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Living with Fibromyalgia

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fibromyalgia 2

I thought I would share with my readers a bit about living with fibromyalgia. In 1995, I started feeling fatigued and had a lot of muscle aches and pains — not from overwork or any of the daily physical activities I engaged in. I just felt tired all the time, and my body ached from head to toe. After months of feeling this away, I sought help from doctors; a two-year exercise in frustration and futility. One doctor suggested that it was all in my head; that I was still grieving for my mother who died in 1991. I blew up at this “esteemed” physician, shouting at him in no uncertain terms, IT’S NOT IN MY HEAD!

I was a thirty-five-year-old pastor who, up until that time, could physically do whatever he wanted to do; from playing sports to cutting wood to car repairs to construction work. Why was I fatigued? Why did I hurt all the time? Those are the questions I wanted answered.

In 1997, I saw a new doctor in Montpelier, Ohio. For the first time, I had a physician who actually listened to me. Twenty-five years later, this man is still my primary care doctor, and most all, my friend. Doc wasn’t a miracle worker. He found my symptoms troubling, yet tests came back normal. Of course, the reason for this is that fibromyalgia is a diagnosis of exclusion. Other diseases such as multiple sclerosis and polymyalgia must be ruled out before a doctor can determine whether a patient has fibromyalgia.

For several years, I sponsored and moderated a Christian email discussion list called CHARIS (the Greek word for grace). One of the list participants was a sickly man who was an invalid. After mentioning my health problems to list members, this man contacted me and suggested that I talk to my doctor about fibromyalgia. This “providential” conversation resulted in my doctor diagnosing me with fibromyalgia. Nothing changed for me, per se. Just because you have a diagnosis doesn’t mean that all of a sudden you are on the path to healing. What the diagnosis did say to me is that my pain was not in my head; that what I was dealing with was real.

There’s no cure for fibromyalgia. Symptoms vary widely, and most fibromyalgia sufferers are women. Twenty or so years ago, I drove to the Williams County Fairgrounds to attend a fibromyalgia support group. I felt, at the time, very alone. Few people seemed to understand what I was going through. Even my family was perplexed. What happened to Bruce, to Dad?

I arrived at the support group meeting thirty minutes early. Typical Bruce Gerencser behavior — always early. My children (and Polly) have oh-so-fond memories about my lectures on being on time; that you should always be early. As I sat in the fairground parking lot, I watched as people filed into the meeting. I quickly noticed that there were NO men, I mean none. Every group member was a woman. I thought, “these women will never understand what I am going through.” So, I decided to not attend the meeting and drove home. Years later, I started blogging, and my readers became my support group. I learned that woman with fibromyalgia did, in fact, have a lot to offer me, namely understanding.

No two fibromyalgia sufferers have the same symptoms. On a scale of 1-10, I am on the 10 side of the spectrum. Fibromyalgia has affected every aspect of my life, bit by bit robbing me of the man I once was. People in my life have a hard time accepting that fibromyalgia is an incurable disease; that all that can be done is to manage the symptoms. And yes, I have read the books that suggest otherwise. Just don’t . . . whatever book title you are going to suggest or website you think will really help me, trust me, I know about it. Twenty-five years of dealing with fibromyalgia have helped make me an expert on the disease. I have read numerous books, websites, and studies about fibromyalgia. I have had to deal with well-meaning fools who email me or send me stuff in the mail they believe will cure me. Even when I beg people NOT to do this, they do it anyway. “Just take this or that supplement, Bruce, and your fibromyalgia will go away!” “Have you tried __________?” The ill-informed judgment is that I have not, when, in fact, my primary care doctor and I have tried numerous medications, supplements, off-label drugs, treatments, etc. When I came into the office and said, “Doc, I read about this new fibromyalgia treatment, what do you think?” he always said, “let’s give it a try.” His goal today remains what it was twenty-five years ago: reduce my pain and improve the quality of my life.

Over the years, I developed other health problems, namely osteoarthritis that rages through my body like a wildfire, and peripheral neuropathy that causes numbness and pain in my legs and feet. The unholy trinity of fibromyalgia, osteoarthritis, and neuropathy have so afflicted me that I hurt from the crown of my head to the bottom of my feet. There are no pain-free days, just manageable pain days, and raging pain days that make me ponder killing myself (no this is not a cry for help). Throw in a degenerative lower back problem, a tear in my shoulder labrum, and bum knees thanks to abusing them playing basketball for twenty years, and I can safely say that I am a walking, talking train wreck of a man. I wish things were different for me, but all the wishing in the world won’t cure me. So, I accept and embrace what I call my “new normal.” And my “new normal” continues to change over time. I know Doc sees it. There are those times I have heard a brief sigh from Doc as I share a new problem. Not a sigh of exasperation or impatience, but one that says he knows that I am struggling for my life. I have told him numerous times, “I don’t expect you to fix what can’t be fixed.” “All I ask is that you do what you can for me.” And he has done just that over the past two and a half decades.

My treatment has settled into a rhythm of sorts: pain medications, potent muscle relaxers, sleep medications, light aerobic exercises and walking when I am able, and hot — and I mean hot — baths. The goal is decent sleep and the reduction of my pain to a tolerable level. Some days, it’s mission accomplished. Other days, not so much. And then there are those days when the meds don’t seem to work and muscle and joint pain batter me from head to toe for hours on end. The latter leave me in tears, wishing something, anything would make it stop. In these moments, I feel very alone, even though the love of my life is right next to me.

I am sixty-three-years-old. Thanks to the issues mentioned in this post and other health problems I won’t mention lest I sound like Granny Sue at church cataloging her afflictions, what I can do in life is limited. For years, my well-intentioned mother-in-law would ask Polly if I was “feeling better,” as if I had a temporary sickness that would soon disappear. She finally understands that I don’t have days when I “feel better.” Mom used to be a big proponent of “putting mind over matter.” That is until she had her own health problems; diseases that can’t be magically wished or prayed away.

Most days, I walk with a cane, but when we take trips or I am really fatigued, I have to use a wheelchair. I still refuse to use the motorized carts at the grocery. Irrational pride, to be sure, but I would rather slowly go through the store bent over the handle of a cart than ride around the store as an advertisement for infirmity. You see, people with fibromyalgia (and osteoarthritis) often look “normal.” I can’t tell you the times I’ve gotten glares when we pull into a handicapped parking space. I get out of the car and look “normal” so people think I am taking a parking space away from someone who could really use it.

I still struggle with self-worth as a result of fibromyalgia. In my mind, I am supposed to be the breadwinner instead of my wife. I am the one who is supposed to be taking care of everything. Having OCPD doesn’t help either. Fibromyalgia is a cruel oppressor. In my mind, I tell myself, “Bruce, you can do everything and anything you want to do!” Remember the line from the Waterboy? “You can do it!” And then I hear fibromyalgia and his sister osteoarthritis laughing and mocking me. “Sure, Bruce, go ahead and try.” And try I do, often working myself into bed for days on end from relentless pain and overwhelming fatigue. Fibromyalgia snickers and says, “See, Bruce, I told you! I am the boss in this story.”

One of the hardest things I have had to come to terms with is my physical and emotional limitations. When you spend most of your life as a workaholic, a man driven to perfection, it’s hard to admit that you are no longer in control of your storyline. I certainly haven’t mastered dealing with the realities of my life. I can, all too often, overwork, and this frustrates those who love me. I have never been good at finding balance in my life. I am more of an all-in kind of person, charging hell with a squirt gun, only to find out there’s no water in the gun. I want to think I have gotten better, but I suspect what’s really changed is that Polly is now willing to put her foot down and tell me no or suggest that I take off a day or two or four and rest. I also have friends such as Carolyn, my editor, who recognize my character flaws and try to keep me from self-destructive behavior. Carolyn can recount many times that I texted to tell her that I was going to go do this or that. She wisely encourages me to take it easy; to live for another day. And sometimes Carolyn sends see several smile emojis with a message that says, “you are going to do this anyway, aren’t you?” And sure enough, I do, and the next text she gets from me is one saying I won’t be doing any writing for a few days.

I haven’t worked a W-2 job since 2005. In recent years, I have done some web design and site management work for my sister’s trade school in Arizona. This provides me a bit of income, even though I feel guilty about taking her money. This blog, after expenses, also provides me a thousand or two dollars of income. And now that I am drawing social security, I feel as if I am contributing in some small way to our material well-being. That said, I can’t help but think when I see my wife of forty-two years walk out the door to go to work that I should be the one, pick in hand, heading for the coal mine.

This is the first comprehensive post I have written about my struggles with fibromyalgia. I hope you found it helpful, and it gave you a bit of knowledge and understanding about a disease that affects millions of people.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

I Hope You (Fill in the Blank)

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meaning of life

Well-meaning people have all kinds of expectations and desires for me, revealing how they view my life and me as a person. Often, they view me as hurt, broken, damaged, angry, bitter, disillusioned, unhappy, pessimistic, or jaded. Instead of allowing me to define who and what I am, they use their own version of who and what I am and then come to certain conclusions about me. It’s like me saying I am a cat and someone saying no you are a dog, and then all their subsequent judgments about me are based on their belief that I am a dog. No matter how loud I meow, they still think I am a dog.

These kinds of people think there is something wrong with me. Take my friend Bill. Here is what he said in a blog comment:

But in my not very humble opinion as a person who has known your thinking for more than 25 years (?), the topic of “god” is disturbing your mind to no good end.

Now, on one hand, Bill has known me for a long time. He lives thousands of miles away from me and we met face-to-face one time in the late 1990s. Years ago, I sponsored the CHARIS discussion list, and Bill was a regular participant. He has, on and off, read my writing for almost 25 years. He has followed my evolution from a Calvinistic pastor to an atheist. Surely, he should “know” me, right?

While I consider Bill a friend, I would never say that Bill “knows” me. In fact, the number of people who really know me can be counted on one hand. And even then, can someone ever really completely “know” me? During the course of our friendship, Bill has mentally developed his own version of Bruce Gerencser. While this Bruce bears some resemblance to the real Bruce, it is not the real Bruce and if Bill doesn’t understand this, he will likely, as in his comment above, come to a wrong conclusion about me.

I think Dale summed up things quite well when he said to Bill:

What Bruce is doing is therapeutic for him and for many of us.

Dale precisely summed up why I write. I am not sitting here raging at God. I am not, on most days, hurt, broken, damaged, angry, bitter, disillusioned, unhappy, pessimistic, or jaded. Outside of the constant pain I live with, I am quite happy. I have a wonderful marriage and family, and I love interacting with my internet friends through this blog. Yes, I can go through bouts of deep depression, but people like Bill wrongly assume that my depression is driven by my questions about God and religion. It’s not. My health problems are what drive my depression. Feel better=less depression. Lots of pain=more depression.

These days, the only time I think about God and religion is when I am writing. There are no unanswered questions for me when it comes to the Big Kahuna. I don’t think there is a God, so this pretty well answers all the “God” questions for me. My interest in religion has more to do with sociology, philosophy, and politics than it does anything else.

I frequently get emails, blog comments, and comments on other blogs that start with, I hope you _____________________. These people have read something I have written and have made judgments about me. They think I am lacking in some way, and if I would just have what they are hoping I will have, then all would be well for me.  They hope I find peace, deliverance, salvation, or faith. They are Internet psychiatrists who think they can discern who I really am and what my life consists of by reading a few blog posts.

I know that this is the nature of the Internet. People make snap judgments about a person based on scant information. (Just today, a Christian commenter told me I was a fascist. OMG! A fascist?) They think they “know” me after they have read 1,500 words, and they are then ready to pass judgment on what I am lacking.  Everyone who writes in the public space faces this problem, but it doesn’t mean we have to like it.

This is me saying, I don’t like it. I am not a problem in need of solving. I am not a broken toy that needs fixing. I don’t need what my critics are hoping for me. I am quite happy with who and what I am. It is atheism that has allowed me the freedom to be who I am. I realize this presents a real problem for Evangelicals because they believe that a person cannot be happy, satisfied, or at peace without Jesus. But, here I am.

One commenter stated:

Dear Bruce, I hope you are delivered from your delusions of a happy, satisfied, peaceful life. You are living in denial of how things REALLY are for you.

All I can say to this is that I am enjoying every delusional moment of this life, and I suspect many of my fellow atheists are doing the same.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

I Refuse to Accept This

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accepting things as they are

Several years ago, I watched a sports documentary about a boxer who had brain damage from his last fight. No matter what doctors did, his condition continued to deteriorate. Finally, doctors told his wife that they had done all they could do. Both the boxer and his wife would have to accept that he was not going to get better. In fact, his health would likely get worse. The wife said, “I refuse to accept this. Surely, there is something else that can be done. A new drug, treatment, or therapy, surely there is something that can be done.”

While I understand the wife’s unwillingness to accept that her husband was never going to recover, her statement reflects a common misconception about life and the tragedies that come our way. Things don’t always get better. Sometimes, there’s nothing more that can be done. Sometimes, there’s not an answer or a cure.

I have been criticized, often behind my back, for the stoic attitude I have about my health. Since 1997, when I was first diagnosed with Fibromyalgia, I’ve seen numerous doctors, had more blood tests than I can count, and have had repeated scans, procedures, and surgeries.

My orthopedic doctor told me my osteoarthritis is like numerous wildfires burning out of control. Put one fire out and others pop up. He gathered up my x-rays and MRI scans and we looked at them. He was quite blunt, telling me that I have arthritis in EVERY joint, and that some of the damage is severe. Knees, shoulders, feet, hands, and back, all have arthritis that is causing joint damage. The why is unknown. Some days, the pain from the arthritis is severe, some days it is tolerable. Added to this is the muscle pain I have from Fibromyalgia. Every day is a pain day, with some days worse than others. I haven’t had a pain-free day in twenty-five years.

We talked about options. He was quite frank with me, saying that because the arthritis is so pervasive that I was not a good candidate for surgery. Even with my knees and shoulders, scoping them could actually make things worse, resulting in more pain. I like this doctor because he doesn’t bullshit me. His advice? Live with it. Unless I want to have total joint replacements, surgeries that have a huge risk of complications for someone like me who has a compromised immune system, I must learn to live with the pain, debility, and the ever-so-slow loss of function. All that he and other doctors can do for me is help manage the pain and try to improve my quality of life.

And I am fine with this. As I told the doctor, sucks to be me, but it is what it is. Unlike the boxer’s wife, I know there is nothing more that can be done. All the whining, complaining, praying, wishing, and hoping won’t change the fact that I have a body that is failing. All I can do is make the most of what life I have left.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Short Stories: The Missing Hammer

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hammer

From 1983-1994, I pastored the Somerset Baptist Church in Mt. Perry, Ohio. After meeting for two years in several rented buildings in Somerset, we purchased an abandoned, brick United Methodist Church five miles east of town. Cost? $5,000.

The sanctuary was built in 1831, and a flat roof annex was built in the 1960s. Both buildings were in horrible states of disrepair. I spent the next ten years repairing and remodeling the buildings, as did some church members and my three oldest sons. Rarely did a week go by when we weren’t working on one of the buildings. Keep in mind, I had ZERO construction skills, so I was learning on the job — everything from plumbing to electrical work to tarring a flat roof to framing walls.

In 1989, I purchased a broken-down 12’x60′ mobile home for my family and me to live in. I parked it 50 feet from the church sanctuary. Think about that for a moment: 720 square feet for a family of eight. I had to do all sorts of building projects to make the mobile home fit for us to live in. Again, I had to learn on the job, as did my sons.

At the time, we had a Sears credit card. When I needed tools — and it seemed I always needed tools — I bought Sears’ Craftsman tools. One such purchase was the hammer pictured above. I loved this hammer. Well-balanced, perfect for my use.

One day, my favorite hammer disappeared. I looked and looked and looked for the hammer, without success. I was fairly certain that one of my sons had “borrowed” the hammer and left it “somewhere.” Of course, no one confessed to the crime. I ended up having to buy a new hammer.

Years later, on a crisp fall day, my sons and several church boys were raking leaves along the back fence of the cemetery. As was typical back in the day, the boys burned the leaves. One of my sons decided to help the fire along with gasoline. This quickly turned the leaves into a raging fire, burning all the leaves along the fence line. Fortunately, the fire didn’t jump to our neighbors farm field.

After the fire died down and was extinguished, guess what showed up? My hammer — surprisingly unscathed by the fire. “Someone” had left my hammer in the weeds along the fence line, and there it lay until the fire.

I still use this hammer, and I am always reminded of the fire when I do. I suspect after I am dead and gone that my oldest sons will battle over who gets the hammer. Such memories . . . And maybe, just maybe someone will confess to leaving the hammer in the weeds.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Focusing on What Really Matters

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focus on what matters

As an Evangelical Christian, I viewed life this way:

  1. Life is given to us by God.
  2. Life is a preparatory time for life after death.
  3. Troubles, trials, and adversity will certainly come our way, but these things are part of God’s plan for us. He is testing us, trying us, and developing a longing in us for Heaven.
  4. While pleasure and happiness have their place in the human experience, it is far more important to know the joy of the Lord, and if need be, to deny oneself pleasure and happiness for the sake of God’s Kingdom and the eternal reward that awaits those who run the race God has set before them.
  5. While there is nothing wrong with material things, they do have the power to corrupt and distract us from that which really matters. As the Westminster Catechism says: What is the chief end of man? Man’s chief end is to glorify God and enjoy him forever.
  6. Life is to be lived with God, his will, and eternity always in the foreground.
  7. Death is a promotion from this life to the next. While we will leave our loved ones behind for a time, we know that if they are followers of Jesus, we will see them again in Heaven.

As an atheist, I view life this way:

  1. Life is given to us by our parents.
  2. This life is all we have. There is no life after death, no second chances, no do-overs. This is it.
  3. Troubles, trials, and adversity will certainly come our way. These things happen to everyone, and it is the price we pay for being among the living. Sometimes, these things happen due to our bad choices or rash, foolish decisions. However, many things befall us simply due to bad luck. Wrong place. Wrong time. Wrong circumstance. Bad genes.
  4. Pleasure and happiness are to be sought after since this life is all we have. In seeking pleasure and happiness, we should consider how seeking these things affects others, but we should not allow others to stand in the way of our pursuit of pleasure and happiness. Life is too short to allow others to dictate the parameters by which we live our lives.
  5. We should seek after those things which give our life meaning and purpose. While there is a place in the human experience for living for the sake of others, this should not be at the expense of our own meaning and purpose. While narcissism is not a trait most humans value, neither is living a life that belongs to everyone but the person living it.
  6. Since life is defined by the space between birth and death, it is important for us to live each day to its fullest. Every day we live means we are one day closer to death. While death may provide a release from pain and sickness, it is bittersweet. Bittersweet because we are leaving behind those things which mattered to us. Above all, we are leaving behind those we love.

Several years ago, I watched the final show of the acclaimed HBO series Six Feet Under. The show is about the Fisher Family and their funeral home business. For five seasons, viewers are taken on a journey with the Fisher family and death. I found Six Feet Under to be one of the best dramas I have ever viewed. In the final episode, the writers tried to tie together all the loose ends. A few episodes before, Nate Fisher had a brain aneurysm and died at age 40. He left a wife, two children, and a complicated life. The writers focused on Nate, his contradictory life, and its effect on everyone his life touched.

The last few moments of the show were the most powerful moments I have ever experienced while watching TV. I wept as the show moved through the lives of all the Fisher family as they aged and one by one died. All of them dead. No one escaped. While it would be easy to say “how sad,” I found it to a reminder of how important it is to value and cherish the life we have. We spend so much time doing things that are meaningless or add nothing to our life. I know it is very easy to get sucked into normalcy, to just go with the flow. We tell ourselves, Tomorrow . . . . Perhaps a Bible verse is appropriate here:

Boast not thyself of to morrow; for thou knowest not what a day may bring forth. (Proverbs 27:1)

Perhaps each of us needs to ask ourselves:

  • Am I happy?
  • What is it I want to do with my life?
  • What brings me pleasure and happiness?
  • What do I want to do that I have not yet done?

What are your answers telling you? What are your thoughts on what I have shared here?

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Understanding and Helping Those Who Live With Chronic Pain

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garfield pain

Regular readers know that I live with chronic, unrelenting pain. There’s never a day that pain is not my close, personal friend. The last time I can remember a pain-free day was somewhere in the mid-1990s (I was diagnosed with fibromyalgia in 1997). Every day, like the sun coming up in the morning, I have pain. Some days are less painful, other days are more painful, and then there are what I call the please let me die days where the pain, no matter what narcotics I take, is off the charts. From the top of my head to the bottom of my feet, I hurt. New pains come and go, often returning months or years later. Some pains move in and stay, just like an adult child who says, “I just need to live here until I get back on my feet.” This is my life. I accept it as it is, doing what I can, and embracing what I can’t.

Friends and family often have a hard time figuring out how to interact with me. Some avoid me — out of sight out of mind, I suppose. Some stand on the periphery of my life watching as chronic pain and illness destroy the man they love. Some dare to venture a little closer, perhaps even offering to help, but I often push them away, not wanting to burden them with my problems. They have a life, I tell them, no need to be burdened with a dying old man.

The last two years have been record-setting, and not in a good way either. Not only do I continue to struggle with fibromyalgia and osteoarthritis, but after I had my gall bladder removed in August, I am dealing with bile reflux and gastritis (bile is pooling in my stomach, not draining down my intestine as it should). I have lost 105 pounds in twelve months, don’t feel like eating, and now I am having a problem with super lower blood pressure (and this is after stopping ALL of my blood pressure medications). And then there are my low blood cell counts that no doctor, so far, has been able to figure out.

I know family and friends love me and want to be “there” for me, wherever “there” is. Some of the readers of this blog — dear folks who have over the years become my friends — offer up their love and support and I deeply appreciate their kindness and compassion. I know, as people watch the spectacle of my life, they are frustrated and discouraged, knowing that this may not have a good outcome. I resigned myself to this fact a long time ago. If not today, it will be some other day, sooner rather than later, that will be my last. Like you, I want to live until I die. While I may have moments when I contemplate suicide, most days I try to live the best life possible.

Several years ago, I read a wikihow.com article titled How to Understand Someone With Chronic Pain. I thought the points in the article might be helpful for my family and friends and for others who are intimately connected to someone with chronic pain. Here are some of the points and a highlight quote from each. I encourage you to read the entire article.

Remember that being sick does not mean that the sufferer is no longer a human being.

Chronic pain sufferers spend the majority of their day in considerable pain. If one visits or lives with a chronic pain sufferer, the chronic pain sufferer may be unable to enjoy things they used to enjoy. The chronic pain sufferer remains aware, and desires to do what they used to perform. The chronic pain sufferer feels as if they are stuck inside a body in which they have little or no control. They still want to enjoy work, family, friends and leisure activities, however much pain puts that enjoyment out of reach.

Learn the code.

Chronic pain sufferers will often talk differently from people free of constant pain. A numeric pain scale is used as a quantitative measure for identification of intensity for pain so the health care providers can measure effects of treatments. The measure describes pain on a scale from 1 to 10; the 1 is “no pain at all, feel wonderful” and 10 is the “worst pain ever felt.” Do not assume the chronic pain sufferer is not experiencing pain when they say that they are fine. The chronic pain sufferer attempts to hide the pain due to lack of understanding in others.

 Recognize the difference between “happiness” and “healthy.”

When you have the flu, you probably have felt miserable. Chronic pain sufferers have experienced pain from 6 months to many years. Pain has caused them to adopt coping mechanisms that are not necessarily reflecting the real level of pain they feel.

 Listen.

The previous two steps made it clear that chronic pain sufferers can speak in code or make their pain seem lighter than the reality. The next best thing that you can do is to listen to them properly, and to make it clear that you both want to hear what they have to say and that you really have heard it. Use your listening skills to decode what they’re hiding or minimizing.

 Understand and respect the chronic pain sufferer’s physical limitations.

Being able to stand up for ten minutes doesn’t necessarily mean that the sufferer can stand up for twenty minutes, or an hour, or give you a repeat performance whenever. Just because the person managed to stand up for thirty minutes yesterday doesn’t imply that they will be able to do the same today…With chronic pain however, it is confusing to both the sufferer and the onlooker, and their ability to cope with movement can be like a yo-yo. The sufferer may not know, from day-to-day, how they are going to feel when they wake up, and each day has to be taken as it comes.

 Leave your “pep talk” for your kids and your gym buddies.

Realizing that chronic pain is variable, keep in mind that a pep talk can be aggravating and demoralizing for the chronic pain sufferer. As already noted, it’s quite possible (for many, it’s common) that one day they’re able to walk to the park and back, while the next day they’ll have trouble getting to the next room. Therefore, it’s vital that you don’t fall into the trap of saying: “But you did it before!” or “Oh, come on, I know you can do this!”

 Never use throwaway lines.

Assuming you know best by making such statements as “Ah well, that’s life, you’ll just have to deal with it”, or “You’ll get over it eventually. Until then, you’ll just have to do your best”, or worst of all, “Well, you look well enough,” etc., are lines that might make you feel done and dusted with the topic but they are both a form of distancing yourself from the person and making the sufferer feel worse and out of hope.

 Check your own patience.

If you’re impatient and want them to “just get on with it,” you risk laying a guilt trip on the person who is suffering from pain and undermining their determination to cope. They probably have the will to comply with your requests to go out and about with them but have neither the strength nor the coping capacity as a result of the pain.

 Be sensitive when suggesting medicines or alternative treatments.

Some may not appreciate suggestions, and it’s not because they don’t want to get well. They may have heard of it or tried it already or some may not be ready to cope with new treatment that can create an additional burden on their already over-burdened lives. Treatments that haven’t worked carry the emotional pain of failure, which in and of itself can make the person feel even lower.

 Don’t be put off if the chronic pain sufferer seems touchy.

If that’s the appearance, it’s probably because they are. It’s not how they try to be. As a matter of fact, they try very hard to be normal. Just try to understand. They have been going through a lot. Chronic pain is hard to understand unless you have had it. It wreaks havoc on the body and the mind. It is exhausting and exasperating. Almost all the time, they do their best to cope with this, and live their lives to the best of their ability. Just accept them as they are.

 Be helpful.

The chronic pain sufferer depends a great deal on people who are not sick to support them at home or visit them when they’re too sick to go out. Sometimes they need help with shopping, cooking, or cleaning. Others may need help with their kids. They may need help getting to the doctor, or to the store. You can be their link to the “normality” of life.

Is there anything you would add to this list? Please leave your astute observations in the comment section.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Short Stories: The Preacher Goes to the XXX Movie House

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I grew up in rural Northwest Ohio. We didn’t have XXX movie houses or strip clubs. In Bryan, Ohio, only two establishments sold adult magazines. I was nineteen and a student at Midwestern Baptist College before I perused my first pornographic magazine. I suspect many of the young men studying at Midwestern had similar experiences. Our rural, small-town cultures sheltered us from the perversity found in big cities, as did the hellfire and brimstone preaching of the churches we came from. Sexual naïveté ran wild at Midwestern, and the college’s answer was to regularly preach against sexual sin, hoping that doing so would keep students from sexual temptation.

Pontiac, Michigan was a dirty, dying industrial town. Its downtown area had numerous adult entertainment establishments, including a XXX movie house that played the latest pornographic movies and hosted amateur night stripper contests. It was not uncommon to see a dozen or more prostitutes plying their trade on downtown Pontiac street corners. One woman who comes to mind was a rather large woman with huge DDDDDDDD breasts. She would briskly walk the streets braless, breasts bouncing chin to belly button. It was quite a sight to behold.

As you might surmise, downtown Pontiac was a magnet for young, virile, horny Baptist boys. The personal contact rules (please see Thou Shalt Not Touch: The Six-Inch Rule) at Midwestern forbade physical contact between dating couples. No hand-holding. No kissing. No hugging. No nothing. Students were required to stay six inches away from their boyfriends/girlfriends at all times. Of course, students broke the six-inch rule with impunity, causing all sorts of guilt and fear. The good news was that Jesus was only a prayer away. That’s the Baptist way: sin, ask for forgiveness, promise never to sin again — wash, rinse, repeat. It’s a great way to live.

One night, after much prayer and temptation, I decided to check out the fine art films at the XXX movie house. I parked away from the theater, thinking that if anyone who knew me drove by, they wouldn’t see my car. As I walked from my car to the movie house, I could “feel” the “Holy Spirit” telling me, Don’t do it, Bruce. God says it’s a sin. The Bible says it’s a sin. Your pastor says it’s a sin. Your dorm supervisor says it’s a sin. Your preschool Sunday School teacher says it’s a sin. All these voices in my head, but one voice stood above all others — mine. I wanted to do this. I was curious about what was behind the theater’s doors. And so I made my way to the theater’s entrance, paid my admission, and found a seat at the back of the theater.

The first act of the night was an amateur stripping contest. Local young women — some of them prostitutes — stripped and paraded back and forth on the stage. This was the first time I had ever seen a woman naked. I battled conflicting emotions. On one hand, I felt guilty. I was breaking the law of God, and I was violating college rules. On the other hand, I felt excitement — sexual excitement. It was my first time seeing a woman’s body in all its glory — as naked as Eve in the Garden of Eden. What more can I say? After all of the women had performed, judges determined the first, second, and third place winners. The winners were given cash prizes.

Then it was time for the feature film. As with the amateur contest, the movie definitely exposed me to sexual things I had never seen before. Needless to say, I was fascinated by what I saw. I am sure some readers of the Evangelical persuasion are thinking, Oh my God Bruce, you were taken in by Satan’s greatest temptation — lust. I bet you couldn’t keep from doing this again, right? Sorry to disappoint you. This was my first and last trip to the XXX movie house in downtown Pontiac. I would later marry a beautiful dark-haired girl who was a wonder to behold in her own right. Why look from afar when you can see, touch, and well, you know . . .

The highlight of the evening came not on the stage, but as I was leaving the theater. As I exited and turned my head to the right I saw, much to my surprise, a graduate of Midwestern and deacon at Emmanuel Baptist Church (the church college students were required to attend). Our eyes met, and then both of us quickly turned away, pretending that we had never seen the other. This man and his wife were good friends of Polly’s parents. When their names came up in family discussions years later, I so wanted to say . . . boy do I have a story to tell!

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Short Stories: The Pool Hall

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bruce gerencser 1970

Half way through my fifth-grade school year, my dad informed us that we were moving from Harrod to Farmer — both in northwest Ohio. There’s a story to be told about why we had to move, but I will leave it for another day.

By the time I arrived at Farmer Elementary School in 1968, I had already attended five different schools. Dad “rented” an old farmhouse owned by his older sister Mary on State Route 249, one mile east of Farmer. I say “rented” because Dad had a penchant for not paying rent/loans — especially when it involved his gullible sisters. I have no doubt that Dad had a rent tab with Mary.

I finished the last half of fifth grade and all of sixth grade at Farmer, thinking, “wow, maybe we are going to live here for awhile.” I had made friends and played baseball for the Farmer Tigers. I even started paying attention to girls. In the mind of a then twelve-year-old country boy, my life revolved around friends, church, girls, and sports. Life was good, right (even though this was when my mom was raped while I was home sick from school)? Alas, as my dad often did, he would soon disrupt my life.

September 1969 found me attending Ney Junior High School — in the community I currently live in. I was excited about making it to the next level academically. I also discovered I could play sports other than baseball. I made the Ney seventh grade football team, and I planned to play basketball in the winter.

Two weeks into the school year, Dad came home and informed us that we were moving — immediately. No goodbyes to my friends, no promises of eternal love. The short, slight-of-weight redheaded boy who loved joking around was gone, never to be seen again in the halls of Ney Junior High.

Our new destination? Deshler, forty miles south and east of Ney. Dad rented a house on North Park Street. He was a district sales manager for Combined Insurance. I, once again, made new friends. We would live in Deshler all of nine months, moving twenty-six miles down the road to Findlay after school was out for the year.

While living in Deshler, I delivered newspapers for the Findlay Republican-Courier. The Republican-Courier was a morning newspaper, so I delivered my route each day before school. This was in the days before parents shuttled their children around for their paper routes. I got up early every morning, rolled my papers, put them in my bag, and rode my bike delivering the daily paper to my customers (back in a day when older customers were already up and waiting for their paper to arrive).

Neither of my parents provided me any guidance about the newspaper business. I opened a checking account at the Corn City Bank, which later proved to be a really bad idea. What could go wrong, right? No one, and I mean no one, questioned a twelve-year-old boy writing checks at local businesses. During Christmas that year, I went to the local drug store and bought myself a gift — a twenty-four bar box of Clark candy bars (still my favorite candy bar and impossible to find today).

I started hanging out at the local pool hall so I could play the hall’s pinball machines. I quickly became addicted to playing pinball. When I needed more cash to play the machines, I would write a check to the pool hall — say for $5. I soon had a cash flow problem, spending money that should have gone to pay my newspaper bill on flipping steel balls from bumper to bumper, hoping to rack up a big enough score to get a free game or three.

After a month or so of decadent, “sinful” behavior, the newspaper’s district manager contacted my dad about my unpaid bill (and the papers I stopped delivering). The newspaper took the route away from me, expecting dad to pay my bill. Instead, Dad went up to the pool hall and demanded the owner pay my debt. When the owner balked, Dad reminded him that it was illegal in the state of Ohio for minors to frequent pool halls. The owner quickly saw the light and gave my dad the money I had spent at the hall. Knowing my dad as I do, to this day I wonder if the money made it to the Republican-Courier. My gut tells me that my bill is still outstanding.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Short Stories: The Day Elvis Came to Church

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What follows is a humorous and tragic story of a man I met in church.

In 2003, my family and I moved to Clare, Michigan so I could assume the pastorate of Victory Baptist Church — a Southern Baptist congregation. I pastored Victory Baptist for seven excruciating months. This would be the last church I pastored. While at Victory, we lived in a gated community called White Birch — north of Farwell, Michigan.

One evening, my family and I drove to Mt Pleasant to do some shopping at Meijer. When we returned home, I noticed that the red light on the answering machine was flashing. I clicked play and heard the following:

Hello, this is Elvis. I am staying at the Doherty Hotel in Clare. I would like to talk to you. Please call me back at ______________.

I thought, “yeah right. Elvis?” I thought one of my preacher friends was trying to put one over on me. So I called the number, expecting to reach a jokester on the other end, but come to find out, it really was Elvis.

Well, actually it was a man named Barry, and Barry believed he was Elvis.

I don’t remember how Barry got to Clare, but he was on social security disability and lived in a rented apartment.

Barry wanted to attend our church. And so he did . . .

Barry didn’t come to church every week, but when he did, he came dressed in bright colors, scarfs, and spangles just like Elvis wore. When Barry arrived, everyone paused to look, not saying a word. He definitely stood out among the more “normal” people who attended the church. I would later learn that he was likely the most honest man in the room.

Barry had mental health problems, and quite frankly a lot of church members didn’t know how to handle him. He was “different,” and “different” is not something the church understood. Barry and I got along quite well. I learned that he had been sexually abused, misused, and taken advantage of by several Pentecostal churches and a homeless shelter in the South. They mentally and emotionally crushed Barry, and it is a wonder he didn’t end up in a mental hospital.

I tried to be Barry’s friend. I knew he needed people to love and encourage him. Unfortunately, Barry had a tendency to say whatever was on his mind, and a lot of church members found his verbal outbursts upsetting. One Sunday, we were sitting around the table in the Adult Sunday School Class — also known as the Heresy of the Week Class — discussing the Sunday School lesson. The Sunday School teacher, an older man by the name of Steve, asked if anyone had anything to share. Barry did:

I need prayer, I have a problem with masturbation.

Dead silence. Instant offense showed on the faces of many at the table. The teacher didn’t know what to say, so he said nothing. I quickly told Barry that we would talk about this after church.

Barry definitely spiced up the church. I have often wondered what happened to him. I hope he found someone to help him, love him, and accept him for who he was — even if he thought he was Elvis.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Short Stories: The Church Christmas Tree

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somerset baptist church 1989

In July, 1983, I started a new Independent Fundamentalist Baptist (IFB) church in Somerset, Ohio. I would remain the pastor of Somerset Baptist Church until March 1994. Somerset was a community of 1,400 people located in Perry County — the northernmost county in the Appalachian region. It was here that I learned what it meant to be a pastor; to truly involve yourself in the lives of others.

The membership of Somerset Baptist was primarily made up of poor working-class people. Most church families received some form of government assistance — mostly food stamps and Medicaid. In many ways, these were my kind of people. Having grown up poor myself, I knew a good bit about their struggles. I deeply loved them, and they, in return, bestowed their love on me.

In 1985, the congregation bought an abandoned Methodist church building five miles east of Somerset on top of what was commonly called Sego Hill. After months of remodeling, the sanctuary was ready to use. Built in the 1830s, the church had oak floors, colored glass windows, and a 25-foot vaulted ceiling. The building was classic for its era, one of the oldest church buildings in the county. Purchased for $5,000, the sanctuary and annex required $15,000 in improvements, including two gas furnaces to replace the coal-converted-to-propane monster in the basement. We would later install a wood/coal furnace after propane costs skyrocketed one year.

December, 1985 was our first Christmas in the new building. I decided that we would purchase a Christmas tree and put it in the back of the sanctuary. After discussing with several congregants whether to get an artificial or real tree, one man spoke up and said, “preacher, I can get us a real Christmas tree and it won’t cost us anything.” I replied, “that would be great.”

A few days later, the man showed up at the church with a huge Christmas tree in the back of his 1960s Ford pickup. The man unloaded the tree, carried it into the church, and propped the monstrosity in the back corner. Proudly, he asked, “preacher, what do you think?” as I looked at the scrawny pine tree — 12 feet in height. I thought, “man, this tree sure is scrawny. I wonder where he bought it?” I told the man, “looks great! — a lie to be sure, but better than wounding the man’s spirit. He was so proud of doing this for me that I didn’t want to discourage him. It’s just a tree, I told myself. No big deal. “Where did you get this tree?” I asked. The man replied, “oh I went up on Route 13 and cut down one of the trees growing along the highway.” “You WHAT?” I alarmingly replied. “You do know that those trees are government property?” The man genuinely seemed clueless about the ownership question.  And then, without missing a beat, he replied, “well, preacher, those trees belong to God!”

This tree would be the first and last Christmas tree in the sanctuary. Two years later, I came out against Christmas and its excesses, putting an end to any sort of tree or decorations in the sanctuary. In their place, the sanctuary rang with sermons against Christmas and the excesses of the season. I am sure, compared to my guilt-inducing sermons, congregants missed the scrawny Christmas tree, regardless of its provenance.

Bruce Gerencser, 67, lives in rural Northwest Ohio with his wife of 46 years. He and his wife have six grown children and sixteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.