The recent success of an interview (28,000 views) I did with Tim Mills, the Harmonic Atheist, has brought me increased attention from Evangelical Christians.
Media interviews I do always bring out knives, pitchforks, and pyres, but it seems, at least to me, Evangelical hostility levels have dramatically increased, so much so that I have had thoughts of throwing in the towel. So much vitriol toward an insignificant atheist. What gives? Judging by their attacks, you would think I had kidnapped their firstborn or slept with their spouse. One man, whom I have banned and blocked numerous times, is trying to get at me through family, friends, and acquaintances. Yesterday, he went after my youngest son’s transgender roommate. That didn’t go very well for this Evangelical man. He happened to run into a young man who is more than capable of handling themselves. In fact, I suspect they enjoyed eviscerating this man. Earlier this week, my youngest daughter received a cryptic email from an Evangelical man, saying that he was trying to get a hold of me. Of course, he wasn’t trying to contact me. I am one of the most accessible people on the Internet. I am but a click or two away. No, this man wanted to let me know that he could get at me and my family. Why else did he list all the publicly available email addresses for me, including several email addresses I haven’t used in twenty years?
The fact that I have a lot of serious health problems has made it easy for Evangelicals to say that these maladies are God’s judgment or God trying to get my attention. The unrelenting pain that is literally choking the life out of me is “God” trying to get my attention. Someday, hopefully not today, tomorrow, or next week, I will die. I know that I am on the short side of life; that either disease, accident, or the damn cat will one day put an end to me. I can only imagine what Independent Fundamentalist Baptists (IFB) zealots will say on their blogs and what preachers say in their sermons upon hearing reports of my demise. “Bruce knows the truth now!” “Atheist Bruce Gerencser now knows that God exists and Hell is real!” These followers of Jesus will feign sadness as they speak of my death, but they will silently say to themselves, “that God-hating, Devil-loving motherfreaker got exactly what he deserved. No one mocks my God and gets by with it. ” (Motherfreaker is a Baptist swearword. An Evangelical recently got upset with me because I used a swear word in one of my posts. I am sure you can imagine my response to him. Please see Evangelical Swear Words.) 🙂
Let me circle back around to this idea that God gave me fibromyalgia, gastroparesis, and degenerative spine disease because he is trying to get my attention; that every night I writhe in pain in bed, unable to sleep, my suffering is a message of love from the Christian deity.
What’s with God “trying” to do anything? Is he weak and powerless, unable to do what he wants? If God is not willing that any should perish, how is possible that Bruce Gerencser, a frail, broken-down biped, can thwart God’s will? Surely God can easily and effortlessly reach me at any time. “Nothing is too hard for God” and “with God all things are possible,” the Bible says. Yet, it seems that saving me is too hard for God and that it is impossible for the Big Kahuna to reach me.
If my suffering is God trying to get my attention, does this mean that if I repent and put my faith and trust in Jesus, my chronic pain and illnesses will immediately and magically disappear? Crickets are all I hear from Evangelicals. They know there is no connection between my health problems and God. None. Shit happens, and this is my shit.
I have a three-year-old redheaded grandson named Silas. He’s a handful. Silas has no fear of anything. He must be watched at all times. Our living room is small, 16’x20′. We have three lamps in the room, along with an overhead light. I HATE the overhead light. My grandkids know not to turn the light on when I am in the room. Not Silas. He will run over to the wall switch, give me a look — you know, THAT look — turn on the light, and run off. No matter what I say or do, Silas keeps flipping the switch. Mischief is his middle name, some sort of karmic payback for my own childhood mischief. If my mom were alive, she would be smiling.
Imagine if I determined to teach Silas a lesson about the overhead light. I decided that the next time Silas turned the light on I would break his arm. Boy, that would get his attention, right? This is EXACTLY what Evangelicals are saying when they say that God has afflicted me to get my attention or to teach me a lesson. What, exactly, did I ever do to God to deserve such punishment? Or is God okay with Bruce, the Evangelical-preacher-turned-atheist, and that it is Evangelicals who want to see me suffer? Sadly, many Evangelicals are sadists. Unbelievers have what they can’t have, so they rail against them, uttering threats of suffering, death, and Hell.
If I broke Silas’ arm because he kept turning on the light, I would deserve to be arrested and locked up for my crime. So it is for the Evangelical deity who inflicts suffering on finite beings. If such a deity exists, he is unworthy of our worship.
Bruce Gerencser, 65, lives in rural Northwest Ohio with his wife of 44 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
Polly’s father, who died two years ago, was always a hard worker, often able to work circles around men half his age. He and I got along well because we both had that workaholic drive, the need to constantly be busy and get things done. However, at the age of sixty-five, Dad was in an industrial accident that injured his back and required immediate surgery. He never walked straight again.
Soon, pain became an ever-present reality for him. Dad, having been taught that taking narcotics could lead to addiction, refused to take anything more than Tylenol or aspirin. Later in life, Naproxen was added to the mix, as was Darvocet, a drug that was later removed from the market due to serious side effects. Dad would do his best to only take what he thought he needed, often only taking half a pill or going without taking anything for several days. No matter how often I reminded him that it would be better if he took the drugs regularly and on schedule, he continued to endure the pain rather than take the drugs as the doctor ordered. Dad’s doctor eventually gave him a prescription for Tramadol, and later prescribed Oxycontin. Finally, I thought, Dad will find some relief for his pain and suffering. Sadly, that was not to be.
You see, Dad was afraid of becoming addicted. I tried to explain to him the difference between addiction and dependence, but I don’t think heard me. Having been a narcotic user for seventeen years, I know that I am physically dependent; I’m not an addict. I take the drugs as prescribed. I wish that Dad had seen that being dependent is no big deal, and that regularly taking Oxycontin would have reduced his pain and improved his quality of life. Unfortunately, thinking drug dependence is a sin kept Dad from getting the full benefit of the drug.
This is a perfect example of how Fundamentalist prohibitions cause unneeded suffering and pain. From preaching that says addiction (dependence) is a sin to viewing pain and suffering as some sort of test from God, many Fundamentalists eschew drugs and treatments that would likely improve their quality of life. Better to suffer for Jesus, the thought goes, than to become dependent on narcotics. In just a little while, Jesus is coming again . . .so endure until you see your Savior’s smiling face.
I pastored numerous people over the years who thought taking pain medications was a sign of weakness or lack of dependence on God. I watched one man horrifically suffer from bowel cancer, unwilling to take drugs for the pain. I’ve come to see that this is the Evangelical version of Catholic self-flagellation.
As an atheist, I am deeply troubled by this kind of thinking. Since I think this life is the only one we have, we should do all we can to eliminate not only our own pain and suffering, but that of others. Since there is no Heaven and no reward in the sweet by and by, why needlessly suffer? Better to become dependent on narcotics and have some sort of pain relief and improved quality of life than to go through life suffering, only to die in the end. While I certainly think having a chronic illness and living with unrelenting pain has made me more compassionate, I don’t wish such a life on anyone, especially those I love.
How about you? Were you taught that taking narcotics and becoming dependent on them was a sin? Please share your story in the comment section.
Bruce Gerencser, 65, lives in rural Northwest Ohio with his wife of 44 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
“I hope you will feel better soon,” is an oft-heard line by chronic pain sufferers from well-meaning people. There’s this idea that our pain is temporary; that a cure awaits somewhere beyond the next doctor’s appointment. “A better day awaits,” people confidently say. How they could possibly know this remains unsaid, but such thinking finds its impetus in the idea that all suffering is temporary; that deliverance awaits just around the next corner.
For chronic pain sufferers, however, there are few better days outside of death on the horizon. We know there will never be a day when we “feel better,” outside of the marginal relief we receive from medications and treatments. In our minds, “it is what it is,” and no amount of good thoughts, wishful thinking, or prayer is going to change that fact.
Why, then, do the family members and friends of chronic pain sufferers ignore, marginalize, or reject this fact? If the pain sufferer can live with “it is what it is,” why can’t they? Certainly, family members and friends want the pain sufferer to feel better. I never doubt that such people are sincere or that they want what they perceive is best for me. Others have warped understandings of medical science or the specific medical conditions chronic pain sufferers face. They deify science, thinking that no medical problem is beyond treatment or cure. Doctors, of course, know better. They know that they can actually cure a handful of maladies. Most often, pain is managed and controlled. I know my doctors cannot cure me. My health problems are beyond simply taking medication or having surgery. Everything my doctors do is in the hope of giving me quality of life during what time I have left. I told my primary care doctor that I don’t expect him to cure me. I want him to do what he can to make my life better: less pain, and more mobility, or at the very least, no increased pain or debility That’s the contract we have with each other.
Many well-wishers think that if pain sufferers can, they should. If there is a treatment or procedure that “might” help, we should do it. Such people are convinced that a “miracle” awaits if the pain sufferer will just swallow this pill, eat these foods, take these supplements, have this surgery, or go through yet another treatment. They are unwilling to accept that “it is what it is.” When concerned family members and friends think (often wrongly) pain sufferers are giving in or giving up, they lecture and badger chronic pain sufferers, prodding us as a farmer with a cattle prod, to move forward through the chute of life. In their minds, giving in or giving up is always wrong, even if doing otherwise leads to more pain and suffering. I have watched numerous people — including my wife’s father — go through horrific pain and suffering, all because family members didn’t want their loved ones to give in or give up. And in the end? They died anyway.
I take a stoic approach to life. I have had a lot of trauma, tragedy, and suffering in my life. All suffering is personal. I know that what I have experienced is less than what some people have faced, but more than what others have gone through. When one of my toddler grandsons gets a boo-boo, his pain is every bit as real as Grandpa’s. The difference, of course, is that I have had almost sixty-six years of trauma, tragedy, and suffering. My lived experiences are far different from that of grandchildren or people decades younger than I am. All I know to do is to empathize with people when they are suffering, even when I know their pain is less than mine. I know that pain is a great teacher. I have had numerous steroid injections over the years. Polly always goes with me when I get juiced up. She usually remarks about my stoic mentality when the orthopedic doctor is sticking a long needle into my shoulder, hips, or hands. I always tell her that I have experienced horrible pain in my life; that the injections are uncomfortable, but nothing compared to my day-to-day pain or some of the painful procedures I’ve had in the past. I have developed mental processes that help me embrace the pain; the mental version of gritting one’s teeth and clenching one’s hands.
As I sit sideways in my recliner typing this post, my body hurts — literally — from head to toe. Herniated discs in my spine and neck, degenerative spine disease, osteoarthritis in numerous joints, muscle pain from fibromyalgia, and nerve pain in my legs and feet have left me in constant pain. I take narcotic pain medications, NSAIDs, and muscle relaxers to cope with my pain. They help, to be sure, but these drugs do not magically deliver me from pain. That has never been the goal. Pain medications and muscle relaxers, at their best, tamp down pain spikes. Certainly, I could take high enough levels of narcotics to make my pain go away, but in doing so I would sacrifice living a meaningful life. You see, “not dying” is not my grand goal. I don’t want to spend the last months and years of my life so drugged up that all I do is sleep, hoping that doing so will add a few days to my life. I choose quality over quantity, even if it means more pain than I would otherwise have.
I try to educate myself about the various diseases and debilities that I have. When I was diagnosed with gastroparesis (an incurable stomach disease) two years ago, the first thing I did was study up on the disease and its treatments. Knowledge really is power. With knowledge, I can know what to expect and how to best treat symptoms. I work in partnership with my doctors, knowing that the person who best knows my body is me. Unfortunately, family members and friends aren’t going to do this, so they often say ill-informed, ignorant, and, at times, stupid things to chronic pain sufferers. Typically, I ignore them. Other times, I ask, what treatment or drug do you suggest? Well, uh, I heard, I read on Facebook . . . You see, they don’t have any answers either. Why? In my case, there are no treatments, drugs, or surgeries that will lessen my pain and suffering in meaningful ways. And if there were, don’t you think I would investigate them and act accordingly? Or do some family members and friends think I want to be in pain; that I enjoy crippling pain, debility, vomiting, and diarrhea?
I have accepted that “it is what it is.” Unless there is a major medical breakthrough, I know that my life tomorrow and the day after will pretty much be, pain-wise, as it is today. I have embraced this fact. Are there treatments that I could have done that would offer short-term, temporary relief? Sure, but to what end? In 2021, I had a procedure done under anesthesia that used Botox to paralyze a muscle in my stomach. Did it work? Did I find relief? Sure, for three days, and then I was right back to being nauseous and vomiting. The same goes for epidurals and nerve blocks. They last for a short amount of time and are prohibitively expensive. I tried all of these procedures, but I decided, in the end, I didn’t want to deal with the false hopes and highs and lows that come from such treatments. A while back I had a night when I slept for nine hours, only waking up twice. I hopefully thought, “is this a sign of better days ahead”? Of course not. It was an anomaly. The next night I got two hours of sleep, and after that, I had on-and-off sleep for ten hours, as is typical for me.
I have accepted the fact that “better” days are not on my radar; that if I want to live, write, and enjoy what life I have, I must embrace my pain, do what I can, and try to ignore the well-meaning well-wishers. And when I can’t, I write a blog post. 🙂
Bruce Gerencser, 65, lives in rural Northwest Ohio with his wife of 44 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
House we rented in White Birch, a wooded community north of Farwell, Michigan. At the time, I was pastoring Victory Baptist Church, Clare Michigan 2003
Depression Sea is roiling today, my mind is twisting, turning, and dying.
She knows, she always knows. My face and body language tell a story she’s read time and again.
She worries that this time the story might have a different ending.
I’m at the doctor’s office.
Wasn’t I here last month? I already know the answer, having made the trip eight times and the year isn’t even half over.
As we wait for the nurse to call my name, we play the Bruce and Polly Fantasy Game®.
Playing the game allows me to change the monotonous, deadly channel that keeps playing over and over in my mind.
We look at one another, smile, and begin the game.
The game always has the same answers, but we like to play anyway.
In the Bruce and Polly Fantasy Game®, we take shared places and experiences and meld them into one. A fantasy, to be sure, but who knows, maybe we’ll strike it rich, rob a bank, or write a book detailing where Jimmy Hoffa is buried.
Spring in Ohio, with its promise of new life and flowers.
Fall in Ohio, with its crisp air and changing colors.
Winter in Arizona, no snow for us, we survived the Blizzard of 78.
Summer in the Upper Peninsula , nestled as close to our Canadian friends as possible.
Our rented house in White Birch, Michigan, with a 1970 green Nova SS sitting in the drive.
Bruce putting water in 1970 Nova SS, March 1976, somewhere in Kentucky
Package these things together and magically move them to the eastern seaboard, to a small, out-of-the-way fishing community on the shore of the Atlantic.
Turn the house so it fronts the ocean, allowing us to sit on our deck and watch the sunrise and the fishing boats making their way to the secret spots known only to those whose hands and faces bear the weathered look of a lifetime spent fishing.
Nearby live our six children and thirteen grandchildren. Not too close, yet not so far as to be beyond an invite to a Saturday night BBQ.
This is Bruce and Polly’s fantasy.
She remains worried, wondering if the slough of despondency will bury the man she loves.
All I want is for the pain to stop.
Is that too much to ask?
I already know the answer. I always know the answer.
The nurse calls my name and I haltingly walk to the exam room.
My vitals are “normal” though blood tests, scans, and X-rays say I am anything but. Refills ordered; sure is hot; how’s Bethany; he’ll be in to see you soon.
The doctor walks through the door and sits near me. Twenty-five years we’ve danced to this tune, both of us now dance much slower than we once did.
The doctor thinks I am chipper today, better than my last visit. Little does he know what I’m really thinking. We talk about the Reds, the Bengals, and the Browns. I promised the nurse that we wouldn’t do our thing, “our thing” being shooting the breeze while other patients wait. I lied. He’s behind and I’m to blame.
We shake hands, and afterward, I put my hand gently on his shoulder. I tell him, see you in two months. This sounds like a lie, a hollow promise with no hope of fulfillment.
I want to live.
I want to die.
June 19, 1957, in a building now torn down and replaced with a modern new one, at 9:01 AM I drew air into my lungs for the first time. A new life born into poverty in a nondescript rural Ohio community, delivered by a doctor who also worked as a veterinarian.
The path is now long and how much path remains is unknown.
Will the game be called today or will we get to play, for one more time, the Bruce and Polly Fantasy Game®?
I’m still betting on playing the game.
Bruce Gerencser, 65, lives in rural Northwest Ohio with his wife of 44 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
Yet another visit to the doctor’s office, visit number twelve for the year — primary care doctor, dermatologist, cardiologist, podiatrist, neurosurgeon, general surgeon, and orthopedic doctor. No major surgeries this year, but I have had a benign tumor removed from my abdomen and a large cyst removed from my upper back (which is already coming back).
My main health problems remain the same: gastroparesis (an incurable stomach disease), fibromyalgia, osteoarthritis, degenerative spine disease, and eight herniated discs in my spine and neck. I am also being treated for high blood pressure and diabetes. Both are well-managed. My latest A1c was 5.8. Diabetic readers know that anything below 7.0 is good. 5.8? Awesome.
Thanks to gastroparesis, I am chronically anemic and my B-12 levels are all over the place. I have blood work done every three months to monitor a host of issues. Gastroparesis has also affected my eyes. I was nearsighted for almost fifty years. I am now farsighted.
Taken together, these issues create a real challenge for me. Pain, of course, from head to toe, dominates my life. The pain is so severe that I have a hard time sleeping. I typically sleep in two-hour increments, readjusting my body so I can fall back asleep. Last night, I finally fell asleep at 5:30 am. I woke up five times during the night — hip pain, back pain, and peripheral nerve pain in my legs on this night. I woke up for the last time at 2:30 pm. Throw in a lack of bladder and bowel control, along with profuse — and I mean profuse — sweating, going to bed is a nightmare. Thanks to my therapist, I have come to accept that this is just how things are for me. Sure, I take narcotic pain medications, high-powered muscle relaxers, anti-inflammatories, and sleep drugs. They help, but these drugs do not make all my pain go away, nor do they bring deep, peaceful sleep.
I am now forced to use mobility aids wherever I go: cane, wheelchair, walker, or motorized cart. Not that I get out of the house much these days. Come March, it will be three years since I have driven a car. On a typical month, I get out of the house 4-8 times a month, usually to go grocery shopping, to medical appointments, or out to eat with Polly. I am not well enough to do any of these things, but I can’t bear being cooped up 24-7. So I endure, much as I do when my rambunctious grandchildren come over to visit.
My declining muscle strength and balance have made walking an existential threat to my survival. Falls are increasing, some severe. If I had to put money on how I will die, I would put it on tripping and falling. I am careful, but it takes very little to find myself flat on my ass/back, swearing profusely. Readers may remember that last Christmas I fell into our tree, breaking several branches and damaging the train below the tree. We have an artificial tree this year. 🙂
There are days when I just want to put an end to it all. People who suffer from chronic illnesses and endure unrelenting pain often have thoughts about suicide. Well-meaning people tell me that they are praying for me, or that I need to “put mind over matter.” I love it when someone tells me, you know, there are people who are worse off than you. And this helps how, exactly? There will always be people who are sicker than I am or have more pain than I do. And there are countless people who are in good health, and their biggest pain is a zit on the end of their nose or a backache from too much headboard banging. Each of us lives in a contained world unto ourselves. My health problems and my pain are mine alone to bear. Just think of Jesus’ suffering, Bruce. He did it all for you, Christians tell me. What, a day or so of pain, a long weekend, and then a pain-free body? Jesus had it easy. I would trade places with him in a heartbeat. Let Jesus walk in my shoes for a while — not that he can, he’s dead. Conjuring up an imaginary suffering deity as a way to “encourage” those who are in real pain is not any more helpful than that same God spitting on dirt, making some mud, and using it to restore a blind man’s sight. Forget the theatrics. If Jesus is really the Great Physician, what’s he been up to for the past two thousand years? I know a lot of people who sure could use his help. His inattention makes me wonder if he is actually dead, and what’s really going on here is that the Christian church has been playing a con game for the past twenty centuries. Just keep praying. Jesus will heal you — someday.
People with chronic pain have often suffered for years. Their lives are an endless repeating of the movie Groundhog Day. In my case, I have suffered chronic pain for twenty-five years. I worked my last full-time job in 2005. Their lives are an endless repeating of the movie Groundhog Day. I endure the day, collapse in bed, spending several hours getting to sleep, only to start the process all over again the next day. And pain is just one of the plethora of issues I must deal with every day. I am not complaining. I accept life as it is, doing what I can to lessen my suffering. I don’t expect my doctors to work miracles, nor do I anticipate waking up one day and finding myself miraculously healed. That’s not how things work in the real world. Thousands and thousands of prayers have been offered on my behalf, and I spent the better part of twenty years daily asking God for healing. As the mythical Christian God is wont to do, he remained silent.
When I write about suicide, people immediately worry that I am about to pull a David Foster Wallace. Not today, my friend, not today. All I am saying here is that chronic illness and pain drive people to ponder ending their lives. In fact, it is totally normal to have such thoughts. It’s not that I want to die — I don’t. I want to live. I want to watch more sunsets over Lake Michigan with the love of my life. I want to eat Polly’s food and enjoy her company. I want to hear Bethany laugh while watching a stupid movie. I want to go to stock car races and baseball games with my sons. I want share Thanksgiving and Christmas with my family. I want to watch my grandchildren come of age, go off to college, and perhaps have families of their own. I want to watch the trees, bushes, and plants Polly and I have planted grow to maturity, covering our yard with summer beauty and shade. I want to watch the raccoons, possums, squirrels, and feral cats as they stop by to eat and provide us with a bit of entertainment. (Recently watching a raccoon run off on his back feet with an old bagel in his front paws — priceless.) There are so many things I want to do, yet when my body is wracked with pain, all I can think is this: PLEASE MAKE IT STOP!
You see, that’s what healthy people don’t understand. It’s not that people such as myself want to die, we just want the pain to stop. Oh, how I yearn for a day — just one day — of waking up in the morning pain-free. Some of you reading this post know what I am talking about. You understand longing for a day without pain, yet you know such hope doth fantasies make. For the present, we live between the one certain cure — death — and a life of finding meaning and purpose. For me personally, writing, family, and hoping the Cincinnati Reds will, one more time in my lifetime, win the World Series, are some of things that give me meaning and purpose. When I devote my energies to those things. thoughts of suicide diminish. That said, suicidal thoughts will never, ever go away, and I have, through anguish and tears, thought on more than one occasion this year, ENOUGH! But today I say to myself, LIVE. Who knows what tomorrow may bring? For now, I focus on the things that matter, hoping they continue to provide reasons for living.
I know the goodness in you will urge you to try to encourage me in the comment section, or with a text or an email. There’s no need, friends. This is just me talking out loud and being brutally honest about life. I may die today, but it will not be by my own hands. My sister has a project she needs her wise, aged, technologically savvy smart-ass of a brother to take care of (she reads my blog, so I just had to say that). I can’t leave her in the lurch. And besides, the Bengals are likely headed for the playoffs. Maybe, just maybe this will be the year the Bungles become world champions.
Bruce Gerencser, 65, lives in rural Northwest Ohio with his wife of 44 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
I have spent the past three decades battling fibromyalgia, osteoarthritis, and degenerative spine disease. I say battling, but perhaps I should say, being BATTERED, by people who are often unaware of their surroundings. Not a day goes by for me that I don’t have never-ending, unrelenting pain. Even with being on narcotics and NSAIDS, along with steroids and muscle relaxers, I find that the pain remains. Without the drugs, the pain is unbearable. With the drugs, I can have what my doctor calls “quality of life” — quality, of course, being loosely defined, and I suspect meaning something different to my doctor from what it means to me. I could take enough drugs that they would make me oblivious to the pain, but there’s no “quality” in such a life — at least for me. If I want to drive — scratch that, I lost ability to drive in 2020 — attend my grandchildren’s school events, and photograph high school sporting events — scratch that, I lost the ability to use my professional camera equipment in 2021 — I must accept a certain level of managed pain; pain that is not so severe that doing most anything is impossible.
In the eyes of many people, I look quite normal. Yes, I walk haltingly with a cane and walker, and probably should have a “slow-moving vehicle” sign attached to my ass. Aside from this, I hide my pain well. Family and friends, of course, are well acquainted with my suffering, and they usually (not always) go out of their way to make things easier and less painful for me. It is when I come in contact with the public that I often find myself beaten and battered by people who seem clueless about how their behavior affects others around them, especially someone such as myself, who doesn’t need any more pain added to his plate.
Several years ago, I went to a high school basketball game. I arrive at games early so I can secure a front-row seat. This allows me to have a court-level view of games. My daughter with Down syndrome — we are quite a pair, she and I — usually sits in the row in back of me, slightly to the left or right of my back. By doing so, she typically wards off people from sitting in back of me. Not this night. Ten minutes prior to the start of the junior varsity game, a middle-aged couple and their early-20s daughter planted themselves directly in back of me. For the next three hours, I was subjected to knees, feet, and purses being pushed into my back. After being battered during the first game, I decided to sit on the edge of my seat, hoping that this would place me beyond their reach. Unfortunately, the unaware batterers saw my move as an opportunity to increase their real estate, and the thumps, bangs, and jabs continued.
If I were a cranky curmudgeon, perhaps I would have asked them to stop, but instead, just as I have done for years, I endured their cluelessness. I don’t expect people to innately know that a chronic pain sufferer is sitting in front of them. That said, it perplexes me that so many people never learned to be aware of their surroundings, nor did they learn to pay attention to how their behavior affects others. My children were taught at an early age to pay attention to who is around them. Respect the space of others, and don’t do anything that could cause harm to someone else. I have been kicked half to death by more booted five-year-olds than I can count. Kids are kids, and I don’t expect them to necessarily understand respecting the person of others. However, these little kickers should, at their advanced stage of development, have parents that understand their children beating on a man who looks like Santa Claus is not respectful and can, if Santa is so inclined, result in Little Johnny getting coal in his stocking on Christmas. 🙂
Polly and our children will tell you that I was and am hyper-aware of my surroundings, never wanting to do anything that would inconvenience or harm others. I passed this awareness on to them, and I see it in the behavior of my grandchildren. Learning simple things such as not standing in the middle of the grocery aisle blocking the lane or running up and down bleachers causing them to bounce — both of which can and do affect others — should be part of standard child training. My grandchildren have had to learn that, yes, I want to hug each of them, but they mustn’t launch themselves into my lap, causing me pain, or, in some instances, sending my testicles into my eye sockets. My grandchildren know that they must be gentle with Grampa or Bapaw, as my four-year-old grandson calls me, not because I will yell at them if they don’t, but because the fact of their doing so means they understand, at some level, my physical struggles.
I realize there will be times when people inadvertently run into me. Such is life. But what bothers me is people who seem to have no awareness of anyone but themselves. I feel, at times, when such people physically assault me, that they are saying to me, Hey old man, get out of my way. Move it, I have got places to go and people to see. (I do all I can to stay out of the way, knowing that other people are busy and have things to do. I consciously try to make it easy for people to avoid contact with me.) Smartphones have made such behavior worse. People zoned out on their phones careen through stores and public places with nary a thought about the people around them. This is one of the reasons that I avoid department stores during the holidays. After being repeatedly banged into with shopping carts and oversize purses as women pass by, I find my anger increasing, and I begin to have thoughts of clobbering someone with my cane. I know having such thoughts is normal, but I find it better to avoid supermarket Mike Tysons if at all possible. Before the Pandemic, when grocery stores were open 24-7, Polly would arrive home from work at 2:30 am and I would say to her, Hey, let’s go to the grocery! Why? you ask. Simple, there are very few people shopping at the local Meijer or Walmart at 3:00 am. I don’t have to worry about cart kamikazes running me over or “important” people rushing through the store, binging and banging into people like a steel ball in a pinball machine.
Chronic pain sufferers, along with people with chronic diseases, will likely say AMEN to this post. They, unfortunately, understand exactly what I am talking about. My plea to healthy bipeds is that they be aware of the people around them and pay attention to how their behavior affects others. Kindness, compassion, and respect go a long way toward helping people such as myself to have public forays without coming home feeling like we’ve been hit by a truck. No one can cure me or make my pain go away. All that I ask is that they lift up their eyes and survey their surroundings. See the man walking with a cane? Don’t push your shopping cart quickly around him and then stop on a dime, forcing him to tense up his entire body to avoid running into you. See the man haltingly walking down the bleacher aisle. Wait. Let him get down the steps and on solid footing before you hop on the autobahn and swiftly pass him by. And above all, respect his personal space, as he most certainly does yours. Someday, you might be cursed to walk in his skin, and I guarantee you that you will then want people to pay attention and not do things that further hurt you.
Bruce Gerencser, 65, lives in rural Northwest Ohio with his wife of 44 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
Today, a woman named Sherryll left the following comment on the post titled The Tyranny and Oppression of the To-Do List. I have no idea whether Sheryll is a drive-by reader or a regular reader. I doubt she’s a regular reader for this reason: people who have been reading my writing for years know I have no use for unsolicited medical advice. Both on the comment guidelines and contact page, I ask people to not send me medical advice. I have an expert team of medical doctors caring for me. Beyond that, I have read scores of books, articles, and studies about the various diseases that afflict me. I have been tested, poked, scanned, and injected more times than I can count, including extensive work-ups at the University of Michigan and the Toledo Clinic. I’m confident that my diagnoses are accurate, as is my treatment plan.
Hi there Bruce! I’m so sorry you’re dealing with such pain!
I have been dealing with chronic pain for twenty-five years. My pain is widespread and diverse, from the bottoms of my feet to the top of my head. I have muscle pain, nerve pain, joint pain, eye pain, and bowel pain. This pain is not the normal aches and pains expected at age sixty-five. I have three types of days: less bad pain days, bad pain days, and screaming, off-the-charts pain days. I don’t have pain-free days.
Most of my pain is structural. I have osteoarthritis in virtually every joint in my body. Eighteen months ago, I started having severe pain in my upper back. This pain later spread to my neck. An MRI of my back revealed:
Disc herniation (T7,T8)
Disc herniation (T6,T7)
Central spinal canal stenosis (T9/T10, T10/T11)
Foraminal stenosis (T5,T6)
Disc degeneration/spondylosis (T1/T2 through T10/T11)
Facet Arthropathy throughout the spine, particularly at T2/T3, T3/T4, T5/T6, and T7/T8 through the T12/L1 levels.
Hypertrophic arthropathy at T9/T10
An MRI of my neck revealed similar damage.
These issues are structural in nature. No medication, supplement, or exercise is going to “cure” me. I recently saw a neurosurgeon at Parkview Hospital in Fort Wayne. There’s nothing that can be surgically done for me, especially my back. The surgeon’s notes state: the patient will have to live with it.
I too have suffered through the years with similar issues but I fortunately found a doctor in Dallas Texas that helped me. He died three years ago, but his associates are carrying the torch and assisting others in their personal healing process!
Doctor Sherryll, who stayed at a Holiday Inn Express last night, says that she had “similar” problems as mine. I doubt it. She doesn’t know enough about me to make such a judgment, but that doesn’t matter in this Internet age. She sees that I have chronic pain; she had chronic pain; she was healed; I can be healed too.
The doctors in question operate the Environmental Clinic in Dallas (Richardson)Texas. The front page of their website lists their primary service offerings: allergy testing, immune support, nutrition, and detoxification. Does anyone smell “alternative medicine?”
Environmental Clinic’s website states:
Did you know that many common ailments may be traced to substances you are exposed to in your everyday environment? Thirty years ago, even medical science was not broadly aware of the extent the environment affected health. But, thanks to much research and the work of pioneering physicians, doctors now recognize such maladies as headaches, sinusitis, fatigue, joint aches, blood vessel abnormalities, asthma and chronic infections may be caused by environmental factors. The Environmental Health Center-Dallas is one of the oldest and most advanced centers in the world addressing health and disease as it relates to the environment. The center provides full-service medical care with a special emphasis on the impact of environmental factors on the human body.
According to Dr. William J. Rea, the surgeon who founded the Clinic in 1974, various exposures may cause sleep disturbance, learning disorders, blood vessel, colon and bladder inflammation, as well as a host of other inflammatory problems. The “environment” involves all of our surroundings, including everything we breathe, eat, or touch. It consists of thousands of substances we are exposed to each day, but often do not even know exist. They are substances like the air-pollens, molds, and animal danders in the air, machinery, carpets, cleaning supplies, perfume and smog produces chemical by-products.
For those unacquainted with the effects of the environment on our lives, this process can be compared to carrying a load of bricks. Just as we might fill our arms with bricks, our bodies are being filled with a variety of stressors, including biological, chemical, emotional and physical. As long as the amount of bricks, or stress factors, stay within a range our bodies can manage, everything is fine. But, when the load becomes more than our bodies can handle, down come the bricks. This collapse is represented physically as symptoms.
New patients begin by completing a detailed patient questionnaire and meeting with the physician. Lab tests are often recommended, as is sensitivity testing. In the latter, the patient is exposed to or injected with low levels of various substances which help to identify the cause of their sensitivity.
When the triggering agents are pinpointed, the physician determines an individualized program to help each patient achieve a state of maximum health. This program includes educating patients about their sensitivities, nutrition and environmental exposures as well as getting them actively involved in their treatment. Some patients also receive immunotherapy, a specialized type of vaccine treatment that may provide substantial relief.
It takes being pro-active though consisting of adopting a healthy diet and exercise within your present capacity.
Note the judgmental presumptions Sherryll makes about me. She assumes, without evidence, that I am not being proactive about my health; that I am not eating a “healthy” diet; that I am not exercising enough. How could Sherryll possibly know these things? In her mind, she thinks that I am not “healthy,” so these must be the reasons why. Would it matter to Sherryll if I told her that I AM proactive; that I eat a vegetable-filled well-balanced diet; that I do what I can physically within the limits of what my body will tolerate and allow? Of course not. Much like religious Fundamentalists, food fundies, homeopathic fundies, and alternative medicine fundies think they have THE truth; that all other viewpoints are lies bought and paid for by big pharma, rich doctors, and hospital conglomerates. These people want us to stay sick, keeping from hearing the true gospel of glorious health. This, of course, is bullshit.
When I look at prospective treatments, all that matters to me is the science. Not anecdotal stories; not sketchy studies; not medical professionals who have an axe to grind.
I realize you feel as if you’re knocking on heaven’s door(as an atheist, you still get the picture) but I am hoping with your drive—- albeit diminished via the illness—you could be up to the challenge! If interested look up Environmental Clinic in Dallas Texas! My best to you!
Sherryll wrongly thinks that she is providing me a “challenge”; that if I really want to get well, I need to accept her challenge. What, are we in grade school? I did look at Environmental Clinic’s website, including its extensive offerings of woo and pseudoscience. No thanks.
Bruce Gerencser, 65, lives in rural Northwest Ohio with his wife of 44 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
As a younger man, I pastored Evangelicals and worked secular jobs, mostly management-level employment. I was a general manager for Arthur Treacher’s, Long John Silvers, and Charley’s Steakery. I also was a grant manager and building code enforcement officer for the Village of Buckeye Lake. My last job (2004) was working for Allegro Medical, managing their Yuma office. While I worked blue-collar jobs, my skills were best suited for managerial positions. As a pastor and a manager, I was the man in charge. Blessed (or cursed) with a Type A personality and a driven, no-nonsense work ethic, I was well suited for the management world. By all accounts, I did my job well and my employers appreciated the work I did for them.
Over the years, I developed certain skills that helped me do my job. One skill was the use of a to-do list. Every day, I would make a list of the things I needed to do, and then I worked the list. Sometimes, I would keep this list in my mind, other times, I would write it down on a yellow pad. As I worked the list, I would mentally or physically draw a line through each completed task. Typically, my work day did not end until I completed the list.
Having an Obsessive Compulsive Personality Disorder (OCPD) certainly fueled my list-driven work ethic, as did my Fundamentalist Baptist religious beliefs. The Bible was a list of God’s laws, precepts, and commands. The thrice holy creator of the universe expected me obey each and every one of his commands. After all, the Bible says that followers of Jesus are to be perfect, even as their Father in Heaven is perfect. I never had much use for Christians who treated the teachings of the Bible as optional.
Over the years, I employed hundreds of people. If asked, I suspect these former employees would say I was a driven, no-nonsense boss who expected them to show up every day and do their jobs. I had no tolerance for idleness or horsing around. I had zero tolerance for “excuses.” Let me give you an example. When I started managing Charley’s Steakery in Zanesville, Ohio for a Taiwanese immigrant, I inherited two assistant managers. I would have hired neither of them had it been up to me. It wasn’t, so I had to try to work with them.
Jeff was an easygoing “praise Jesus” Evangelical Christian. One of the first things I had to deal with had to do with Jeff’s religious beliefs. Keep in mind, I was an Evangelical pastor, at the time. However, I checked my religion at the door when I came to work. I didn’t try to evangelize employees, nor did I invite them to church. If an employee asked about my church or religious beliefs, I would answer their questions, but when I was at work, I worked for my employer, not Jesus. I tried to model Christianity to my employees by my behavior, not my words.
When Jeff opened the store, he knew he had certain tasks that had to be done, every day, without exception. Yet, Jeff never seemed to get his work done. I would come in around 10:30 am and find the pre-opening tasks incomplete. Of course, I would get after Jeff for this, telling him that these tasks had to be done prior to opening. It was HIS job to make this happen.
No matter what I said, Jeff didn’t do his job. Finally, I decided to figure out what was going on. Come to find out, Jeff was spending the first hour of his work day — are you ready for it? — praying and reading his Bible! He was shocked when I told him he couldn’t do this; that I expected him to start working the moment he walked in the back door. He thought that I, as a pastor, would understand the importance of starting the day communing with God. Of course I did. I read the Bible and prayed every morning too. I did it, however, on my own time, before I came to work. (His excuse was that his home was too noisy for him to have devotions.)
Jeff was notorious for leaving work undone. Such a work ethic was foreign to me. My job. My responsibility. Get it done. No excuses. Ever. I expected Jeff (and my other manager) to account for the money every day. When I came to the store, they were using a communal till. No one was responsible for the money. I changed that by requiring new drawers every time a new employee was put on the register. I discouraged my managers from running the register, telling them that if they did and there was a problem with the money, I would hold them accountable for the missing money.
Every day, the opening manager was required to count the two cash drawers and the safe. There was an exact amount of money in the safe. The total amount had to be exact — no exceptions. And if it wasn’t, the opening manager was expected to figure out why. No excuses. I expected the money to be correct, right down to the penny. This process was repeated at night. At the end of the night, I expected the manager to count the drawers, balance the safe, and make the deposit. The money had to balance, each and every time. If it didn’t, I expected my managers to stay there until it did, and if they couldn’t figure it out, I expected them to call me.
I was having a problem with drawers coming up short on the night shift (when I wasn’t there). One drawer came up $50 short twice in a week. I determined that the cashier was stealing the money. I fired her. The next weekend, I was off work. Jeff was in charge. I came in on Monday morning to find a note taped on the safe that said, “Sorry, Bruce. The money is not right, and I couldn’t figure it out.” The safe was short $70. I recounted the safe and drawers several times. I removed the drawer mechanism from the register to make sure the money wasn’t there (unlikely since this amount required multiple bills). I went to the bank and made sure the previous night’s deposit amount was correct. It was. So, I was left with two possible explanations: either a customer was given too much change (unlikely since there were no $100 bills in the safe/deposit) or someone stole the money. I believed it was the latter, but I had no way of proving it.
When Jeff showed up for work, I took him aside and gave him the ass-chewing of his life. He knew it was his responsibility to make sure the money was right. He knew that he was required to call me if he couldn’t figure out what happened. Worse, when I asked him who was on the register over the weekend, he told me: numerous people. According to Jeff, he was so busy that he just didn’t have time to count the drawers and switch them. In other words, he ran a communal drawer all weekend. The thief could have been anyone — including him. Jeff is fortunate I didn’t fire him on the spot.
I had policies and procedures in place for a reason. I expected the people who worked for me to follow them.
Fast forward to today. The Bruce from yesteryear still lives in my mind. I still have an exacting work ethic. I still make to-do lists. The difference now, of course, is that I can no longer mentally or physically work the list. Oh, I want to (just ask Polly, my children, or my counselor), but I can’t. I need to, but I can’t. The drive is still there, but there’s no gas in the tank. Gastroparesis, fibromyalgia, and degenerative spine disease have robbed me of the ability to do the things I used to do. My life is now measured by the things I have had to give up. Last year, I sold all my professional camera equipment. No longer able to hold a camera due to its weight, I had to give up on photography. Two years prior, I sold all my woodworking equipment, fearing that I would hurt or kill myself if I didn’t. I haven’t driven an automobile since March 2020. I sold my car, knowing that I will never physically be able to drive again. Two years ago, I was excited to rekindle my love affair with O-gauge Lionel trains. I spent months buying engines, cars, and equipment on eBay. Two of my sons helped me build my layout table. Polly painted it for me — a dirt tone. And then, the proverbial train ran out of fuel. A year later, the trains, buildings, and equipment gather dust. I wonder if I might as well give up on this too, and sell the things I have collected. Simply, I am not sure I can (mentally) do this and still want to get up in the morning. So, it sits.
I have kept our financial records our entire married life — forty-four years. Polly never had any interest in doing so. Our checkbook always balanced to the penny. I used programs such as Quicken or Microsoft Money to track income and spending. Always the list maker, I used categories to track everything from the money we spent for utilities to the money we spent buying candles (a lot 🙂 ) We have never been very good with money, but we knew exactly what we were spending money on. Come the first of the year, I would tell Polly, “do you know we spent X dollars on ___________?” We would both laugh/cry/groan, and then promise to do better in the new year.
Three years ago, I started having an increasing problem keeping up with our finances. Receipts would sit on the desk for months. The “checkbook” no longer balanced. I started missing payment due dates. So, I gave up. After talking with my oldest son about this, I was able to develop a system that worked for me in my present dilapidated condition.
I know that tomorrow will not be better than today. I have resigned myself to the fact, that I will be forced to give in until there is no more to give. That’s the nature of my afflictions. They rob me of my life, one inch at a time, launching at me and mocking me as they do. I try to focus my energy on Polly, our children and grandchildren, and writing. If I’m lucky, I will get to spend time sitting in the yard, taking a short road trip, attending one of my grandchildren’s games/performances (though I can rarely do so since I require someone to drive me to these events), going to the grocery store, or eating out with the love of my life.
Last night, Polly and I went out to eat at Sweetwater Chophouse in Defiance. Bethany stayed home and watched the new Elvis movie on HBO Max. After we were done eating, Polly asked if I wanted her to take the long way home. The answer is always “yes.” I never want to go home. So we drove west from Defiance to Sherwood (where we stopped at the Apache Dairy Bar and I had a chocolate malt) and then turned north and east to our home in Ney. When we arrived in Ney, I told Polly that I want to tour the town (population 356, about 100 houses). She asked, “which way?” I replied, “I want to go down all the streets.” “All of them?” Polly asked. I replied, “all.” And so we did, gossiping about our neighbors along the way. We noticed a block from our home six or so feral cats, six to eight months old. We love cats and have fed feral animals for decades, but we despise humans who show no regard for them and leave them to their own devices.
I returned home in time to watch Sunday Night Football. As I tiredly sat in my recliner, I opened up my iPad Pro to check for new blog comments, emails, and social media messages. There were — a couple of emails from people upset that I didn’t respond to their email when they thought I should. Of course, I will, when I can, politely respond to them, apologizing for my delinquent behavior. I want to ask them, “do you know how sick I am?” In recent days, I have thought about doing away with my comment form, but even if I did, people would still find ways to contact me. Last week, a man in his 70s from Chicago somehow found my phone number and called me — at 8:30 am. I had been asleep for two hours. His call disrupted my sleep for the rest of the day. Yes, he needed someone to talk to. Yes, he had questions about religion and atheism. But, damn, it has taken me several hours and a plethora of medications to fall asleep, and you woke me up!
Deeply engrained in my mind is the need to work the to-do list. The list is still there; it will always be there. The difference now, of course, is that I can no longer work the list like I used to. The list gets longer and longer and longer. On “good” days I will knock a few things off the list, but on most days, the list continues to grow. Three weeks ago, I bought a kit at Menard’s to repair our toilet. There it sits on the kitchen shelf, unused. Everywhere I look I see jobs half-done, projects incomplete. Whether it is my home or this blog, things left undone have become tyrants who love to mock my fragility and inability. On “good” days, I ignore their voices, telling them to fuck off. On “bad” days, I find their mockery and taunts to be overwhelming, constant reminders that I am a frail, dying man.
I am at a place where I have more decisions I must make. I am facing increasing physical problems. The memory problems that were just a niggling problem for years are now getting in the way of me doing what I want and need to do. (This is not dementia or Alzheimer’s. It is more likely driven by the cumulative effect of chronic illness and pain.) I will have days when I feel like the man on The Waterboy: “you can do it.” Such days are flights of fancy, much like an auto engine that runs its best just before it blows up. Reality says that I must use a cane, walker, or wheelchair everywhere I go. I am not stable on my feet. Prone to falls, I must plot out every step when in public. I know a bad fall could be the end for me. I am losing strength in my hands. A new problem, nerve-related, causes my left thumb (I’m left-handed) to fold under my fingers, numb and unmoveable for several minutes. This is likely caused by the herniated discs in my neck. I continue to have problems with my eyes. I have done from near-sighted to far-sighted. I have given up wearing glasses.
These days, even the basics of life are challenging. Nausea and vomiting have turned eating into a chore instead of a joy. I try, but I have found nausea to be an enemy I cannot defeat. Medicine helps, but I can only take so much Zofran. The rest of the time, I endure nausea. It’s really not fun when drinking ice tea makes you nauseous
I don’t write these things to whine or solicit sympathy (fuck you, Derrick Thomas Thiessen). Writing about my life is a distraction, a medication that lessens my suffering. And maybe, just maybe, my writing might resonate with a few of you, a reminder that you are not alone. I will continue to do what I can for as long as a can, but I know there will likely come a day when I must further trim my to-do list, reducing it to one line: breathe.
Bruce Gerencser, 65, lives in rural Northwest Ohio with his wife of 44 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
Warning! This post talks about bodily functions, especially vomiting and shitting.
Two years ago, I was diagnosed with an incurable, debilitating stomach disease called gastroparesis. As a result, I have lost 110 pounds. Constant nausea, lack of appetite, fits of vomiting, erratic glucose levels (mine dropped by 30 percent, changing my vision from nearsighted to farsighted), and chronic bowel problems are a few of the common symptoms. (Many gastroparesis sufferers end up on feeding tubes.) Bowel movements are often life’s greatest adventures. Will today be the day I shit? Gawd, that was the mother of all turds. Diarrhea? Really? I was constipated yesterday. Bowel movements every day for a week, and then no bowel movements for days. Gastroparesis, also called stomach paralysis, slows the movement of food from your stomach through your intestinal tract. Sometimes, food takes 4-7 days to make it through my system. My problems are further complicated by the fact that I also had my gall bladder removed several years ago.
I am nauseated all the time. There’s not a day when I am not nauseated. The nausea is such that there are days when I don’t want to eat. Polly is a superb cook. She will whip up awesome meals, only to have me say “I can’t eat” or after eating a bite or two I say, “I’m done. I can’t eat anymore of this.” Typically, I apologize to Polly for my lack of appetite, for making her “feel” like she’s to blame for my lack of appetite. I remind her, “it’s me, not you.” We will go out to eat at an upscale restaurant, only to have me not be able to eat my meal. Or worse yet, I will eat a $20 to $50 meal only to rush to restroom and throw up. There’s nothing worse than throwing up in a “pristine” public restroom. I mean nothing . . .
Late last night, I became increasingly nauseated. I’ve become good at judging my nausea, whether I can just tough it out or whether I will end up face down in the toilet. As my nausea became increasingly “challenging,” I took 4 mg of Zofran — a drug given to chemotherapy patients to combat nausea. Zofran is a quick-acting sublingual drug. Typically, Zofran lessens my nausea in 5-10 minutes. Not this time. I decided to take 4 mg more of Zofran. “Surely, this will tamp down my ‘nausea’ to tolerable levels,” I thought to myself. Unfortunately, my nausea only got worse. Soon, I knew it was time to head to the bathroom.
As I haltingly shuffled to the bathroom, I put my left hand over my mouth, hoping to quell the gag reflex that was telling me to vomit right then and there. I made it to the bathroom without incident, knelt down, and violently vomited. And I mean “violently.” After ten or so minutes, I got up off the floor, washed out my mouth, and washed my face. I also had to wash my beard since it’s long enough that it drops into the toilet water when I am vomiting. Gastroparesis, a gift that keeps on giving.
I shuffled back to the living room, plopped down in the recliner, and started watching the Big Ten Men’s Basketball Conference Tournament again. (Ohio State lost. Damn you, God.) I had Bethany get me a glass of room temperature water, hoping to remove the taste of regurgitated food, stomach acid, and bile from my mouth and ward off the dehydration that was sure to come.
Typically, once I have vomited I do not vomit again. Unfortunately, on this Mother of Gastroparesis Day, I repeated my first bout of vomiting. Afterward, I checked my blood pressure. It was 180/100 and my pulse rate was a racing 120. People can and do have heart attacks or die from violent bouts of vomiting. I took 100 mg of Hydralazine to drive down my blood pressure. Worse, the muscles in my abdomen, chest, and back were screaming. The muscles in my abdomen were so stressed and inflamed they were protruding. I saw and felt numerous knots in my abdomen, the direct result of the toll the two bouts of vomiting took on my body. Today I feel as if Polly beat me with a baseball bat.
What I have shared above alone would be a top-of-the-charts day. This night, however, was only getting started. Earlier in the day, I had a bowel moment. Somewhat normal, not too much work. Yea! A couple of hours later, I had another bowel movement, and a while later yet another one. These shits were looser, but still within the normal range. (People with gastroparesis spend a lot of time thinking about eating and shitting.) In the early morning hours, things changed. I had two successive bowel movements that were watery, smelly, and oily. Not a good sign. Thinking things were somewhat under control, we headed for bed. It was 4:00 am. Polly had come home two hours early from work to care for me. I was weak and unstable. I rarely ask her to come home, but I needed her help.
Polly quickly fell asleep. Damn, I am so jealous. I would not fall asleep until 10:00 am, six hours later. Thanks to the herniated discs in my upper back, I have to lie on my right side, with my head propped up with four pillows. Typically, I put my iPad Pro on the nightstand on my side of the bed — 12 inches away. I put on my MPow Bluetooth headphones, turned on the Apple+ app, and started watching The Mosquito Coast series (which is nothing like the 1980s movie with the same name — one of my favorite movies). Two episodes in, I felt a sudden urge to use the bathroom. I stood up, and as I did, my bowels exploded. I shit all over the bed and floor. As I made my way to the bathroom — twenty feet away — I plopped shit on the carpet and on the bathroom floor. My backside and legs were covered with smelly oily shit. I sat down, said WHAT THE FUCK, and emptied my bowel. Or so I thought I was emptying my bowel, anyway. Once I was done, I reversed my steps, cleaning up the mess I made. Thirty minutes later, this happened all over again. Then, at 8:00 am, I would have the mother of all bowel explosions.
After my second mess and clean-up, I brought two bath towels to bed and put them on my side of the bed. Back to The Mosquito Coast. Around 8:00 am, I felt an overwhelming urge to shit. I mean right now, do not pass go, do not collect $200. I stood up and then it happened. I said NOOOOOO!, grabbed one of the bath towels and put it up to my ass, trying to stop the mess that was coming. I ended up with shit on the bed, floor, wall, curtain, nightstand, and iPad charging cable. along with shit on the dining room carpet, bathroom floor, and toilet. I later washed up my backside.
I finally fell asleep around 10:00 am, waking up at 4:00 pm. Polly came into the room and said she needed to strip the bed so everything could be washed, including our electric blanket. I am washing our bedding now. The oily shit permanently stained our padded bed cover. It now smells clean, but it sure looks like shit — literally. 🙂
I asked Polly to take a look at my backside to make sure I was shit-free. She started laughing. River Shit had cut a course down the back of my right leg. In between my toes and on the bottom on my feet were covered with shit too. Polly said, “Buddy boy, you need a bath.” I replied, “ya think?” We both laughed, and off to the bathroom I went to take a steamy hot, bubble-filled bath.
My life is back to “normal” today. Outside of a stained bed cover and lots of abdominal muscle pain, all is well. Or as I tell my counselor when she asks how I am doing, “I’m fine, wonderful, awesome, super, present and accounted for.” 🙂
Bruce Gerencser, 65, lives in rural Northwest Ohio with his wife of 44 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
Two years ago, I was diagnosed with an incurable, debilitating stomach disease called gastroparesis. As a result, I have lost 110 pounds. Constant nausea, lack of appetite, fits of vomiting, erratic glucose levels (mine dropped by 30 percent, changing my vision from nearsighted to farsighted), and chronic bowel problems are a few of the common symptoms. (Many gastroparesis sufferers end up on feeding tubes.) Bowel movements are often life’s greatest adventures. Will today be the day I shit? Gawd, that was the mother of all turds. Diarrhea? Really? I was constipated yesterday. Bowel movements every day for a week, and then no bowel movements for days. Gastroparesis, also called stomach paralysis, slows the movement of food from your stomach through your intestinal tract. Sometimes, food takes 4-7 days to make it through my system. My problems are further complicated by the fact that I also had my gall bladder removed several years ago.
As I typically do, after watching Around the Horn and Pardon the Interruption — two sports news programs — between the hours of 5:00 pm and 6:00 pm, I propped myself up on the couch so I could do some writing. Due to the herniated discs in my back and neck, I am no longer able to sit in my chair in the office and work, so the couch has become my new “office.”
I always hope that my bowels (or bladder) will leave me alone while I am writing. It’s no small feat for me to get situated on the couch to write, so I prefer not to move until I am done writing. Today would not be one of those days. All of a sudden, I had painful cramps, urgently calling me to the bathroom to make a delivery. I painfully got up from the couch, grabbed my cane, and shuffled off to the bathroom.
Before sitting down, I grabbed the latest issue of Orion Magazine that was sitting nearby. I always like to read something — anything, including the ingredients in the air spray — when I am taking care of business. My cramps suggested that I was fixing to give a massive offering to the porcelain god. Surely, I thought, this won’t take too much work. Boy, was I wrong! This day’s bowel movement took a lot of pushing, straining, and swearing (keep in mind that I take soluble fiber and bowel medication twice a day), causing increased pain in my upper back. Have painful herniated discs in your back and you will quickly learn how often you use your back for the basic daily functions of life.
After five minutes or so and one short Orion story, the deed was done. I turned around to look at what took so much effort, only to find a golf ball-sized turd. With nary a thought, I said out loud to the turd: that was a lot of work for that! 🙂
Bruce Gerencser, 65, lives in rural Northwest Ohio with his wife of 44 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
