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Tag: Exocrine Pancreatic Insufficiency

Chronic Illness and Pain: It’s the Small Things That Can Cause Despair

spinning plates

Life is like a spinning plate. In normal circumstances, the plate as it spins is balanced and in control. Occasionally, the plate will become overloaded or unbalanced, but with time will balance itself out, and life will continue along with little to no spillage from the plate.

For people battling chronic illness and pain, their spinning plate is dissimilar to that of many people. Thanks to struggles with pervasive illnesses and unrelenting pain, their plates are already full, spinning wobbly, sending the contents of the plate every which way, and, sometimes, propelling the plate into the wall or floor. Daily, small things are added to the plate, causing further imbalance. The plate owner struggles to keep the plate spinning without crashing. Sometimes he succeeds, sometimes he doesn’t. And when he fails, he makes a mess for all to see, often leading to despair.

For me personally, it is the small things in life that often fuel my depression. I can handle big things, and big decisions. It is the small things that pile up on my plate, leading me to deep, dark — at times suicidal — times in my life; moments when I just want to die. Those are times when narcotic pain medications don’t work effectively or eating food of any type makes me sick or leads to vomiting. Last night, I spent the night into the morning hours in the bathroom — sixteen visits in all. Loose bowels and lack of sphincter muscle control . . . shitty bed, shitty clothes, shitty floors, shitty, shitty, shit everywhere. An accumulation of small things that left me in despair, not wanting to live another day. Fortunately, after dropping eight pounds in less than a day, things have returned to normal — whatever the hell “normal” means.

Every day, the small things change, but their effect on my life is the same, threatening to spin my life’s plate out of control. My therapist and I often talk about small things and how they affect my life. The goal, of course, is to lessen the number of small things in my life; to lessen the small things piling up on my plate. That’s easier said than done. When your bowels say shit, you shit. When your stomach says vomit, you vomit. When your legs and spine leave you writhing in pain, you writhe in pain. Contrary to what the positive mental attitude (PMA) prophets might say, some things are beyond our control. There’s little I can do to change how my body responds to food or nerve and joint pain. I can take medications or use mental techniques to redirect my pain, but there are times when nothing I do works. All I know to do is grit my teeth and hold on, hoping that my suffering will lessen. There’s no healing or deliverance on the horizon. All I can do is endure . . . until I no longer can do so.

I wish I had the luxury of sitting back and enjoying life, but when you have chronic health problems, you have no time to waste on the “good life.” I am at the place in life where I have tied a knot at the end of the rope, and I am hanging on for dear life. I love Polly; I love my children and their spouses; I love my grandchildren; I love my siblings. I live for them. I still have writing I want to do; and a book to finish. I still want to get my house in order, so that when the day comes that my plate comes crashing to the floor one last time, Polly won’t be left with a mess. As it stands now, if I died today, my demise would leave the love of my life in a difficult spot. She deserves better, and so do my children and grandchildren.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Bruce, Your Health Problems Are God’s Judgment on Your Life

peanut gallery

Last week, I shared with readers my interaction with a former church member named Terry. Terry was a teenager and young adult in two churches I pastored in the 1980s and 1990s. You can read my responses to Terry here and here.

Terry decided to stop messaging me, leaving me with one final comment. After striking a conciliatory tone, Terry took issue with my use of swear words — three out of 3,000 words — saying, “Not sure why you have [to] drop foul language in you[r] blogs sounds ignorant and childish.” Sigh, right? (Please read Why I Use the Word “Sigh.”) It is almost always Fundamentalist Christians who get upset over my use of non-approved words. I addressed this subject in a post titled Evangelical Swear Words. I don’t use many swear words in my writing. If my sparse use of them offends you, then, by all means, stop frequenting this site. I wouldn’t want to cause any further anal clenching for you. 🙂

Terry also had one more judgment to hurl my way:

Have you considered your health might be a judgment from God.

Terry knows I have serious health problems. I explained all of these issues in my second response to him. Yet, he decided to say that the “real” reason for my suffering is that God is judging me. Terry is not the first Evangelical to make such a claim. How could Terry possibly know that my health problems are his peculiar God’s judgment on my life for walking away from Christianity? Only God could know this for sure, right? Yet, Terry and other Evangelicals, seem to think they can divine God’s will, purpose, and plan for what I have experienced in life.

While my gastroparesis and exocrine pancreatic insufficiency (EPI) diagnoses were determined in the past three years, everything else I am dealing with: fibromyalgia, osteoarthritis, high blood pressure, diabetes, neuropathy, and degenerative spine disease, all first showed their faces while I was still an Evangelical pastor. My debilitating pain predates my atheism. I was an on-fire, sold-out follower of Jesus when I saw a doctor who diagnosed me with fibromyalgia. I was twenty-one years old the first time I had a problem with my spine. Polly, my partner of forty-six years, has many “fond” memories of the years I spent battling pneumonia and never-ending problems with bronchitis. She fondly remembers me spending a night in the ICU for a suspected heart attack, only to, thankfully, hear I had pleurisy. She remembers me almost dying from mononucleosis in the early 1990s; hearing the internist at the hospital tell her that if my immune system didn’t pick up there was nothing he could do for me. She almost was a widow at a young age.

Evangelicals who say my health problems are God’s judgment seem to be clueless as to how their words are “heard”; either that, or they don’t care. Do they really believe that telling me that their peculiar God is inflicting me with pain and suffering for no other reason than I lack sufficient evidence to believe in or worship him will lead me back to Jesus?

In 2023, I wrote a post titled, Bruce, You Are Sick and in Pain Because God is Trying to Get Your Attention. I said, in part:

I have a three-year-old redheaded grandson named Silas. He’s a handful. Silas has no fear of anything. He must be watched at all times. Our living room is small, 16’x20′. We have three lamps in the room, along with an overhead light. I HATE the overhead light. My grandkids know not to turn the light on when I am in the room. Not Silas. He will run over to the wall switch, give me a look — you know, THAT look — turn on the light, and run off. No matter what I say or do, Silas keeps flipping the switch. Mischief is his middle name, some sort of karmic payback for my own childhood mischief. If my mom were alive, she would be smiling.

Imagine if I determined to teach Silas a lesson about the overhead light. I decided that the next time Silas turned the light on I would break his arm. Boy, that would get his attention, right? This is EXACTLY what Evangelicals are saying when they say that God has afflicted me to get my attention or to teach me a lesson. What, exactly, did I ever do to God to deserve such punishment? Or is God okay with Bruce, the Evangelical-preacher-turned-atheist, and it is Evangelicals who want to see me suffer? Sadly, many Evangelicals are sadists. Unbelievers have what they can’t have, so they rail against them, uttering threats of suffering, death, and Hell.

If I broke Silas’ arm because he kept turning on the light, I would deserve to be arrested and locked up for my crime. So it is for the Evangelical deity who inflicts suffering on finite beings. If such a deity exists, he is unworthy of our worship.

As far as my pain and suffering coming from God is concerned, I wrote:

Let me circle back around to this idea that God gave me fibromyalgia, gastroparesis, and degenerative spine disease because he is trying to get my attention; that every night I writhe in pain in bed, unable to sleep, my suffering is a message of love from the Christian deity.

What’s with God “trying” to do anything? Is he weak and powerless, unable to do what he wants? If God is not willing that any should perish, how is possible that Bruce Gerencser, a frail, broken-down biped, can thwart God’s will? Surely God can easily and effortlessly reach me at any time. “Nothing is too hard for God” and “with God all things are possible,” the Bible says. Yet, it seems that saving me is too hard for God and that it is impossible for the Big Kahuna to reach me.

If my suffering is God trying to get my attention, does this mean that if I repent and put my faith and trust in Jesus, my chronic pain and illnesses will immediately and magically disappear? Crickets are all I hear from Evangelicals. They know there is no connection between my health problems and God. None. Shit happens, and this is my shit to deal with.

As I told one Evangelical zealot several weeks ago after she said she was praying God would totally heal me, if God heals me I will immediately repent and become a Christian. I will shutter this blog and immediately return to church. I might even become a pastor again. What a miraculous story I would have to tell. The Defiant Atheist Bruce Gerencser Brought to Repentance and Faith By God Delivering Him From Pain and Suffering!! What a story, right?

And a “story” it shall remain. As much as I would like to go to bed tonight without pain and debility, I know that God is not going to heal me. This is my lot in life, and no amount of praying will change this fact. God isn’t judging me. I am paying the price of admission to the human race. I accept that this is just how things are.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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You can email Bruce via the Contact Form.

Bruce’s Hot Takes for January 19, 2024

hot takes

The Biden Administration says the United States is not at war with the Houthis. We are bombing the hell out of them, but that’s not “war.” Sure . . .

G-Poem is not a surgical procedure, even though it is invasive, done under general anesthesia, and takes 2 hours to perform. G-Poem, which I hope to have done soon if my insurance pays for it, is considered by doctors to be a “procedure” or “intervention.” I learn something new every day.

Electric vehicles are not ready for prime time — especially in rural areas. Terrible actual battery life (especially in cold weather), high repair costs, lack of parts, and sparsity of charging stations that work make owning an EV a no-go for most rural people.

PayPal donations in 2023 dropped significantly, while Patreon supporters stayed steady. I know I don’t push asking for donations, but I wonder if I should be more aggressive in this regard.

Creon, a pancreatic enzyme replacement made from pig pancreases, is used for the treatment of exocrine pancreatic insufficiency — a rare disease. I take nine capsules a day — three with full meals, two with smaller meals. Cost? Almost $3,000 a month. Fortunately, the drug company is paying most of the cost. How long this will last remains to be seen.

Gastroparesis, another rare disease, affects stomach/bowel motility. Food doesn’t transverse the bowel as it should. I’ve had food take 4 days to make it through my digestive system. Food will stay in my stomach for hours before emptying, leading to nausea, vomiting, pain, and a plethora of bowel problems. Gastroparesis is incurable, with few treatments available. Drugs, Botox injections, G-Poem, feeding tubes, and nerve stimulators are the only treatments available for gastroparesis.

I received some free light bulbs, night lights, and a power strip from First Energy (Toledo Edison). I wonder how much “free” is going to cost me on my electric bill.

Income tax time. Kill me now.

Winter is taking its toll on wildlife. Last night, we had three deer in our yard scrounging for food. This afternoon we had thirteen cardinals at our feeders — beautiful red birds against a white snowy landscape.

New year, new insurance company: Aetna Blue Cross, Blue Shield. My therapist is not in network. 🤬 We need universal, single-payer health insurance for all. This will not happen in my lifetime.

Bonus: New network programming is back. I’m already bored. We are rewatching Treme on Max. Now there’s an awesome show.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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You can email Bruce via the Contact Form.

Bruce’s Hot Takes for January 17, 2024

hot takes

Dear Republicans, learn the difference between free speech and free market. Twitter owner Elon Musk told some advertisers to go fuck themselves. That’s free speech. After hearing Musk loud and clear, scores of companies stopped advertising on Twitter. That’s the free market.

The late Henry Kissinger was a war criminal.

We the American people are culpable for the war crimes being perpetrated in Palestine. Our weapons, our money, our blind and deaf politicians. We can excuse and justify our behavior, but the world at large sees the United States as the money and power behind the Netanyahu government’s murderous war against the Palestinian people.

Dad’s Place, a small Evangelical church in Bryan, Ohio, pastored by Chris Avell, is in the midst of a legal fight with the City over feeding and caring for homeless people. The City filed CRIMINAL charges against Avell for violating zoning laws. The church is right next to the homeless shelter, caring for the overflow crowds the shelter cannot care for. Yes, the church is technically breaking the law, as is EVERY business and church in town. Why was Dad’s Place singled out by Bryan law enforcement? Avell is a friend of mine. I recently told him I have no use for his theology, but I appreciate his concern and care for the “least of these.” Avell has a top-flight church and state law firm representing him. It will be interesting to see how this plays out.

I will be on the primary ballot this spring. I’m running unopposed for Ney’s Democratic central committee seat. This will allow me to play an active part in the reorganization of the local party. The local Democratic Party is on life support. I hope new life can be breathed into the group.

In 1998, Evangelical preachers railed against President Bill Clinton over his inappropriate sexual behavior with an intern. I remember preaching a whole sermon about Clinton’s debauched behavior. Today, most Evangelical preachers have lost all sense of morals and ethics, resolutely supporting Donald Trump, even calling him a Christian. As long as you support Trump, Evangelicals, spare me your moralizing. You are hypocrites, the lot of you.

It was shameful for the New York Times to run an article questioning Taylor Swift’s sexuality. Who she loves or fucks is NOT news.

According to many Evangelicals, God created Donald Trump for such a time as this. Gag me with a spoon.

I saw a specialist at the University of Michigan Hospital in Ann Arbor yesterday. I am hoping to have a G-Poem (gastric peroral endoscopic myotomy) procedure done soon. This procedure is relatively new and only one regional surgeon is qualified to perform it. G-Poem cuts the sphincter muscle in the stomach, relaxing it. Hopefully, this will improve my stomach/bowel motility, and reduce my nausea and vomiting. Unfortunately, many insurance companies consider this an experimental procedure and refuse to pay. My surgeon will seek pre-approval, hoping Aetna Blue Cross Blue Shield approves the procedure. We shall see . . .

Granddaughters #2 and #3 graduate from high school this spring. Victoria was accepted for enrollment at Miami University in Oxford, Ohio and Karah was accepted at Richmond University in Richmond, Virginia. Forty-eight years ago, I was the first person in our family to go to college. Since then, Polly, and three of my sons, and my youngest daughter have graduated from accredited colleges. Our granddaughters are straight-A students. It does an old man’s heart good to see them do well in life.

Bonus: The Cincinnati Reds have signed a number of new players — especially pitchers. Hope springs eternal. Catchers and pitchers report to training camp in a month. Will this be the year the Reds make some noise in the playoffs? Fingers crossed, prayers uttered to Loki. May a dying old man’s wish be granted.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

My View of Modern Medicine, Doctors, and Alternative Treatments

homeopathy

I have a lot of health problems: fibromyalgia, gastroparesis, and exocrine pancreatic insufficiency (EPI) — all of which are incurable. I am also diabetic and have high blood pressure, both of which are controlled by drugs. Further, I have degenerative spine disease:

  • Disc herniation (T7,T8)
  • Disc herniation (T6,T7)
  • Central spinal canal stenosis (T9/T10, T10/T11)
  • Foraminal stenosis (T5,T6)
  • Disc degeneration/spondylosis (T1/T2 through T10/T11)
  • Facet Arthropathy throughout the spine, particularly at T2/T3, T3/T4, T5/T6, and T7/T8 through the T12/L1 levels.
  • Hypertrophic arthropathy at T9/T10

I have widespread osteoarthritis and a torn labrum in my right shoulder. There’s never a moment when I am not in pain. Sometimes, my pain is unbearable. Every day is a challenge. Do some people have it worse than me? Of course, they do. But all pain and suffering are personal, so it doesn’t matter if some people have it worse than I do. My body, my pain, my suffering, and so it is for all of us. I wish I could adequately convey to readers how it really is for me, but words seem to not suffice. Even my partner and family sometimes miss how bad things are. Sadly, those who love us the most often get used to us being sick or in pain. They no longer see us as we are. I can’t tell you the last time a family member said to me, “How are you doing?” or “How are you feeling?” I often feel as if I have become part of the furniture. People “see” me but they don’t really “see” me. I am little more than the rocking chair that has always sat in the corner of the living room — ever present, but rarely, if ever, noticed unless someone wants to sit in it. Chronic pain sufferers and people with debilitating illnesses can reach a point where they give up and kill themselves. They feel as if they no longer have a reason for living. I have come to that place numerous times over the years, more so in recent months. I see a counselor every week, hoping to lessen my depression. Sometimes this is helpful, other times, not so much.

homeopathy 2

I have always been open about my health. This, of course, leads to all sorts of unsolicited medical advice, even when I ask people to NOT send me such advice. My openness turns some readers into medical experts, even though they have no expertise in medicine. Evidently, reading a few books and listening to a few podcasts is the equivalent of 10-14 years of post-high school education, and anecdotal stories are the same as double-blind studies. Typically, I ignore such people, knowing that medical ignorance abounds. On occasion, a few readers have pushed the issue, and that’s when I tell them to fuck off.

The scientific method is the best tool available for us to understand the natural world. Science isn’t perfect and can and does make mistakes, but I know of no other way to explain and understand our bodies. So, when readers tell me to do this or that and I will be healed, the first thing I want to see is the empirical evidence for the claim. When someone tells me that a particular supplement, food, diet, or alternative treatment will cure me, I want to see the evidence for this claim. When someone says veganism, reiki, homeopathy, iridology, essential oils, cupping, dry needling, acupuncture, chiropractic care, magnets, and a host of other alternative treatments will cure me, I want proof that these things work. Someone saying they do isn’t good enough for me (and shouldn’t be for you either).

I value expertise. Sadly, we live in a day when many people don’t. Valuing expertise is not the same as accepting what experts say without reservation. When one of my doctors suggests a new treatment or drug, I value their expertise. I have had the same primary care doctor for twenty-seven years. I trust him. But, he also knows that the first thing I am going to do after he suggests a new treatment or drug is do a Google search for relevant information. I am going to read the studies. I am going to visit patient forums. I am going to check out what online medical professionals say on the matter. Then, and only then, will I decide what to do. I have an appointment with a specialist at the University of Michigan later this month. I will likely have a relatively new surgical procedure that hopefully will lessen my suffering from gastroparesis and exocrine pancreatic insufficiency. I am hoping this procedure will reduce my nausea and vomiting. I have done my homework on this procedure, so all that remains for me to do is determine whether the benefits outweigh the risks (and there are serious risks). Statistics, probabilities, and outcomes play a big part in my deciding whether to have a procedure done or take a new drug. I never do anything blindly or by faith.

homeopathy 3

Let me be clear, I trust my doctors, and when I don’t, I look for a new one. They are the experts, so I must, to a large degree, have faith in them. It is unlikely that I will ever know as much as they do on any given issue, so I am dependent on them getting it right. I don’t know what more any of us can do. The system isn’t perfect, but it is the best we have.

To those who are defenders of veganism, reiki, homeopathy, iridology, essential oils, cupping, dry needling, acupuncture, chiropractic care, magnets, and other alternative treatments, please don’t. Don’t what, Bruce? Turn this post into a pulpit for you to preach your religion. Much like my view of religion in general, I am not interested in your personal opinion. Ouch, Bruce. Sorry, but I don’t ask the counter worker at McDonald’s about the best treatment for EPI, and I am sure as Hell am not going to ask non-experts either. If you are a medical doctor with a relevant specialty or an expert in a relevant medical field, by all means, share with me what you know — not feel or think, but what you know. Opinions are what we share on Friday nights at the pub amongst friends. When I want are facts and evidence, I seek out experts, not my drinking buddies. Just because you can do a web search doesn’t make you an expert. You do know this, right?

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Connect with me on social media:

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Bruce Gerencser