Tag: Endocrine Pancreatic Insufficiency

  • What Do We Do When Doctors Have No Answers?

    doctor chart

    Thirty years ago — I was thirty-eight — I pastored Our Father’s House in West Unity, Ohio. As Polly and our children will attest, I was a busy preacher, a workaholic who rarely took time off from the ministerial grind. In the summer of 1995, I started feeling tired all the time. I wasn’t sleeping. My muscles ached. I wondered, “What is wrong with me?”

    I sought out the care of a primary care doctor in Defiance, Ohio, who gave me a half-assed exam, drew no blood, and decided that my real problem is that I was depressed over my mom’s death FOUR YEARS EARLIER! That, of course, was so far from the truth that it wasn’t funny. I told this medical school reject that I wasn’t depressed. My body hurt, and I needed to figure out why.

    The next year, I saw a primary care doctor in Bryan, Ohio. This man is still my doctor to this day. After months of examinations, tests, and research, he concluded that I have fibromyalgia. The past thirty years have proven this diagnosis to be true. Over the years, other diagnoses were added to my chart: gastroparesis, endocrine pancreatic insufficiency, osteoarthritis, and degenerative spine disease — all incurable. All doctors can do for me is treat my symptoms — to varying degrees of success.

    There are other health problems that I have given up on. I have been to numerous specialists, each concluding that they don’t know what’s wrong with me. I asked one doctor what I should do next. All I got was a shoulder shrug and an “I don’t know.” My primary care doctor told me that I am an enigma to him. I am oh-so-special, right?

    Americans want to believe that doctors are miracle workers. They are not. Skilled, competent practitioners of medicine? You bet. But miracle workers they are not. They all have patients like me, people they can’t do much for much for. This is especially true for chronic pain sufferers. I saw a neurosurgeon last week. More surgery may be on the horizon, though I am weighing whether I want to have it. I asked him about the severe neuropathic pain in my legs. Unbearable, at times, to say the least. He bluntly told me, “No, there’s really nothing that can be done for your pain.” Of course, I already knew that. I know my body inside and out. When doctors tell me something I don’t know, I go home and research the hell out of the subject. I know that there’s not much that can be done for neuropathic pain. Live with it, or die. Some days, the latter seems preferable.

    I have an EMG (electromyography) scheduled next week. The neurosurgeon wants to see if he can pinpoint the locus of my neuropathic pain. I am not optimistic that anything will come from this, but since I have never had an EMG on my legs, I thought it would be a good idea to have the test done. Maybe a miracle diagnosis awaits, right?

    Bruce Gerencser, 69, lives in rural Northwest Ohio with his wife of 48 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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    You can email Bruce via the Contact Form.

  • Does Suffering Make You Stronger?

    suffering and pain

    I have been told countless times over the past twenty years, what doesn’t kill you will make you stronger. Is this a true statement? Not from my perspective. Two-plus decades of chronic pain and suffering have not made me stronger. Over the years, I have been diagnosed with and treated for (in order of severity): degenerative spine disease, peripheral nerve pain, gastroparesis, exocrine pancreatic insufficiency, osteoarthritis, diabetes, and high blood pressure. I have also been treated for basal cell and squamous cell skin cancer three times, with another treatment forthcoming due to a cancerous growth on my left forearm.

    My first battles with health problems date back to the 1980s. Primarily immune system problems, I ended up in the hospital with mononucleosis in 1991. What is called a “kissing disease” for teenagers, for adults, mono is a serious disease that can kill you. I was so sick that I had a 104-degree temperature, my liver and spleen were swollen, as were my lymph glands, and my adenoids and tonsils were pure white from infection. The internist treating me said that there was little he could do for me; that it was up to my body to fend for itself. I eventually recovered. All told, I lost over fifty pounds and was unable to preach for two months. One oddity to come out this is that my normal body temperature is now 97.0 degrees. (Good luck trying to explain to a nurse that 99 degrees is the equivalent of 100.6 degrees — you know, a fever.)

    Suffering is part of the human experience. All of us will suffer at one time or another in our lives, and our suffering is unique to each of us. Can suffering make us stronger? Sure, it can, but that doesn’t mean it necessarily does. I know that for me, I don’t see anything redemptive in my suffering. I don’t have pain-free days — ever. I have bad days, less bad days, and days when I want to kill myself. My mobility is greatly diminished, and I am prone to nasty falls. Life is what it is, and I accept that this is life until I die. No magic surgeries or miracle drugs await me. What DOES await is life, and I do what I can to make the most of it.

    Has chronic pain and suffering made me a better man? Maybe. I am more empathetic towards the suffering of others. As a fellow sufferer, I understand what they are going through. However, I am more inclined to think that pain and suffering have turned me into a broken man; a man who silently pleads for a day, just one day, without pain. I have found that the only pain-free times in life were when the anesthesiologist told me to count back from ten as I fell asleep.

    Please don’t tell a chronic pain sufferer that their suffering is making them stronger. You can’t know this, so instead of pretending you are a mindreader, how about (gently) embracing their suffering with love, kindness, and compassion?

    Bruce Gerencser, 69, lives in rural Northwest Ohio with his wife of 48 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

    Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

    You can email Bruce via the Contact Form.