Life is like a spinning plate. In normal circumstances, the plate as it spins is balanced and in control. Occasionally, the plate will become overloaded or unbalanced, but with time will balance itself out, and life will continue along with little to no spillage from the plate.
For people battling chronic illness and pain, their spinning plate is dissimilar to that of many people. Thanks to struggles with pervasive illnesses and unrelenting pain, their plates are already full, spinning wobbly, sending the contents of the plate every which way, and, sometimes, propelling the plate into the wall or floor. Daily, small things are added to the plate, causing further imbalance. The plate owner struggles to keep the plate spinning without crashing. Sometimes he succeeds, sometimes he doesn’t. And when he fails, he makes a mess for all to see, often leading to despair.
For me personally, it is the small things in life that often fuel my depression. I can handle big things, and big decisions. It is the small things that pile up on my plate, leading me to deep, dark — at times suicidal — times in my life; moments when I just want to die. Those are times when narcotic pain medications don’t work effectively or eating food of any type makes me sick or leads to vomiting. Last night, I spent the night into the morning hours in the bathroom — sixteen visits in all. Loose bowels and lack of sphincter muscle control . . . shitty bed, shitty clothes, shitty floors, shitty, shitty, shit everywhere. An accumulation of small things that left me in despair, not wanting to live another day. Fortunately, after dropping eight pounds in less than a day, things have returned to normal — whatever the hell “normal” means.
Every day, the small things change, but their effect on my life is the same, threatening to spin my life’s plate out of control. My therapist and I often talk about small things and how they affect my life. The goal, of course, is to lessen the number of small things in my life; to lessen the small things piling up on my plate. That’s easier said than done. When your bowels say shit, you shit. When your stomach says vomit, you vomit. When your legs and spine leave you writhing in pain, you writhe in pain. Contrary to what the positive mental attitude (PMA) prophets might say, some things are beyond our control. There’s little I can do to change how my body responds to food or nerve and joint pain. I can take medications or use mental techniques to redirect my pain, but there are times when nothing I do works. All I know to do is grit my teeth and hold on, hoping that my suffering will lessen. There’s no healing or deliverance on the horizon. All I can do is endure . . . until I no longer can do so.
I wish I had the luxury of sitting back and enjoying life, but when you have chronic health problems, you have no time to waste on the “good life.” I am at the place in life where I have tied a knot at the end of the rope, and I am hanging on for dear life. I love Polly; I love my children and their spouses; I love my grandchildren; I love my siblings. I live for them. I still have writing I want to do; and a book to finish. I still want to get my house in order, so that when the day comes that my plate comes crashing to the floor one last time, Polly won’t be left with a mess. As it stands now, if I died today, my demise would leave the love of my life in a difficult spot. She deserves better, and so do my children and grandchildren.
Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
Last week, I shared with readers my interaction with a former church member named Terry. Terry was a teenager and young adult in two churches I pastored in the 1980s and 1990s. You can read my responses to Terry here and here.
Terry decided to stop messaging me, leaving me with one final comment. After striking a conciliatory tone, Terry took issue with my use of swear words — three out of 3,000 words — saying, “Not sure why you have [to] drop foul language in you[r] blogs sounds ignorant and childish.” Sigh, right? (Please read Why I Use the Word “Sigh.”) It is almost always Fundamentalist Christians who get upset over my use of non-approved words. I addressed this subject in a post titled Evangelical Swear Words. I don’t use many swear words in my writing. If my sparse use of them offends you, then, by all means, stop frequenting this site. I wouldn’t want to cause any further anal clenching for you. 🙂
Terry also had one more judgment to hurl my way:
Have you considered your health might be a judgment from God.
Terry knows I have serious health problems. I explained all of these issues in my second response to him. Yet, he decided to say that the “real” reason for my suffering is that God is judging me. Terry is not the first Evangelical to make such a claim. How could Terry possibly know that my health problems are his peculiar God’s judgment on my life for walking away from Christianity? Only God could know this for sure, right? Yet, Terry and other Evangelicals, seem to think they can divine God’s will, purpose, and plan for what I have experienced in life.
While my gastroparesis and exocrine pancreatic insufficiency (EPI) diagnoses were determined in the past three years, everything else I am dealing with: fibromyalgia, osteoarthritis, high blood pressure, diabetes, neuropathy, and degenerative spine disease, all first showed their faces while I was still an Evangelical pastor. My debilitating pain predates my atheism. I was an on-fire, sold-out follower of Jesus when I saw a doctor who diagnosed me with fibromyalgia. I was twenty-one years old the first time I had a problem with my spine. Polly, my partner of forty-six years, has many “fond” memories of the years I spent battling pneumonia and never-ending problems with bronchitis. She fondly remembers me spending a night in the ICU for a suspected heart attack, only to, thankfully, hear I had pleurisy. She remembers me almost dying from mononucleosis in the early 1990s; hearing the internist at the hospital tell her that if my immune system didn’t pick up there was nothing he could do for me. She almost was a widow at a young age.
Evangelicals who say my health problems are God’s judgment seem to be clueless as to how their words are “heard”; either that, or they don’t care. Do they really believe that telling me that their peculiar God is inflicting me with pain and suffering for no other reason than I lack sufficient evidence to believe in or worship him will lead me back to Jesus?
I have a three-year-old redheaded grandson named Silas. He’s a handful. Silas has no fear of anything. He must be watched at all times. Our living room is small, 16’x20′. We have three lamps in the room, along with an overhead light. I HATE the overhead light. My grandkids know not to turn the light on when I am in the room. Not Silas. He will run over to the wall switch, give me a look — you know, THAT look — turn on the light, and run off. No matter what I say or do, Silas keeps flipping the switch. Mischief is his middle name, some sort of karmic payback for my own childhood mischief. If my mom were alive, she would be smiling.
Imagine if I determined to teach Silas a lesson about the overhead light. I decided that the next time Silas turned the light on I would break his arm. Boy, that would get his attention, right? This is EXACTLY what Evangelicals are saying when they say that God has afflicted me to get my attention or to teach me a lesson. What, exactly, did I ever do to God to deserve such punishment? Or is God okay with Bruce, the Evangelical-preacher-turned-atheist, and it is Evangelicals who want to see me suffer? Sadly, many Evangelicals are sadists. Unbelievers have what they can’t have, so they rail against them, uttering threats of suffering, death, and Hell.
If I broke Silas’ arm because he kept turning on the light, I would deserve to be arrested and locked up for my crime. So it is for the Evangelical deity who inflicts suffering on finite beings. If such a deity exists, he is unworthy of our worship.
As far as my pain and suffering coming from God is concerned, I wrote:
Let me circle back around to this idea that God gave me fibromyalgia, gastroparesis, and degenerative spine disease because he is trying to get my attention; that every night I writhe in pain in bed, unable to sleep, my suffering is a message of love from the Christian deity.
What’s with God “trying” to do anything? Is he weak and powerless, unable to do what he wants? If God is not willing that any should perish, how is possible that Bruce Gerencser, a frail, broken-down biped, can thwart God’s will? Surely God can easily and effortlessly reach me at any time. “Nothing is too hard for God” and “with God all things are possible,” the Bible says. Yet, it seems that saving me is too hard for God and that it is impossible for the Big Kahuna to reach me.
If my suffering is God trying to get my attention, does this mean that if I repent and put my faith and trust in Jesus, my chronic pain and illnesses will immediately and magically disappear? Crickets are all I hear from Evangelicals. They know there is no connection between my health problems and God. None. Shit happens, and this is my shit to deal with.
As I told one Evangelical zealot several weeks ago after she said she was praying God would totally heal me, if God heals me I will immediately repent and become a Christian. I will shutter this blog and immediately return to church. I might even become a pastor again. What a miraculous story I would have to tell. The Defiant Atheist Bruce Gerencser Brought to Repentance and Faith By God Delivering Him From Pain and Suffering!! What a story, right?
And a “story” it shall remain. As much as I would like to go to bed tonight without pain and debility, I know that God is not going to heal me. This is my lot in life, and no amount of praying will change this fact. God isn’t judging me. I am paying the price of admission to the human race. I accept that this is just how things are.
Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
I have a lot of health problems: fibromyalgia, gastroparesis, and exocrine pancreatic insufficiency (EPI) — all of which are incurable. I am also diabetic and have high blood pressure, both of which are controlled by drugs. Further, I have degenerative spine disease:
Disc herniation (T7,T8)
Disc herniation (T6,T7)
Central spinal canal stenosis (T9/T10, T10/T11)
Foraminal stenosis (T5,T6)
Disc degeneration/spondylosis (T1/T2 through T10/T11)
Facet Arthropathy throughout the spine, particularly at T2/T3, T3/T4, T5/T6, and T7/T8 through the T12/L1 levels.
Hypertrophic arthropathy at T9/T10
I have widespread osteoarthritis and a torn labrum in my right shoulder. There’s never a moment when I am not in pain. Sometimes, my pain is unbearable. Every day is a challenge. Do some people have it worse than me? Of course, they do. But all pain and suffering are personal, so it doesn’t matter if some people have it worse than I do. My body, my pain, my suffering, and so it is for all of us. I wish I could adequately convey to readers how it really is for me, but words seem to not suffice. Even my partner and family sometimes miss how bad things are. Sadly, those who love us the most often get used to us being sick or in pain. They no longer see us as we are. I can’t tell you the last time a family member said to me, “How are you doing?” or “How are you feeling?” I often feel as if I have become part of the furniture. People “see” me but they don’t really “see” me. I am little more than the rocking chair that has always sat in the corner of the living room — ever present, but rarely, if ever, noticed unless someone wants to sit in it. Chronic pain sufferers and people with debilitating illnesses can reach a point where they give up and kill themselves. They feel as if they no longer have a reason for living. I have come to that place numerous times over the years, more so in recent months. I see a counselor every week, hoping to lessen my depression. Sometimes this is helpful, other times, not so much.
I have always been open about my health. This, of course, leads to all sorts of unsolicited medical advice, even when I ask people to NOT send me such advice. My openness turns some readers into medical experts, even though they have no expertise in medicine. Evidently, reading a few books and listening to a few podcasts is the equivalent of 10-14 years of post-high school education, and anecdotal stories are the same as double-blind studies. Typically, I ignore such people, knowing that medical ignorance abounds. On occasion, a few readers have pushed the issue, and that’s when I tell them to fuck off.
The scientific method is the best tool available for us to understand the natural world. Science isn’t perfect and can and does make mistakes, but I know of no other way to explain and understand our bodies. So, when readers tell me to do this or that and I will be healed, the first thing I want to see is the empirical evidence for the claim. When someone tells me that a particular supplement, food, diet, or alternative treatment will cure me, I want to see the evidence for this claim. When someone says veganism, reiki, homeopathy, iridology, essential oils, cupping, dry needling, acupuncture, chiropractic care, magnets, and a host of other alternative treatments will cure me, I want proof that these things work. Someone saying they do isn’t good enough for me (and shouldn’t be for you either).
I value expertise. Sadly, we live in a day when many people don’t. Valuing expertise is not the same as accepting what experts say without reservation. When one of my doctors suggests a new treatment or drug, I value their expertise. I have had the same primary care doctor for twenty-seven years. I trust him. But, he also knows that the first thing I am going to do after he suggests a new treatment or drug is do a Google search for relevant information. I am going to read the studies. I am going to visit patient forums. I am going to check out what online medical professionals say on the matter. Then, and only then, will I decide what to do. I have an appointment with a specialist at the University of Michigan later this month. I will likely have a relatively new surgical procedure that hopefully will lessen my suffering from gastroparesis and exocrine pancreatic insufficiency. I am hoping this procedure will reduce my nausea and vomiting. I have done my homework on this procedure, so all that remains for me to do is determine whether the benefits outweigh the risks (and there are serious risks). Statistics, probabilities, and outcomes play a big part in my deciding whether to have a procedure done or take a new drug. I never do anything blindly or by faith.
Let me be clear, I trust my doctors, and when I don’t, I look for a new one. They are the experts, so I must, to a large degree, have faith in them. It is unlikely that I will ever know as much as they do on any given issue, so I am dependent on them getting it right. I don’t know what more any of us can do. The system isn’t perfect, but it is the best we have.
To those who are defenders of veganism, reiki, homeopathy, iridology, essential oils, cupping, dry needling, acupuncture, chiropractic care, magnets, and other alternative treatments, please don’t. Don’t what, Bruce? Turn this post into a pulpit for you to preach your religion. Much like my view of religion in general, I am not interested in your personal opinion. Ouch, Bruce. Sorry, but I don’t ask the counter worker at McDonald’s about the best treatment for EPI, and I am sure as Hell am not going to ask non-experts either. If you are a medical doctor with a relevant specialty or an expert in a relevant medical field, by all means, share with me what you know — not feel or think, but what you know. Opinions are what we share on Friday nights at the pub amongst friends. When I want are facts and evidence, I seek out experts, not my drinking buddies. Just because you can do a web search doesn’t make you an expert. You do know this, right?
Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
Polly had an appointment with her orthopedic doctor today. Major surgery is in the future for her — when is yet to be determined. Afterward, we drove to Archbold to eat lunch. We planned to eat at Samuel Mancinos, but the restaurant is closed on Mondays. Instead, we ate at a Mexican restaurant. I ordered a #18 — a taco, burrito, and rice and beans. I took three bites of the taco and some of the beans and rice before my ever-present nausea turned into feeling like I needed to vomit. I took some Zofran to lessen the need to vomit, sparing me the indignity of throwing up in a public restroom. Our server came to collect our plates. When she saw most of my food went uneaten, she asked, “You didn’t like the food?” I explained why I couldn’t eat my food. She genuinely felt sorry for me, taking my meal off our bill.
This is my life with gastroparesis — an incurable stomach disease. Every day, every week, with no respite in sight. In two weeks, I will have an endoscopy and colonoscopy. After that, I plan to have a gastric peroral endoscopic myotomy. This will hopefully reduce my symptoms. It is NOT a cure.
I have had numerous tests in recent weeks. A stool sample revealed I have an uncommon disease called exocrine pancreatic insufficiency. My pancreas — for an unknown reason — doesn’t make enough digestive enzymes. As a result, my body can’t properly digest food and absorb nutrients. This may be why I am anemic and have low B12, potassium, Vitamin D, and testosterone. I will likely have to go through pancreatic enzyme replacement therapy with expensive drugs.
Throw in fibromyalgia, osteoarthritis, and degenerative spine disease, and I am in a world of hurt. My life is dominated by managing my health and lessening symptoms. My life has been reduced to striving to live another day. Joys that I once took for granted are gone. Eating is one of those joys, and not being able to enjoy food is so depressing I wonder why I keep trying.
As you may have noticed, my writing production has dropped dramatically. My life has pretty much come to a standstill. I am trying, but readers should no longer expect me to generate as much content. I cannot do so, and it seems evident, at least to me, that this is my new normal. Readers should expect less content from me, and if you notice my writing pace has picked up, don’t assume I am “better.” I am not, and I fear my best day is today, with more suffering and pain in my future.
I am 90 days behind on answering emails and social media messages. There’s nothing I can do about this. I will answer them when I can, and, quite frankly, some of them will go unanswered. I have had thoughts about hanging up my blogging spurs, but I enjoy writing, so I can’t bring myself to throw in the towel. All I know to do is manage my symptoms, rest, and do what I can.
Please don’t offer me medical advice. I am seeing competent doctors, to whom I trust my life. They are the experts, and unless given reason to believe otherwise, I trust them. I appreciate your friendship and support, but sending me links to articles and blog posts or questioning my diet, is not helpful. I appreciate your understanding.
Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
Medical doctors are very much a part of my life. I see my primary care doctor four times a year, a dermatologist twice a year, a cardiologist once a year, and other specialists, as needed. Today, I saw an orthopedic doctor for pain in my left hip and a carpel tunnel-like problem in my left hand; a problem I had surgically fixed in 2010. While I was lying on the cold table for an X-ray of my hip, the festering cyst on my upper back — which I had removed a few months ago, but has returned — burst, leaving a wet, bloody, puss stain on my tee shirt. “Wonderful, right?” I have an appointment with a dermatologist tomorrow to figure out what, exactly, to do about the cyst. (I have an ongoing problem with cysts here and there on my body. I have spent thousands of dollars getting them drained and incised. More often than not, the cysts make repeat appearances.)
The orthopedic doctor walked into the room, and after we exchanged pleasantries, I told him why I was there today. The doctor, whom I have seen before, had no recollection of my medical history, including the fact that I have widespread osteoarthritis, and was diagnosed two years ago with:
Disc herniation (T7,T8)
Disc herniation (T6,T7)
Central spinal canal stenosis (T9/T10, T10/T11)
Foraminal stenosis (T5,T6)
Disc degeneration/spondylosis (T1/T2 through T10/T11)
Facet Arthropathy throughout the spine, particularly at T2/T3, T3/T4, T5/T6, and T7/T8 through the T12/L1 levels.
Hypertrophic arthropathy at T9/T10
The orthopedic doctor was unsure what the problem was with my hand. Scar tissue from my previous surgery? A new problem? He ordered a new EMG — a nerve conduction test. As far as my hip was concerned, he decided my pain was caused by the aforementioned back problems. Solution? Live with it.
And then came the lecture . . . “have you thought about losing weight?” I told him I had lost one hundred pounds over the past three years . He asked, “How?” I replied, “Gastroparesis.” I added, “Nausea, lack of appetite, and vomiting, will do that to you.” I quickly determined that he knew little to nothing about gastroparesis. This, of course, is not surprising since bones and joints are his specialty. His cluelessness didn’t stop him from suggesting I see a different gastroenterologist to get a “second opinion.” Second opinion, for what?
Gastroparesis is an incurable stomach disease. The treatments are limited: medication to manage symptoms, feeding tubes, and experimental procedures. I hate when doctors think they always need to be the expert in the room. I have no doubt that I know a hell of a lot more about gastroparesis than my orthopedic doctor did. I have read the relevant literature, and know gastroparesis is a miserable disease; that no miracle is forthcoming. I take medication, vomit, forego eating, and I had an experimental procedure done under anesthesia last year (to no effect).
Ignoring everything I said, my orthopedic doctor suggested I contact the practice’s weight loss clinic for a consult. He said, “You know, if you lose more weight, it will lessen the pain in your back.” By this point, I wanted to scream. “Are you not listening to me? “Or do all you see is the fat guy?”
Had my orthopedic doctor asked, he would have learned that I started having back problems at age twenty. I was first diagnosed with narrow disc space in my lower back when I weighed 225 pounds and still played competitive sports. My spine is literally falling apart. Losing weight won’t fix structural problems. I have had back problems at various weight points throughout my life. Lose, gain, it matters not, the pain remains. I am a living study that shows that the idea that losing weight will fix whatever ails you is untrue. As I mentioned, I have lost one hundred pounds. The only thing losing twenty-five percent of my body mass did was improve my glucose levels and provide me a new wardrobe. That’s it. My debility and pain remain the same. But, hey, I love my new Charles Tyrwhitt shirts.
I am comfortable in my own skin. Lecturing me about my weight is not helpful, nor will losing weight magically cure my fibromyalgia, osteoarthritis, or gastroparesis. While there certainly could be benefits from losing more weight, I doubt dropping another twenty-five to forty pounds will lessen my pain.
What I most wanted my doctor to do today is see “me;” to listen to me; to consider the totality of my health. Since that was beyond his “expertise,” he is no longer my doctor. In fact, I am done with doctoring. When I leave their offices worse off than when I came in, I wonder “why bother?”
Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
The recent success of an interview (28,000 views) I did with Tim Mills, the Harmonic Atheist, has brought me increased attention from Evangelical Christians.
Media interviews I do always bring out knives, pitchforks, and pyres, but it seems, at least to me, Evangelical hostility levels have dramatically increased, so much so that I have had thoughts of throwing in the towel. So much vitriol toward an insignificant atheist. What gives? Judging by their attacks, you would think I had kidnapped their firstborn or slept with their spouse. One man, whom I have banned and blocked numerous times, is trying to get at me through family, friends, and acquaintances. Yesterday, he went after my youngest son’s transgender roommate. That didn’t go very well for this Evangelical man. He happened to run into a young man who is more than capable of handling themselves. In fact, I suspect they enjoyed eviscerating this man. Earlier this week, my youngest daughter received a cryptic email from an Evangelical man, saying that he was trying to get a hold of me. Of course, he wasn’t trying to contact me. I am one of the most accessible people on the Internet. I am but a click or two away. No, this man wanted to let me know that he could get at me and my family. Why else did he list all the publicly available email addresses for me, including several email addresses I haven’t used in twenty years?
The fact that I have a lot of serious health problems has made it easy for Evangelicals to say that these maladies are God’s judgment or God trying to get my attention. The unrelenting pain that is literally choking the life out of me is “God” trying to get my attention. Someday, hopefully not today, tomorrow, or next week, I will die. I know that I am on the short side of life; that either disease, accident, or the damn cat will one day put an end to me. I can only imagine what Independent Fundamentalist Baptists (IFB) zealots will say on their blogs and what preachers say in their sermons upon hearing reports of my demise. “Bruce knows the truth now!” “Atheist Bruce Gerencser now knows that God exists and Hell is real!” These followers of Jesus will feign sadness as they speak of my death, but they will silently say to themselves, “that God-hating, Devil-loving motherfreaker got exactly what he deserved. No one mocks my God and gets by with it. ” (Motherfreaker is a Baptist swearword. An Evangelical recently got upset with me because I used a swear word in one of my posts. I am sure you can imagine my response to him. Please see Evangelical Swear Words.) 🙂
Let me circle back around to this idea that God gave me fibromyalgia, gastroparesis, and degenerative spine disease because he is trying to get my attention; that every night I writhe in pain in bed, unable to sleep, my suffering is a message of love from the Christian deity.
What’s with God “trying” to do anything? Is he weak and powerless, unable to do what he wants? If God is not willing that any should perish, how is possible that Bruce Gerencser, a frail, broken-down biped, can thwart God’s will? Surely God can easily and effortlessly reach me at any time. “Nothing is too hard for God” and “with God all things are possible,” the Bible says. Yet, it seems that saving me is too hard for God and that it is impossible for the Big Kahuna to reach me.
If my suffering is God trying to get my attention, does this mean that if I repent and put my faith and trust in Jesus, my chronic pain and illnesses will immediately and magically disappear? Crickets are all I hear from Evangelicals. They know there is no connection between my health problems and God. None. Shit happens, and this is my shit.
I have a three-year-old redheaded grandson named Silas. He’s a handful. Silas has no fear of anything. He must be watched at all times. Our living room is small, 16’x20′. We have three lamps in the room, along with an overhead light. I HATE the overhead light. My grandkids know not to turn the light on when I am in the room. Not Silas. He will run over to the wall switch, give me a look — you know, THAT look — turn on the light, and run off. No matter what I say or do, Silas keeps flipping the switch. Mischief is his middle name, some sort of karmic payback for my own childhood mischief. If my mom were alive, she would be smiling.
Imagine if I determined to teach Silas a lesson about the overhead light. I decided that the next time Silas turned the light on I would break his arm. Boy, that would get his attention, right? This is EXACTLY what Evangelicals are saying when they say that God has afflicted me to get my attention or to teach me a lesson. What, exactly, did I ever do to God to deserve such punishment? Or is God okay with Bruce, the Evangelical-preacher-turned-atheist, and that it is Evangelicals who want to see me suffer? Sadly, many Evangelicals are sadists. Unbelievers have what they can’t have, so they rail against them, uttering threats of suffering, death, and Hell.
If I broke Silas’ arm because he kept turning on the light, I would deserve to be arrested and locked up for my crime. So it is for the Evangelical deity who inflicts suffering on finite beings. If such a deity exists, he is unworthy of our worship.
Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
“I hope you will feel better soon,” is an oft-heard line by chronic pain sufferers from well-meaning people. There’s this idea that our pain is temporary; that a cure awaits somewhere beyond the next doctor’s appointment. “A better day awaits,” people confidently say. How they could possibly know this remains unsaid, but such thinking finds its impetus in the idea that all suffering is temporary; that deliverance awaits just around the next corner.
For chronic pain sufferers, however, there are few better days outside of death on the horizon. We know there will never be a day when we “feel better,” outside of the marginal relief we receive from medications and treatments. In our minds, “it is what it is,” and no amount of good thoughts, wishful thinking, or prayer is going to change that fact.
Why, then, do the family members and friends of chronic pain sufferers ignore, marginalize, or reject this fact? If the pain sufferer can live with “it is what it is,” why can’t they? Certainly, family members and friends want the pain sufferer to feel better. I never doubt that such people are sincere or that they want what they perceive is best for me. Others have warped understandings of medical science or the specific medical conditions chronic pain sufferers face. They deify science, thinking that no medical problem is beyond treatment or cure. Doctors, of course, know better. They know that they can actually cure a handful of maladies. Most often, pain is managed and controlled. I know my doctors cannot cure me. My health problems are beyond simply taking medication or having surgery. Everything my doctors do is in the hope of giving me quality of life during what time I have left. I told my primary care doctor that I don’t expect him to cure me. I want him to do what he can to make my life better: less pain, and more mobility, or at the very least, no increased pain or debility That’s the contract we have with each other.
Many well-wishers think that if pain sufferers can, they should. If there is a treatment or procedure that “might” help, we should do it. Such people are convinced that a “miracle” awaits if the pain sufferer will just swallow this pill, eat these foods, take these supplements, have this surgery, or go through yet another treatment. They are unwilling to accept that “it is what it is.” When concerned family members and friends think (often wrongly) pain sufferers are giving in or giving up, they lecture and badger chronic pain sufferers, prodding us as a farmer with a cattle prod, to move forward through the chute of life. In their minds, giving in or giving up is always wrong, even if doing otherwise leads to more pain and suffering. I have watched numerous people — including my wife’s father — go through horrific pain and suffering, all because family members didn’t want their loved ones to give in or give up. And in the end? They died anyway.
I take a stoic approach to life. I have had a lot of trauma, tragedy, and suffering in my life. All suffering is personal. I know that what I have experienced is less than what some people have faced, but more than what others have gone through. When one of my toddler grandsons gets a boo-boo, his pain is every bit as real as Grandpa’s. The difference, of course, is that I have had almost sixty-six years of trauma, tragedy, and suffering. My lived experiences are far different from that of grandchildren or people decades younger than I am. All I know to do is to empathize with people when they are suffering, even when I know their pain is less than mine. I know that pain is a great teacher. I have had numerous steroid injections over the years. Polly always goes with me when I get juiced up. She usually remarks about my stoic mentality when the orthopedic doctor is sticking a long needle into my shoulder, hips, or hands. I always tell her that I have experienced horrible pain in my life; that the injections are uncomfortable, but nothing compared to my day-to-day pain or some of the painful procedures I’ve had in the past. I have developed mental processes that help me embrace the pain; the mental version of gritting one’s teeth and clenching one’s hands.
As I sit sideways in my recliner typing this post, my body hurts — literally — from head to toe. Herniated discs in my spine and neck, degenerative spine disease, osteoarthritis in numerous joints, muscle pain from fibromyalgia, and nerve pain in my legs and feet have left me in constant pain. I take narcotic pain medications, NSAIDs, and muscle relaxers to cope with my pain. They help, to be sure, but these drugs do not magically deliver me from pain. That has never been the goal. Pain medications and muscle relaxers, at their best, tamp down pain spikes. Certainly, I could take high enough levels of narcotics to make my pain go away, but in doing so I would sacrifice living a meaningful life. You see, “not dying” is not my grand goal. I don’t want to spend the last months and years of my life so drugged up that all I do is sleep, hoping that doing so will add a few days to my life. I choose quality over quantity, even if it means more pain than I would otherwise have.
I try to educate myself about the various diseases and debilities that I have. When I was diagnosed with gastroparesis (an incurable stomach disease) two years ago, the first thing I did was study up on the disease and its treatments. Knowledge really is power. With knowledge, I can know what to expect and how to best treat symptoms. I work in partnership with my doctors, knowing that the person who best knows my body is me. Unfortunately, family members and friends aren’t going to do this, so they often say ill-informed, ignorant, and, at times, stupid things to chronic pain sufferers. Typically, I ignore them. Other times, I ask, what treatment or drug do you suggest? Well, uh, I heard, I read on Facebook . . . You see, they don’t have any answers either. Why? In my case, there are no treatments, drugs, or surgeries that will lessen my pain and suffering in meaningful ways. And if there were, don’t you think I would investigate them and act accordingly? Or do some family members and friends think I want to be in pain; that I enjoy crippling pain, debility, vomiting, and diarrhea?
I have accepted that “it is what it is.” Unless there is a major medical breakthrough, I know that my life tomorrow and the day after will pretty much be, pain-wise, as it is today. I have embraced this fact. Are there treatments that I could have done that would offer short-term, temporary relief? Sure, but to what end? In 2021, I had a procedure done under anesthesia that used Botox to paralyze a muscle in my stomach. Did it work? Did I find relief? Sure, for three days, and then I was right back to being nauseous and vomiting. The same goes for epidurals and nerve blocks. They last for a short amount of time and are prohibitively expensive. I tried all of these procedures, but I decided, in the end, I didn’t want to deal with the false hopes and highs and lows that come from such treatments. A while back I had a night when I slept for nine hours, only waking up twice. I hopefully thought, “is this a sign of better days ahead”? Of course not. It was an anomaly. The next night I got two hours of sleep, and after that, I had on-and-off sleep for ten hours, as is typical for me.
I have accepted the fact that “better” days are not on my radar; that if I want to live, write, and enjoy what life I have, I must embrace my pain, do what I can, and try to ignore the well-meaning well-wishers. And when I can’t, I write a blog post. 🙂
Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
Yet another visit to the doctor’s office, visit number twelve for the year — primary care doctor, dermatologist, cardiologist, podiatrist, neurosurgeon, general surgeon, and orthopedic doctor. No major surgeries this year, but I have had a benign tumor removed from my abdomen and a large cyst removed from my upper back (which is already coming back).
My main health problems remain the same: gastroparesis (an incurable stomach disease), fibromyalgia, osteoarthritis, degenerative spine disease, and eight herniated discs in my spine and neck. I am also being treated for high blood pressure and diabetes. Both are well-managed. My latest A1c was 5.8. Diabetic readers know that anything below 7.0 is good. 5.8? Awesome.
Thanks to gastroparesis, I am chronically anemic and my B-12 levels are all over the place. I have blood work done every three months to monitor a host of issues. Gastroparesis has also affected my eyes. I was nearsighted for almost fifty years. I am now farsighted.
Taken together, these issues create a real challenge for me. Pain, of course, from head to toe, dominates my life. The pain is so severe that I have a hard time sleeping. I typically sleep in two-hour increments, readjusting my body so I can fall back asleep. Last night, I finally fell asleep at 5:30 am. I woke up five times during the night — hip pain, back pain, and peripheral nerve pain in my legs on this night. I woke up for the last time at 2:30 pm. Throw in a lack of bladder and bowel control, along with profuse — and I mean profuse — sweating, going to bed is a nightmare. Thanks to my therapist, I have come to accept that this is just how things are for me. Sure, I take narcotic pain medications, high-powered muscle relaxers, anti-inflammatories, and sleep drugs. They help, but these drugs do not make all my pain go away, nor do they bring deep, peaceful sleep.
I am now forced to use mobility aids wherever I go: cane, wheelchair, walker, or motorized cart. Not that I get out of the house much these days. Come March, it will be three years since I have driven a car. On a typical month, I get out of the house 4-8 times a month, usually to go grocery shopping, to medical appointments, or out to eat with Polly. I am not well enough to do any of these things, but I can’t bear being cooped up 24-7. So I endure, much as I do when my rambunctious grandchildren come over to visit.
My declining muscle strength and balance have made walking an existential threat to my survival. Falls are increasing, some severe. If I had to put money on how I will die, I would put it on tripping and falling. I am careful, but it takes very little to find myself flat on my ass/back, swearing profusely. Readers may remember that last Christmas I fell into our tree, breaking several branches and damaging the train below the tree. We have an artificial tree this year. 🙂
There are days when I just want to put an end to it all. People who suffer from chronic illnesses and endure unrelenting pain often have thoughts about suicide. Well-meaning people tell me that they are praying for me, or that I need to “put mind over matter.” I love it when someone tells me, you know, there are people who are worse off than you. And this helps how, exactly? There will always be people who are sicker than I am or have more pain than I do. And there are countless people who are in good health, and their biggest pain is a zit on the end of their nose or a backache from too much headboard banging. Each of us lives in a contained world unto ourselves. My health problems and my pain are mine alone to bear. Just think of Jesus’ suffering, Bruce. He did it all for you, Christians tell me. What, a day or so of pain, a long weekend, and then a pain-free body? Jesus had it easy. I would trade places with him in a heartbeat. Let Jesus walk in my shoes for a while — not that he can, he’s dead. Conjuring up an imaginary suffering deity as a way to “encourage” those who are in real pain is not any more helpful than that same God spitting on dirt, making some mud, and using it to restore a blind man’s sight. Forget the theatrics. If Jesus is really the Great Physician, what’s he been up to for the past two thousand years? I know a lot of people who sure could use his help. His inattention makes me wonder if he is actually dead, and what’s really going on here is that the Christian church has been playing a con game for the past twenty centuries. Just keep praying. Jesus will heal you — someday.
People with chronic pain have often suffered for years. Their lives are an endless repeating of the movie Groundhog Day. In my case, I have suffered chronic pain for twenty-five years. I worked my last full-time job in 2005. Their lives are an endless repeating of the movie Groundhog Day. I endure the day, collapse in bed, spending several hours getting to sleep, only to start the process all over again the next day. And pain is just one of the plethora of issues I must deal with every day. I am not complaining. I accept life as it is, doing what I can to lessen my suffering. I don’t expect my doctors to work miracles, nor do I anticipate waking up one day and finding myself miraculously healed. That’s not how things work in the real world. Thousands and thousands of prayers have been offered on my behalf, and I spent the better part of twenty years daily asking God for healing. As the mythical Christian God is wont to do, he remained silent.
When I write about suicide, people immediately worry that I am about to pull a David Foster Wallace. Not today, my friend, not today. All I am saying here is that chronic illness and pain drive people to ponder ending their lives. In fact, it is totally normal to have such thoughts. It’s not that I want to die — I don’t. I want to live. I want to watch more sunsets over Lake Michigan with the love of my life. I want to eat Polly’s food and enjoy her company. I want to hear Bethany laugh while watching a stupid movie. I want to go to stock car races and baseball games with my sons. I want share Thanksgiving and Christmas with my family. I want to watch my grandchildren come of age, go off to college, and perhaps have families of their own. I want to watch the trees, bushes, and plants Polly and I have planted grow to maturity, covering our yard with summer beauty and shade. I want to watch the raccoons, possums, squirrels, and feral cats as they stop by to eat and provide us with a bit of entertainment. (Recently watching a raccoon run off on his back feet with an old bagel in his front paws — priceless.) There are so many things I want to do, yet when my body is wracked with pain, all I can think is this: PLEASE MAKE IT STOP!
You see, that’s what healthy people don’t understand. It’s not that people such as myself want to die, we just want the pain to stop. Oh, how I yearn for a day — just one day — of waking up in the morning pain-free. Some of you reading this post know what I am talking about. You understand longing for a day without pain, yet you know such hope doth fantasies make. For the present, we live between the one certain cure — death — and a life of finding meaning and purpose. For me personally, writing, family, and hoping the Cincinnati Reds will, one more time in my lifetime, win the World Series, are some of things that give me meaning and purpose. When I devote my energies to those things. thoughts of suicide diminish. That said, suicidal thoughts will never, ever go away, and I have, through anguish and tears, thought on more than one occasion this year, ENOUGH! But today I say to myself, LIVE. Who knows what tomorrow may bring? For now, I focus on the things that matter, hoping they continue to provide reasons for living.
I know the goodness in you will urge you to try to encourage me in the comment section, or with a text or an email. There’s no need, friends. This is just me talking out loud and being brutally honest about life. I may die today, but it will not be by my own hands. My sister has a project she needs her wise, aged, technologically savvy smart-ass of a brother to take care of (she reads my blog, so I just had to say that). I can’t leave her in the lurch. And besides, the Bengals are likely headed for the playoffs. Maybe, just maybe this will be the year the Bungles become world champions.
Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
