Tag Archive: Down Syndrome

Pertti Kurikan Nimipaivat: A Punk Band Made up of Men with Down Syndrome

Recently, Kevin sent me a link to a story about a Finnish band, Pertti Kurikan Nimipaivat (PKN) . What makes this band unique is that all the musicians have Down Syndrome. As a parent of a 25-year-old with Down Syndrome, I know how tuned in to music a Down’s child can be. Bethany loves music, knows the titles and lyrics to countless songs, and even sings along with the videos she watches. Sadly, her singing voice is not very good, but that does not keep her from singing along with Rascal Flatts or whoever her favorite band that week is.

Here’s a video of Pertti Kurikan Nimipaivat. It is not in English, but I thought readers would enjoy it anyway.

Video Link

The Independent reports:

A Finnish punk band whose members have learning disabilities are applying to perform at the Eurovision Song Contest in a bid to raise awareness of Down’s Syndrome.

PKN (Pertti Kurikan Nimipaivat), whose members are living with Down’s syndrome and autism, will compete against 17 other bands to represent Finland at the annual event, to be held this year in Vienna.

Finnish TV viewers will make the decision but PKN are already excited about the process and hoping they will make it to the grand final stage.

“Pertti the guitarist is a big fan of Eurovision,” manager Kalle Pajamaa told Sputnik. “Their families are supportive as well as the fans. Even the punk scene has been very supportive for the guys.”

Pertii Kurikka, Sami Helle, Kari Aalto and Toni Valitalo believe that appearing at Eurovision could help boost support for social programs helping inform more people about Down’s Syndrome…

The Story of Fish Lips

bruce gerencser 1971

Bruce Gerencser, Ninth Grade, 1971-72

The year is 1972.

I am a ninth grader at Central Jr High in Findlay , Ohio.

I am a typical boy.

The need to prove I am one of the guys is important to me.

I want to fit in.

I want to be part of the club.

The retards have a classroom in our building.

You know who they are.

The freaks.

The morons,

The half-wits.

A wonderful opportunity  to prove that I belong.

Fish Lips.

That’s what we called him.

He had big lips liked Mr. Limpet.

Every day he wore a tin sheriff’s badge and carried a toy gun.

No post-9-11 worries in 1972.

Why do the retard’s parents send him to school like that?

Don’t they know boys like me lurk in the hallways looking for opportunities to mock and harass their son?

And so I did.

I mocked  him and made life miserable for Fish Lips.

So did other boys, but I am the boy I remember.

I was part of the group now.

I hope Fish Lips didn’t mind being the price of admission.

It is 1989.

I am 32 years old now.

I have three children.

I am the pastor of a thriving Baptist Church.

My wife is pregnant with our fourth child.

Our red headed daughter was born on September 1st.

Our first girl.

We are so excited to finally have a girl.

It was not long before we realized something wasn’t quite right with our daughter.

The doctor sent us to University Hospital in Columbus.

A genetic test…

We didn’t need the results.

We already knew…

Our daughter had Down Syndrome.

Her features were mild and the doctor missed all the signs.

We found out she had Down’s the day our second daughter was born.

I had a mentally handicapped child.

All of a sudden I had flashback to 1972.

Visions of a hateful boy persecuting the mentally handicapped, all because he wanted to belong.

I thought of what I would do to that boy if he did what he did then to my daughter now.

I wept.

I couldn’t undo what I did.

But I could make sure I am never that boy again.

The least of these deserve my protection and care.

They deserve to be who they are without worrying about a boy with something to prove.

I am glad that boy died in 1989.

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They Come From a Storybook

grimm characters

Bethany (my 25-year-old daughter with Down Syndrome) and I religiously watch the hit TV show Grimm.  Along with Captain America, Rascal Flatts, and Sleepy Hollow, Bethany loves Grimm. She is quite intense when she watches the show and can easily recite to anyone who asks (or doesn’t ask) the Grimm storyline, complete with character descriptions.

One of the problems Bethany has is that she has a hard time distinguishing between fact and fiction. As we were watching Grimm last week, Bethany asked, they are all real, right? I snickered a bit, and then told her, no, they are not real. They come from a storybook.

Later in the week, I was watching a crime procedural show and one of the characters explained how it is possible for a large number of people to testify to a certain event happening. The detective said:

People make things up and it is told over and over. Eventually it becomes common knowledge.

And then I thought to myself, just like the stories in the Bible.

I can just imagine an Evangelical preacher reading this post and doing this while screaming:

jumping man

THE BIBLE IS DIFFERENT!!! In what way is the Bible different? Think on this question before trying to defend the Bible as a historically accurate, factual book. Do we have any more evidence for the Jesus of the Bible than we do the fictional creatures in Grimm? While there may have been a man named Jesus that lived and died in Palestine during the period recorded in the gospels, is there any evidence for a Jesus that was the miracle-working, divine, son of God?

Just because people say something is so doesn’t mean it is factual or true. An Evangelical preacher is simply following the path described by the detective. He is repeating a story that has been told over, and over, and over again. And as with the telephone game, the Jesus story of the 21st century is wildly different from the Jesus story of the first, second, twelfth, or fifteenth century.

Evangelicals embarrass themselves when they assert without knowledge that what they believe is exactly the same as what the early New Testament church believed. What is their evidence for this claim? Why the passed-down story of Jesus, passed down from Christian to Christian, sect to sect.

I am an avid reader of Smithsonian Magazine. Every month I learn something I didn’t know before. In the January 2015 issue, I learned from an article about Martin Luther King, Jr. that “King and his demonstrators were driven out of Selma by the police on “Bloody Sunday.” I also learned that the Watt Riots took place in 1967.

Imagine for a moment that I am telling my children about my life growing up in the 1960’s. Imagine me saying to them, I remember seeing the Watts Riots on TV in 1967. My children would accept this as a fact because they know I was born in 1957, so I was alive during the race riots of the 1960s. Perhaps, they would pass this on to their children, a story of how life was when Gramps was a kid. Think on this for a moment.

The February 2015 edition of Smithsonian came a few days ago. In the Discussion section was a correction. King was not in Selma on Bloody Sunday. He arrive two days later. The Watts Riots? They took place in 1965, not 1967.

Now ponder how the stories of the Bible came into being and why people repeat them and believe them today.

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