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A Plea From a Chronic Pain Sufferer: Please Be Aware of Others

not all disabilities are visible

I have spent the past three decades battling fibromyalgia, osteoarthritis, and degenerative spine disease. I say battling, but perhaps I should say, being BATTERED, by people who are often unaware of their surroundings. Not a day goes by for me that I don’t have never-ending, unrelenting pain. Even with being on narcotics and NSAIDS, along with steroids and muscle relaxers, I find that the pain remains. Without the drugs, the pain is unbearable. With the drugs, I can have what my doctor calls “quality of life” — quality, of course, being loosely defined, and I suspect meaning something different to my doctor from what it means to me. I could take enough drugs that they would make me oblivious to the pain, but there’s no “quality” in such a life — at least for me. If I want to drive — scratch that, I lost ability to drive in 2020 — attend my grandchildren’s school events, and photograph high school sporting events — scratch that, I lost the ability to use my professional camera equipment in 2021 — I must accept a certain level of managed pain; pain that is not so severe that doing most anything is impossible.

In the eyes of many people, I look quite normal. Yes, I walk haltingly with a cane and walker, and probably should have a “slow-moving vehicle” sign attached to my ass. Aside from this, I hide my pain well. Family and friends, of course, are well acquainted with my suffering, and they usually (not always) go out of their way to make things easier and less painful for me. It is when I come in contact with the public that I often find myself beaten and battered by people who seem clueless about how their behavior affects others around them, especially someone such as myself, who doesn’t need any more pain added to his plate.

Several years ago, I went to a high school basketball game. I arrive at games early so I can secure a front-row seat. This allows me to have a court-level view of games. My daughter with Down syndrome — we are quite a pair, she and I — usually sits in the row in back of me, slightly to the left or right of my back. By doing so, she typically wards off people from sitting in back of me. Not this night. Ten minutes prior to the start of the junior varsity game, a middle-aged couple and their early-20s daughter planted themselves directly in back of me. For the next three hours, I was subjected to knees, feet, and purses being pushed into my back. After being battered during the first game, I decided to sit on the edge of my seat, hoping that this would place me beyond their reach. Unfortunately, the unaware batterers saw my move as an opportunity to increase their real estate, and the thumps, bangs, and jabs continued.

If I were a cranky curmudgeon, perhaps I would have asked them to stop, but instead, just as I have done for years, I endured their cluelessness. I don’t expect people to innately know that a chronic pain sufferer is sitting in front of them. That said, it perplexes me that so many people never learned to be aware of their surroundings, nor did they learn to pay attention to how their behavior affects others. My children were taught at an early age to pay attention to who is around them. Respect the space of others, and don’t do anything that could cause harm to someone else. I have been kicked half to death by more booted five-year-olds than I can count. Kids are kids, and I don’t expect them to necessarily understand respecting the person of others. However, these little kickers should, at their advanced stage of development, have parents that understand their children beating on a man who looks like Santa Claus is not respectful and can, if Santa is so inclined, result in Little Johnny getting coal in his stocking on Christmas. 🙂

Polly and our children will tell you that I was and am hyper-aware of my surroundings, never wanting to do anything that would inconvenience or harm others. I passed this awareness on to them, and I see it in the behavior of my grandchildren. Learning simple things such as not standing in the middle of the grocery aisle blocking the lane or running up and down bleachers causing them to bounce — both of which can and do affect others — should be part of standard child training. My grandchildren have had to learn that, yes, I want to hug each of them, but they mustn’t launch themselves into my lap, causing me pain, or, in some instances, sending my testicles into my eye sockets. My grandchildren know that they must be gentle with Grampa or Bapaw, as my four-year-old grandson calls me, not because I will yell at them if they don’t, but because the fact of their doing so means they understand, at some level, my physical struggles.

I realize there will be times when people inadvertently run into me. Such is life. But what bothers me is people who seem to have no awareness of anyone but themselves. I feel, at times, when such people physically assault me, that they are saying to me, Hey old man, get out of my way. Move it, I have got places to go and people to see. (I do all I can to stay out of the way, knowing that other people are busy and have things to do. I consciously try to make it easy for people to avoid contact with me.) Smartphones have made such behavior worse. People zoned out on their phones careen through stores and public places with nary a thought about the people around them. This is one of the reasons that I avoid department stores during the holidays. After being repeatedly banged into with shopping carts and oversize purses as women pass by, I find my anger increasing, and I begin to have thoughts of clobbering someone with my cane. I know having such thoughts is normal, but I find it better to avoid supermarket Mike Tysons if at all possible. Before the Pandemic, when grocery stores were open 24-7, Polly would arrive home from work at 2:30 am and I would say to her, Hey, let’s go to the grocery! Why? you ask. Simple, there are very few people shopping at the local Meijer or Walmart at 3:00 am. I don’t have to worry about cart kamikazes running me over or “important” people rushing through the store, binging and banging into people like a steel ball in a pinball machine.

Chronic pain sufferers, along with people with chronic diseases, will likely say AMEN to this post. They, unfortunately, understand exactly what I am talking about. My plea to healthy bipeds is that they be aware of the people around them and pay attention to how their behavior affects others. Kindness, compassion, and respect go a long way toward helping people such as myself to have public forays without coming home feeling like we’ve been hit by a truck. No one can cure me or make my pain go away. All that I ask is that they lift up their eyes and survey their surroundings. See the man walking with a cane? Don’t push your shopping cart quickly around him and then stop on a dime, forcing him to tense up his entire body to avoid running into you. See the man haltingly walking down the bleacher aisle. Wait. Let him get down the steps and on solid footing before you hop on the autobahn and swiftly pass him by. And above all, respect his personal space, as he most certainly does yours. Someday, you might be cursed to walk in his skin, and I guarantee you that you will then want people to pay attention and not do things that further hurt you.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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10 Comments

  1. Avatar
    Justine Valinotti

    Today, my friends and colleagues include at least a few people who have disabilities and illnesses I never would have suspected had I not been told about them. Now I wonder how many people I hurt unintentionally out of my ignorance of such conditions, or my plain-and-simple arrogance (some of which I can blame on youthfulness).

  2. Avatar
    Lynn123

    This is a much-needed message, yes. I’m wondering if you kindly informed the parents at these events, they might apologize and have their kids be more careful. I know I’d want to know if my kid was hurting somebody accidentally.

  3. Avatar
    Becky Wiren

    Yeah. I also think you should say something, at least once. I think if someone was hurting me that much I would speak up, because my pain would be greater than my ability to tolerate such behavior. But possibly you are a better person than I am!

  4. Avatar
    grasshopper

    I frequently make the observation to friends that when we see a person with a club-foot walking down the street, we know that that person is not “normal” and has certain difficulties in life, but we tend to think that the normal looking guy next to him has no problems in his life to overcome.

  5. Avatar
    amy b

    You should have turned around and said something. If they’re decent they’ll be chagrined that they caused you such pain and will stop immediately.

  6. Avatar
    Karen the rock whisperer

    My father died in 2006, 4 1/2 years after my mother. I was much more mobile then than I am now–now I’m the old lady leaning on the shopping cart, moving slowly–but then and now, I am my father’s daughter. Someone is blocking the narrow aisle, reading the fine print on a box? I will wait patiently, just as my father would have. Someone’s young children are not being well-managed? I move slowly, smile–though the mask hides that now–and notice that when those children actually notice me, more often than not, they respect my need for space.

    Saying “excuse me” and “thank you” to children sometimes gets shocked reactions, as though no one in their world says those words to them. That saddens me. It also suggests that those kids have a nontrivial chance of growing up to be the next generation of jerks who cut people like Bruce and me off,

  7. Avatar
    ObstacleChick

    Proper trail running etiquette is to say “on your left” as you are approaching someone from behind. This gives them the courtesy that you’re approaching without scaring the living daylights out of them, and it gives them an opportunity to move aside if they choose. It’s also proper etiquette to say “thank you” as you pass the person. Maybe we should do this in other public areas?

    The supermarket seems to be the worst place for clueless, oblivious shoppers.

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