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Tag: Pain Management

A Plea From a Chronic Pain Sufferer: Please Be Aware of Others

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not all disabilities are visible

I have spent the past three decades battling fibromyalgia, osteoarthritis, and degenerative spine disease. I say battling, but perhaps I should say, being BATTERED, by people who are often unaware of their surroundings. Not a day goes by for me that I don’t have never-ending, unrelenting pain. Even with being on narcotics and NSAIDS, along with steroids and muscle relaxers, I find that the pain remains. Without the drugs, the pain is unbearable. With the drugs, I can have what my doctor calls “quality of life” — quality, of course, being loosely defined, and I suspect meaning something different to my doctor from what it means to me. I could take enough drugs that they would make me oblivious to the pain, but there’s no “quality” in such a life — at least for me. If I want to drive — scratch that, I lost ability to drive in 2020 — attend my grandchildren’s school events, and photograph high school sporting events — scratch that, I lost the ability to use my professional camera equipment in 2021 — I must accept a certain level of managed pain; pain that is not so severe that doing most anything is impossible.

In the eyes of many people, I look quite normal. Yes, I walk haltingly with a cane and walker, and probably should have a “slow-moving vehicle” sign attached to my ass. Aside from this, I hide my pain well. Family and friends, of course, are well acquainted with my suffering, and they usually (not always) go out of their way to make things easier and less painful for me. It is when I come in contact with the public that I often find myself beaten and battered by people who seem clueless about how their behavior affects others around them, especially someone such as myself, who doesn’t need any more pain added to his plate.

Several years ago, I went to a high school basketball game. I arrive at games early so I can secure a front-row seat. This allows me to have a court-level view of games. My daughter with Down syndrome — we are quite a pair, she and I — usually sits in the row in back of me, slightly to the left or right of my back. By doing so, she typically wards off people from sitting in back of me. Not this night. Ten minutes prior to the start of the junior varsity game, a middle-aged couple and their early-20s daughter planted themselves directly in back of me. For the next three hours, I was subjected to knees, feet, and purses being pushed into my back. After being battered during the first game, I decided to sit on the edge of my seat, hoping that this would place me beyond their reach. Unfortunately, the unaware batterers saw my move as an opportunity to increase their real estate, and the thumps, bangs, and jabs continued.

If I were a cranky curmudgeon, perhaps I would have asked them to stop, but instead, just as I have done for years, I endured their cluelessness. I don’t expect people to innately know that a chronic pain sufferer is sitting in front of them. That said, it perplexes me that so many people never learned to be aware of their surroundings, nor did they learn to pay attention to how their behavior affects others. My children were taught at an early age to pay attention to who is around them. Respect the space of others, and don’t do anything that could cause harm to someone else. I have been kicked half to death by more booted five-year-olds than I can count. Kids are kids, and I don’t expect them to necessarily understand respecting the person of others. However, these little kickers should, at their advanced stage of development, have parents that understand their children beating on a man who looks like Santa Claus is not respectful and can, if Santa is so inclined, result in Little Johnny getting coal in his stocking on Christmas. 🙂

Polly and our children will tell you that I was and am hyper-aware of my surroundings, never wanting to do anything that would inconvenience or harm others. I passed this awareness on to them, and I see it in the behavior of my grandchildren. Learning simple things such as not standing in the middle of the grocery aisle blocking the lane or running up and down bleachers causing them to bounce — both of which can and do affect others — should be part of standard child training. My grandchildren have had to learn that, yes, I want to hug each of them, but they mustn’t launch themselves into my lap, causing me pain, or, in some instances, sending my testicles into my eye sockets. My grandchildren know that they must be gentle with Grampa or Bapaw, as my four-year-old grandson calls me, not because I will yell at them if they don’t, but because the fact of their doing so means they understand, at some level, my physical struggles.

I realize there will be times when people inadvertently run into me. Such is life. But what bothers me is people who seem to have no awareness of anyone but themselves. I feel, at times, when such people physically assault me, that they are saying to me, Hey old man, get out of my way. Move it, I have got places to go and people to see. (I do all I can to stay out of the way, knowing that other people are busy and have things to do. I consciously try to make it easy for people to avoid contact with me.) Smartphones have made such behavior worse. People zoned out on their phones careen through stores and public places with nary a thought about the people around them. This is one of the reasons that I avoid department stores during the holidays. After being repeatedly banged into with shopping carts and oversize purses as women pass by, I find my anger increasing, and I begin to have thoughts of clobbering someone with my cane. I know having such thoughts is normal, but I find it better to avoid supermarket Mike Tysons if at all possible. Before the Pandemic, when grocery stores were open 24-7, Polly would arrive home from work at 2:30 am and I would say to her, Hey, let’s go to the grocery! Why? you ask. Simple, there are very few people shopping at the local Meijer or Walmart at 3:00 am. I don’t have to worry about cart kamikazes running me over or “important” people rushing through the store, binging and banging into people like a steel ball in a pinball machine.

Chronic pain sufferers, along with people with chronic diseases, will likely say AMEN to this post. They, unfortunately, understand exactly what I am talking about. My plea to healthy bipeds is that they be aware of the people around them and pay attention to how their behavior affects others. Kindness, compassion, and respect go a long way toward helping people such as myself to have public forays without coming home feeling like we’ve been hit by a truck. No one can cure me or make my pain go away. All that I ask is that they lift up their eyes and survey their surroundings. See the man walking with a cane? Don’t push your shopping cart quickly around him and then stop on a dime, forcing him to tense up his entire body to avoid running into you. See the man haltingly walking down the bleacher aisle. Wait. Let him get down the steps and on solid footing before you hop on the autobahn and swiftly pass him by. And above all, respect his personal space, as he most certainly does yours. Someday, you might be cursed to walk in his skin, and I guarantee you that you will then want people to pay attention and not do things that further hurt you.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

The Cart

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bruce gerencser august 2021
Front Yard of Our Home, August 31, 2021

The old man and his wife pull into the store parking lot. The ride to Toledo from their home in Ney was excruciating for the old man. Wracked with pain, the old man felt every bump, thump, and bang as they drove down Toledo’s neglected streets. Narcotic pain medication helps, but nothing takes the pain away. Healthy people are often ignorant about how pain meds work. They wrongly think that taking drugs such as Hydrocodone or Oxycontin makes pain go away. Two Vicodin, thirty minutes, and voila! pain magically disappears. Or so people think. People with chronic pain know better; pain meds reduce pain, but don’t make it disappear. The old man had taken extra pain medications, preparing for the hour ride to the Glass City and back.

A recent MRI report said:

  • Disc herniation (T7,T8)
  • Disc herniation (T6,T7)
  • Central spinal canal stenosis (T9/T10, T10/T11)
  • Foraminal stenosis (T5,T6)
  • Disc degeneration/spondylosis (T1/T2 through T10/T11)
  • Facet Arthropathy throughout the spine, particularly at T2/T3, T3/T4, T5/T6, and T7/T8 through the T12/L1 levels.
  • Hypertrophic arthropathy at T9/T10

These diagnoses gave voice to the excruciating pain the old man had in his thoracic spine for months. Yet, this diagnosis drove the old man further into the throes of depression. Fibromyalgia, osteoarthritis, gastroparesis, and now serious back problems. “Does it ever end?” the old man wonders, knowing that the answer to his existential question was “no.” No cure. No pain-free days. No better tomorrow. Just pain, suffering, and struggling with death in the hope of living another day.

The old woman parked the car, opening her door, and walking to the raised hatch on the back of their SUV. The old man no longer drives, so it’s up to the old woman to drive them everywhere they go. The old man partially opens his door, pushing it open with his cane. Then, with great difficulty, he stands up and then haltingly walks to the back of the car.

The old man and woman knew this day would come, the day when the old man finally gave in and gave up, resigning himself to using a wheelchair full-time. The old man’s pain and debility is such that walking is difficult and dangerous (risking falls and injuries). Unable to pick up more than a pound or two, the old man cannot remove his wheelchair from the trunk of their car. The old woman carries so much of the old man’s weight these days, yet she never says a word. Forty-three years ago, she stood before God and man and said to her husband:

I, Polly Shope, take thee, Bruce Gerencser, to be my wedded Husband, to have and to hold from this day forward, for better for worse, for richer for poorer, in sickness and in health, to love, cherish, and to obey, till death us do part, according to God’s holy ordinance; and thereto I give thee my troth.

Little did she know what these words would mean in the years to come.

The old woman has her own health problems. Two major bowel surgeries, A-fib, knee problems, all in the past three years. She needs to retire, but she can’t. The old man needs health insurance. Without it, medical bills would bankrupt them. Even with insurance, they paid over $40,000 over the past five years for health care.

The old woman pulled the wheelchair from the car, pushing on the wheelchair’s arms to expand its seat. She puts a gel cushion on the seat and a bedroom pillow she brought from home where the old man will soon put his back. “Where are the feet?” the old woman says to her thirty-one-year-old daughter with Down syndrome. She already knows the answer to her question. The feet for the wheelchair are sitting on the dining room floor, fifty miles away.

Without the feet, the old man can’t use the wheelchair. “I’ll just walk,” he tells the old woman. “I can do it,” he says, seeing the doubt and worry in the old woman’s eyes.

Sure enough, by the time the old man reaches the front door of the store, he knows he will be unable to walk its aisles. “Fuck,” the old man says in the way only the old woman understands. Not far from the couple is the answer to the old man’s inability to walk. “Nope. I am not going to do it. Goddammit, no! What will people think of me? I’m not a cripple. Dammit! I’m just as strong as I was in my athletic days.” The old man struggles in his mind with accepting things as they are, and not as he wishes they were. He lives according to the mantra, “it is what it is.” The old man knows he is facing yet another “it is what it is” moment.

Finally, the old man walks over to the battery-powered carts. The old woman had begged him to use one of the carts when they were shopping for several years. He refused, too prideful to ride around the store in a beeping advertisement that screamed he was a cripple. Today, it was the old man’s Waterloo. Either the old man will sit in the car while the old woman shops, or he will swallow his pride and use a cart.

The old man sits down on the cart, and soon he’s driving the store’s aisles. While using a cart solved the old man’s “walking” problem, its sudden starting and stopping only increased his pain. The wheelchair with its feet attached will be his chariot the next time he and the old woman go shopping. What changed this day was how the old man viewed and understood his future. Sometimes, giving in is the only thing you can do. The old man learned that he would have to sacrifice his pride if he wanted to “live.”

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Learning to Live With Chronic Pain When You Know It’s Never Going Away

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suck it up garfield

The war against chronic pain sufferers continues unabated as they face being collateral damage in the government’s attempt to combat the opioid crisis. Numerous restrictions — almost all of them unnecessary or harmful — have been enacted in the hope that they will stem the illegal use of narcotic drugs. Unfortunately, the only result of these restrictions is to make it harder for chronic pain sufferers to get the medications they need. Just this past weekend, my Hydrocodone fill date fell on Easter Sunday. Thanks to new regulations, the prescription cannot be refilled sooner than one day before it was last filled (and within a fourteen-day window from the may fill date written on the script). In years past, I would have several weeks of Hydrocodone in reserve, just in case I didn’t get the prescription filled in a timely fashion. Not anymore; not filling the prescription on its fill date could leave me without medication. Fortunately, Meijer’s pharmacy was open for a short time on Easter and I was able to refill my prescription.

Last month, I took the script for my Tramadol prescription to the pharmacy to be filled, just to find out that the doctor had written the wrong date on the script — beyond the fourteen-day refill window. The pharmacy refused to call my doctor, telling me that I would have to get a new script. I was unaware that Tramadol was being treated the same way as Hydrocodone. Had I known this, I would have paid closer attention to the date on the script. Fortunately, I had enough Tramadol to last me until my upcoming doctor’s appointment.

Today, I read an article on The Outline titled, Is Chronic Pain Something More People Should Accept?  The article states:

Research dating back more than a decade suggests  that people with chronic pain may be able to improve their quality of life if they stop trying to avoid or get rid of their pain and instead learn to live as well as they can as the pain persists, a concept referred to in clinical settings as pain acceptance. Some psychologists and psychiatrists believe that pain acceptance might even help counteract opioid abuse in the United States, a problem so severe that it has contributed to a decline in American life expectancy. The idea that pain acceptance might serve as an effective alternative to opioids is an emerging area of research and not something that has been definitively established. As the idea attracts attention in the world of pain management and in the media, it has also generated controversy.

An estimated five to eight million Americans take opioids to manage long-term chronic pain, and the number of people in the U.S. who have died from overdosing on opioids — a class of drugs that includes prescription painkillers like oxycodone and illicit substances like heroin — has risen dramatically in recent years. In 2016, prescription opioids were involved in roughly 40 percent of opioid overdose deaths, according to the U.S. Department of Health and Human Services. There are plenty of people who don’t become addicted to prescription opioids, but taking them involves serious risks, from adverse side effects to the potential for dependence. A backlash against the drugs, from state laws limiting access to federal guidelines warning of their risks, has sent doctors searching for alternative treatments. In the midst of the crisis, some pain and addiction researchers are interested in determining whether pain acceptance could help people cut back on opioids.

Several studies have raised the possibility that people who are less accepting of pain may be more likely to become dependent on painkillers. A 2015 article in the journal Drug and Alcohol Dependence found that people who were better able to live with pain without attempting to reduce or avoid it had less severe problems with opioids. The study reported that pain intensity itself was not significantly associated with the severity of problematic opioid use. That led the authors to conclude that the extent to which a person accepts and adapts to pain, or doesn’t, may be “more important as a risk factor for the misuse of prescription opioids or heroin than is the actual severity of pain.”

In September 2017, an article in the Clinical Journal of Pain found that people who were more accepting of chronic pain used less pain medication, including opioids, regardless of the severity of their pain. “We think that’s a good indicator that increasing pain acceptance in people with chronic pain might reduce their reliance on pain medication,” said Dr. Anna Kratz, an assistant professor of physical medicine and rehabilitation at the University of Michigan who helped carry out the study. “They might turn less to medications on a day-to-day basis if they have more pain acceptance.”

….

It may not be surprising that people with chronic pain don’t necessarily like the idea of accepting it. When researchers at the University of New Brunswick asked women with chronic pain from arthritis and fibromyalgia what they thought about pain acceptance, many had a negative reaction. Most of the women associated acceptance with “giving up or giving in to their pain,” the researchers wrote in the journal Pain Research and Management in 2008. But many of the women had learned to live with their pain in a way that roughly aligned with the concept of pain acceptance: They were determined to live as well as they could despite their conditions. Rather than describing that as acceptance, the women preferred to use words like “embracing,” “coming to terms with” or “dealing” with their pain.

There’s no one way that people learn to accept and live with chronic pain. What works for one person might not work for another. But some individuals participate in a form of therapy called acceptance and commitment therapy — commonly referred to as ACT. Developed in the 1980s and 1990s, acceptance and commitment therapy emerged out of the tradition of cognitive behavioral therapy. In contrast to traditional cognitive therapy, acceptance and commitment therapy asks people to accept thoughts, feelings, memories, and bodily sensations that are beyond their control, rather than attempt to change or get rid of them. The therapy then encourages people with chronic pain to take part in activities that add value and meaning to their lives, even as pain persists.

….

In other words, people with unrelenting chronic pain just need to suck it up and embrace the fact that their pain is never, ever going away. The false assumption here is that chronic pain sufferers are not already doing this. They are, and reaching out to a broader pool of pain sufferers would have revealed this to the article’s author, Clare Foran. While a tip of the hat is given to the idea that the goal should be pain elimination, the gist of the article is the importance of chronic pain sufferers doing their part to combat the opioid crisis. Again, it is people who are on pain management regimens that are being singled out and expected to forgo needed pain meds, not because this would be better for them, but in doing so they give the appearance that something concrete is being done about the opioid crisis.

Most of the chronic pain sufferers I know are already “living” with their pain.” They have been sucking it up for so long that they have concave chests. Here’s a grossly under-reported fact: narcotic drugs, when taken as prescribed, do NOT take pain away. What these drugs are meant to do is level out what are called pain spikes. When this occurs, chronic pain suffers achieve a certain quality of life, often allowing them to work and do other things they would not be able to do without taking narcotic prescription drugs. Without taking them, life is unbearable, leading to depression and, at times, suicide.

I was diagnosed with Fibromyalgia in 1997. Since then, my health has deteriorated ever-so-slowly. As I have aged, osteoarthritis has spread from joint to joint, and today it’s found in my spine, shoulders, neck, hands, knees, and feet — pretty much everywhere. And then there’s a neurological problem that causes burning pain in my thighs, face, and lower back. There’s not a day or an hour that goes by where I don’t feel pain somewhere from the top of my head to the bottom of my feet. I take narcotics, then, so I can have some semblance of a life. Without these drugs (and others), I would not be able to write, shoot photographs, or attend my grandchildren’s sporting events. It’s the drugs that level off the pain highs so I can do these things, even though I know there is a price to pay for doing so. You see, all narcotics do is mask (reduce) pain. The underlying diseases are there, and, in my case, they are exacerbated when I do anything more than lie in bed and wish I could die. I know that doing physically active things aggravates my joints, nerve endings, and muscles. I ignore this outcome because taking photographs, going out on the town with my girlfriend, or attending a sixth-grade softball game are more important to me. I want to do these things, knowing that by doing so I will pay what I call “the price of admission.” The days after attending such events are, on a pain scale of 1 to 10, off the charts. All I can do is pray to Zeus, curl up in my recliner, and cry my way to a better day. On these kinds of days, narcotics do not give the advertised relief. They help, but not enough to allow me to do much of anything. I have to wait until pain levels reach “normal” levels.

Earlier this year, I agreed to take photographs for the local high school’s spring sporting events. I did the same for winter sports. The difference between shooting a basketball game and photographing a softball game is that for the former, I can sit, but for baseball and softball games I must stand.  And standing for longer than fifteen minutes is a big problem for me. If you have ever seen me walking through one of the local stores you’ve likely noticed that I am often hunched over the shopping cart (pride keeps me from using a battery-powered scooter). After about fifteen minutes of walking, my thighs and face turn numb and begin to burn. Hunching over the cart, brings some relief. In 2007, when this problem first appeared, I had an extensive neurological workup — $20k worth of tests. Doctors thought, at the time, that I had Multiple Sclerosis (MS). The tests came back negative or inconclusive. I have had three brain scans since then, but still no definitive signs of MS. So, for now, I live with the effects of an unnamed affliction (not that naming it would make a difference). Personally, I think the numbness and burning is related to my lower back and a narrow disc space I have had for twenty-five years.

Standing, of course, is impossible to avoid if I want to be a photographer, grandfather, or a living, breathing human being. So, I stand, and when the numbness and burning pain screams in my ears, I put a mental stick in my mouth, bite down, and bear it. I’ve done this countless times over the years, knowing that if I do this or that the pain — narcotics or not – is going to come in waves with no possible relief, save death. I wonder if the twenty-eight-year-old Clare Foran has ever experienced pain such as this? I doubt it. Had she experienced it, I suspect she wouldn’t have been so quick to preach the gospel of suck-it-up.

I wrote the above to say this: I have been “sucking it up” for two decades. I have made peace with the fact that my pain problem will be with me until I die. And I am fine with that. I am quite stoic about life. It is what it is. I accept that life for me means living with chronic pain and illness. There are no cures on the horizon, no magic drugs that will make life’s boo-boos go away. All that I ask is that the government and so-called experts quit fucking around with my pain management regimen. I am not an addict. I don’t abuse the narcotics I take, nor do I use illegal drugs. Am I drug dependent? Sure. How could I not be after a decade of taking narcotics. But dependency is not the problem, addiction is. I am dependent on blood pressure drugs too. Should I just suck it up and live with high blood pressure? Of course not. These drugs have likely added years to my life, as has taking narcotics. Without pain medication, I would have long ago put an end to my suffering. With the drugs, I am able to carve out a decent life for myself, not without pain, but with pain that is, on most days, manageable. I don’t expect doctors to fix what can’t be fixed. All I ask of them is that they do what they can to improve my quality of life. And for now, quality of life requires narcotics, along with anti-inflammatory drugs.

For those who say, just suck it up, I say, walk in my shoes and then we will talk. Until then, talk to the hand. Until you have experienced and lived with long-term, unrelenting pain, there’s really no frame of reference for you to understand how it is for chronic pain sufferers. And I hope you never have to experience such a life. I wouldn’t wish this on anyone. I don’t want pity, and I sure as hell don’t want lectures about what’s “best” for me (as a pharmacist and an optometrist once tried to do). I have a primary care doctor whom I trust to do what is best for me. I also have specialists I can see, if needed. I am in good hands, even if there are days when I can hardly bear to have those hands touch me. I will soon be sixty-one-years old. I know most of my life is now in the rear-view mirror. All I want now is to live what life I have left to its fullest, hoping that I see the Cincinnati Reds win the World Series before I die. Well, that and see my grandchildren graduate from college. I can then go to the happy hunting grounds in peace.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

How NOT to Talk to Someone With Chronic Pain or Debilitating Illness

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new pain schedule

Several days ago, I received an unsigned letter from a sixty-four year old atheist woman. After reading my member introduction in the September 2017 Freedom From Religion Foundation newsletter, Freethought Today,  and rooting through my blog looking for personal health information, this woman decided to send me a typed two-page letter detailing her uneducated, ill-founded opinion of my weight and health, along with numerous paragraphs detailing what I should do to regain the Bruce of the 1970s.  At the end of her deconstruction of my physical being, she spent thirty-eight words complimenting me on my beard and thanking me for my story in the newsletter.

I sat on this letter for several days, waiting for my anger to calm before answering it. Yesterday, I talked to my counselor about the letter and why it is that people who don’t know me and don’t know my health background think it is appropriate to send me letters such as this one. It would be one thing if someone who was close to me talked to me about this or that health matter, but even then, no one, not even my wife, knows the depth and complexities of my health problems. People only know what I tell them, and trust me, there is a lot I don’t talk about. That I am willing to talk about my struggles with chronic pain and debilitating illness at all is deemed by zealots and nuts as an opening for them to preach their gospel — complete with shaming me for “sin” and using my children and grandchildren as bait to attract me to their particular way of life or “cure.”

I have received numerous letters from people offering unsolicited medical and lifestyle advice. Over the years, I have been told that the following will “cure” me or transform my pain and illness to a mere afterthought: essential oils, chiropractic care, magnets, acupuncture, reiki massage, homeopathic remedies, meditation, getting my chakras aligned, drinking magical shakes, and taking this or that supplement — more times than I can count. According to many of the people offering advice, Western medicine is evil, drug companies are out to kill me, and medical professionals are deliberately withholding care and treatment  that would cure me because they want to make money off my pain and health.

My latest letter writer takes a more simplistic approach, albeit she is every bit as ignorant of the latest science related to my health as the purveyors of the woo mentioned above. She contends that if I would just exercise more, lessen calorie intake, and not drink soda pop my life would be transformed. She assumes, of course, that I am NOT already doing these things, choosing instead to look at my photograph, seeing that I am fat/overweight/obese, and conclude that I am not following her prescription for having a born-again experience. The letter writer assumes that what worked for her will work for everyone else. She ignores the fact that human bodies are complex and what may work for one person won’t work for others.. She also ignores genetic and environmental factors, choosing instead to focus on my body size. In many ways, she is much like Evangelicals who attempt to deconstruct my life, refusing to allow me to tell my own story. Instead she takes her atheistic religious health experiences and uses them as a standard by which to judge me.

Simply put, the letter writer is not in the position to make ANY judgments about my health or offer ANY advice as to proper treatment. I have a primary care doctor, along with medical specialists who provide me necessary and adequate care. I am satisfied with their care, knowing that the health problems I have, for the most part, cannot be cured. All my doctors can do for me is try to improve my quality of life and lessen my pain. I have told my primary care doctor several times that I don’t expect him to fix what can’t be fixed. I have accepted that this is my life — live with it, Bruce! I know that my health problems began when I was a slim, trim athletic fourteen-year-old teen. Genetics, exposure to dangerous chemicals that landed me in the emergency room, and communicable diseases set the stage for how things are for me today. A near-death experience with mononucleosis in 1991 and two bouts with pneumonia left my immune system wrecked beyond repair. The letter writer understood none of these things, choosing instead to just see a fat guy who, she thinks, eats too much.

The letter writer is offended by my stoic, matter-of-fact approach to my life and health. I was diagnosed with Fibromyalgia twenty years ago, and with neurological problems in 2007. For a time, doctors thought I might have multiple sclerosis. The symptoms fit, but the tests, so far, are inconclusive. Over the past two decades, osteoarthritis has slowly marched its way through my skeletal system. A visit to an orthopedic specialist last year revealed osteoarthritis in my hands, knees, feet, lower spine, neck, and shoulders. In other words — everywhere. The combination of these three diseases (and joint injuries) has left me disabled — another word the letter writer hates. Tough shit. That’s what I am: d-i-s-a-b-l-e-d.  Most days, I walk with a cane, steadying myself so I don’t fall and break something. Sometimes, I use a wheelchair — a sign to the letter writer that I am giving up. (Want to guess how many times I wanted to say go fuck yourself as I read her letter? You will need all your fingers and toes.)

The letter writer spends most of her sermon preaching about my weight. Evidently, she doesn’t care for fat people, nor does she understand that body shaming is no longer considered acceptable conduct in polite company. Friends accept people as they are. I know I would never, ever write someone a letter like the one this woman wrote to me. Perhaps she thinks that because she is in her sixties, she has earned the right to say whatever she wants. I want to give her the benefit of the doubt, but it is hard to do so when I view her letter as a personal attack — an assault on who and what I am.

The letter writer reveals that she really doesn’t understand current scientific evidence about body weight and weight loss. She wrongly says that weight loss is as simple as reducing caloric intake. This thinking is patently false, and can, at times, be dangerous or even life-threatening. She also assumes that I don’t manage caloric intake and eat healthily. I do, about ninety-five percent of the time. Since last November, I have lost forty pounds. Massive bowel movements? Fluid loss? I don’t really care. I try to eat healthily, and when I do not, I don’t lose one moment of sleep over it. Life is too short. If eating ice cream is going to be the end of me, so be it. Praise Jesus, I will leave this life with the sweet taste of rocky road ice cream on my lips!

The letter writer tells me in capital letters, DO NOT EAT IN RESTAURANTS. This must be one of her religion’s commandments, and if it is, NO THANK YOU. Polly and I spent the first twenty-five years of marriage rarely eating out. We couldn’t afford it. Now we can, and me and the Mrs. plan on enjoying as much good food (and wine) as we possibly can. At home, my wife is a first-rate gourmet cook. She has the pans, knives, oven and cookbooks to prove it. Only food zealots would have a problem with what we eat.

The letter writer also shows a lack of understanding about pain and how narcotics work — wrongly believing that narcotics make pain go away. Sorry, but that’s not how it works. Massive amounts of narcotics might take pain away, but they also render people unable to do much of anything but sleep. I have been on a pain management regimen for twelve years. The goal is to break the pain cycle so I can have a better quality of life. Pain levels, rise and fall, but the pain never goes away. I haven’t had a pain-free day in years.

The letter writer tells me that a pain-free life is overrated, that I shouldn’t take narcotics (take aspirin or ibuprofen instead), and that since I AM taking narcotics I shouldn’t need to use a cane or wheelchair. According to her, if I would just lose weight, exercise more, all would be well and I would no longer have to use my cane or wheelchair. Calling my pain medications a crutch, she implores me to let pain have its way with me. This woman has serious health problems herself, including a major bout with cancer. I wonder how she might have felt had I come into the room after her surgery and told her what she had told me about pain. No need for morphine! Own your pain! Just take Aleve!

I am of the opinion that there is little value in ignoring pain or embracing it because there is some sort of nobility gained from not taking pain medications. Sorry, but I choose to live as pain-free of a life as possible. I choose to embrace my pain, but I am sure as hell not going to let it ruin my life by reducing me to an old man curled up in a fetal position wishing he could die. By properly managing my pain (and other aspects of my health), I have the ability most days to do the things I want to do. Some days, the pain meds simply don’t work. On such days, I endure, knowing that surely better days lie ahead. And if they don’t? Then I will embrace the present as my new normal.

you can do it

Finally, the letter writer should have plumbed the depths of my personality before sending her sermon my way. Had she done so, she would not have taken the motivational YOU CAN DO IT, OH YES YOU CAN approach. I loathe such approaches to life, and when someone tries to “motivate” me this way, their attempt always fails. I am a rationalist who approaches life in a matter-of-fact way. I don’t need anyone to cheer me on. I am quite capable of determining for myself what I need to do, and then doing it. And if I do ever need a bit of Richard Simmons-like motivation, I look to my wife, children, and grandchildren for reasons to get up in the morning and keep moving. I drove my ex-daughter-in-law crazy (as did her husband) because I wasn’t happy as a seal with a ball at parties and family events. I tend to be quite reserved emotionally, choosing to show my gratitude or praise with words such as fine, that’s good, good job, thank you, or I appreciate it. I don’t get all wide-eyed and slap-happy. People who know me understand that when I say something is fine, that is a high praise coming from me (except when I say fine when answering, How are you doing? Then, I am usually lying). I, for one, am quite tired of being treated as if there is something wrong with me if I don’t have excitable emotional outbursts when expressing my approval of people or events. Who decided that being all jacked up on Mountain Dew is the only proper way to respond to things?  (Please read Bright-sided: How Positive Thinking is Undermining America by Barbara Ehrenreich.) Fuck that. I am who I am, and I am quite happy with being the one and only Bruce Gerencser on planet earth. Woo! Hoo! Ain’t I a special snowflake!

Let me be clear, when it comes to my health and the medical treatment I receive, please keep your thoughts, opinions, sermons, and dogma to yourself. You may have stayed in a Holiday Inn, but you are not my doctor. I’m fine with close friends or family members sending me links and asking me if I have read this or that report or study. Most often, since I am an INFORMED sufferer of chronic pain and debilitating illness, I have already read the report/study. I appreciate that they genuinely care about me and hope that something will come along and improve my lot in life (money, lots of money – that will work). For everyone else? Please don’t. Don’t email me, don’t write me letters, and don’t post on my Facebook wall whatever it is you think will transform my life. Chances are it won’t, or I have already tried it without success. Love me as I am and when you hear of my demise, be it today, tomorrow, or ten years from now, I hope you will remember me for the good I have done. Like everyone else, I want acceptance and respect from others. This letter writer demonstrated neither.

About Bruce Gerencser

Bruce Gerencser, 60, lives in rural Northwest Ohio with his wife of 39 years. He and his wife have six grown children and eleven grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

Bruce is a local photography business owner, operating Defiance County Photo out of his home. If you live in Northwest Ohio and would like to hire Bruce, please email him.

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