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Tag: Bile Reflux

Bruce and Polly, My Final Wish is That You Come Back to the Lord

Bruce Gerencser 12 Comments
bruce and polly gerencser 1978
Bruce and Polly Gerencser, in front of first apartment in Pontiac, Michigan, Fall 1978 with Polly’s Grandfather and Parents

For Bruce and Polly Gerencser, 2020 has gushed into 2021, washing over virtually every aspect of our lives. Now that an adult is president, we are confident better days lie ahead. We watched the White House press briefing today. Oh my, what a refreshing difference from the insanity of the Trump years. Dr. Tony Fauci spoke about the Coronavirus Pandemic and how the Biden Administration plans to address a virus that will likely kill over 500,000 Americans by the first of March. So refreshing (and sobering), to say the least.

While it is nice to see a glimmer of hope here and there, I can’t help but be physically reminded that I am very sick and there seems to be no end in sight for my struggles. I saw a gastroenterologist yesterday, hoping that he might have some sort of magical cure. Alas, none is forthcoming. The bile reflux problem I am having is the direct result of having my gallbladder removed last August. Bile reflux is a known complication of the surgery — which was never explained to me by my surgeon — and all that can be done now is to treat and manage the symptoms: bowel pain, weight loss, lack of appetite, intermittent constipation/loose stools. Currently, I am on three medications. The doctor wanted to add one more drug, but the cost was so prohibitive I couldn’t fill the prescription. Our insurance doesn’t have a drug plan, per se (outside of life maintenance drugs). Thus, we have to pay the full cost for prescriptions until we reach our $3,400 deductible. Then we pay 80/20 until we reach our maximum out of pocket, $6,700. In 2020, our total medical costs were almost $10,000.

If these drugs don’t work as expected, then the next step is having a procedure where the doctor injects the pylori sphincter muscle in the stomach with Botox, paralyzing the muscle. This treatment typically lasts 3-4 months. When the doctor was explaining this procedure to me, I couldn’t help but make a joke about getting Botox injections for the wrinkles on my face. When I want to cry, I try to look for a joke — somewhere, anywhere — to take my mind off my afflictions. Some days, nothing stems the flow of tears. To use a worn-out cliche, “I am sick and tired of being sick and tired.”

And if that was not enough to deal with, Polly’s 85-year-old mom had a heart attack on Tuesday and was rushed to the hospital. You might remember, Polly’s dad suddenly died several months ago. We also found out that Mom has stage three/four kidney failure — something she has known for a year but ignored because she “felt” fine. Mom has had congestive heart failure for years, and while in the hospital this time, the doctor put in a stent. This made a big difference for Mom, but the long-term prospects for her don’t look good.

Polly called her mom just before she went in for her heart catheterization procedure. Mom, short of breath and having difficulty speaking, told her only daughter, “my wish for you is that you come back to the Lord.” I suspect Mom knows the end is near and she wants to be sure she makes her dying wish known to us. Polly thanked her mom, changed the subject, and told her that she loved her. This is the second time in twelve years that Mom has said anything to Polly (or me) about our loss of faith. Outside of telling us that she is praying for us, our unbelief has remained THE elephant in the room. We have not had one meaningful discussion with Polly’s mom (or dad when he was alive) about why we left the ministry and later walked away from Christianity.

We certainly want Mom to have her every need met as she nears the end of her life. We have no desire to cause her unnecessary pain or disappointment. However, her wish is one we cannot fulfill. Had she taken the time to understand why we deconverted, she would have known that mere wishing will not bring us back to the faith. If only wishing would change our lives, right? In a humorous moment last night, I told Polly, “I wish for strippers and millions of dollars!” We both had a good laugh, not at Mom, but the idea that wishing can make anything happen.

Mom is a lifelong Independent Fundamentalist Baptist (IFB). Her late husband was an IFB preacher for many years. I pastored several IFB churches, and Polly was right there beside me every step of the way. I am sure Mom sincerely thinks that if we would just return to those days, that all would be well. She could die happy, knowing that we would someday join her in the IFB version of Valhalla. Unfortunately, that is not going to happen — ever.

As much as we want Mom to leave this mortal life with a smile on her face, we can’t dismiss our beliefs and come back to Jesus just to make her (and other family members) happy. As with many atheists and agnostics, the only thing that will possibly change our minds is evidence; evidence for the existence of the Bible God; evidence that the central claims of Christianity are true; evidence that Jesus is who Evangelicals claim he is. We cannot and will not just “faith-it until we make it.”

I fear that after Mom dies, we will face one last effort by IFB family members and Mom’s pastor to reel us in for Jesus. “Don’t you want to join your mom in Heaven?” “Don’t you want the family circle to be unbroken?” Maybe we will hear one last warning about God’s judgment and the Lake of Fire or Pascal’s Wager will be trotted out for the 10,000th time. None of these tactics will work. As confirmed as IFB family are in their beliefs, so are we in our unbelief. Trying to guilt us into believing will not work.

As Polly and I prepared for bed last night, I told her of my concerns about settling Mom’s affairs after she is gone. It’s going to be a mess, but as the only daughter, it falls on Polly to take care of everything. We live almost 4 hours from Mom’s home, so, in the midst of a pandemic, we will have to risk our health to take care of everything from the funeral to paying bills to clearing out her apartment. This is certainly not something that we are looking forward to. But, when you are an only child, the burden is yours. And as the dutiful child she has always been, my dear wife will take care of things.

I reminded Polly that once all these things are done, we will get in our car and drive home, never to return to Newark, Ohio — a place of so much heartache. We will lament Mom’s passing, but seeing Newark in the rear view mirror? We will rejoice, knowing that we no longer have to deal with a church and (some) IFB believers who have caused us harm. I am sure it will be a sad, but liberating, moment.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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You can email Bruce via the Contact Form.

Understanding and Helping Those Who Live With Chronic Pain

Bruce Gerencser 16 Comments
garfield pain

Regular readers know that I live with chronic, unrelenting pain. There’s never a day that pain is not my close, personal friend. The last time I can remember a pain-free day was somewhere in the mid-1990s (I was diagnosed with fibromyalgia in 1997). Every day, like the sun coming up in the morning, I have pain. Some days are less painful, other days are more painful, and then there are what I call the please let me die days where the pain, no matter what narcotics I take, is off the charts. From the top of my head to the bottom of my feet, I hurt. New pains come and go, often returning months or years later. Some pains move in and stay, just like an adult child who says, “I just need to live here until I get back on my feet.” This is my life. I accept it as it is, doing what I can, and embracing what I can’t.

Friends and family often have a hard time figuring out how to interact with me. Some avoid me — out of sight out of mind, I suppose. Some stand on the periphery of my life watching as chronic pain and illness destroy the man they love. Some dare to venture a little closer, perhaps even offering to help, but I often push them away, not wanting to burden them with my problems. They have a life, I tell them, no need to be burdened with a dying old man.

The last two years have been record-setting, and not in a good way either. Not only do I continue to struggle with fibromyalgia and osteoarthritis, but after I had my gall bladder removed in August, I am dealing with bile reflux and gastritis (bile is pooling in my stomach, not draining down my intestine as it should). I have lost 105 pounds in twelve months, don’t feel like eating, and now I am having a problem with super lower blood pressure (and this is after stopping ALL of my blood pressure medications). And then there are my low blood cell counts that no doctor, so far, has been able to figure out.

I know family and friends love me and want to be “there” for me, wherever “there” is. Some of the readers of this blog — dear folks who have over the years become my friends — offer up their love and support and I deeply appreciate their kindness and compassion. I know, as people watch the spectacle of my life, they are frustrated and discouraged, knowing that this may not have a good outcome. I resigned myself to this fact a long time ago. If not today, it will be some other day, sooner rather than later, that will be my last. Like you, I want to live until I die. While I may have moments when I contemplate suicide, most days I try to live the best life possible.

Several years ago, I read a wikihow.com article titled How to Understand Someone With Chronic Pain. I thought the points in the article might be helpful for my family and friends and for others who are intimately connected to someone with chronic pain. Here are some of the points and a highlight quote from each. I encourage you to read the entire article.

Remember that being sick does not mean that the sufferer is no longer a human being.

Chronic pain sufferers spend the majority of their day in considerable pain. If one visits or lives with a chronic pain sufferer, the chronic pain sufferer may be unable to enjoy things they used to enjoy. The chronic pain sufferer remains aware, and desires to do what they used to perform. The chronic pain sufferer feels as if they are stuck inside a body in which they have little or no control. They still want to enjoy work, family, friends and leisure activities, however much pain puts that enjoyment out of reach.

Learn the code.

Chronic pain sufferers will often talk differently from people free of constant pain. A numeric pain scale is used as a quantitative measure for identification of intensity for pain so the health care providers can measure effects of treatments. The measure describes pain on a scale from 1 to 10; the 1 is “no pain at all, feel wonderful” and 10 is the “worst pain ever felt.” Do not assume the chronic pain sufferer is not experiencing pain when they say that they are fine. The chronic pain sufferer attempts to hide the pain due to lack of understanding in others.

 Recognize the difference between “happiness” and “healthy.”

When you have the flu, you probably have felt miserable. Chronic pain sufferers have experienced pain from 6 months to many years. Pain has caused them to adopt coping mechanisms that are not necessarily reflecting the real level of pain they feel.

 Listen.

The previous two steps made it clear that chronic pain sufferers can speak in code or make their pain seem lighter than the reality. The next best thing that you can do is to listen to them properly, and to make it clear that you both want to hear what they have to say and that you really have heard it. Use your listening skills to decode what they’re hiding or minimizing.

 Understand and respect the chronic pain sufferer’s physical limitations.

Being able to stand up for ten minutes doesn’t necessarily mean that the sufferer can stand up for twenty minutes, or an hour, or give you a repeat performance whenever. Just because the person managed to stand up for thirty minutes yesterday doesn’t imply that they will be able to do the same today…With chronic pain however, it is confusing to both the sufferer and the onlooker, and their ability to cope with movement can be like a yo-yo. The sufferer may not know, from day-to-day, how they are going to feel when they wake up, and each day has to be taken as it comes.

 Leave your “pep talk” for your kids and your gym buddies.

Realizing that chronic pain is variable, keep in mind that a pep talk can be aggravating and demoralizing for the chronic pain sufferer. As already noted, it’s quite possible (for many, it’s common) that one day they’re able to walk to the park and back, while the next day they’ll have trouble getting to the next room. Therefore, it’s vital that you don’t fall into the trap of saying: “But you did it before!” or “Oh, come on, I know you can do this!”

 Never use throwaway lines.

Assuming you know best by making such statements as “Ah well, that’s life, you’ll just have to deal with it”, or “You’ll get over it eventually. Until then, you’ll just have to do your best”, or worst of all, “Well, you look well enough,” etc., are lines that might make you feel done and dusted with the topic but they are both a form of distancing yourself from the person and making the sufferer feel worse and out of hope.

 Check your own patience.

If you’re impatient and want them to “just get on with it,” you risk laying a guilt trip on the person who is suffering from pain and undermining their determination to cope. They probably have the will to comply with your requests to go out and about with them but have neither the strength nor the coping capacity as a result of the pain.

 Be sensitive when suggesting medicines or alternative treatments.

Some may not appreciate suggestions, and it’s not because they don’t want to get well. They may have heard of it or tried it already or some may not be ready to cope with new treatment that can create an additional burden on their already over-burdened lives. Treatments that haven’t worked carry the emotional pain of failure, which in and of itself can make the person feel even lower.

 Don’t be put off if the chronic pain sufferer seems touchy.

If that’s the appearance, it’s probably because they are. It’s not how they try to be. As a matter of fact, they try very hard to be normal. Just try to understand. They have been going through a lot. Chronic pain is hard to understand unless you have had it. It wreaks havoc on the body and the mind. It is exhausting and exasperating. Almost all the time, they do their best to cope with this, and live their lives to the best of their ability. Just accept them as they are.

 Be helpful.

The chronic pain sufferer depends a great deal on people who are not sick to support them at home or visit them when they’re too sick to go out. Sometimes they need help with shopping, cooking, or cleaning. Others may need help with their kids. They may need help getting to the doctor, or to the store. You can be their link to the “normality” of life.

Is there anything you would add to this list? Please leave your astute observations in the comment section.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.