Yet another visit to the doctor’s office, visit number twelve for the year — primary care doctor, dermatologist, cardiologist, podiatrist, neurosurgeon, general surgeon, and orthopedic doctor. No major surgeries this year, but I have had a benign tumor removed from my abdomen and a large cyst removed from my upper back (which is already coming back).
My main health problems remain the same: gastroparesis (an incurable stomach disease), fibromyalgia, osteoarthritis, degenerative spine disease, and eight herniated discs in my spine and neck. I am also being treated for high blood pressure and diabetes. Both are well-managed. My latest A1c was 5.8. Diabetic readers know that anything below 7.0 is good. 5.8? Awesome.
Thanks to gastroparesis, I am chronically anemic and my B-12 levels are all over the place. I have blood work done every three months to monitor a host of issues. Gastroparesis has also affected my eyes. I was nearsighted for almost fifty years. I am now farsighted.
Taken together, these issues create a real challenge for me. Pain, of course, from head to toe, dominates my life. The pain is so severe that I have a hard time sleeping. I typically sleep in two-hour increments, readjusting my body so I can fall back asleep. Last night, I finally fell asleep at 5:30 am. I woke up five times during the night — hip pain, back pain, and peripheral nerve pain in my legs on this night. I woke up for the last time at 2:30 pm. Throw in a lack of bladder and bowel control, along with profuse — and I mean profuse — sweating, going to bed is a nightmare. Thanks to my therapist, I have come to accept that this is just how things are for me. Sure, I take narcotic pain medications, high-powered muscle relaxers, anti-inflammatories, and sleep drugs. They help, but these drugs do not make all my pain go away, nor do they bring deep, peaceful sleep.
I am now forced to use mobility aids wherever I go: cane, wheelchair, walker, or motorized cart. Not that I get out of the house much these days. Come March, it will be three years since I have driven a car. On a typical month, I get out of the house 4-8 times a month, usually to go grocery shopping, to medical appointments, or out to eat with Polly. I am not well enough to do any of these things, but I can’t bear being cooped up 24-7. So I endure, much as I do when my rambunctious grandchildren come over to visit.
My declining muscle strength and balance have made walking an existential threat to my survival. Falls are increasing, some severe. If I had to put money on how I will die, I would put it on tripping and falling. I am careful, but it takes very little to find myself flat on my ass/back, swearing profusely. Readers may remember that last Christmas I fell into our tree, breaking several branches and damaging the train below the tree. We have an artificial tree this year. 🙂
There are days when I just want to put an end to it all. People who suffer from chronic illnesses and endure unrelenting pain often have thoughts about suicide. Well-meaning people tell me that they are praying for me, or that I need to “put mind over matter.” I love it when someone tells me, you know, there are people who are worse off than you. And this helps how, exactly? There will always be people who are sicker than I am or have more pain than I do. And there are countless people who are in good health, and their biggest pain is a zit on the end of their nose or a backache from too much headboard banging. Each of us lives in a contained world unto ourselves. My health problems and my pain are mine alone to bear. Just think of Jesus’ suffering, Bruce. He did it all for you, Christians tell me. What, a day or so of pain, a long weekend, and then a pain-free body? Jesus had it easy. I would trade places with him in a heartbeat. Let Jesus walk in my shoes for a while — not that he can, he’s dead. Conjuring up an imaginary suffering deity as a way to “encourage” those who are in real pain is not any more helpful than that same God spitting on dirt, making some mud, and using it to restore a blind man’s sight. Forget the theatrics. If Jesus is really the Great Physician, what’s he been up to for the past two thousand years? I know a lot of people who sure could use his help. His inattention makes me wonder if he is actually dead, and what’s really going on here is that the Christian church has been playing a con game for the past twenty centuries. Just keep praying. Jesus will heal you — someday.
People with chronic pain have often suffered for years. Their lives are an endless repeating of the movie Groundhog Day. In my case, I have suffered chronic pain for twenty-five years. I worked my last full-time job in 2005. Their lives are an endless repeating of the movie Groundhog Day. I endure the day, collapse in bed, spending several hours getting to sleep, only to start the process all over again the next day. And pain is just one of the plethora of issues I must deal with every day. I am not complaining. I accept life as it is, doing what I can to lessen my suffering. I don’t expect my doctors to work miracles, nor do I anticipate waking up one day and finding myself miraculously healed. That’s not how things work in the real world. Thousands and thousands of prayers have been offered on my behalf, and I spent the better part of twenty years daily asking God for healing. As the mythical Christian God is wont to do, he remained silent.
When I write about suicide, people immediately worry that I am about to pull a David Foster Wallace. Not today, my friend, not today. All I am saying here is that chronic illness and pain drive people to ponder ending their lives. In fact, it is totally normal to have such thoughts. It’s not that I want to die — I don’t. I want to live. I want to watch more sunsets over Lake Michigan with the love of my life. I want to eat Polly’s food and enjoy her company. I want to hear Bethany laugh while watching a stupid movie. I want to go to stock car races and baseball games with my sons. I want share Thanksgiving and Christmas with my family. I want to watch my grandchildren come of age, go off to college, and perhaps have families of their own. I want to watch the trees, bushes, and plants Polly and I have planted grow to maturity, covering our yard with summer beauty and shade. I want to watch the raccoons, possums, squirrels, and feral cats as they stop by to eat and provide us with a bit of entertainment. (Recently watching a raccoon run off on his back feet with an old bagel in his front paws — priceless.) There are so many things I want to do, yet when my body is wracked with pain, all I can think is this: PLEASE MAKE IT STOP!
You see, that’s what healthy people don’t understand. It’s not that people such as myself want to die, we just want the pain to stop. Oh, how I yearn for a day — just one day — of waking up in the morning pain-free. Some of you reading this post know what I am talking about. You understand longing for a day without pain, yet you know such hope doth fantasies make. For the present, we live between the one certain cure — death — and a life of finding meaning and purpose. For me personally, writing, family, and hoping the Cincinnati Reds will, one more time in my lifetime, win the World Series, are some of things that give me meaning and purpose. When I devote my energies to those things. thoughts of suicide diminish. That said, suicidal thoughts will never, ever go away, and I have, through anguish and tears, thought on more than one occasion this year, ENOUGH! But today I say to myself, LIVE. Who knows what tomorrow may bring? For now, I focus on the things that matter, hoping they continue to provide reasons for living.
I know the goodness in you will urge you to try to encourage me in the comment section, or with a text or an email. There’s no need, friends. This is just me talking out loud and being brutally honest about life. I may die today, but it will not be by my own hands. My sister has a project she needs her wise, aged, technologically savvy smart-ass of a brother to take care of (she reads my blog, so I just had to say that). I can’t leave her in the lurch. And besides, the Bengals are likely headed for the playoffs. Maybe, just maybe this will be the year the Bungles become world champions.
Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
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As a fellow 61yo old guy from across the globe thank you for your honesty. Take care. Tell the do gooders to mind their own beeswax or fuck off…
You’re reading my mail again Bruce or just my mind? Always appreciate the way you just tell it like it is!
I’m one who understands.
Freakin’ gravity is pushing us down all the time and refuses to let us fly, though I get the occasional flight in dreams, flying on outstretched arms over wheats or oats and riding the thermal waves. It’s pretty much magic till I wake and feel how heavy I am on the mattress!
Two things have helped my back; Rest in a comfortable postion like a gravity chair and using gravity to stretch me the other way on a bit of an incline board. I figure that if gravity is the one unending strength that is pushing me down, I can use that force to help too.
Of course there ain’t no cure.
“I grow old … I grow old …
I shall wear the bottoms of my trousers rolled.”
Bruce, it is probably therapeutic to talk about it as you do. In any case you make people aware of what people with chronic pain go through. Not that all that alleviates the pain one iota. Nearly a year ago I burned my leg in a cooking accident. 2nd degree burn on my thigh to just below the knee, one a foot long and 3 inches wide. The pain was intense. For days I couldn’t sleep or concentrate and I had a constant state of crankiness. If that is anything like what you go through on a daily basis, I don’t know how you do it. You must be a tough bird!
There is a helplessness in dealing with the pain of others. I wish I had the right words. I wish there were right words.
I am sorry you’re going through all this. I hope things improve for you.
It is easier for a camel to pass through the eye of a needle, than for the Reds to win another Series. 🙁
Alas, you are correct. ?
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Constant pain is scary. I always felt that this country should do more research on it,as well as other diseases and symptoms that don’t get the attention from the research community like the old days when we were the innovators and the world looked up to us. I wish there was safe access to a warm swimming pool or jacuzzi that I could pour Epsom salts into ! With COVID, no way can we do this anymore. It’s ideal exercise for those of us with joint and arthritis pain. I gotta walk everywhere, so I use a cart to carry my purse and other things. The malls will be opening up on a limited basis, but nothing is said regarding pools. I don’t even have the use of an apartment pool. Yeah, this situation does feel outside others’ realms of experience. And if you can’t walk fast, you don’t burn calories like others can. In America, doctors don’t emphasize the connection between fibromyalgia and hypothyroidism like they need to ! Standard tests often miss hormone levels, and the complicated reasons for them. I had to fight almost 40 years to get natural thyroid pills,as I’m allergic to levothyroxine ( Synthroid) which is protocol in the U.S. What a difference it would have made, had I got it in time. We are taught that we are number one in all things, but that’s just not true. More like #37 in quality of care. Eye opening to know. Once I get international insurance, I’m going abroad for meds I can’t get here. Something to consider if you have chronic conditions.
I cannot remember the number of times I have told my doctor, “I ain’t afraid of dying, I’m afraid of not living.”
I belong to a “right to die” group because it may be necessary to hasten life’s end having lived my “three score and ten.” Living with pain drains the soul far worse that the Reverend Doctor Pontificus.
Every day – EVERY SINGLE DAY – the day draws closer where the pain of death will provide relief from the pain of living.
Like you, I hang around to see what’s next and try to make my wife’s life easier.
May (insert your choice of god here) grant you peace and rest.
You may not require it Bruce, but you have my love, all the same, all the way from England.
Bruce, you are so brave and I feel this completely. After all, it’s almost 5:30am and I might have finally taken enough pain meds to fall asleep soon. My way is to actually take meds as needed. So if I take a certain amount and it doesn’t work, then I take more etc etc. And I repeat this every night. If I take the meds too soon, though, I end up falling asleep for 4 or 5 hours, and then being up for awhile, still needing a nap. UGH.
I am not having so many thoughts of suicide but I have also felt like I’m Sisyphus, pushing that BIG FUCKING ROCK uphill over and over again, to only slip back down EVERY. SINGLE. DAY.
You have perfectly expressed how those of us with chronic pain suffer. Unfortunately, those who don’t have this pain can’t possibly get it, and usually think we just need a bit more willpower to overcome it, maybe naproxen sodium until our stomach bleeds. FUCK THAT SHIT.
Thanks.
Thank you for sharing this. I am sorry you are feeling all this pain.
It is amazing that you can write so well with so little sleep. A good night’s sleep would do wonders, if only it was possible.
Wishing you the best.
Bruce, I wish I had a magic wand to make all the pain go away. That’s my way of saying I care, acknowledging that I can’t do anything about it, and that all I can offer are words. I don’t know what to tell you about the Reds – maybe they’ll make the playoffs in 2023 and you can go from there?
Not knowing of David Foster Wallace, I looked him up on the Wiki. Thank you.
Thank you sir. You communicate with a frankness that is a shining example to all, and especially to our growing community of rational humanist/atheists. Rest assured in the knowledge that I am fervently NOT praying for you and I do look forward to reading tomorrow’s essay. Cheers! Lon
I very much hate the pious bullshit christians give when it comes to pain, suffering and assisted suicide. It’s like they find their god lives on pain and suffering and must feed it.
I’ve been very fortunate. My problems would have been life-altering a few generations ago. I was lucky enough to be born at a time when science and medicine allow me to ignore my problems or just be a little inconvenienced. That said, I have no personal experience with chronic pain and what you describe fills me with the deepest sympathy.
My wife, on the other hand, has a lot of experience with chronic illness. She’s a stronger person than I am and endures, much like you do, Bruce, even as she becomes increasingly disabled. I stopped praying for her after 15 years of watching her only get worse, suffering unpleasant treatments that do nothing. It was my tipping point, where I finally stopped making excuses. I would trade places with her in a heartbeat, but this God, who supposedly loves my wife more than I can possible imagine, can’t be bothered to exercise an infinitesimal effort to ease her suffering, let alone heal it. He won’t even acknowledge that he heard me pray. I have no choice but to assume he either doesn’t care, or isn’t there. The latter is a better comfort than the former.
The years the locust have eaten aren’t coming back. All my life I’ve been told to look forward to the glorious resurrection body, with no illness or disabilities. I now have to face that there’s no such thing. Life is hard, painful, it doesn’t get better, and then it’s over. I’m not satisfied with that. I want to believe in an alternative, but I don’t see it anymore. All I can do is try to appreciate the good parts when they happen.
If a Christian, or anyone, wants to pray for my wife or I, I don’t mind. I just don’t expect anything. I wish I still had the faith they do so I to can ignore the reality that this life is all there is. But I am tired of the platitude that God has a purpose for all the suffering. Sharing or comparing misery isn’t a purpose that brings any comfort.
Bruce, people like you, my wife, and other who endure day in and day out have my respect. I don’t know that I would persevere as well.
Bruce–I wish I could make your pain go away. I also wish I could silence all of the smug, sanctimonious bullshit about mind over matter or Jeezus (or whomever) having it worse.
All I can say is that your honesty is a tonic against some of that nonsense. And I hope that if I need to, I could persevere as well as you do.
Brian–That quote from T.S. Eliot’s “The Love Song of J. Alfred Prufrock” is perfect.
I understand a little. Not chronic pain, but chronic illness. Everything I’ve learned about chronic pain sounds really difficult and miserable.
You honor us by sharing your life with us. Bruce, I am and will be grateful for all the words you feel well enough to post, and awed by your inner strength.