Menu Close

Tag: Chronic Illness

Death: The Only Cure for Chronic Pain

8 Comments
garfield pain

Most people don’t understand chronic pain. They are human, so they understand “pain,” but not pain that comes and never leaves. All of us have faced periods of pain from an injury, illness, or disease, but chronic pain is different. Chronic pain is intractable because it never goes away. Medications, procedures, and treatments may help, but pain eventually returns. No matter what I do, the pain never totally goes away. All I, as a chronic pain sufferer, can do is manage my suffering, and even then, the results are varied.

I’ve been treated for chronic pain for twenty years. Countless drugs, procedures, treatments, and surgeries later, the pain remains. Last August, I had major surgery on my spine that alleviated some of the pain in my lower back. The pain was so severe that I do not doubt that without the surgery, I would have killed myself. Did the surgery “fix” my pain problem? Hell no, not even close. It addressed an issue, for which I am grateful, but one fact remains: there is no cure for my suffering. I know people mean well when they tell me they hope I’m feeling better, but “feeling better” is not an option for me. I have three kinds of days: less-pain days, more-pain days, and I-want-to-shoot-myself-in-the-head pain days. There is never a pain-free day. I function best when I have taken sufficient medication to tamp down my pain to tolerable levels. However, thanks to federal and state laws governing narcotics, I no longer, even with using cannabis, have sufficient daily medication usage that will give me what I need to fully function as a husband, father, grandfather, and writer. Pain doctors don’t help; I’ve seen four pain doctors, without success. My best care comes from my primary care physician, a man who genuinely cares about my well-being. But, he can’t do what he knows his best for me. He is one physician in a corporate practice of hundreds of doctors. The practice has arcane, abusive rules governing the prescribing of narcotics. Five years ago, I was taking the narcotics equivalent of 80 mg of morphine, along with a benzodiazepine for sleep. My pain was relatively managed with this drug regimen. Today? I take 40 mg of morphine equivalent narcotics — half of what I was taking five years ago. I take 20 mg of cannabis at night to help with my sleep, but it is not as effective as benzodiazepines. In other words, I am taking half as much medication to treat pain that is much worse than it was five years ago. I have done all I know to do, so this is my life — day in and day out, without release.

I know that the only cure for my suffering is death. No need to send me unsolicited medical advice, diet suggestions, or anything else you think will magically heal me. I have done my homework, and I have likely tried the very thing you are going to suggest. Do you really think taking a supplement, drinking apple cider, sleeping on magnets, or the latest homeopathic treatment (which is nothing more than water) will cure everything that ails me? What physical power do these things have to make a deteriorating spine rejuvenate itself or cure incurable diseases such as gastroparesis and endocrine pancreatic insufficiency? Give me credit for knowing and understanding my body, and being well educated on the available treatments for my ailments.

I wish my life were different; that I could still run and play with my grandchildren, or work in the yard without spending days in bed recovering, but no amount of wishful thinking will change the fact that chronic pain has crippled me to such a degree that I can no longer do these things. I have accepted that this is my lot in life, and I do everything I can to live another day.

Do you live with chronic pain? Please share your experiences in the comment section. Let’s cry in our beer together. 🙂

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Bruce, Just Remember God Loves and Cares for You

4 Comments
god of love

Readers who have deconverted have likely heard believers tell them countless times: God loves and cares for you. (God being the Christian God of the Bible.) I know I have. Rarely does a week go by without me receiving an email or blog comment from an Evangelical Christian saying that God loves and cares for me. How do they KNOW God loves me? How do they know God cares for me? Just because the Bible says something doesn’t mean it’s true. Saying God loves and cares for me is a claim, as is the all of the Bible. Evangelicals wrongly think Bible verses are evidence for the truthiness of a belief, when in fact, they are claims. What a claim requires for justification is EVIDENCE. Actual empirical evidence, not just saying “the Bible says.”

Saying the Bible is the Word of God is a claim. Saying the Bible is supernaturally inspired, inerrant, and infallible are claims. I’ve engaged Evangelical apologists for almost twenty years. Without question, these apologists are long on claims and short on evidence. In fact, they are so short on evidence that it requires an atomic microscope to see it. Saying God loves and cares for me is an empty claim for which no evidence is forthcoming.

God could prove his love and care for me, but he chooses not to. Either that, or he can’t because he is a mythical being, powerless to act in the natural world. Everything I have seen, both as a Christian and an atheist, suggests that God is deaf, blind, and indifferent to the cries of his creation. “God loves and cares for us” is a grand ideal, but one that is not borne out in real life. God was silent when I prayed and silent when I didn’t. Pray tell, if there is no difference between God interacting with me as a Christian and as an atheist, how can I possibly know he exists and has a supercalifragilisticexpialidocious plan for my life? I am an atheist today because I see no evidence for the Christian God’s existence. If God truly wants everyone to love, know, and follow him, you would think he would, in a no-doubt way, make himself known to us. That he doesn’t suggests that he doesn’t give a shit about us, or he doesn’t exist.

But, Bruce, you were a Christian for fifty years. Surely you believed God loved and cared for you. Sure, but the question that must be asked is this: Why did I believe God loved and cared for me? I spent most of my life in the Evangelical bubble; an environment where every aspect of my life was controlled by my parents’ chosen religion. I was never allowed to examine and judge the central claims of Christianity for myself. I was indoctrinated and conditioned to such a degree that I believed that whatever my pastors, youth directors, and Sunday school teachers taught me was true. This indoctrination and conditioning continued during my college years at Midwestern Baptist College in Pontiac, Michigan. I was taught WHAT to think, not HOW to think. While I later learned that my pastors and professors lied to me — deliberately or out of ignorance — I still held on to the belief that the Bible was the Word of God. It would be many years before I took a hard look at my beliefs and the claims I made about God’s presence in my life. I wanted to believe God was ever-present. I wanted to believe God loved and cared for me and had a wonderful plan for my life. Oh, there were times when I was certain God was talking to me, meeting my needs, or using me to advance his kingdom. However, a post-Jesus examination of my life revealed that my life was built upon a fiction taught to me by my parents, pastors, and professors, and passed on by me to church congregations I pastored.

If God wants me to believe he loves and cares for me, all he has to do is show me. Those of us who are married know that we show our love and care for our spouse by what we do, and not by what we say. The Bible says God loves and cares for all of us, but these claims are mere words — no different from a man telling his wife he loves her, even though he beats her every day. His behavior says that he doesn’t love his wife. So it is with God. If he wants me to love and follow him, is it too much to ask for God to make himself known to me? If God truly wants to save the world, wouldn’t this goal be best served by him sending Jesus back to earth to make a physical appearance — say, a yearlong show at a Las Vegas casino? Instead, Evangelicals tell us God speaks with a whisper, and if we listen closely, we will hear him. Welp, I am deaf, so perhaps God will text me or send me an email. Better yet, maybe Jesus will knock on my door and invite me to lunch. Now, that will get my attention. Alas, God remains silent, suggesting, at least to me, that he is dead or on vacation.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

My Experiences with Pain Clinics and the Ongoing War Against Chronic Pain Sufferers

18 Comments
suffering and pain

In the late 1990s, I started having problems with joint/muscle pain and fatigue. At first, I ignored my symptoms, thinking I was just overworked and tired. After months of pain and tiredness, I decided to see a doctor. The doctor I saw then is still my primary care physician today. It took a year or so to determine I had fibromyalgia. Over the years, I went through a lot of tests and treatments, along with taking more medications than I can count.

I took a variety of pain management drugs, both narcotics and non-narcotics. In 2004, I started taking narcotics such as Tramadol, Darvocet (which was later banned because it caused heart problems), and Hydrocodone. For years, I took both Tramadol and Hydrocodone — upwards to 80 Morphine equivalents a day. I also took a Benzodiazepine, Restoril, for muscle spasms and sleep. And then came the unholy war on opiates — a war my primary care doctor doesn’t support, but is forced to accede if he wants to keep his job and license.

First to go was Restoril. Why? According to so-called experts, taking benzodiazepines and opiates together could cause respiratory problems (typically only in drug abusers or patients lacking tolerance build-up), so I had to stop taking Restoril. From there I tried numerous sleep medications, without success. I finally started using Cyclobenzaprine at night — 20 milligrams. Sometimes it works, sometimes it doesn’t. Tough shit, so sorry, you are out of luck if it doesn’t.

Next to go was Tramadol. “Can’t take two narcotics,” the doctor sadly opined. After weeks of withdrawal hell, I stopped taking Tramadol. I was still taking 50 morphine equivalents of Hydrocodone a day. And then came the edict that my Hydrocodone dosage had to be cut. Last doctor’s visit it was cut to 40 and sometime later this year it will be cut to 30. I have no choice in the matter, and neither does my doctor. Keep in mind, my pain has only gotten worse during this time. Over the past fifteen years, I was diagnosed with degenerative spine disease, gastroparesis, and exocrine pancreatic insufficiency. I had numerous procedures, including experimental ones, and two major surgeries. While the surgeries helped address specific pains, my core pain problem remains. This is my cross to bear. Drugs help, but they are not a fix. Cannabis helps (which my doctor doesn’t know I take, because I know he is required to stop my narcotic pain medicine if he finds out I’m using cannabis), but its effects are short-term. Why many doctors refuse to prescribe cannabis is beyond reason. Worse, insurance companies refuse to cover cannabis, so chronic pain sufferers are forced to pay out of pocket for it. In Ohio, cannabis is prohibitively expensive, so I drive to Michigan — thirty minutes away — to get my “fix.”

Over the years, my doctor has referred me to four different pain clinics, without success. None of the clinics was narcotic- or cannabis-friendly; all were run by anesthesiologists who were more interested in performing procedures and giving steroid injections than they were in treating long-term, chronic pain. I found the pain clinics to largely be a waste of time. One doctor, who never looked me in the eyes, said there was nothing he could do for me. Another treated me like I was a drug-seeking addict, even though I have NEVER, not ONE time, abused my prescriptions.

The FDA has admitted that they erred in their directives on opioid use; that people with chronic pain were being unnecessarily harmed, often leading to suicide. Despite new directives, many doctors and pain clinics continue to be narcotics-adverse. I see no hope of it being better any time soon. I’ve concluded that limiting legal liability is more important to doctors — most of whom now work for large corporations — than treating people with chronic pain. I expect there to be an increase in illegal drug use and suicide by chronic pain sufferers. When pain has you screaming and banging your head on the wall, you will do almost anything to make it stop, and that includes killing yourself. Chronic pain sufferers don’t want to die, they just want the pain to stop. And if the pain can’t be stopped, we, at least, want everything possible done to make our suffering tolerable. And let me be clear, when chronic pain sufferers kill themselves, the blame almost always lies at the feet of callous, indifferent medical corporations and doctors.

I don’t need advice or treatment/drug suggestions. I’ve been going at this for twenty-five years. I know my stuff inside and out. I intimately know every inch of my body; what’s causing my pain, and how to lessen it. Well-meaning, but uninformed advice, while humored, is not helpful. From prescription drugs to supplements to alternative medicine treatments, it is likely I have tried them. This post is more about making readers aware of what I personally face and what chronic pain sufferers deal with, in general. If you are a chronic pain sufferer, you know what I am talking about. Twenty years ago, a primary care physician could prescribe narcotic pain medications without question. Today, they have not only their corporate overlords breathing down their necks, they have the FDA threatening to monitor their narcotic prescriptions. Pharmacies face similar scrutiny. Both federal and state regulations make it almost impossible to abuse narcotics via doctors’ prescriptions. Gone are the days of doctor shopping or filling prescriptions early. Narcotic users are now entered into a database accessible by doctors, pharmacies, and law enforcement. This makes it impossible to game the system, as was common years ago. I understand the need for some regulation, but these days the regulations are punitive, leading to needless pain and suffering. Chronic pain sufferers are literally being regulated to death.

Are you a chronic pain sufferer? Please share your experiences in the comment section.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Jesus Abandons Christian Woman in Hospital, Leaving Her to Suffer Horrific Pain

9 Comments
woman praying

Jesus! Jesus! Jesus!

I see your face, Jesus!

I see you, Jesus!

Come to me, Jesus!

I see your face, Jesus!

Over and over and over again, for two hours, an elderly Charismatic Christian woman in a hospital bed near mine, lay on her bed with hands extended to the ceiling, pleading for Jesus/God to come to her and make his presence known. She had just had surgery and was in a tremendous amount of pain. Pain medications were ineffective, so she turned to Jesus — the ultimate pain reliever. As a former devout Evangelical, I understand the woman’s pleas. As a pastor suffering from chronic illness and pain, I daily pleaded with God to deliver me from my suffering; or at the very least lessen my pain so I could sleep and do the work of the ministry. Alas, not one of my prayers was answered by God. At the time, I believed that if God didn’t answer my prayers, he was using my pain and suffering to either punish me, correct me, or for his glory. God always got a free pass.

Fortunately, after two hours of crying out to Jesus, he finally showed up! Just kidding. What showed up was a nurse with a syringe filled with high-powered narcotics. Soon, the woman fell asleep, ending her pleas to God. When she awoke, family and medical staff alike comforted her so she would no longer hysterically cry out for an imaginary pain-alleviating deity. Her suffering was alleviated, not by God, but by medically trained and compassionate human beings.

I genuinely felt sorry for the woman, knowing that Jesus was not going to show himself to her; that all the prayers, Bible verses, and worship were no match for severe pain; and that narcotics are the best tool medical professionals have in their toolbox to alleviate suffering.

I understand why Evangelicals turn to Jesus when suffering, but he is little more than a placebo. Jesus has never made a pain go away. He has no power to palliate suffering. How could he? Jesus is dead. Sure, prayer/meditation/positive mental attitude/mindfulness can help reduce pain; they are, after all, placebos. If you want to put this to the test, the next time you have surgery, ask the surgeon to do it without anesthesia or ask him to NOT give you narcotic pain meds post-surgery. None of us, I suspect, is willing to do this, even Holy Ghost-filled Christians. When we are in pain, we want the best post-surgery pain relievers. We want pain relievers because they work.

Nurses kept this woman sedated for the duration of my stay. I am grateful she found relief from her pain, even if her God had nothing to do with it.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Surgery Update

40 Comments
healthcare system
Total cost was $45,000. Surgeon got 8% of the cost. I’m glad we have medical insurance.

I’m home. 🏠 I had to stay an extra day. Lots of pain. A bit better today. I’m on OxyCodone and Zanaflex. Oh, and Tylenol too — medicine’s cure for pain. 🤬🤬 (I’ll be writing about my pain experiences in the days ahead.) I’m using cannabis too.

Some complications that I hope are temporary. Feet are numb. This should go away, in time. Could be permanent too. When nerves are compressed for as long as mine were, there’s no telling what will happen when you decompress them. Sometimes the damage can’t be reversed.

Biting low back pain is gone, as is awful pain in buttocks, back of legs — all the way to my feet. I still have degenerative spine disease elsewhere, with numerous herniated discs and other damage, but decompressing L4-L5 was necessary unless I wanted permanent paralysis and loss of bowel/bladder control. Come to find out, this was a congenital problem. Always has been lurking in the shadows. It just got worse over time. I first saw a doctor for low back pain at age 20.

Of course, my osteoarthritis, fibromyalgia, gastroparesis, and exocrine pancreatic insufficiency (EPI) remain. These, sadly, are incurable. Regardless, I am glad for whatever relief the surgery provides. My goal was less pain and being able to walk again. So far, I’m on the right path.

Biggest concern? Last few years I’ve had a sweating (Hyperhidrosis) problem that no doctor has been able to figure out. When I fall asleep—no matter the duration—I sweat profusely. I mean soak the clothes, sheets, blanket, pillows wet. My body temp is normal when this is happening. Post surgery? The sweating is much worse. Once I’m up on my feet, I plan to see an endocrinologist. Pretty bad my bedding has to be changed twice a day.

Still waiting to see if bladder/bowels return to normal.

I plan to use my walker to do some walking.🚶Maybe to the post office and back — about 4 blocks. My RN nurse sister thinks that may be too much, too soon, but she knows I’m always right, even when I’m wrong. 🤣🤣 Baby sisters, right? (Yes, my humor is starting to return.)

Thanks for caring. 😘 Your words of kindness and support were/are greatly appreciated. ❤️❤️

PS. The cats 🐈‍⬛ were all waiting at the door 🚪 for me when I came home. Did they miss me? Or did they just think I had food? 🍲❤️❤️🤣🤣 I know I missed them.

Dr. David Tee Weighs in On My Health Problems, Reminding Readers He is an Asshole for Jesus

12 Comments
dr david tee

Galatians 5:22,23 says:

But the fruit of the Spirit is love, joy, peace, longsuffering, gentleness, goodness, faith, Meekness, temperance: against such there is no law.

Evangelicals “say” they are indwelt by the Holy Spirit. He is their teacher and guide, giving them everything necessary for life and godliness. Galatians 5:22,23 says the fruit (evidence) of the Spirit is

  • Love
  • Joy
  • Peace
  • Longsuffering
  • Gentleness
  • Goodness
  • Faith
  • Meekness
  • Temperance

in the lives of believers. People say they are followers of Jesus, yet when you examine their lives for evidence of the fruit of the Spirit, they are sorely lacking, if not altogether bereft of any evidence of God living inside of them. The evidence of true faith is not what you believe, but how you live. Jesus had a lot to say about how Christians should treat their enemies. It seems that most Evangelical Bibles are missing the Sermon on the Mount (Matthew 5-7 and Matthew 25).

Think about the countless Evangelical apologists who have commented on this site, contacted me on social media, or emailed me directly. What conclusion would we come to if we judged them by their works (fruit)?

Yesterday, I wrote a heartfelt, personal post about my health problems and my struggles with suicidal thoughts. Readers responded as decent, thoughtful people would; with love, kindness, and compassion. Of course, Revival Fires and Dr. David Tee, whose real name is Derrick Thomas Thiessen, weighed in too, but their words lacked empathy.

Thiessen wrote:

3. We thought we gave BG [Bruce Gerencser] a reason to live 🙂

BG [Bruce Gerencser] whines in another post about why he has not taken his own life. He thinks about it because of all the pain he is in and all the medical problems he has. Now he has to face an operation and we do not gloat or make fun of these troubles.

While we [I] thought we [I] were [was] giving him good motivation to live. In atheists’ minds, there are few better reasons to live than to attack a Christian fundamentalist or EvangelicaL [sic] Seriously, he lists some very good reasons why he endures the pain and ailments he suffers from.

In our [my] hearts today, we [I] feel empathy for him and wish we [I] had the gift of healing. Then we [I] would ask God to heal BG for pure reasons, one being to finally show BG that God exists. Since we [I] do not have that gift, we [I] ask those who do to prayerfully consider bringing God’s healing to BG [Bruce Gerencser].

It would be nice to see him have a pain and sick-free end of life and make the quality of his life better. We hold nothing against BG [Bruce Gerencser] or MM [Ben Berwick] and do not want to see them come to any harm. For those who have doubts about doing this, I remind them of the example Jesus provided. People brought their suffering friends and loved ones to Jesus and he healed them all.

BG [Bruce Gerencser] qualifies for healing because he is not excluded from the term ‘everyone’. It may be too late for BG [Bruce Gerencser] and his wife to return to the faith, but his healing would greatly influence his children and grandchildren giving them the opportunity to see that God exists and make the right decision to go to heaven.

Right out of the gate, Thiessen says I am whining about my pain and suffering. Anything he says after this is meaningless. Who says to a sick, dying man, “Stop whining”? Thiessen has repeatedly hurled the “whining” accusation at me over the past three years. Any openness and honesty about the physical difficulties I face is whining in his book.

Thiessen says he is not gloating or making fun of me, but he is not being honest. He believes my pain and suffering are God’s way of getting my attention or punishing me. (Jesus could email or text me.) It is far more likely that Thiessen prays, “Pour it on, Jesus.”

Thiessen says he would pray for my healing, but since he doesn’t have the “gift of healing,” he can’t do so. He asks Christians with the “gift of healing to pray for me.”

This is a testable claim. Readers know that I have fibromyalgia, gastroparesis, exocrine pancreatic insufficiency, osteoarthritis, numerous herniated discs, and other structural problems in my cervical, thoracic, and lumbar spine. I have a tear in my right shoulder labrum, diabetes, and high blood pressure. I have plenty of problems for Jesus to work with. With God all things are possible, so if Christians with the ‘gift of healing” prayed for me, I’m certain God answer their prayers.

Thiessen is right. God healing me would be a big deal. So pray away, Christians. If God answers your prayers and heals me, I will renounce my atheism and return to Christianity. If God doesn’t help me, I will assume that either God isn’t listening to your prayers or he doesn’t exist. I have prayed thousands of prayers for my healing, without success. My partner, Polly, has prayed for my deliverance too. Still more crickets. It’s hard not to conclude that God is either pissed off at me, or he doesn’t exist. My money is on the latter.

In June, Thiessen wrote thirty posts about me and/or my British friend, Ben Berwick. Can anyone say “obsessed”? I offered to send Thiessen a semi-nude photo of me wearing my rainbow suspenders. He could either put my picture on his bedroom ceiling or his nightstand. Both of us have written posts that mention Thiessen, but our posts are responses to his incessant personal attacks or misuse of our content. If Thiessen would stop stealing our content and move on to other subjects or people, neither of us would mention him again. Trust me, contrary to Thiessen’s delusions, responding to him doesn’t give me a reason to live.

Thiessen has permitted me to share his email address: kinship29@yahoo.com. Since Thiessen doesn’t allow comments on his blog and doesn’t have a contact page, I encourage readers to send him an email and let him know what you think about his writing. 🙂

Update:

This was Tee’s response to this post:

Yes, maybe whining was too strong of a word but his content comes across as major whining to us. After all these years, one would think he had adjusted and could talk about something different than his pain, illnesses, and the fact that he was in the church for 50 years, etc., etc.

One does not have to whine to be open and honest but his Type A personality may not let him tone it down some. Maybe it would do him some good to learn that he is not the only one who suffers from chronic illnesses and pain.

We do not mean anything bad by our terminology but we are sure, he took it that way. We have been told the same thing for years starting from many decades ago so it is a casual comment to us.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

The Only Reason I’m Still Alive

26 Comments
gerencser grandchildren 2023 3

Yesterday, I saw a neurosurgeon affiliated with ProMedica in Toledo, Ohio. Over the past three years, I have been dealing with increasing pain in my neck and spine. MRIs revealed numerous herniated discs, arthritis, and other structural deficiencies. While these scans didn’t do anything to help with my pain and debility, they did provide reasons for my suffering.

Three or four months ago, I started having severe pain in my lower back. An MRI two weeks ago — which I had to pay for myself since my insurance company refused to approve the test — revealed that I have disc problems in my lower back too, along with a Tarlov cyst in the sacrum area of my back. From neck to tailbone, my spine is a mess. And it is likely that my disc problems are congenital. Gotta love DNA. As things stand, I am unable to stand straight, or walk more than a few feet at a time, and I have lost bowel and bladder control. Just when I thought things were bad enough . . .

I found the surgeon to be personable, patient, and to the point — traits I admire in a doctor (besides being proficient and competent, of course). He told me that my problem was in the L4-L5 area of my spine. The damage is such that there is pressure on the nerves; the only fix is surgery. Not having surgery is not an option; that is, unless I want to be an incontinent invalid for the rest of my short life.

That said, this 2-3 hour surgery is not without risk. The surgery has a 90 percent success rate, with a 2-3 percent mortality rate. Factor in the fact that I have several comorbidities, my concern about the outcome is warranted.

I have had problems with my lower back my entire adult life. I was 20 when I saw a doctor for the first time about my back, and since then I have seen other doctors who pointed out the narrow disc space in L4 and L5. My mother and father both had back surgery to “fix” low back problems — Dad in 1969, at age 33, and Mom in 1979, at age 43. Both of my siblings have had back surgery, with a varying degree of positive outcomes. My sister is facing more surgery on her neck. Several years ago, we had a friend — who has since died from COVID — who was left crippled and unable to work from low back surgery. It’s hard not to think about these people and their experiences when considering my own back surgery.

Today was my scheduled appointment with my therapist. We talked extensively about my pain, suffering, and prospective surgery. She said, “Bruce you have two choices. Either you have the surgery or you don’t. I replied, “Actually, I have three choices.” I can choose to have the surgery, not have the surgery, or end my life. “Oh, Bruce, that’s not a choice.” Sure it is. It is a choice that I always have as long I am in my right mind and have access to the means of my demise.

There are moments when I want to end my life. I am flat worn out from the constant pain and suffering. (And just because you see me in public smiling or interacting with my family doesn’t mean my pain has suddenly gone away. It hasn’t, and when you see me, I am likely gritting my teeth and crying inwardly as I try to enjoy life and my family as much as possible.) Currently, my pain levels are top-of-the-chart awful. I can, at best, take two or three steps before I feel biting pain in my back, hips, buttocks, hamstrings, and calves; so much so that it doubles me over and takes my breath away.

My therapist asked why I didn’t kill myself, probing for the reason or reasons why I still find life worth living. This question led to a lengthy discussion. My answer was short and to the point; one word, to be exact: FAMILY! The only reason I choose to press forward is Polly, our six children, and sixteen grandchildren. I am ready to die. I am flat worn out from the pain, incontinence, and lack of sleep. I am tired of my wheelchair, my cane, and the struggle to do simple things like taking a shower and brushing my teeth. This sort of life is not worth living, if not for my family.

So why don’t I kill myself?

First, I know what suicide does to those left behind. My mother’s repeated suicide attempts and successful bullet to the heart left deep, lasting scars on my psyche. I would never, ever want to do this to my family.

Second, Polly doesn’t know how to operate the TV or remote control. She needs me. 🙂 (I thought this dark post needed a bit of humor.)

I said to my therapist, “If my family was gathered together at my house and an asteroid hit our home, killing everyone but me, I would have no reason to live.” While it is unlikely that this will happen, my point was this: Family is the reason I get up in the morning. While I love writing and sundry other things, they are not enough to keep me among the living — though $1,000,000 in blog donations might change my mind. 🙂

In recent weeks, I have seen a grandson graduate from kindergarten, and two granddaughters graduate with honors from high school. On Sunday, I am taking my 6-year-old grandson to his first baseball game in Toledo. Two of my granddaughters will be spending the weekend with us, and on Friday, we are going out to eat and then to a baseball game in Fort Wayne with our oldest son and his family. “But, Bruce, what about your pain and other health problems?” Oh, they haven’t gone anywhere. When I do things such as those mentioned above, I take extra pain medication, hoping that will get me through the night. Regardless, I know pain and suffering is the price of admission, and I am willing to pay the price. One thing I know: when I am with family or when they stop by for a visit, I feel better. There are scientific reasons for why this is so, but all I know is that when I see them, I am given strength to push through to another day.

I am not trying to guilt my children into seeing me more often. I know they are busy with life, jobs, and responsibilities. All I am saying is that when I DO see my children, their spouses, and my grandchildren, it makes a difference when it comes to my will to live. I am grateful that I am not a sick, elderly old man whose family never makes time to see him. I always want to see my grandchildren more often, but I am glad that I see them as often as I do. Even when it hurts me to touch or hug them, I still want to see them. When one of my young grandsons runs into the living room to hug me and inadvertently smacks me in the nuts, I still want their hugs and silly words. If you haven’t figured it out yet, pain is not as much of a problem as loneliness is. For me — and I ONLY speak for myself — family matters. I know that may not be the case for some readers. Family can cause pain, and people rightly distance themselves from their families, choosing loneliness or other social connections instead.

As things stand, I plan to have surgery on August 19. I hope when I awake from anesthesia that the first faces I see will be family. If so, it will be another day worth living.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Chronic Illness and Pain: It’s the Small Things That Can Cause Despair

22 Comments
spinning plates

Life is like a spinning plate. In normal circumstances, the plate as it spins is balanced and in control. Occasionally, the plate will become overloaded or unbalanced, but with time will balance itself out, and life will continue along with little to no spillage from the plate.

For people battling chronic illness and pain, their spinning plate is dissimilar to that of many people. Thanks to struggles with pervasive illnesses and unrelenting pain, their plates are already full, spinning wobbly, sending the contents of the plate every which way, and, sometimes, propelling the plate into the wall or floor. Daily, small things are added to the plate, causing further imbalance. The plate owner struggles to keep the plate spinning without crashing. Sometimes he succeeds, sometimes he doesn’t. And when he fails, he makes a mess for all to see, often leading to despair.

For me personally, it is the small things in life that often fuel my depression. I can handle big things, and big decisions. It is the small things that pile up on my plate, leading me to deep, dark — at times suicidal — times in my life; moments when I just want to die. Those are times when narcotic pain medications don’t work effectively or eating food of any type makes me sick or leads to vomiting. Last night, I spent the night into the morning hours in the bathroom — sixteen visits in all. Loose bowels and lack of sphincter muscle control . . . shitty bed, shitty clothes, shitty floors, shitty, shitty, shit everywhere. An accumulation of small things that left me in despair, not wanting to live another day. Fortunately, after dropping eight pounds in less than a day, things have returned to normal — whatever the hell “normal” means.

Every day, the small things change, but their effect on my life is the same, threatening to spin my life’s plate out of control. My therapist and I often talk about small things and how they affect my life. The goal, of course, is to lessen the number of small things in my life; to lessen the small things piling up on my plate. That’s easier said than done. When your bowels say shit, you shit. When your stomach says vomit, you vomit. When your legs and spine leave you writhing in pain, you writhe in pain. Contrary to what the positive mental attitude (PMA) prophets might say, some things are beyond our control. There’s little I can do to change how my body responds to food or nerve and joint pain. I can take medications or use mental techniques to redirect my pain, but there are times when nothing I do works. All I know to do is grit my teeth and hold on, hoping that my suffering will lessen. There’s no healing or deliverance on the horizon. All I can do is endure . . . until I no longer can do so.

I wish I had the luxury of sitting back and enjoying life, but when you have chronic health problems, you have no time to waste on the “good life.” I am at the place in life where I have tied a knot at the end of the rope, and I am hanging on for dear life. I love Polly; I love my children and their spouses; I love my grandchildren; I love my siblings. I live for them. I still have writing I want to do; and a book to finish. I still want to get my house in order, so that when the day comes that my plate comes crashing to the floor one last time, Polly won’t be left with a mess. As it stands now, if I died today, my demise would leave the love of my life in a difficult spot. She deserves better, and so do my children and grandchildren.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Why My Writing Production Has Drastically Fallen

21 Comments
blogging

Polly had an appointment with her orthopedic doctor today. Major surgery is in the future for her — when is yet to be determined. Afterward, we drove to Archbold to eat lunch. We planned to eat at Samuel Mancinos, but the restaurant is closed on Mondays. Instead, we ate at a Mexican restaurant. I ordered a #18 — a taco, burrito, and rice and beans. I took three bites of the taco and some of the beans and rice before my ever-present nausea turned into feeling like I needed to vomit. I took some Zofran to lessen the need to vomit, sparing me the indignity of throwing up in a public restroom. Our server came to collect our plates. When she saw most of my food went uneaten, she asked, “You didn’t like the food?” I explained why I couldn’t eat my food. She genuinely felt sorry for me, taking my meal off our bill.

This is my life with gastroparesis — an incurable stomach disease. Every day, every week, with no respite in sight. In two weeks, I will have an endoscopy and colonoscopy. After that, I plan to have a gastric peroral endoscopic myotomy. This will hopefully reduce my symptoms. It is NOT a cure.

I have had numerous tests in recent weeks. A stool sample revealed I have an uncommon disease called exocrine pancreatic insufficiency. My pancreas — for an unknown reason — doesn’t make enough digestive enzymes. As a result, my body can’t properly digest food and absorb nutrients. This may be why I am anemic and have low B12, potassium, Vitamin D, and testosterone. I will likely have to go through pancreatic enzyme replacement therapy with expensive drugs.

Throw in fibromyalgia, osteoarthritis, and degenerative spine disease, and I am in a world of hurt. My life is dominated by managing my health and lessening symptoms. My life has been reduced to striving to live another day. Joys that I once took for granted are gone. Eating is one of those joys, and not being able to enjoy food is so depressing I wonder why I keep trying.

As you may have noticed, my writing production has dropped dramatically. My life has pretty much come to a standstill. I am trying, but readers should no longer expect me to generate as much content. I cannot do so, and it seems evident, at least to me, that this is my new normal. Readers should expect less content from me, and if you notice my writing pace has picked up, don’t assume I am “better.” I am not, and I fear my best day is today, with more suffering and pain in my future.

I am 90 days behind on answering emails and social media messages. There’s nothing I can do about this. I will answer them when I can, and, quite frankly, some of them will go unanswered. I have had thoughts about hanging up my blogging spurs, but I enjoy writing, so I can’t bring myself to throw in the towel. All I know to do is manage my symptoms, rest, and do what I can.

Please don’t offer me medical advice. I am seeing competent doctors, to whom I trust my life. They are the experts, and unless given reason to believe otherwise, I trust them. I appreciate your friendship and support, but sending me links to articles and blog posts or questioning my diet, is not helpful. I appreciate your understanding.

signature

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Bruce’s Ten Hot Takes for September 26, 2023

7 Comments
hot takes

Republicans want to cut food, heating, and housing subsidies for poor children and families. This tells me everything I need to know about the Republican Party.

Senator Bob Menendez should be forced to resign from office by his fellow Democratic senators.

It looks like Trump not only inflated his dick size, he also grossly inflated the value of his real estate and business assets.

Some Democrats are calling for candidates to run against Joe Biden. I support this call in the primary. However, come November 2024, the only thing that matters is keeping Trump out of the White House.

Upwards of twenty-three raccoons frequented our backyard this spring and summer. And now that fall has arrived, the raccoons have disappeared, making occasional raids on the food we put out for feral/stray cats.

Chronic illness and pain affects every aspect of my life. Telling me to “put mind over matter” is never the right thing to say. When you say this, I say to myself, “Go fuck yourself.” Continue in your insensitive behavior, I might say this to your face.

“Looks like you are feeling better today,” well-wishers often say. They wrongly judge the quality and level of my suffering by what I do, failing to understand that looks can be deceiving. Just because I’m smiling, doesn’t mean I don’t want to cry. I often smile for others, hiding my pain from them.

Hey, Joe Namath. You had a lifetime 50% pass completion rate, worse than embattled New York Jets quarterback Zach Wilson. STFU. Give the kid the break. Nobody wants to hear from ancient old ex-players. Different era, different game.

Travis Kelce, a Taylor Swift dating, Bud Light drinking promoter of COVID vaccines is upsetting right-wingers with his “woke” behavior. OMG, the meltdowns are fun to watch.

Kevin McCarthy says Biden is to blame for the threatened government shutdown. Sure, Kevin, sure. I bet the hemorrhoid in your arse you affectionately call Matt Gaetz is telling you to say this lest you lose your speakership.

Bonus: I’m increasingly disillusioned with what I see and hear in the larger atheist community. Maybe this is on me. I’ve moved on from the “angry atheist” phase of my life. I’m not that interested anymore in debates about the existence of God.