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Tag: Osteoarthritis

Nerve Pain: Please, Don’t Touch Me

dont touch me

Many Fibromyalgia sufferers have days where they can’t bear to have someone touch them. The other day, Polly came into my office and started to put her hand on my shoulder. I barked, DON’T! Polly knows when I say this that I am having a “please don’t touch me” day.

Most days, the nerves in my skin are quite sensitive. This sensitivity is part of the problem I have with chronic pain. I hurt everywhere, from head to toe. It has been over a decade since I have had a day where I could say, I feel pretty good today. Fibromyalgia primarily affects the muscles. I also have osteoarthritis, along with chronic low back pain. Fibromyalgia+osteoarthritis+back pain+nerve pain=unrelenting chronic pain. Fibromyalgia+osteoarthritis+back pain+nerve pain+narcotic pain medication+muscle relaxers=less unrelenting chronic pain.

garfield pain

As anyone who lives with chronic pain can tell you, pain medications do not make the pain go away. They lessen the pain spikes and provide a break in the pain cycle. When normally healthy people take narcotics to alleviate pain, they often feel a buzz from the drug. Some people become quite loopy. That’s not how it is for people who are on a long-term pain management regimen (as I have been for over fifteen years). Unless the chronic pain sufferer takes narcotics like Dr. House — by the handfuls — it is unlikely that they will feel a buzz or become loopy. They will feel a lessening of the pain, a break in the pain cycle, but otherwise, they will be as normal as normal is for them.

On “please, don’t touch me” days, the pain medications don’t work like they normally do. I am unsure as to the physical reason for this, but I know that I can double my pain medication on a “don’t touch me” day and it has little effect. I just have to tough it out, knowing that the next day will be maybe, I hope so, likely better.

This past Friday, Saturday, and Sunday, I worked in the office, took care of some remodeling projects, cleaned house, and trimmed trees and bushes. I worked far longer and harder than I should have, but since I am unwilling or unable to stop doing so, I must live with the consequences. And, boy, oh boy, do the consequences roll in like a freight train! Today, and probably several more days thereafter, I will have to contened with pervasive, unrelenting nerve pain. I am definitely in a “don’t touch me” phase of life.

Why I am telling you this? Perhaps you know someone who lives with chronic pain. If so, perhaps this post will give you a little insight into what they might be going through. Perhaps you have seen them grimace when someone touches or bumps into them. They might be having a “please, don’t touch me” day. If they are anything like me, they will endure the pain for the sake of not appearing crabby or difficult. Chronic pain sufferers want to be seen as “normal”, and often they will silently endure the pain unintentionally inflicted on them by others.

People who know me well will generally ask how I am doing before hugging me or shaking my hand. (COVID-19 has lessened such close encounters.) Some friends and family members know how to read my face. As much as I try to hide the pain, it reveals itself in my face and eyes. I normally have sparkling blue eyes, but when I am in a lot of pain, depressed, or physically having a difficult day, my eyes will turn gray. I don’t know WHY my eye color changes, I just know it does.

bruce-gerencser-headshot

Bruce Gerencser, 64, lives in rural Northwest Ohio with his wife of 43 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

You can contact Bruce via email, Facebook, Twitter, or YouTube.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

Are You in Pain Today?

new pain schedule

Last Friday, my surgeon called and asked me to come see him at 1:30 pm today so we could go over the recent biopsy results of the fluid removed from the mass in my chest. In early December, I had a huge cyst that spanned from my breast/collarbone to my sternum/underarm drained and biopsied. The interventionist radiologist removed 360cc of fluid. I IMMEDIATELY felt relief — all praise be to Asclepius.

The nurse came out to the waiting area and called my name. Someone new. “Where’s MY nurse . . . dammit, I have no time to train a new one,” I thought.

Into the room we went. I could hear my doctor talking to another patient next door. He seemed in a good mood, but then he always seems that way.

The nurse took my blood pressure and pulse. Then she asked, “are you in pain today?”

If there is one question that raises my hackles, it is this one. “Can’t you read my chart? See right there where it says the patient has fibromyalgia, osteoarthritis, nerve pain, and is on narcotic pain management. Pay attention.”

For a brief snarky second, I wanted to say, “Praise Jesus, I went to a Benny Hinn Miracle Meeting® on Saturday, and God healed me of everything except the cyst that is growing again in my chest.” Instead, I said, “yes, I am always in pain.”

Then the nurse asked me another question that I despise answering, “On a scale of one to ten, what’s your pain level?”

I replied, “I hate pain charts. Pain charts are subjective, a waste of time.”

I got the “look,” you know that look that says, “give me a fucking number so I can enter it in the proper box on your chart.”

I replied, “six.”

Hell, it could have been ten or three or twelve. By what standard am I being asked to judge the level of my pain? Such a silly way to determine pain levels and what, if any, treatment is appropriate.

The surgeon entered the room with a medical student in tow. We traded a bit of chit chat and then moved to discussing the biopsy results and his recommended course of treatment. I told him the cyst had returned and was growing larger by the day. I stood up and had him feel the cyst. I turned to the medical student — a woman — and asked her if she would like to feel the cyst. She said, “yes,” and proceeded to put her hand above my right breast. The surgeon had her feel above the left breast too so she knew what normal felt and looked like.

The surgeon told me that removing the cyst could be a difficult operation due to its proximity and depth. His suggestion was for the radiologist to drain the cyst again and then inject it with a sclerosing agent. Hopefully, this procedure will stop the fluid from accumulating again.

The surgeon asked Polly and I if we had any questions. Both of us said, “no.” He then asked Polly how she was doing and if she was scheduled to see him soon (he is the doctor who will be reversing her colectomy). Polly answered in the affirmative. The surgeon and his student left, and my regular nurse came in to talk to me about scheduling the procedure. Hopefully, I will have it done in the next fourteen days.

The surgeon? He had left the office after seeing me and quickly made his way across the street to the hospital. Waiting for him was a young girl who needed emergency surgery.

What is your opinion of pain charts? Please share your thoughts in the comment section.

About Bruce Gerencser

Bruce Gerencser, 62, lives in rural Northwest Ohio with his wife of 41 years. He and his wife have six grown children and twelve grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

Are you on Social Media? Follow Bruce on Facebook and Twitter.

Thank you for reading this post. Please share your thoughts in the comment section. If you are a first-time commenter, please read the commenting policy before wowing readers with your words. All first-time comments are moderated. If you would like to contact Bruce directly, please use the contact form to do so.

Donations are always appreciated. Donations on a monthly basis can be made through Patreon. One-time donations can be made through PayPal.

Please Do Not Offer or Send Me Unsolicited Medical Advice

chronic illness

My health is very much a part of my story. It is impossible for readers to understand where I have come from and where I am today without me telling them about my struggles with chronic pain, fibromyalgia, and osteoarthritis. Over the past decade, I’ve not been shy about sharing with readers my health history. Unfortunately, in doing so, I have opened myself up to unsolicited medical advice from people who have diagnosed me from afar. In recent years, I have received emails, letters, telephone calls, texts, packages, and personal visits from people who are certain they know the cure for what ails me.

One woman — a former church member — would stop by my house every few weeks hoping to sell me super-duper, cure-all shakes that she was certain would return me to perfect health. I had to hide in my bedroom and have Polly lie to her about my availability. After months of attempts to evangelize me, the woman finally took the hint and stopped. At the time, she was on the shakes. Today? She has abandoned this miracle cure and continues to face debilitating health problems.

Well-meaning people have told me that this or that drug, this or that supplement, reiki, spinal adjustment, surgery, acupuncture, iridology, yoga, chakra alignment, mindfulness, homeopathic concoctions, essential oils, Native American rituals, magnets, diets — need I go on? — would infallibly cure me. Today, I received in the mail a list of books from a blog reader — some of which I have read — that, if followed, would supposedly put an end to my chronic pain. The gist of the books is this: your pain is all in your head.

I go out of my way to avoid interaction with readers when they put on lab coats and play doctors. I either ignore them altogether or I quickly say “thank you” and change the conversation. Yet, it seems no matter how many times I say, PLEASE DO NOT OFFER OR SEND ME UNSOLICITED MEDICAL ADVICE, people continue to ignore my request and offer advice anyway. What is it that says to some readers that they are free to disrespect me as a person? Is there anything ambiguous or unclear in PLEASE DO NOT OFFER OR SEND ME UNSOLICITED MEDICAL ADVICE? Do some readers think I am stupid or ignorant or lacking competent medical care?

I get it. I am the kind of writer who has swung open the door of his life, inviting such advice. However, I have politely asked that people not give me unsolicited medical advice. How hard can it be for readers (and family members) to respect my wishes and leave me alone? Can they not see that their tactics are no different from those used by Jehovah’s Witnesses or evangelizers from Independent Fundamentalist Baptist churches? “Sir, we are here today to offer you something that will change and transform your life!” Never mind the fact, that I am not ignorant about what they are peddling, be it Jesus or a “cure” for Fibromyalgia.

Let me be clear. I am under the care of a team of competent medical professionals. I am well-educated concerning my afflictions. Unless researchers come up with new treatments, I am going to die “Just as I am.” I have resigned myself to the fact that a combination of what ails me will eventually lead to my demise. And I am okay with that. I do what I can to manage my symptoms. If I read of something that “might” be helpful, I bring it up to my primary care doctor. In the twenty-three years he has cared for me, he has NEVER said no to me; never refused an off-label drug or treatment that “might” alleviate my pain and suffering. “Let’s try it and see if it works.”  My orthopedic doctor treats me in a similar manner. He knows, based on x-rays, CT scans, and MRIs, that I have arthritis from head to toe. He knows that surgery is not a good option for me, so he does what he can to alleviate my pain. The scans tell him that the pain is not in my head.

unsolicited medical adviceI know that writing this post and making it prominently available will do little to stop certain readers offering unsolicited medical advice. It is not like I can ban them or anything. As long as I have a widely read blog and make it easy for people to contact me, I am going to receive emails, letters, telephone calls, texts, packages, and personal visits from pretend doctors. That doesn’t mean, however, that I can’t bitch about it. Praise Loki for the power of bitching, amen? Amen!

Let me conclude this post with several excerpts from articles that address the issue of unsolicited medical advice. The first article is titled, Your Unsolicited Health Advice Isn’t Just Irritating. It’s Damaging. Sarah Blahovec writes:

You may be thinking, “These people [people who offer unsolicited medical advice] sound irritating, sure, but why are you making such a big fuss? They’re just trying to help!”

Of course, I get that they’re trying to help, and in some cases, it really is just a pet peeve that I’ll politely accept or decline and move on. But the thing is that constant unsolicited advice, questioning, and imploring to try something different becomes very invalidating. You don’t just hear a helpful tip to try, you hear that you aren’t trying hard enough, that using medication to treat your condition means that you’re giving up or aren’t willing to seek out a non-medicinal alternative. You hear that all of the work that you and your doctors have done, the tests, the procedures, the trial and error of different combinations of medications and treatments aren’t enough, and that you need to try a different path. You hear that if you did give these suggestions a shot in the past, you didn’t try long or hard enough, you weren’t following it correctly, or you bailed and took “the easy way out.”

It is frustrating to constantly hear the message that not only are you not trying hard enough to improve your own health, but that you and your doctors are not the most knowledgeable about your medical and lifestyle needs. A stranger or acquaintance took it upon themselves to say that they know more about your condition from a bit of Googling and a few books than your doctor with their experience and education, and you with your everyday, lived experience of actually having the medical condition. It is emotionally damaging to not only hear that you aren’t living with your disease correctly, but to always have to educate others on why their unsolicited advice is unwanted and harmful. Unfortunately, they usually just they reply that you’re overreacting and become offended that you won’t take their suggestion. This only adds to the emotional pain, and very often, the physical pain of a medical condition that can be triggered by stressful situations.

My message is this: please, please do not give advice when it is not specifically requested. If someone wants information about your lifestyle, your choice, or your product, they will ask you and they will do the research. If you do give advice and somebody says that they aren’t interested or asks you to stop, just respect their wishes. Nobody should be coerced into trying something they don’t want to try, and if you push forward with your advice, not only would they not listen, but they may become stressed, hurt, and invalidated by your inability to respect their wishes.

Trust that disabled and chronically ill people and their medical teams are the most knowledgeable about their own health and their medical and lifestyle needs. Trust that they will seek out you or the proper sources if they’re interested in what you have to offer. And out of respect for disabled and chronically ill people everywhere, please stop forcing your unsolicited advice upon those who don’t want it.

In an article titled, Please Give Me Your Support, Not Unsolicited Medical Advice, Megan Klenke writes:

I would rather spend the rest of my days banging my head against a wall than to continue trying to explain to people that their essential oils and kale will not cure me. OK, I’m being dramatic, but not as much as you might think!

If you’re anything like me, when you first became chronically ill (if you’re reading this as someone who’s sick), you possibly went through a naive stage early on in your illness. The stage where you believed the random person in an elevator who’s known you for two whole minutes who said that snake oil was God’s gift to the ill, or your aunt’s cousin’s brother’s half-sister who swears by this new detox where you only eat eggs for a month and every illness ever will be reversed, or some crap like that.

But seriously, there was a period of time at the beginning of me being sick that I desperately held onto the belief that I had control and would get better, so I tried anything and everything anyone presented to me. The worst was this “joint juice” concoction my dad ordered off an infomercial that tasted worse than words can describe. Yuck.

After awhile, it became something I did out of spite. Eventually there were few things left that I hadn’t tried, but when someone offered me something new, I would try it to prove to them how wrong they were.

When people constantly offer up these things, especially after I’ve spent time telling them my story, it doesn’t come off as helpful. I know, I know. People generally mean well. Sure. I’d like to say I believe that. But there’s condescension there almost always. And disbelief. And disrespect. It’s a smack in the face. It’s basically people saying to me that I just must not be doing enough or else I’d be better.

We as humans don’t like to lose control. We don’t. I certainly don’t. It’s not fun. We try to control every aspect of our lives. We love to plan out how every minute of everyday is meant to be spent and we think we can control that.

But the truth is, we can’t control everything. We cannot always control our bodies and our health. I know it’s scary to realize this, but it’s true. And I think that’s a big reason why one of the most common reactions people have to finding out that I’m chronically ill is to give me advice (that I didn’t ask for) on how to get better (from my incurable diseases). They want to help, but they want even more to keep up the illusion of control in their world. They’d rather believe that it’s essentially my fault that I’m not better because I’m not doing something right, because I don’t have the proper self-control, than to acknowledge the lack of control we have over our lives.

So what all of this unsolicited advice says to me is, “I didn’t listen to anything you just said because I’m scared of facing our lack of control and my mortality. I think you just don’t know what you’re talking about. I know better.”

That’s the truth of it. So the next time you’re thinking about offering up unsolicited advice to someone who’s chronically ill, it’s probably best to just…not.

Thank you for your love, kindness, and support. Many of you have come alongside me and brought understanding and encouragement during difficult times. It is enough for me to know that people care.

About Bruce Gerencser

Bruce Gerencser, 62, lives in rural Northwest Ohio with his wife of 41 years. He and his wife have six grown children and twelve grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

Are you on Social Media? Follow Bruce on Facebook and Twitter.

Thank you for reading this post. Please share your thoughts in the comment section. If you are a first-time commenter, please read the commenting policy before wowing readers with your words. All first-time comments are moderated. If you would like to contact Bruce directly, please use the contact form to do so.

Donations are always appreciated. Donations on a monthly basis can be made through Patreon. One-time donations can be made through PayPal.

Contentment

contentment“Bruce, your problem is that you lack contentment.” I was stunned when my counselor told me this. I have been seeing him for years. I am beginning to wonder if it is time for a change. His words seemed sharp and judgmental. I felt as if he was ignoring me as a person and making a character judgment instead. Two weeks later, I am still talking about whether this judgment was correct. Polly would say, I’m sure, “Bruce, you are discontented over contentment.” :) Maybe.

Last week, I wrote a post titled, Living with Unrelenting Chronic Pain: Just Another Day in Paradise. I intended to write about contentment then, but the post, as is often the case, went in a different direction from that which I had intended. As that Spirit moves, right? It’s impossible to determine if I am content without first understanding the primary issues that drive my life: chronic illness, chronic pain, loss of career, loss of faith, OCPD, past emotional trauma. Pulling a singular event out of my life and rendering judgment based on it is sure to lead to a faulty conclusion. Think of all the clichés we use about understanding people: walk a mile in their shoes, see things through their eyes, judge not, lest you be judged. If we truly want to understand someone, we must take the time to see, listen, and observe — not something we do much of these days. We live in the social media era, a time when instant judgments are the norm. As a writer, I find it frustrating when people read a post or two and then sit in judgment of my life. In 2,000 or fewer words, I have, supposedly, told them all they need to know about Bruce Gerencser. Of course, I have done no such thing. Want to really get to know me? Sit down, pull up a chair, and let’s break bread and talk. Truly understanding someone requires time, commitment, and effort. I have been married for forty-one years. It took years for Polly and me to really get to know each other. And even today, I wonder, do I really know all there is to know about my lover and friend? I doubt it.

Contentment. What does the word even mean? Happy? Satisfied? Complacent? How do I determine if I am content? Do I even want to be content? Is contentment a desirable human trait? What would the world look like if everyone were content? The Apostle Paul wrote spoke of contentment several times:

  • I have learned, in whatsoever state I am, therewith to be content. (Philippians 4:11)
  • But godliness with contentment is great gain. (1 Timothy 6:6)
  • And having food and raiment let us be therewith content. (1 Timothy 6:8)
  • Be content with such things as ye have: for he hath said, I will never leave thee, nor forsake thee. (Hebrews 13:5)

“Bruce, you are an atheist. What the Bible says is irrelevant.” Tell my mind that. These verses were pounded into my head by my pastors and Sunday school teachers, and then, as a pastor, I pounded them into the heads of congregants. Just because you say, “I’m an atheist,” doesn’t mean that decades of training and indoctrination magically disappear. I spent most of my adult life trying to be the model of a “contented” Christian. Try as I might, I came up short.

My father was the epitome of “contentment.” Dad lived by the maxim que sera sera (whatever will be, will be). He was passive and indifferent towards virtually everything. Dad and I were never close. It’s not that we had a bad relationship; it’s just that he treated his relationship with me the way he treated everything else.

I was much more like my mom. Passionate. Contrary. Opinionated. Everything mattered. It comes as no surprise that I am a perfectionist; that I struggle with Obsessive-compulsive personality disorder; that I have high (and often unreasonable) expectations not only for myself, but for others. Ask my children about what they “fondly” call the Gerencser Work Ethic. Oh, the stories they could share. I am sure a few of you are thinking, “are you not admitting here that you are discontent?” Maybe, but I am not convinced that it’s as simple as that — as I shared with my counselor.

You see, I have always been a restless person. Does this mean that I am discontent? Or, perhaps, I am someone who needs a steady diet of new experiences. I bore easily. In my younger years, this resulted in me working a number of different jobs. My resume is quite diverse. The same could be said of the twenty-five years I spent in the ministry. I loved starting new churches. However, over time, these new churches would become old churches, and when that happened, I was ready to move on. I pastored a church in West Unity, Ohio for seven years. Awesome people. Not a problem in the world. Yet, I resigned and moved on. Why? I was bored. I was tired of the same routine Sunday after Sunday. It wasn’t the fault of people the people I pastored. I was the one with a restless spirit. I was the one looking for matches and gasoline so I could start a new fire.

dogs and contentmentMy counselor asked me if he could wave a magic wand over me and instantly make me content, would I want him to do so? I quickly replied, “absolutely not.” I told him that instant contentment would rob me of my passion and drive. “What kind of writer would I be without restlessness and passion?” I asked. He replied, “ah yes, that which drives creatives.” If being content requires me to surrender my passion and drive, no thanks. I am not interested. Now, I can certainly see where I would be better off if I, at times, let go and let Loki. I have never been good at “be still and know that I am God.” I like being busy. I enjoy “doing.” One of the frustrating problems I face with having fibromyalgia and osteoarthritis is that I can no longer do the things I want to do. My “spirit” is willing, but my “flesh” is weak. Does this lead to discontentment? Maybe, but I am more inclined to think that the inability to do what I want leads to frustration and anger, not discontentment.

I’ll leave it to others to determine if I am content. I will leave it to the people who look at me and “read” my face, thinking my lack of a smile is a sure sign of discontentment; as if there couldn’t be any other explanation for my facial expressions — you know, such as chronic, unrelenting pain. Would it settle the contentment question if I tell people that I am generally happy; that I enjoy writing, shooting photographs, and spending time with my children and grandchildren?  I doubt it. Much like my counselor, people seize on anecdotal stories as evidence for their judgments of my life. I told my counselor about a recent visit to a new upscale pizza place in Defiance. I told him that the waitstaff left a lot to be desired, and our pizzas were burnt on the bottom (the restaurant uses a brick pizza oven). I told our server the pizzas were burnt. The manager gave us a 50 percent discount on our bill. My counselor seized on this story as a good example of my discontentment. Never mind the fact that I rarely complain about the quality of restaurant food. I just don’t do it. I am willing to give a place a pass, having managed restaurants myself. I know how things can get messed up. That said, I always wanted to know when an order didn’t meet customer expectations. No, customers are not always right. Some of them are idiots and assholes. But I couldn’t make things right if complaints never reach my ears.

Am I content? Probably not, but I sure as hell don’t want the kind of contentment preached by the Apostle Paul, modeled by my father, and suggested by my counselor. No thanks . . . I’ll take happiness with a slice of restlessness, and garnished with passion every time.

About Bruce Gerencser

Bruce Gerencser, 62, lives in rural Northwest Ohio with his wife of 41 years. He and his wife have six grown children and twelve grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

Are you on Social Media? Follow Bruce on Facebook and Twitter.

Thank you for reading this post. Please share your thoughts in the comment section. If you are a first-time commenter, please read the commenting policy before wowing readers with your words. All first-time comments are moderated. If you would like to contact Bruce directly, please use the contact form to do so.

Donations are always appreciated. Donations on a monthly basis can be made through Patreon. One-time donations can be made through PayPal.

Living with Unrelenting Chronic Pain: Just Another Day in Paradise

pain-looks-good-on-other-people

I begin each day with pain. No matter how much medication I take, pain, from the bottom of my feet to the top of my head, is ever with me. There’s never a day when pain is not front and center, demanding attention. Afternoon turns to evening. Hopefully, I have felt strong enough to sit down in my office and write a few words for this blog. As I type this post, my hands remind me that osteoarthritis is my ever-present “friend.” Someday, I will push the keyboard away and say to the pain, “you win.” Not today, but no promise that tomorrow won’t be the end of my run. I fear what happens to me when I quit; when I say, “I have had enough.”

By the time the clock says 10:00 pm in the eastern time zone, my body says, “enough! I shan’t go any farther!” Two decades of struggling with fibromyalgia have taught me to recognize when it’s time to surrender for the day. “Wave the white flag, Bruce, and live for another day,” I tell myself. As I slump into my recliner, turn on Pardon the Interruption, and adjust the sound, tears come to my eyes. “Why live another day, knowing that tomorrow will be no different from today?” No matter how much I try to think happy thoughts and “put mind over matter,” reality reminds me that it is a bitch, a taskmaster with no concern for my suffering and pain. “Tough shit, Bruce. This is your life, deal with it.”

I hear the front door open. It’s Polly coming home from work. The clock strikes 2:30 am. We trade pleasantries, ask questions of one another, eat a snack, and finish the day off with The Daily Show. Now it’s time for the final act of the day, bedtime. I drag my pained, fatigued body to my side of the bed, plug my iPad into the wall charger, put on my Bluetooth headphones, and run one of the video streaming apps — usually Hulu. Of late, I am re-watching the Los Angeles police drama Southland. Polly touches me gently on my back and says, “good night.” I reply, “I love you.” Polly will quickly fall to sleep, but not me. Sleep for me will not come until pain and sleep medications do their work — that is, IF they do their work. Some nights, this process takes an hour. Other nights, it takes two, maybe three hours for sleep to win the victory.

And then, I do this all over again. There’s never a day without pain and fatigue. Never. I am not sure my family and friends understand this. Oh, they try, but for people who have not lived with never-ending, unrelenting chronic pain, there’s no frame of reference for them. How can someone “understand” that which they have not experienced? I photographed a local high school basketball game tonight — the first game of the season. As I entered the building, a school official said to me (and Bethany), “how are you folks doing tonight?” His voice rang with happiness and enthusiasm. He was what I call “chipper.” Before I could “think” of how I wanted to answer him, I blurted out, “do you really want to know?” His face told me that he was not expecting THAT answer. I quickly rescued him from the uncomfortableness of the moment. “Let me give you the standard human answer, “I’m fine. I am always fine!” And with that, I made my way to the gymnasium. Of course, I am not “fine.” I am sure some of you might be thinking, “Bruce, if you are not “fine,” why did you shoot the basketball game? “Why not stay home, rest, and take it easy?” Truth be told, it doesn’t matter where I am or what I do, I can’t escape the pain. Might as well try to do something I love to do than sit around and lose a few more brain cells watching TV. I know of only two “solutions” for my pain: death or pharmaceutical fog, neither of which I am willing to entertain. At least not today, anyway.

Knowing that the pain will never go away does give me a sense of certainty. I can’t escape the pain. All I can do is to choose what to do and where to go. Well-meaning people will say to me, “Bruce, I saw you at the store today. You must be feeling better!” “No, I am not feeling better. I feel like shit. My body feels like it has been hit by a truck — twice,” I have said to no one, ever. Instead, I pretend the well-wisher is oh-so perceptive. That’s the nature of the chronic pain game. Better to live a lie than burden (and bore) people with the truth. Rare is the person who really wants to know and understand how you are feeling. And that’s okay. I really don’t want to know about your hemorrhoids either.

Tomorrow begins the holiday season for the Gerencser family. Polly, along with our daughters, daughters-in-law, and granddaughters, will gather at our home to make pies — pumpkin, cherry, apple, and pecan — for Thanksgiving. If anything can temper my pain, it’s food, family, and football. If anything can give me a reason to punch the time clock for another day, it’s Polly, my children, and grandchildren. For them, I’m thankful.

Addendum:

The girls popped the first four pumpkins pies in the oven today and started cooking them. Fifteen minutes into the process, the power went out! We were without electricity for eight hours. We’ve had high winds today, and this led to an outage. Pie day was moved to our youngest daughter’s home. Just another story to add to Gerencser family Thanksgiving lore.

I hope you and yours have a wonderful Thanksgiving!

About Bruce Gerencser

Bruce Gerencser, 62, lives in rural Northwest Ohio with his wife of 41 years. He and his wife have six grown children and twelve grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

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Bruce Gerencser