enrolling at Midwestern would provide him ample opportunity to meet attractive Fundamentalist women. He would soon learn that a wide-open field of romance would quickly fade in the beauty of a dark-haired, beautiful young woman.

Shortly after classes began in the fall of 1976, the young man and young dark-haired woman began flirting with one another. At first, they sent flirtatious notes, often meeting up for card games in the dormitory kitchen. While both of them would briefly date other people, by the end of September, the young man and young woman decided to give dating one another a try.

They were an odd match. The young woman was quiet and reserved, rarely speaking more than a few words. The young man, on the other hand, was a talker, and opinionated. He lived life in the fast lane, serving Jesus, yet pushing the lines of Fundamentalist decorum and acceptability. Years later, the young woman would tell him that she was drawn to his wildness — her bad boy.

Midwestern Baptist College — a Fundamentalist institution founded by Dr. Tom Malone, the pastor of nearby Emmanuel Baptist Church  — had strict rules concerning dating and male/female interaction. Dating couples were only allowed to date on Saturday evening and after Sunday night church. Couples were required to double-date, and all dates had to be approved by dorm supervisors. Couples were not permitted to travel beyond a ten-mile radius from the college. Coupled were not permitted to have any physical contact with each other. Breaking this rule would result in being campused — meaning that offending couples were not allowed to date off campus. Repeated infractions led to being kicked out of school.

The young man and young woman quickly found that keeping the six-inch rule — the width of a songbook — was impossible. Fearing expulsion, they sought out other dating couples that also found the no-contact rule a strain on their relationships. On date nights, the young man and young woman could now snuggle close to one another and hold hands. As with all young couples with raging hormones, their desire for physical intimacy increased as time went along. Yet, fearing being discovered and expelled, the young man and young woman — for three months — didn’t kiss.

Christmas of 1976 found the young man visiting the young woman at the home of her parents in Newark, Ohio. The young woman’s father was a preacher — a recent graduate of Midwestern. Her father was the assistant pastor of the Newark Baptist Temple — an Independent Fundamentalist Baptist church pastored by the young woman’s uncle, Jim Dennis.

One evening, the young woman’s mother asked her to retrieve their clothing from the laundry room. The young man followed along, and it was there, in an apartment laundry room, the young couple kissed one another for the first time. Many kisses would follow, but neither of them would ever forget that one brief moment where they were able for the first time to express their love for one another.

Love for one another? Yes, their relationship quickly moved from casual to serious, culminating in the young couple’s engagement on Valentine’s Day 1977. A quarter-carat diamond engagement ring was purchased from Sears and Roebuck for $225, sealing their commitment to marry in July of 1978. Little did they know that the young woman’s mother would do everything in her power to foil their plans, going so far as to tell her daughter that she forbade her to marry the young man. He comes from a divorced family, her mother said, and divorce is hereditary.

After a year of pressuring the young couple to abandon their plans, the young woman’s mother relented and consented to the wedding — not that she had any other option. For the first time, the young woman stood up to her mom, telling her that she planned to run off and get married if she continued to oppose her marriage to the young man.

Polly and Bruce Gerencser, Wedding July 1978
Polly and Bruce Gerencser, Wedding July 1978

July 15, 1978, was a hot and humid day. There was no air conditioning at the Newark Baptist Temple, not that this mattered to the young couple. Their special day had finally arrived, the day when they would become Mr. and Mrs. Bruce Gerencser. Their friends from college, along with family members and church members, filled the pews to witness the joining of the young man and young woman in holy matrimony. Songs were sung, vows were exchanged, and then, with a kiss for luck, they were on their way, innocent of where their life together would take them.

Six weeks after their wedding, the young man came home from work and was met with the news, I’m pregnant. Nine months later, the first of the young couple’s six children was born in Bryan, Ohio. After almost three years at Midwestern, the young couple was forced to drop out of college and move to the Bryan – the birthplace of the young man. This would be the first of many moves for them. Over the next thirty-eight years they would move numerous times, living in dozens of rental houses.

Life was not easy for the young married couple. Ignorance about how to manage money quickly led to all sorts of problems. Years later, the young man, now a seasoned Baptist preacher, would remark, it took us a few years to figure out that you had to pay the electric bill to keep the lights on. They faced numerous problems, wondering if their marriage would survive – thus proving the young woman’s mother right: divorce is hereditary. Survive they did, and here on July 15th they will celebrate their thirty-eighth wedding anniversary.

The young couple walked out of the Newark Baptist Temple, cheered on by family and friends — two innocents wondering what fate would hold for them. Six children, one with Down Syndrome. Poverty. Moves to Michigan, Texas, Arizona, and Ohio. Bankruptcy. Health problems. Constant struggles to survive, living on poor wages and food stamps. Leaving the ministry and losing faith. Yet, despite stresses that often cause marriage failure, the commitment and love of the young couple endured. Seasoned by adversity and failure, the pair — now nearing their 60th birthdays — continue to honor the vows they made to one another years ago.

Later today, the ageing couple will celebrate their wedding anniversary with a meal at a fancy restaurant and a night of watching races at a local dirt track. They will make jokes with another, promising hot, torrid sex before the night is over. And more than likely, once they arrive home, they will each give the other the look, the one that says, I’m tired, maybe tomorrow. Climbing into bed, they will turn to one another — just as they have thousands of times before — and say, I love you. The young woman, now with gray hair and weathered skin, will quickly fall to sleep, leaving the young man to his thoughts; thoughts of a well-lived life, of love and commitment and adversity and failure. But thoughts, most of all, of the fact that he is the luckiest man alive.

Soon the young man — now with a white beard and failing health — will gently run his fingers through his sleeping love’s hair, pondering the life they have shared together. His mind will likely return to a basement laundry room and the moment where he realized that the young woman in his embrace was his one and only. Forty years later, she remains not only his wife and lover, but also his best friend and confidante. Life is good, he will say to himself as he drifts off to sleep, hoping that come morning he will have one more opportunity to say, I love you.

Facing Life and Death Without God

Bruce Gerencser 9 Comments

life

Christianity offers its followers the promise of life after death. No matter how difficult and painful this life is, Christians are promised wonderful lives after death living with Jesus and their fellow Christians in a perfect, pain-free heaven. While I wonder how heavenly it is to spend your life prostrate before God worshiping him, Christians live in the hope that someday they will take possession of a room in the Father’s house, built especially just for them. (John 14) Without the promise of life after death in heaven, I wonder if most Christians would still be willing to forgo the pleasures of this life? While some Christians would argue that living according to the laws, teachings, and precepts of the Bible is still a good way to live, I suspect most Christians — without the promise of eternal life and bliss — would quickly abandon their houses of worship, joining people such as myself at the local pub or the church of the NFL. After all, even the apostle Paul said, If in this life only we have hope in Christ, we are of all men most miserable. (1 Corinthians 15:19) Evidently, Paul thought that in this life only Christianity had little to offer. And so Sunday after Sunday, Christian preachers promise parishioners a home awaits them in heaven. According to the Bible, God promises some day to give Christians the desires of their hearts. Wait. Does that mean there will be booze, porn, cigars, dirt track racing, and hunting in heaven? Will heavenly citizens spend their days playing Nintendo or Xbox games? Will God really give Christians the desires of their hearts? Hmm, this got me thinking about the whole going-to-heaven thing. I know a con job when I hear it. What better way to get people to buy what you are selling than to promise them that they will have a wonderful life if they will just sign on the dotted line. A wonderful life, that is, someday, after you have made the 666 monthly payments and died.

Atheism offers no such promises. Atheism is rooted in a humanistic and secularist view of the world. No promises of a divine life in the sweet by and by. Life is hard, and then you die. No promises of blessings in this life or the life to come. Some have argued that atheists have a cold, sterile outlook on life. To some degree this is true. Atheists are realists, knowing they only get one shot at life— best get to living it. Life is what we make it, and even when hard times come (and they will most certainly come), atheists find a way to make the most of it. I could spend my days whining and complaining about my health problems, but what good would that do? Instead, I turn my pain and suffering into a platform for helping others. I can look at the five decades I spent in the Christian church and say, what a waste, but I choose to use these experiences as an opportunity to help others. I know that this is the only life I have, and it is up to me to make the most of it. Spending time wondering about what might have been accomplishes nothing. As my family has heard me say many times, it is what it is. Sure, if there were some magical way to redo certain things from my past I might do it. But maybe not. Polly and I will celebrate our 38th wedding anniversary this July. We met at a Fundamentalist Bible college. If nothing else good came out of our past, both of us would say — on most days — that our relationship was the best thing about our years in Evangelicalism. I would not want anyone to follow the same path we did, yet we do have six wonderful children and 11 awesome grandchildren. They indeed are the bright spots of the years we spent working in God’s coal mine. I have learned, or perhaps I am learning, to reflect on the good of the past, and use the bad things to fuel my writing and my attempts to help others avoid similar paths.

I will celebrate my 59th birthday in June. I have lived 12 years longer than my mother and five years longer than my dad. There are days when my body is so overwhelmed with pain that I wonder if I can live another day. The means of my demise are always nearby, yet despite my suffering I choose to live. Why? Because this is the only life I will ever have. I only have one opportunity to love Polly, Jason, Nathan, Jaime, Bethany, Laura, Josiah, my grandchildren, my brother and sister, and Polly’s mom and dad. I know that when I draw my last breath, there will be no family circle meeting in the sky — sorry Johnny! This is why I want to live each and every day to its fullest. This is not a cliché to me. This life matters. My wife, children, grandchildren, son-in-law, daughters-in-law, siblings, extended family, and friends matter to me. I know that I am only going to see them and enjoy their company in this life. There are places I want to go to and see. I want to enjoy and experience the fullness of what it means to be human. And since casting off the shackles of religion, I have been free to drink deeply of the human experience. No longer fearful of God’s judgment or hell, I am free to see, touch, taste, and hear the things I desire. Yes, there is that dirty word that dare not be spoken in Evangelical churches — desire. I spent way too many years denying passions, desires, wants, and needs, all for the sake of God, Jesus, the church, and the ministry. No more. It is wonderful to do something just because I want to. I do not have to pray about it or see if the Bible approves of it. Bruce approves, end of discussion.

When I write posts such as this, there are always a few horse-bridled Christians who let me know that there is coming a day when I will regret not bowing to the will of the S&M master, Jesus. Someday Bruce, Evangelical zealots tell me, God is going to make you pay for your attacks on Christianity. Someday, God is going to judge you for your wanton living and rejection of the Bible. Sometimes, I think Christians such as these people relish the day when God is going to give atheist Bruce Gerencser an eternal ass-whipping. I am sure they will be standing among the crowd cheering and saying to God, hit him again! He deserves it, Lord.

I have been blogging now for going on nine years. I left Christianity in 2008, and since then countless Evangelicals — along with a few Catholics — have attempted to win me back to Jesus through the use of Pascal’s Wager. The basic premise is this, Bruce, what if you are wrong? Good question. Since I am not infallible, nor do I have at my disposal the sum of all human knowledge and experience, all I can do is make reasoned, knowledgeable decisions based on the evidence at hand. I can tell readers this much: I have been wrong many, many times. Not only that, I have made enough mistakes that if you piled them up they would reach to the International Space Station. I am, after all, a feeble, frail, and at times contradictory, human being. I can, like all people, be led astray by my passions, judgments, or incomplete information. I am not immune to irrationality and cognitive dissonance. However, when it comes to Christianity and its promises of eternal life in heaven or judgment in hell, it is my educated opinion that the claims of Christianity are false. Trying to get me to choose Jesus just in case I am wrong makes a mockery of intellectual inquiry (and Christianity). Having spent most of my adult life in the Christian church and 25 years studying and preaching the Bible, I think it is safe to say that I know a good bit about Christianity. I cannot remember the last time that some Christian presented me with something I have not heard before. I am not being arrogant here — as I am sure some Christians will allege. I spent decades reading and studying the Bible — devouring countless Christian books. I immersed myself in Christianity and its teachings, so when I say I am no longer a Christian because I think the claims of Christianity and the Bible are false, my conclusions — unlike many Christian opinions of atheism — come from an educated, reasoned, well-thought-out position. Do I know everything there is to know about Christianity? Of course not, but I sure as hell know more than most the Christians (and preachers) I come in contact with on a day-to-day basis. My point is this: I am an atheist today, not out of ignorance, but because I weighed Christianity in the balance and found it wanting.

If Christians come up with new evidences for the veracity of their claims — and I doubt they ever will —  then I will gladly consider them. Until then, I am content to number myself among the godless. And when I die, I hope to leave this life knowing that I did what I could to be a help to others. I hope, on the day that my ashes are scattered along the shores of Lake Michigan, that my family and friends will speak well of me. I hope that none of them will have to lie, but that they will truly believe that my good works outweigh the bad. This is why I think that is important to finish well. I am sure Polly and my children have less-than-complimentary stories they could tell at my wake, but I hope, because I have made a concerted effort to be a better man, that they will share stories about a good man who just so happened to be an atheist.

I am often asked if I fear death. Yes and no. Since no one has died and come back to life — including Jesus — I do fear the blackness that awaits. There are been those times, late at night, when I have pondered being alive one moment and dead the next; going to sleep and never waking up. But this fear does not overwhelm me. I know that I cannot do anything about dying. It is, to quote the Lion King, the circle of life. We are born, we live, we die. End of story. All I know to do is to live a good life and be a good husband, father, grandfather, friend, and fellow citizen of earth. I have had the privilege of living at this time on humanity’s calendar, and when it comes time for me to draw my last breath, I hope my dying thoughts will be those of love. Love of family, love of friends, love of writing, love of photography, and love of all those who have made my life worth living. Will that not be what all of us desire? To love and to be loved? As dying pushes away all the minutia of life, what remains is love. For me, that will be enough.

Bruce Gerencser