Polly’s father, who died two years ago, was always a hard worker, often able to work circles around men half his age. He and I got along well because we both had that workaholic drive, the need to constantly be busy and get things done. However, at the age of sixty-five, Dad was in an industrial accident that injured his back and required immediate surgery. He never walked straight again.
Soon, pain became an ever-present reality for him. Dad, having been taught that taking narcotics could lead to addiction, refused to take anything more than Tylenol or aspirin. Later in life, Naproxen was added to the mix, as was Darvocet, a drug that was later removed from the market due to serious side effects. Dad would do his best to only take what he thought he needed, often only taking half a pill or going without taking anything for several days. No matter how often I reminded him that it would be better if he took the drugs regularly and on schedule, he continued to endure the pain rather than take the drugs as the doctor ordered. Dad’s doctor eventually gave him a prescription for Tramadol, and later prescribed Oxycontin. Finally, I thought, Dad will find some relief for his pain and suffering. Sadly, that was not to be.
You see, Dad was afraid of becoming addicted. I tried to explain to him the difference between addiction and dependence, but I don’t think heard me. Having been a narcotic user for seventeen years, I know that I am physically dependent; I’m not an addict. I take the drugs as prescribed. I wish that Dad had seen that being dependent is no big deal, and that regularly taking Oxycontin would have reduced his pain and improved his quality of life. Unfortunately, thinking drug dependence is a sin kept Dad from getting the full benefit of the drug.
This is a perfect example of how Fundamentalist prohibitions cause unneeded suffering and pain. From preaching that says addiction (dependence) is a sin to viewing pain and suffering as some sort of test from God, many Fundamentalists eschew drugs and treatments that would likely improve their quality of life. Better to suffer for Jesus, the thought goes, than to become dependent on narcotics. In just a little while, Jesus is coming again . . .so endure until you see your Savior’s smiling face.
I pastored numerous people over the years who thought taking pain medications was a sign of weakness or lack of dependence on God. I watched one man horrifically suffer from bowel cancer, unwilling to take drugs for the pain. I’ve come to see that this is the Evangelical version of Catholic self-flagellation.
As an atheist, I am deeply troubled by this kind of thinking. Since I think this life is the only one we have, we should do all we can to eliminate not only our own pain and suffering, but that of others. Since there is no Heaven and no reward in the sweet by and by, why needlessly suffer? Better to become dependent on narcotics and have some sort of pain relief and improved quality of life than to go through life suffering, only to die in the end. While I certainly think having a chronic illness and living with unrelenting pain has made me more compassionate, I don’t wish such a life on anyone, especially those I love.
How about you? Were you taught that taking narcotics and becoming dependent on them was a sin? Please share your story in the comment section.
Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
There’s a masochistic vein that runs deep in the bedrock of Christianity. Believing that suffering and pain have higher purposes, many Christians will refuse narcotic pain medications even though taking them would provide immediate relief from many kinds of pain. Lurking in the shadows of this thinking is the notion that since Jesus — the sinless Son of God and redeemer of mankind — suffered unimaginable horrors on the cross, Christians should be willing to patiently and serenely face the just consequences for their sin: pain, suffering, and death. (Please see I Wish Christians Would be Honest About Jesus’ Three Day Weekend.) And if they are willing to follow in the steps of the Suffering Servant, then God promises to reward them with eternal life in Heaven; a life free of pain, suffering, and death. Thus, many Christians believe that suffering in the here and now is required if they expect to gain eternal life.
Pain is considered one of the consequences of the curse. Women, for example, have painful childbirth because Adam and Eve ate fruit from a forbidden tree. Genesis 3:16-19 says:
Unto the woman [Eve] he [God] said, I will greatly multiply thy sorrow and thy conception; in sorrow thou shalt bring forth children; and thy desire shall be to thy husband, and he shall rule over thee. And unto Adam he said, Because thou hast hearkened unto the voice of thy wife, and hast eaten of the tree, of which I commanded thee, saying, Thou shalt not eat of it: cursed is the ground for thy sake; in sorrow shalt thou eat of it all the days of thy life; Thorns also and thistles shall it bring forth to thee; and thou shalt eat the herb of the field; In the sweat of thy face shalt thou eat bread, till thou return unto the ground; for out of it wast thou taken: for dust thou art, and unto dust shalt thou return.
Countless Christian women refuse epidurals — my wife included — and other means of reducing pain because they believe that suffering in childbirth is their just dessert for being sinners.
While much is made about Jesus healing people in the Bible, he actually healed very few people. Consider Lazarus:
There was a certain rich man, which was clothed in purple and fine linen, and fared sumptuously every day: And there was a certain beggar named Lazarus, which was laid at his gate, full of sores, And desiring to be fed with the crumbs which fell from the rich man’s table: moreover the dogs came and licked his sores. And it came to pass, that the beggar died, and was carried by the angels into Abraham’s bosom: the rich man also died, and was buried; And in hell he lift up his eyes, being in torments, and seeth Abraham afar off, and Lazarus in his bosom. And he cried and said, Father Abraham, have mercy on me, and send Lazarus, that he may dip the tip of his finger in water, and cool my tongue; for I am tormented in this flame. But Abraham said, Son, remember that thou in thy lifetime receivedst thy good things, and likewise Lazarus evil things: but now he is comforted, and thou art tormented.
Lazarus suffered untold pain and agony — what the Bible calls “evil things” — yet Jesus didn’t lift a finger to feed him or relieve him of his suffering. Instead, Jesus uses Lazarus as a sermon illustration, a poignant reminder to everyone that pain relief awaits in the next life for those who passively suffer in this life. What’s a little bit of starvation or homelessness compared to a feast-filled lifetime living in a mansion (or room) in God’s Heaven?
Several years ago, a Fundamentalist Christian family member had surgery that left her in a good bit of pain. Thanks to the current war on opioids, the doctor prescribed her six days of Tramadol for her pain. While this drug certainly can help with light/moderate pain, it is not very effective for severe post-surgical pain (at least not at a one-tablet-every-six-hours level). One person sitting with us — also a devout Fundamentalist — encouraged the family member to take as little of the drug as possible. Why, when I had a similar surgery, she said, all I took was Tylenol. After a few hours in post-op, the family member was sent home. As she settled in, she mentioned that she was in a lot of pain. How soon can I take another pain pill? she asked. Not for another three hours, my wife replied. I said, You don’t have to wait until six hours are up to take another one. It’s okay to take it every four hours if need be, and you can take Tylenol too. Both? she incredulously replied. I said, Yes, both. Dr. Bruce, on the job.
Many Christians Fundamentalists fear getting addicted to pain medications, so they won’t take them. They would rather suffer than risk addiction or dependence. Many of them have been taught that taking drugs is akin to sorcery. Seriously, Bruce? Yes, seriously. Let me give you an example of this thinking from the True Discernment blog (no longer active):
The Greek word “pharmakia” literally means “drugs”, and appears five times in the New Testament: in Gal 5:20, Rev 9:21, 18:23, 21:8, and 22:15.
“Pharmakia” is translated into our English Bible as either “witchcraft” or “sorceries”. We also get our English word “pharmacy” from the Greek word “pharmakia”.
In each of the above five passages, “pharmakia”, or “drugs” is listed as a work of the flesh of man as opposed to the Spirit of God working in us.
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The King James Bible translators translated “pharmakia” as “witchcraft”, because almost no one but witches and sorcerers used drugs 400 years ago. Drugs were most commonly used in pagan worship to hallucinate and to try to get in touch with evil spirits.
This can be serious stuff! In Rev. 21:8, God says that people who are continually characterized by drug use will have no part in the Kingdom of God.
Now many people think that when the New Testament speaks of drug use that it is only talking about Illegal drug use, but I believe it is also speaking of those people who call themselves Christians but are relying on Legal Prescription drugs. Now I am not saying that everyone who has to take prescription drugs are [sic] part of the people that the New Testament is talking about here, but I have noticed the prevalent and growing disturbing trend within the church of “Christians using on a regular and continuing basis: mind altering prescription pain killers, anti-depressants, nerve pills , and also other strong prescription drugs that if the taker wanted to could not reduce or eliminate the use of them via their own self control or a life style change.
I have even seen a person who was supposed to be heading up an addictive habit deliverance ministry who had Type 2 diabetes but refused to alter their eating habits but instead chose to rely on an insulin pump to control their sugar levels so the person could eat what they wanted and admittedly said so! Yes there are people who have Type 1 diabetes and it wouldn’t matter if they altered their eating habits, they would still need to take insulin. But if you can control your eating habits but refuse to and have to rely on a drug because of your refusal then that is a sin. Not to mention the damage that too much unnecessary insulin dependence can do to your body over a long period of time. How can you teach others how to be delivered of sinful addictive habits if you refuse to give up one yourself? Many people have the mistaken idea today that they need not bring their flesh under control where they are able to.
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When you mix, prescription drugs, a heavy emphasis on revelation and experiential and emotion driven religion over Biblical Doctrine and obedience to the word then you wind up with a church ripe for deception and lying spirits. The gateways to satanic influences have been thrown wide open. And that is what we are seeing in churches today.
The husband of the aforementioned family member has lived with horrific pain for years — made worse by a botched hip replacement. He should be on narcotic pain management, but because he fears becoming a drug addict, he refuses to ask for help. Instead, he takes Naproxen and suffers. Years ago, when Darvon was still on the market, he would take half a tablet two or three times a day, but only when his pain was really bad. Mustn’t take more than that lest he enter the gateway that leads to addiction to heroin or some other feared street drug, the thinking goes. Taking pain medications would give him quality of life, but thanks to deeply embedded religious beliefs, he will endure needless suffering and pain until he dies.
I was an Evangelical pastor for twenty-five years. I visited countless sick, dying Christians in hospitals, nursing homes, hospices, and their places of residence. I saw horrific suffering, often exacerbated by refusals to take pain-relieving drugs. Many of them saw their suffering as a sign of their true devotion to Christ. After all, the Bible says, he that endureth to the end shall be saved. The Apostle Paul encouraged Christians to patiently endure whatever came their way, and in doing so they would reap great rewards. I witnessed “loving” children refuse to let their cancer-ridden parents have morphine because it made them lethargic or caused them to sleep all the time. In their minds, they wanted their moms and dads to go unto the darkness of endless night screaming the name of Jesus.
Christians fondly call Jesus The Great Physician, rarely asking what is so “great” about his medical practice. Sure, in the Bible we see Jesus healing a few people, but most of the suffering people who came into contact with him went away unchanged. In John 5, the Bible records a story about a pool of water called Bethesda. It was believed that God would periodically send Angels to Bethesda to “stir” the water; to give it healing properties. The first person in the water after the angel stirred the water would immediately be healed of his afflictions. Scores of sick, dying people would gather near the water, hoping to be the first person in when God’s whirlpool began churning.
One day, Jesus came to the pool and noticed a man who had been sick and afflicted for thirty-eight years. This man hoped to one day be the first person in the pool, but because he couldn’t walk, others always made it to the water before him. Jesus, having oh-so-great compassion on the man, said to him, Rise, take up thy bed, and walk. Immediately, the man was made whole. He took up his bed and walked away. Amazing, right? Jesus healed someone! Woo Hoo! And what about all the other sick people lying near the Pool of Bethesda? Jesus left them as they were. The Bible says that the crowd was such that Jesus quickly got out of there.
Sick and afflicted Christians live in hope that Jesus will one day stir the water of their life and miraculously heal them. Such healing never comes, of course, because Jesus has no power to do so. He’s dead, and has remained so for two thousand years. The only Gods who can heal are doctors and other medical professionals. They hold in their hands the power to deliver people from pain and suffering, or to at the very least reduce needless grief and misery. Of course, many Christians believe God uses doctors to heal. Yes, doctors learn medical skills, but it is God who gives them the wherewithal to competently use those skills to alleviate pain and suffering. God is much like President Trump, always wanting/demanding credit for e-v-e-r-y-t-h-i-n-g good that happens. If this is indeed so, why the middleman? Why not just heal people? With Jesus, The Great Physician, in the operating room, who needs a surgeon or anesthesiologist.
Despite Christian preachers saying otherwise, Jesus is not returning to earth. There is no Promised Land® awaiting his followers. Revelation 21:4 promises:
And God shall wipe away all tears from their [Christians] eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain: for the former things are passed away.
Jesus’ disciples believed he would come back in their lifetime. Here we are two thousand years later — in what can best be described as a long con — and Jesus is nowhere to be found. Perhaps, it is time for Christians to admit that he ain’t coming back. He ain’t coming back to take them to their heavenly pain-free reward. He ain’t gonna deliver them from pain and suffering. If this is so, and everything we can see and know says it is, then there is no glory in needlessly suffering. There’s no value in not taking pain medications or refusing to accept other pain-relieving modalities. In this life, Vicodin is better than Jesus. Narcotic drugs (or marijuana) will not make your life free of pain, but they can and will help, often giving life quality you would not otherwise have. The less pain we have, the more we can do in life. Surely, THAT is a worthy goal.
Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
The war against chronic pain sufferers continues unabated as they face being collateral damage in the government’s attempt to combat the opioid crisis. Numerous restrictions — almost all of them unnecessary or harmful — have been enacted in the hope that they will stem the illegal use of narcotic drugs. Unfortunately, the only result of these restrictions is to make it harder for chronic pain sufferers to get the medications they need. Just this past weekend, my Hydrocodone fill date fell on Easter Sunday. Thanks to new regulations, the prescription cannot be refilled sooner than one day before it was last filled (and within a fourteen-day window from the may filldate written on the script). In years past, I would have several weeks of Hydrocodone in reserve, just in case I didn’t get the prescription filled in a timely fashion. Not anymore; not filling the prescription on its fill date could leave me without medication. Fortunately, Meijer’s pharmacy was open for a short time on Easter and I was able to refill my prescription.
Last month, I took the script for my Tramadol prescription to the pharmacy to be filled, just to find out that the doctor had written the wrong date on the script — beyond the fourteen-day refill window. The pharmacy refused to call my doctor, telling me that I would have to get a new script. I was unaware that Tramadol was being treated the same way as Hydrocodone. Had I known this, I would have paid closer attention to the date on the script. Fortunately, I had enough Tramadol to last me until my upcoming doctor’s appointment.
Research dating back more than a decade suggests that people with chronic pain may be able to improve their quality of life if they stop trying to avoid or get rid of their pain and instead learn to live as well as they can as the pain persists, a concept referred to in clinical settings as pain acceptance. Some psychologists and psychiatrists believe that pain acceptance might even help counteract opioid abuse in the United States, a problem so severe that it has contributed to a decline in American life expectancy. The idea that pain acceptance might serve as an effective alternative to opioids is an emerging area of research and not something that has been definitively established. As the idea attracts attention in the world of pain management and in the media, it has also generated controversy.
An estimated five to eight million Americans take opioids to manage long-term chronic pain, and the number of people in the U.S. who have died from overdosing on opioids — a class of drugs that includes prescription painkillers like oxycodone and illicit substances like heroin — has risen dramatically in recent years. In 2016, prescription opioids were involved in roughly 40 percent of opioid overdose deaths, according to the U.S. Department of Health and Human Services. There are plenty of people who don’t become addicted to prescription opioids, but taking them involves serious risks, from adverse side effects to the potential for dependence. A backlash against the drugs, from state laws limiting access to federal guidelines warning of their risks, has sent doctors searching for alternative treatments. In the midst of the crisis, some pain and addiction researchers are interested in determining whether pain acceptance could help people cut back on opioids.
Several studies have raised the possibility that people who are less accepting of pain may be more likely to become dependent on painkillers. A 2015 article in the journal Drug and Alcohol Dependence found that people who were better able to live with pain without attempting to reduce or avoid it had less severe problems with opioids. The study reported that pain intensity itself was not significantly associated with the severity of problematic opioid use. That led the authors to conclude that the extent to which a person accepts and adapts to pain, or doesn’t, may be “more important as a risk factor for the misuse of prescription opioids or heroin than is the actual severity of pain.”
In September 2017, an article in the Clinical Journal of Pain found that people who were more accepting of chronic pain used less pain medication, including opioids, regardless of the severity of their pain. “We think that’s a good indicator that increasing pain acceptance in people with chronic pain might reduce their reliance on pain medication,” said Dr. Anna Kratz, an assistant professor of physical medicine and rehabilitation at the University of Michigan who helped carry out the study. “They might turn less to medications on a day-to-day basis if they have more pain acceptance.”
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It may not be surprising that people with chronic pain don’t necessarily like the idea of accepting it. When researchers at the University of New Brunswick asked women with chronic pain from arthritis and fibromyalgia what they thought about pain acceptance, many had a negative reaction. Most of the women associated acceptance with “giving up or giving in to their pain,” the researchers wrote in the journal Pain Research and Management in 2008. But many of the women had learned to live with their pain in a way that roughly aligned with the concept of pain acceptance: They were determined to live as well as they could despite their conditions. Rather than describing that as acceptance, the women preferred to use words like “embracing,” “coming to terms with” or “dealing” with their pain.
There’s no one way that people learn to accept and live with chronic pain. What works for one person might not work for another. But some individuals participate in a form of therapy called acceptance and commitment therapy — commonly referred to as ACT. Developed in the 1980s and 1990s, acceptance and commitment therapy emerged out of the tradition of cognitive behavioral therapy. In contrast to traditional cognitive therapy, acceptance and commitment therapy asks people to accept thoughts, feelings, memories, and bodily sensations that are beyond their control, rather than attempt to change or get rid of them. The therapy then encourages people with chronic pain to take part in activities that add value and meaning to their lives, even as pain persists.
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In other words, people with unrelenting chronic pain just need to suck it up and embrace the fact that their pain is never, ever going away. The false assumption here is that chronic pain sufferers are not already doing this. They are, and reaching out to a broader pool of pain sufferers would have revealed this to the article’s author, Clare Foran. While a tip of the hat is given to the idea that the goal should be pain elimination, the gist of the article is the importance of chronic pain sufferers doing their part to combat the opioid crisis. Again, it is people who are on pain management regimens that are being singled out and expected to forgo needed pain meds, not because this would be better for them, but in doing so they give the appearance that something concrete is being done about the opioid crisis.
Most of the chronic pain sufferers I know are already “living” with their pain.” They have been sucking it up for so long that they have concave chests. Here’s a grossly under-reported fact: narcotic drugs, when taken as prescribed, do NOT take pain away. What these drugs are meant to do is level out what are called pain spikes. When this occurs, chronic pain suffers achieve a certain quality of life, often allowing them to work and do other things they would not be able to do without taking narcotic prescription drugs. Without taking them, life is unbearable, leading to depression and, at times, suicide.
I was diagnosed with Fibromyalgia in 1997. Since then, my health has deteriorated ever-so-slowly. As I have aged, osteoarthritis has spread from joint to joint, and today it’s found in my spine, shoulders, neck, hands, knees, and feet — pretty much everywhere. And then there’s a neurological problem that causes burning pain in my thighs, face, and lower back. There’s not a day or an hour that goes by where I don’t feel pain somewhere from the top of my head to the bottom of my feet. I take narcotics, then, so I can have some semblance of a life. Without these drugs (and others), I would not be able to write, shoot photographs, or attend my grandchildren’s sporting events. It’s the drugs that level off the pain highs so I can do these things, even though I know there is a price to pay for doing so. You see, all narcotics do is mask (reduce) pain. The underlying diseases are there, and, in my case, they are exacerbated when I do anything more than lie in bed and wish I could die. I know that doing physically active things aggravates my joints, nerve endings, and muscles. I ignore this outcome because taking photographs, going out on the town with my girlfriend, or attending a sixth-grade softball game are more important to me. I want to do these things, knowing that by doing so I will pay what I call “the price of admission.” The days after attending such events are, on a pain scale of 1 to 10, off the charts. All I can do is pray to Zeus, curl up in my recliner, and cry my way to a better day. On these kinds of days, narcotics do not give the advertised relief. They help, but not enough to allow me to do much of anything. I have to wait until pain levels reach “normal” levels.
Earlier this year, I agreed to take photographs for the local high school’s spring sporting events. I did the same for winter sports. The difference between shooting a basketball game and photographing a softball game is that for the former, I can sit, but for baseball and softball games I must stand. And standing for longer than fifteen minutes is a big problem for me. If you have ever seen me walking through one of the local stores you’ve likely noticed that I am often hunched over the shopping cart (pride keeps me from using a battery-powered scooter). After about fifteen minutes of walking, my thighs and face turn numb and begin to burn. Hunching over the cart, brings some relief. In 2007, when this problem first appeared, I had an extensive neurological workup — $20k worth of tests. Doctors thought, at the time, that I had Multiple Sclerosis (MS). The tests came back negative or inconclusive. I have had three brain scans since then, but still no definitive signs of MS. So, for now, I live with the effects of an unnamed affliction (not that naming it would make a difference). Personally, I think the numbness and burning is related to my lower back and a narrow disc space I have had for twenty-five years.
Standing, of course, is impossible to avoid if I want to be a photographer, grandfather, or a living, breathing human being. So, I stand, and when the numbness and burning pain screams in my ears, I put a mental stick in my mouth, bite down, and bear it. I’ve done this countless times over the years, knowing that if I do this or that the pain — narcotics or not – is going to come in waves with no possible relief, save death. I wonder if the twenty-eight-year-old Clare Foran has ever experienced pain such as this? I doubt it. Had she experienced it, I suspect she wouldn’t have been so quick to preach the gospel of suck-it-up.
I wrote the above to say this: I have been “sucking it up” for two decades. I have made peace with the fact that my pain problem will be with me until I die. And I am fine with that. I am quite stoic about life. It is what it is. I accept that life for me means living with chronic pain and illness. There are no cures on the horizon, no magic drugs that will make life’s boo-boos go away. All that I ask is that the government and so-called experts quit fucking around with my pain management regimen. I am not an addict. I don’t abuse the narcotics I take, nor do I use illegal drugs. Am I drug dependent? Sure. How could I not be after a decade of taking narcotics. But dependency is not the problem, addiction is. I am dependent on blood pressure drugs too. Should I just suck it up and live with high blood pressure? Of course not. These drugs have likely added years to my life, as has taking narcotics. Without pain medication, I would have long ago put an end to my suffering. With the drugs, I am able to carve out a decent life for myself, not without pain, but with pain that is, on most days, manageable. I don’t expect doctors to fix what can’t be fixed. All I ask of them is that they do what they can to improve my quality of life. And for now, quality of life requires narcotics, along with anti-inflammatory drugs.
For those who say, just suck it up, I say, walk in my shoes and then we will talk. Until then, talk to the hand. Until you have experienced and lived with long-term, unrelenting pain, there’s really no frame of reference for you to understand how it is for chronic pain sufferers. And I hope you never have to experience such a life. I wouldn’t wish this on anyone. I don’t want pity, and I sure as hell don’t want lectures about what’s “best” for me (as a pharmacist and an optometrist once tried to do). I have a primary care doctor whom I trust to do what is best for me. I also have specialists I can see, if needed. I am in good hands, even if there are days when I can hardly bear to have those hands touch me. I will soon be sixty-one-years old. I know most of my life is now in the rear-view mirror. All I want now is to live what life I have left to its fullest, hoping that I see the Cincinnati Reds win the World Series before I die. Well, that and see my grandchildren graduate from college. I can then go to the happy hunting grounds in peace.
Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
Thanks to rampant opioid abuse, chronic pain sufferers face increased scrutiny and hassle when their doctors prescribe them narcotic medications for their pain. Five years ago, my doctor would write me a prescription for Vicodin with two refills. My Tramadol prescription had five refills. Today? I am treated like a drug addict, not because my doctor wants to treat me this way, but because state and federal law requires him to do so. Here’s what’s required today for me to get my pain meds:
I must see the doctor every two to three months at a cost of $175 per visit.
The script cannot be electronically submitted. The doctor must give me the scripts to take to the pharmacy.
The script cannot have any refills. This necessitates the doctor writing and giving me two or three scripts at a time.
The script must list what I am be prescribed the medications for.
The doctor must write the fill date on the script.
The doctor is required to fill out an opioid load report on me.
I am required to sign an annual pain management agreement that says my doctor can drug test me at any time without warning.
After I receive the script:
I have fourteen days to fill the prescription, from the fill date written on the script by the doctor.
In the case of refills, I can only fill the prescriptions twenty-four hours before they are due to be refilled.
Zeus help you if you lose a script or try to fill your prescription a day too early. You are immediately treated like a criminal. Today, Polly went to the Meijer pharmacy to have my prescriptions filled. The pharmacist and one of the techs had a discussion about whether I was trying to refill my Vicodin prescription too soon. The pharmacy tech had to explain to the pharmacists how to count to one. Worse yet, I didn’t know that the fourteen-day rule applied to Tramadol. It does, and because my doctor listed January 28, 2018 as the fill date, the pharmacist said the script was invalid and he refused to fill it (nor did he make any attempt to call the doctor to get the date straightened out).
I get it, people are dying from opioid addiction (primarily from Fentanyl use), but law-abiding chronic pain sufferers are facing increased indignities as government and law enforcement take a one-size-fits-all approach to illegal narcotic use.
A report posted today by KETV-7 aptly describes what many chronic pain sufferers are going through to get their pain medications. Reporter Rob McCartney writes:
But some say that war creates collateral damage, innocent victims who rely on those opioids to keep their chronic pain at bay.
Joni Pilmaier is one of those patients.
Her entire spine is covered with titanium rods and screws.
She had major surgery ten years ago, for scoliosis and osteoarthritis.
“I was hoping after I wouldn’t have any pain, but that big of surgery it’s not that surprising I guess,” said Pilmaier.
But a decade later she is still dealing with chronic pain.
The former occupational therapist tried physical therapy, spinal injections and bio-feedback.
The best relief though came from opioid treatment.
That medication helps Pilmaier just get out of bed and function at a minimal level.
When asked what she would do if she was forced to give up the drugs, Pilmaier said, “I don’t know. I’m not sure what would happen.”
But a lot of chronic pain patients have to face that very decision right now.
In trying to stem a flow of opioid overdoses, in 2016 the Centers for Disease Control released these Opioid Guidelines for doctors..
The CDC recommends a daily limit of 90-morphine milligrams (MME).
That would be a severe cutback for many patients.
Omaha doctor Kurt Gold prefers using a non-opioid methods [sic] like exercise to treat his pain patients. But he tells me about half of them can’t be helped that way because of painful, permanent nerve damage.
“In those cases I think opiates would be appropriate for them to continue so that they can function,” said Gold.
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“In Nebraska, the suicides are going up. And as of 2016 we surpassed the national average for suicides per capita. That’s a problem,” said Gold.
The problem is caused by chronic pain patients who see their long-time access to medications reduced or even eliminated.
They think there’s no way out, preferring to end their pain forever.
“In my current practice I’m aware of seven patients that are suicidal. Seven people are on the brink,” worries Gold.
The State of Nebraska said it doesn’t track of why people commit suicide, but The Kim Foundation, an Omaha-based mental health and suicide support group, told me they do hear of that happening.
Pilmaier stresses she is not going to go to that extreme.
But she does see the desperation across the country, as she monitors several chronic pain chat rooms.
“Everybody’s extremely ticked-off at what’s going on,” Pilmaier said, “Some are saying, “Oh my God, what if it happens to me?””
Many pain patients, like Pilmaier, agree the government should go after people who are “gaming the system”. People who illegally obtain prescription painkillers.
But she says politicians should not tell doctors how to do their jobs, nor should they discount what many people will live with the rest of their lives.
“You need to walk a day in my shoes. You don’t know what it feels like to have pain every day, to wake up in pain, to go to sleep in pain. And to be in a climate where the only thing that helps your pain is being taken away from you…,” Pilmaier said shaking her head.
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Jerry Mitchell, a reporter for the Clarion Ledger, writes:
Many chronic pain patients, who don’t suffer from cancer or other fatal diseases, worry they will become the casualties in the battle against the opioid epidemic.
“It’s like a war on chronic pain patients,” said Jaqueline Schneider, a 56-year-old Pittsburgh woman who suffers from two rare spine diseases. “Nobody mentions legitimate pain patients. It’s like we have the plague.”
She calls what is happening now “opioid hysteria,” saying the federal government’s “overzealous tactics … are creating fear in the chronic pain community.”
Many doctors and pharmacists fear they may become targets and are limiting the opioids they prescribe or distribute, she said. “It’s all trickling down.”
She is hardly alone in those fears.
Dennis Ewing Sr., a 61-year-old disabled printer in San Antonio, takes the equivalent of 135 mg of morphine a day for his intense spinal pain.
The U.S. Centers for Disease Control and Prevention has recommended health care providers prescribe no more than a 90 mg morphine equivalent and justify it whenever they go beyond that amount.
If reduced to that limit, “I wouldn’t be functional at all,” Ewing said, adding that he fears he might commit suicide in that case. “It scares the hell out of me.”
He has already changed pain doctors because the previous one took away his longtime prescription for muscle relaxers, which are the only way he can sleep, he said.
He knows he is physically dependent on opioids and would encounter withdrawal if he went off the drug, “but I’m not an addict,” he said. “I’ve been fighting this pain since the 1990s.”
I have lived in persistent chronic pain for 17 years. My body chemistry has physically changed to believe that pain is normal. I’ve gone through every test and every diagnostic procedure imaginable, and pursued every treatment available to me. I’ve repeated treatment options countless times hoping many of them will one day bring relief. I have adjusted my lifestyle countless times, changed my diet countless times, incorporated methods of healing from other cultures, pulled from all resources in Eastern and Western medicine and beyond.
I remain in constant pain, despite all my efforts. This abnormality is my normal, 24 hours a day, 365 days a year.
There are millions of people in this country alone who struggle with chronic pain every day, just like me. Chronic pain conditions are notoriously misunderstood and misdiagnosed.
For 17 years, I have taken painkillers to help manage my pain. I don’t take them every day. I don’t rely on them as a solution to a never-ending problem or view them as a cure. I take painkillers when I literally think about throwing myself into a wall because being unconscious is preferable to being in that much pain.
Yes, it is that extreme, because taking painkillers has never been a casual decision, for me or for my doctors (past and present) that prescribe them to me. Doctors shouldn’t prescribe painkillers unless they are absolutely, medically necessary and patients shouldn’t be reckless about taking them.
The uncomfortable truth that no one wants to talk about is some patients need painkillers to survive. Yes, need. This is not debatable. This is not politics. But myself and patients like me are severely punished in this war on opioid addiction. We are the people whose quality of life will be greatly affected, even though we have done nothing wrong and have taken our medication as directed. We are the people who are constantly shamed, every day, for this reality we live in and cannot change. And we are the last people who should apologize for needing this legitimate medical treatment.
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Many people living with chronic pain conditions already live with constant guilt about their circumstances. The shame and stigma I have encountered living with a chronic pain has driven me to hide it from the world. It is only recently I have begun to speak openly about the side of my life I never let anyone see. Early on, my honesty was met with hostility and rejection. People don’t understand what they cannot see.
I chose to live a life that includes more than being a professional patient with four doctor appointments a month. But this choice comes with the price of being misunderstood even more. The daily physical and emotional struggles I have are enough. I don’t need government officials completely destroying the quality of life I have come to know with medication.
In an effort to save the lives of people who abuse prescription drugs or become addicted to illegal drugs, this “war on opioids” is setting up a medical system that will only bring misery to patients who are not addicted to drugs and in genuine need of painkillers. My rights and my fellow chronic pain patients’ rights are on the line. When you live in constant physical pain and you find something that provides you with any kind of relief, it cannot and should not be taken away.
Chronic pain sufferers are low-hanging fruit; easy targets for the DEA and state law enforcement as they wage war against drug addiction. Quite frankly, I am tired of being a target. But what other choices do I have? Without pain medications I would be dead, murdered by my own hands. The drugs I take provide me a respite from pain. Narcotics don’t make the pain go away, but they do lessen the pain and smooth out (on most days) spikes in pain levels. Is it too much to ask that, in the midst of my suffering, I not be harassed and shamed by medical professionals, pharmacists, and government officials?
Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
