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Tag: Chronic Illness

Living with Chronic Pain and Disability: “It’s Not Too Far Away, You Can Walk it”

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girls high school basketball february 24 2918What follows is a letter I wrote  several days ago to the athletic director at Miller City High School and the Ohio High School Athletic Association (OHSAA):

February 27, 2018

Dear Deb,

Today, I attended the Fairview vs. Spencerville High School Tournament basketball game. I arrived at the venue seventy-five minutes before the doors opened. I asked the parking lot attendant to point me to the handicapped parking spaces nearest the gymnasium. He had me park in the handicapped spots in front of the main entrance. Indeed, this allowed me a short, easy path to my seat.

After the game, attendees were required to exit via the doors opposite of where I entered. When I realized that this path was going to take me away from where I was parked, I asked a man handling crowd control to tell me the best way to get to where I was parked. I told him exactly where I was parked. Instead of allowing me (or anyone else who parked in the front handicapped spaces) short, easy access to my parking space, he told me I had to exit the far side of the building. He then said, and I quote, “it’s not too far away, you can walk it.”

First, how did he know what “not to far away” was for me? There was a reason I parked where I did, and I expected to be able to return to my vehicle via the same path I entered the venue. Second, how did he know I could walk it? Did he have magic powers that enabled him to divine my handicap and physical abilities? Not wanting to press the matter further, I walked the long hallway to the far exit and exited the building. I then had to walk around the building to the front where my car was parked. Needless to say, I was exhausted by the time I reached my vehicle.

I am writing this letter to make you aware of this issue, asking that you please address my concerns with the relevant people. In the future, if people parking in handicapped spaces are expected to exit the far side of the building, then the parking spaces should be on that side. If the parking spaces remain at the front of building, then handicapped attendees parking in them should be able to exit the venue the same way they entered.

Thank you for taking the time to read my letter.

Bruce Gerencser
345 East Main Street
Ney, Ohio 43549

I received a prompt reply from Miller City’s athletic director. She assured me the matter would be looked into and changes made so handicapped people don’t face this or similar problems in the future. I appreciated Deb’s thoughtful reply. As of the writing of this post, I have not heard back from the OHSAA.

I am a professional photographer. During the winter months, I attend local high school basketball games. I take numerous photographs, sharing them with the players and their families on Facebook. On a few occasions, I have even made a few bucks off my work. I thoroughly enjoy watching high school sports (both boys’ and girls’), so attending the games and photographing them provides a brief respite for me as I struggle with chronic pain and disability.

This past season, I attended thirty or so games. It’s tournament time now, so opportunities to see local teams play are becoming fewer and fewer. I have grandchildren in the Tinora and Stryker school districts, and my oldest granddaughter plays for Stryker, so I try to attend as many Tinora and Stryker games as I can. I live in the Fairview school district, so I try to attend their games as well. During the latest holiday season, I donned my red stocking hat as I attended games, leading to countless adults calling me Santa Claus, and more than a few children wondering if I was the “real” Santa. (Seriously, if I was Santa Claus, would I be spending winters in Ohio? Not a chance!) Bit by bit, high school players I have photographed have struck up conversations with me. I have learned much about high schoolers through these conversations. Attending games gives me opportunities to get out of the house, even when I don’t want to. As people with chronic pain and illness will tell you, they have to battle the tendency to want to curl up in a corner and be left alone. In my case, I know it’s good for me to be out and about, even if it causes my pain levels to rise.

In 1997, I was diagnosed with Fibromyalgia. Since then, the list of my afflictions continues to grow. I daily battle unrelenting chronic pain from the top of my head to the bottom of my feet. Over the weekend, I was sitting in my recliner watching TV with lover, friend, and caretaker, AKA Polly. All of a sudden, my left foot felt like it had been repeatedly hit with a hammer. My toe, if you can imagine this, was pulled back to about the ten o’clock position. For thirty or so minutes my foot throbbed with pain. I tried to walk, but I couldn’t. Finally, the pain subsided, the tears dried, and I returned to watching TV. Just another day in the life of a chronic pain sufferer. You never know what you’ll face on any given day.

I also have osteoarthritis in my neck, hands, hips, shoulders, upper back, lower back, knees, and feet. In other words, Uncle Arthur is my constant companion. Throw in high blood pressure, diabetes, incontinence, and bowel problems . . . well, life is grand. It is what it is. I embrace every day as it comes, grateful that I am still among the living.

When I attend public events such as the aforementioned basketball game, I plan my day carefully. I always arrive at least an hour early. This allows me to get parking close to the entrance, and it helps me avoid dealing with rude and inconsiderate people as they push and shove their way towards their seats. Arriving early also allows me to find seating that accommodates my handicap. At basketball games, I prefer to sit on the first row at floor level. I haltingly walk with a cane, so it is best for all involved that I don’t attempt to walk up or down bleachers. I have fallen on more than a few occasions. I suspect if three-hundred-and-fifty-pound Bruce Gerencser landed on someone it would cause serious harm. I do all I can to avoid contact with others.

Seating, of course, is not my only concern. I also have to contend with access to concession stands and bathrooms. I try to go to the concession stand when there are not a lot of people in line. Bathrooms provide a unique and, at times, harrowing experience. Public school bathrooms are supposed to be ADA compliant, but older schools are not required to follow the code. On several occasions I have had to back into stalls, shut the door, and then turn around just be pee. Zeus help me if my bladder is screaming, Gotta go NOW! Accidents happen, and all I can do is hope that no one notices the dark wet stain on my blue jeans. And going #2, as my grandchildren say? I avoid that like the plague. Everything from small stalls, cheap single-ply toilet paper, and my suspenders coming loose, conspire to make taking a dump — another euphemism for defecation which my grandchildren use — a nightmare.

I write all this to give some context as to why someone saying to me, “It’s Not Too Far Away, You Can Walk it” is a big deal. The last thing I need is for someone to dismiss my disability — even if the person does so innocently — because he was in a hurry, or just following the “rules.” I have learned that the only way for disabled people to be heard is for them to shout loudly above the noise of the crowd. In my case, shouting loudly means writing letters, emails, or blog posts. By doing so, I hope that people will be educated about the difficulties the disabled face when attending public events.

How NOT to Talk to Someone With Chronic Pain or Debilitating Illness

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new pain schedule

Several days ago, I received an unsigned letter from a sixty-four year old atheist woman. After reading my member introduction in the September 2017 Freedom From Religion Foundation newsletter, Freethought Today,  and rooting through my blog looking for personal health information, this woman decided to send me a typed two-page letter detailing her uneducated, ill-founded opinion of my weight and health, along with numerous paragraphs detailing what I should do to regain the Bruce of the 1970s.  At the end of her deconstruction of my physical being, she spent thirty-eight words complimenting me on my beard and thanking me for my story in the newsletter.

I sat on this letter for several days, waiting for my anger to calm before answering it. Yesterday, I talked to my counselor about the letter and why it is that people who don’t know me and don’t know my health background think it is appropriate to send me letters such as this one. It would be one thing if someone who was close to me talked to me about this or that health matter, but even then, no one, not even my wife, knows the depth and complexities of my health problems. People only know what I tell them, and trust me, there is a lot I don’t talk about. That I am willing to talk about my struggles with chronic pain and debilitating illness at all is deemed by zealots and nuts as an opening for them to preach their gospel — complete with shaming me for “sin” and using my children and grandchildren as bait to attract me to their particular way of life or “cure.”

I have received numerous letters from people offering unsolicited medical and lifestyle advice. Over the years, I have been told that the following will “cure” me or transform my pain and illness to a mere afterthought: essential oils, chiropractic care, magnets, acupuncture, reiki massage, homeopathic remedies, meditation, getting my chakras aligned, drinking magical shakes, and taking this or that supplement — more times than I can count. According to many of the people offering advice, Western medicine is evil, drug companies are out to kill me, and medical professionals are deliberately withholding care and treatment  that would cure me because they want to make money off my pain and health.

My latest letter writer takes a more simplistic approach, albeit she is every bit as ignorant of the latest science related to my health as the purveyors of the woo mentioned above. She contends that if I would just exercise more, lessen calorie intake, and not drink soda pop my life would be transformed. She assumes, of course, that I am NOT already doing these things, choosing instead to look at my photograph, seeing that I am fat/overweight/obese, and conclude that I am not following her prescription for having a born-again experience. The letter writer assumes that what worked for her will work for everyone else. She ignores the fact that human bodies are complex and what may work for one person won’t work for others.. She also ignores genetic and environmental factors, choosing instead to focus on my body size. In many ways, she is much like Evangelicals who attempt to deconstruct my life, refusing to allow me to tell my own story. Instead she takes her atheistic religious health experiences and uses them as a standard by which to judge me.

Simply put, the letter writer is not in the position to make ANY judgments about my health or offer ANY advice as to proper treatment. I have a primary care doctor, along with medical specialists who provide me necessary and adequate care. I am satisfied with their care, knowing that the health problems I have, for the most part, cannot be cured. All my doctors can do for me is try to improve my quality of life and lessen my pain. I have told my primary care doctor several times that I don’t expect him to fix what can’t be fixed. I have accepted that this is my life — live with it, Bruce! I know that my health problems began when I was a slim, trim athletic fourteen-year-old teen. Genetics, exposure to dangerous chemicals that landed me in the emergency room, and communicable diseases set the stage for how things are for me today. A near-death experience with mononucleosis in 1991 and two bouts with pneumonia left my immune system wrecked beyond repair. The letter writer understood none of these things, choosing instead to just see a fat guy who, she thinks, eats too much.

The letter writer is offended by my stoic, matter-of-fact approach to my life and health. I was diagnosed with Fibromyalgia twenty years ago, and with neurological problems in 2007. For a time, doctors thought I might have multiple sclerosis. The symptoms fit, but the tests, so far, are inconclusive. Over the past two decades, osteoarthritis has slowly marched its way through my skeletal system. A visit to an orthopedic specialist last year revealed osteoarthritis in my hands, knees, feet, lower spine, neck, and shoulders. In other words — everywhere. The combination of these three diseases (and joint injuries) has left me disabled — another word the letter writer hates. Tough shit. That’s what I am: d-i-s-a-b-l-e-d.  Most days, I walk with a cane, steadying myself so I don’t fall and break something. Sometimes, I use a wheelchair — a sign to the letter writer that I am giving up. (Want to guess how many times I wanted to say go fuck yourself as I read her letter? You will need all your fingers and toes.)

The letter writer spends most of her sermon preaching about my weight. Evidently, she doesn’t care for fat people, nor does she understand that body shaming is no longer considered acceptable conduct in polite company. Friends accept people as they are. I know I would never, ever write someone a letter like the one this woman wrote to me. Perhaps she thinks that because she is in her sixties, she has earned the right to say whatever she wants. I want to give her the benefit of the doubt, but it is hard to do so when I view her letter as a personal attack — an assault on who and what I am.

The letter writer reveals that she really doesn’t understand current scientific evidence about body weight and weight loss. She wrongly says that weight loss is as simple as reducing caloric intake. This thinking is patently false, and can, at times, be dangerous or even life-threatening. She also assumes that I don’t manage caloric intake and eat healthily. I do, about ninety-five percent of the time. Since last November, I have lost forty pounds. Massive bowel movements? Fluid loss? I don’t really care. I try to eat healthily, and when I do not, I don’t lose one moment of sleep over it. Life is too short. If eating ice cream is going to be the end of me, so be it. Praise Jesus, I will leave this life with the sweet taste of rocky road ice cream on my lips!

The letter writer tells me in capital letters, DO NOT EAT IN RESTAURANTS. This must be one of her religion’s commandments, and if it is, NO THANK YOU. Polly and I spent the first twenty-five years of marriage rarely eating out. We couldn’t afford it. Now we can, and me and the Mrs. plan on enjoying as much good food (and wine) as we possibly can. At home, my wife is a first-rate gourmet cook. She has the pans, knives, oven and cookbooks to prove it. Only food zealots would have a problem with what we eat.

The letter writer also shows a lack of understanding about pain and how narcotics work — wrongly believing that narcotics make pain go away. Sorry, but that’s not how it works. Massive amounts of narcotics might take pain away, but they also render people unable to do much of anything but sleep. I have been on a pain management regimen for twelve years. The goal is to break the pain cycle so I can have a better quality of life. Pain levels, rise and fall, but the pain never goes away. I haven’t had a pain-free day in years.

The letter writer tells me that a pain-free life is overrated, that I shouldn’t take narcotics (take aspirin or ibuprofen instead), and that since I AM taking narcotics I shouldn’t need to use a cane or wheelchair. According to her, if I would just lose weight, exercise more, all would be well and I would no longer have to use my cane or wheelchair. Calling my pain medications a crutch, she implores me to let pain have its way with me. This woman has serious health problems herself, including a major bout with cancer. I wonder how she might have felt had I come into the room after her surgery and told her what she had told me about pain. No need for morphine! Own your pain! Just take Aleve!

I am of the opinion that there is little value in ignoring pain or embracing it because there is some sort of nobility gained from not taking pain medications. Sorry, but I choose to live as pain-free of a life as possible. I choose to embrace my pain, but I am sure as hell not going to let it ruin my life by reducing me to an old man curled up in a fetal position wishing he could die. By properly managing my pain (and other aspects of my health), I have the ability most days to do the things I want to do. Some days, the pain meds simply don’t work. On such days, I endure, knowing that surely better days lie ahead. And if they don’t? Then I will embrace the present as my new normal.

you can do it

Finally, the letter writer should have plumbed the depths of my personality before sending her sermon my way. Had she done so, she would not have taken the motivational YOU CAN DO IT, OH YES YOU CAN approach. I loathe such approaches to life, and when someone tries to “motivate” me this way, their attempt always fails. I am a rationalist who approaches life in a matter-of-fact way. I don’t need anyone to cheer me on. I am quite capable of determining for myself what I need to do, and then doing it. And if I do ever need a bit of Richard Simmons-like motivation, I look to my wife, children, and grandchildren for reasons to get up in the morning and keep moving. I drove my ex-daughter-in-law crazy (as did her husband) because I wasn’t happy as a seal with a ball at parties and family events. I tend to be quite reserved emotionally, choosing to show my gratitude or praise with words such as fine, that’s good, good job, thank you, or I appreciate it. I don’t get all wide-eyed and slap-happy. People who know me understand that when I say something is fine, that is a high praise coming from me (except when I say fine when answering, How are you doing? Then, I am usually lying). I, for one, am quite tired of being treated as if there is something wrong with me if I don’t have excitable emotional outbursts when expressing my approval of people or events. Who decided that being all jacked up on Mountain Dew is the only proper way to respond to things?  (Please read Bright-sided: How Positive Thinking is Undermining America by Barbara Ehrenreich.) Fuck that. I am who I am, and I am quite happy with being the one and only Bruce Gerencser on planet earth. Woo! Hoo! Ain’t I a special snowflake!

Let me be clear, when it comes to my health and the medical treatment I receive, please keep your thoughts, opinions, sermons, and dogma to yourself. You may have stayed in a Holiday Inn, but you are not my doctor. I’m fine with close friends or family members sending me links and asking me if I have read this or that report or study. Most often, since I am an INFORMED sufferer of chronic pain and debilitating illness, I have already read the report/study. I appreciate that they genuinely care about me and hope that something will come along and improve my lot in life (money, lots of money – that will work). For everyone else? Please don’t. Don’t email me, don’t write me letters, and don’t post on my Facebook wall whatever it is you think will transform my life. Chances are it won’t, or I have already tried it without success. Love me as I am and when you hear of my demise, be it today, tomorrow, or ten years from now, I hope you will remember me for the good I have done. Like everyone else, I want acceptance and respect from others. This letter writer demonstrated neither.

About Bruce Gerencser

Bruce Gerencser, 60, lives in rural Northwest Ohio with his wife of 39 years. He and his wife have six grown children and eleven grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

Bruce is a local photography business owner, operating Defiance County Photo out of his home. If you live in Northwest Ohio and would like to hire Bruce, please email him.

Thank you for reading this post. Please share your thoughts in the comment section. If you are a first-time commenter, please read the commenting policy before wowing readers with your words. All first-time comments are moderated. If you would like to contact Bruce directly, please use the contact form to do so.

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Better to Try and Fail Than Not Try at All?

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failure-homer-simpson

People who suffer with chronic illnesses are often accused of giving up or giving in. Irrational hyper-optimism has so infected the American psyche, that those who embrace their lives as they are often are looked down upon. Put mind over matter; never give in; be pro-active, always hope for a better tomorrow; these and other cheap clichés are often recited to the chronically ill, implying that their illnesses are somehow their own fault. If they would just take this drug, have this treatment, or see this doctor, then all would be well. An unwillingness to do these things is often viewed as laziness or giving in. Often, people take their own experiences and project them onto others, thinking that their outcomes would be the same for everyone if they would just follow the same course of treatment. People who think in this manner can often oppress and hurt chronic-illness sufferers, even when they don’t intend to do so. A recent health-related dust-up on social media has left me wondering if I should continue to write about my health problems and my battle with chronic pain. While I find writing about these things to be psychologically and physically helpful, sometimes the responses from readers can undo any of the health benefits gained from the writing.

I’ve repeatedly been told that I need to keep trying; that it is better to try and fail than not try at all. While I am sure people who say this to me mean well, I wonder if they have ever considered how such cheerleading can actually hurt those who are struggling just to make it to another day. I was diagnosed with Fibromyalgia 18 years ago. Since then, the laundry list of health problems I have has continued to grow. No matter how many doctors I see, how many tests I have, or how many different drugs I try, I still wake up every morning in pain. I know that there is no cure on the horizon. No magic potion is going to undo the damage done by two decades of fighting with the medical equivalent Mohammed Ali.

I have moments when I pretend that I can ignore my body and do what I want. Thanks to a decade of medical treatment, we are swimming in medical debt. Because of changes in our medical insurance, twenty-five to thirty percent of our income is spent on medical bills — mostly mine. I find it almost unbearable to watch Polly walk out the door every day, knowing that 25% of that day’s earnings will go towards my medical expenses.

Recently, I once again ignored reality and decided that I would get a job so I could help pay the medical bills. I need employment that will allow me to sit while I work and take frequent breaks. Showing up for an interview in a wheelchair or haltingly walking with a cane usually results in the interviewer telling me, thanks for applying. We will keep your application on file. So, as I did recently with an interview with Meijer, I pretended that I am not a cripple. And just like that they offered me a job. Would they have offered me the job if I was in a wheelchair or walk with a cane? I doubt it. I’m sure if I told them that I have arthritis of the spine and can only stand for 15 or so minutes at a time, they would have politely told me that they had no job for me. Yes, the law says employers must accommodate the handicapped, but in the real world a 60-year-old cripple has little chance of winning a job over a healthy 25-year-old. Discrimination against the handicapped and older prospective employees happens without employers ever saying a word. I try to remember back when I was young man responsible for hiring employees for the various companies I worked for. Young and able-bodied were always preferable to old and crippled. In the case of Meijer, they are so desperate for workers, that they were willing to hire a broken-down old man such as I. As my orientation day drew near, Polly and I had a heart-to-heart talk about whether I could really do this job. Mentally, I told myself, sure, I can do this. But, knowing that I can’t stand for longer than 15 minutes at a time means that it’s impossible for me to work the floor or run a cash register at Meijer. Polly, who knows better than anyone (including myself) what I can and can’t do finally persuaded me to not take the job. As is often the case when it comes to my health, she has a lot more sense than I do. I can deceive myself into thinking that I can do something, when Polly knows I can’t. This is not me giving up or giving in as much as it is accepting things as they are.

After turning down Meijer, I decided to try my hand at a work-from-home job with Amazon. I entered training with grand ambition, thinking that I had finally found something that I could do. Amazon’s training was quite extensive and grueling, yet I passed all the exams and was in the top five percent of my class of 650. Based on several conference calls with other new hires and management, I determined I was by far the oldest man in my group. Most of the new hires were in their twenties and thirties, as were many of the members of management.

Encouraged by Polly and my counselor, I continued to slog through the training even though I was worried about remembering everything I had learned. Both of them told me they were sure I could do the job.  After completing the  training, I was deemed a newly-minted customer service representative — ready to start taking live calls. I thought, I know I can do this. A part of me knew better, but all I could think of was our increasing debt, so I pushed my better judgment aside and answered my first call. The call started well — a man wanting to know why his order hadn’t been delivered — and then what I feared would happen, did. I couldn’t remember what I needed to do next. My mind literally froze — covered with a pain-laden, fatigued cloud. The customer became frustrated with me and hung up. After emotionally regrouping from my failure,  I took another call only to have continued cognitive problems. I could not remember what I needed to do. This customer, instead of hanging up on me started screaming, so much so that I hung up on her. After this call, I mentally collapsed, knowing that I was unable to do what the job required. Several days later, Amazon and I agreed that it was best if I resigned, and so I did.

The Amazon catastrophe has caused great psychological damage and pain. Pushed to the very edge of the abyss, my thoughts turned to suicide. While the suicidal thoughts faded after a couple of days, the assault on my mind remains the same. It’s hard not to feel worthless, that I am little more than a burden on my wife and family. They will certainly tell me that I am not, but it’s hard not to think that I am. This is usually the point where well-meaning people interject one of their cheap clichés about making lemonade when life gives you lemons. I am always polite when people say one of their Oprah-like maxims, but there are days when I want to tell them, until you’ve walked in my shoes, shut the fuck up.

If you’ve noticed in recent months that the volume of my writing has diminished, now you know why. Things are better than they were a month ago, but I’m far from being ready to tackle another job opportunity. I do have thoughts of trying to make some money using my photography skills. In particular, I am considering starting a real estate photography business. Several of my children have recently bought homes, and the common denominator with all the homes they looked at was that the property photographs were terrible. I mean a-w-f-u-l. I plan to send out letters to local realtors offering to do their property photography. Several years ago, I applied for such a job with a local realtor only to be told by her that I was so overqualified that she didn’t believe I would keep the job for long. I tried to explain to her that she need not worry about that, but her mind was made up.

I hope this new business venture will prove to be viable and profitable. If it’s not, we will be forced  to make some serious cuts in our budget. Hoping for a better day doesn’t change the fact that there are bills to pay. It used to be that it was easy to work out payment plans for medical debt, but now the physicians group my doctors are a part of will only make a payment arrangements for up to 12 months. After that, they demand you borrow the money to pay the debt. Last year, we had to borrow $5,000 to pay for my previous round of tests and procedures. While I’m not ready to throw in the towel, the daily pressure of these things makes it hard to focus on a better tomorrow. For those who have walked a similar path, you know what I’m talking about.

[signoff]

Chronic Pain and a Football Game

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tinora-vs-ayersville-2016

It is a beautiful Friday night in rural Northwest Ohio. Football weather — the time of year when I go to local high school football games with my sons. While none of my grandchildren is old enough to play football, I do enjoy watching young men battle it out on the gridiron, each hoping to be that night’s victor.

On this Friday, the game of choice is Ayersville vs. Tinora — billed as THE must-see game. I arrive early at the field so I can secure a good seat. Second row up, 50 yard line, perfect for viewing and photography. As always, I have brought my camera, hoping to shoot a few keepers before the darkness of the night forces me to stop.

I am the first person in the stands, but not for long. Soon the bleachers start to fill. By game time, late arrivers will be forced to stand along the fence that cordons off the stands from the field. I smile as I think of those who will have to park great distances away from the stadium. The early bird gets the best seat, I think to myself, and Bruce Gerencser is ALWAYS early.

I soon settle into my seat. I sit, thinking of nothing but how nice the weather is for a September football game. By the time the Ohio High School Athletic Association crowns its divisional champions, the weather will have turned cold and snow will blanket the landscape. Today, I will enjoy the warmth of the sun and the balmy breeze that make it a perfect night for a football game.

Eyes closed and head tilted slightly towards the sun, I bask in the nothingness of the moment; that is, until my state of mindfulness is rudely interrupted by an elementary school boy. A younger family with children arrived a few minutes ago, taking up seats several rows above mine. Their restless son, unable to contain his energy, jumps from his row to mine, landing on the metal stands with a big thud. My seat bounces as his feet hit my row, causing me to abruptly return to reality. Not thinking, I said, quite loudly JESUS! Better than a swear word, right? The mother is offended by my utterance, choosing to ignore how her son actions in using the stands as a trampoline might affect others.

The young family soon moves to different seats. Did my taking the Lord’s name in vain cause them to move? I don’t know. Not that I care. As the stands continue to fill, an elderly man and his forty-something son make their way into the bleachers. I always sit on the end of the row. This allows me to control who sits next to me and it also allows me to stand up and move when people need to go to the bathrooms or concessions. I know I am a big guy, and not wanting a night filled with lap dances, I prefer to stand up and move into the common aisle so people can get by me.

Sitting on the end of the row has its disadvantage too. Over the years, I have been repeatedly beaten with purses, coolers, and the like as people make their way to their seats. Some people say sorry, but most often they ignore their personal assaults on my body. I accept that this is the price I pay for sitting near the common aisle. Tonight is no different. As the father and the son make their way up to their seats, both of them plow into me as if I didn’t exist. Soon they settle into their seats right in back of mine. This begins what will be a night-long beating from both of them. I have suffered many such beatings before, so I smile, grit my teeth, and say nothing. I am still the polite Christian, I think to myself. I want to tell my oppressors, Dammit, PLEASE stop hitting me. But I say nothing, choosing instead to slide forward on my seat, hoping that the extra distance will keep me clear of their feet and knees.

The son brought with him an oversized stadium seat, a seat so large that my son asks him to move it so he can sit next to me. My sons are far less “Christian” than I am these days and are quite willing to ask people to remove themselves from their personal space. The man quickly complies, but as he does, his metal-framed chair smashes into my back, causing my pain-wracked body to scream its objection. Before I can turn towards the man and give him my really, asshole? face, he slaps me hard on the back twice and says, sorry ’bout that.

I can feel my face flushing with anger. I want to tell the man what I think about his assaults on my body and personal space, but I say nothing, choosing instead to weakly say, that’s okay. It’s not okay, I tell myself, but what’s to be gained by telling this man what I really think? My grandchildren are sitting next to me, and their friends’ families sit nearby. What will they think of me and our family if I give this man the verbal lashing he so richly deserves?

I reach for my pain medication, taking a double dose, choosing to suffer in silence. I am here to watch the game, my inner Bruce says. Ignore this asshole. Half time arrives and the game of the year is a blowout. The Tinora stands are quiet, shocked by the beat-down Ayersville is putting on the home team. With four minutes left in the game, I decide to leave, hoping to escape the throng that will soon pour from the stands.

I gingerly make my way down the stands to the walkway that leads to the parking lot. I walk haltingly, relying on my cane to keep me from falling over. Free from the man who assaulted me, I wrongly assume that I am safe from further indignities. As I walk slowly to my car, filled-with-life teens run into me. With a quick sorry uttered to a stranger, these youths continue to playfully run, hoping to catch friends. I don’t blame them for running into me. I remember when I was their age. I had little thought of others and how my actions might affect them. I don’t, however, have the same sympathies for the adults who rush by me, hoping to beat the traffic. Surely, they know better, I think to myself. By the time I reach my car, I have been run into countless times. I feel as if I have been forced to run a gauntlet. I unlock the car door, open it, and slowly pull myself into seat. I sit for a few moments, a tear of exhaustion in my eye. I can’t do this anymore, I tell myself.

In a few moments, my mind and body settle down enough for me to start the car and head for home. Several hours later, I text my son: “Tinora vs. Holgate next Friday. Want to go?”

We’ve Only Just Begun

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bruce and polly gerencser 2015
Bruce and Polly Gerencser, Summer 2015

Forty years ago, a young man from the flatland of rural northwest Ohio moved to Pontiac, Michigan to study for the ministry. Also enrolled at Midwestern Baptist College was a young woman who hailed from Bay City, Michigan. What follows is their story.

The young man packed his worldly goods into his beater of a car, and waving goodbye to his Mom, drove out of the trailer park, turned east on U.S. Hwy 6 and set a course for Pontiac, Michigan. His mother had kissed him goodbye, letting the young man know how proud she was that he was the first Gerencser to go to college. He pushed her away, uncomfortable with her display of affection, a behavior he would one day regret. The young man thought, finally, away from the craziness and the drunkard husband.

Two-and-a-half hours later, the young man turned off of Golf Drive onto the driveway for Midwestern Baptist College. He stopped his car in front of the dormitory so he could unload his belongings and move them to his assigned dorm room — room 207. On that day, the young man wore a maize and blue shirt with the number 75 on the front and the word REV on the back. This shirt was a gift from a young woman who hoped the young man would remember her. He didn’t, knowing that enrolling at Midwestern would provide him ample opportunity to meet attractive Fundamentalist women. He would soon learn that a wide-open field of romance would quickly fade in the beauty of a dark-haired, beautiful young woman.

Shortly after classes began in the fall of 1976, the young man and young dark-haired woman began flirting with one another. At first, they sent flirtatious notes, often meeting up for card games in the dormitory kitchen. While both of them would briefly date other people, by the end of September, the young man and young woman decided to give dating one another a try.

They were an odd match. The young woman was quiet and reserved, rarely speaking more than a few words. The young man, on the other hand, was a talker, and opinionated. He lived life in the fast lane, serving Jesus, yet pushing the lines of Fundamentalist decorum and acceptability. Years later, the young woman would tell him that she was drawn to his wildness — her bad boy.

Midwestern Baptist College — a Fundamentalist institution founded by Dr. Tom Malone, the pastor of nearby Emmanuel Baptist Church  — had strict rules concerning dating and male/female interaction. Dating couples were only allowed to date on Saturday evening and after Sunday night church. Couples were required to double-date, and all dates had to be approved by dorm supervisors. Couples were not permitted to travel beyond a ten-mile radius from the college. Coupled were not permitted to have any physical contact with each other. Breaking this rule would result in being campused — meaning that offending couples were not allowed to date off campus. Repeated infractions led to being kicked out of school.

The young man and young woman quickly found that keeping the six-inch rule — the width of a songbook — was impossible. Fearing expulsion, they sought out other dating couples that also found the no-contact rule a strain on their relationships. On date nights, the young man and young woman could now snuggle close to one another and hold hands. As with all young couples with raging hormones, their desire for physical intimacy increased as time went along. Yet, fearing being discovered and expelled, the young man and young woman — for three months — didn’t kiss.

Christmas of 1976 found the young man visiting the young woman at the home of her parents in Newark, Ohio. The young woman’s father was a preacher — a recent graduate of Midwestern. Her father was the assistant pastor of the Newark Baptist Temple — an Independent Fundamentalist Baptist church pastored by the young woman’s uncle, Jim Dennis.

One evening, the young woman’s mother asked her to retrieve their clothing from the laundry room. The young man followed along, and it was there, in an apartment laundry room, the young couple kissed one another for the first time. Many kisses would follow, but neither of them would ever forget that one brief moment where they were able for the first time to express their love for one another.

Love for one another? Yes, their relationship quickly moved from casual to serious, culminating in the young couple’s engagement on Valentine’s Day 1977. A quarter-carat diamond engagement ring was purchased from Sears and Roebuck for $225, sealing their commitment to marry in July of 1978. Little did they know that the young woman’s mother would do everything in her power to foil their plans, going so far as to tell her daughter that she forbade her to marry the young man. He comes from a divorced family, her mother said, and divorce is hereditary.

After a year of pressuring the young couple to abandon their plans, the young woman’s mother relented and consented to the wedding — not that she had any other option. For the first time, the young woman stood up to her mom, telling her that she planned to run off and get married if she continued to oppose her marriage to the young man.

Polly and Bruce Gerencser, Wedding July 1978
Polly and Bruce Gerencser, Wedding July 1978

July 15, 1978, was a hot and humid day. There was no air conditioning at the Newark Baptist Temple, not that this mattered to the young couple. Their special day had finally arrived, the day when they would become Mr. and Mrs. Bruce Gerencser. Their friends from college, along with family members and church members, filled the pews to witness the joining of the young man and young woman in holy matrimony. Songs were sung, vows were exchanged, and then, with a kiss for luck, they were on their way, innocent of where their life together would take them.

Six weeks after their wedding, the young man came home from work and was met with the news, I’m pregnant. Nine months later, the first of the young couple’s six children was born in Bryan, Ohio. After almost three years at Midwestern, the young couple was forced to drop out of college and move to the Bryan – the birthplace of the young man. This would be the first of many moves for them. Over the next thirty-eight years they would move numerous times, living in dozens of rental houses.

Life was not easy for the young married couple. Ignorance about how to manage money quickly led to all sorts of problems. Years later, the young man, now a seasoned Baptist preacher, would remark, it took us a few years to figure out that you had to pay the electric bill to keep the lights on. They faced numerous problems, wondering if their marriage would survive – thus proving the young woman’s mother right: divorce is hereditary. Survive they did, and here on July 15th they will celebrate their thirty-eighth wedding anniversary.

The young couple walked out of the Newark Baptist Temple, cheered on by family and friends — two innocents wondering what fate would hold for them. Six children, one with Down Syndrome. Poverty. Moves to Michigan, Texas, Arizona, and Ohio. Bankruptcy. Health problems. Constant struggles to survive, living on poor wages and food stamps. Leaving the ministry and losing faith. Yet, despite stresses that often cause marriage failure, the commitment and love of the young couple endured. Seasoned by adversity and failure, the pair — now nearing their 60th birthdays — continue to honor the vows they made to one another years ago.

Later today, the ageing couple will celebrate their wedding anniversary with a meal at a fancy restaurant and a night of watching races at a local dirt track. They will make jokes with another, promising hot, torrid sex before the night is over. And more than likely, once they arrive home, they will each give the other the look, the one that says, I’m tired, maybe tomorrow. Climbing into bed, they will turn to one another — just as they have thousands of times before — and say, I love you. The young woman, now with gray hair and weathered skin, will quickly fall to sleep, leaving the young man to his thoughts; thoughts of a well-lived life, of love and commitment and adversity and failure. But thoughts, most of all, of the fact that he is the luckiest man alive.

Soon the young man — now with a white beard and failing health — will gently run his fingers through his sleeping love’s hair, pondering the life they have shared together. His mind will likely return to a basement laundry room and the moment where he realized that the young woman in his embrace was his one and only. Forty years later, she remains not only his wife and lover, but also his best friend and confidante. Life is good, he will say to himself as he drifts off to sleep, hoping that come morning he will have one more opportunity to say, I love you.

Facing Life and Death Without God

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life

Christianity offers its followers the promise of life after death. No matter how difficult and painful this life is, Christians are promised wonderful lives after death living with Jesus and their fellow Christians in a perfect, pain-free heaven. While I wonder how heavenly it is to spend your life prostrate before God worshiping him, Christians live in the hope that someday they will take possession of a room in the Father’s house, built especially just for them. (John 14) Without the promise of life after death in heaven, I wonder if most Christians would still be willing to forgo the pleasures of this life? While some Christians would argue that living according to the laws, teachings, and precepts of the Bible is still a good way to live, I suspect most Christians — without the promise of eternal life and bliss — would quickly abandon their houses of worship, joining people such as myself at the local pub or the church of the NFL. After all, even the apostle Paul said, If in this life only we have hope in Christ, we are of all men most miserable. (1 Corinthians 15:19) Evidently, Paul thought that in this life only Christianity had little to offer. And so Sunday after Sunday, Christian preachers promise parishioners a home awaits them in heaven. According to the Bible, God promises some day to give Christians the desires of their hearts. Wait. Does that mean there will be booze, porn, cigars, dirt track racing, and hunting in heaven? Will heavenly citizens spend their days playing Nintendo or Xbox games? Will God really give Christians the desires of their hearts? Hmm, this got me thinking about the whole going-to-heaven thing. I know a con job when I hear it. What better way to get people to buy what you are selling than to promise them that they will have a wonderful life if they will just sign on the dotted line. A wonderful life, that is, someday, after you have made the 666 monthly payments and died.

Atheism offers no such promises. Atheism is rooted in a humanistic and secularist view of the world. No promises of a divine life in the sweet by and by. Life is hard, and then you die. No promises of blessings in this life or the life to come. Some have argued that atheists have a cold, sterile outlook on life. To some degree this is true. Atheists are realists, knowing they only get one shot at life— best get to living it. Life is what we make it, and even when hard times come (and they will most certainly come), atheists find a way to make the most of it. I could spend my days whining and complaining about my health problems, but what good would that do? Instead, I turn my pain and suffering into a platform for helping others. I can look at the five decades I spent in the Christian church and say, what a waste, but I choose to use these experiences as an opportunity to help others. I know that this is the only life I have, and it is up to me to make the most of it. Spending time wondering about what might have been accomplishes nothing. As my family has heard me say many times, it is what it is. Sure, if there were some magical way to redo certain things from my past I might do it. But maybe not. Polly and I will celebrate our 38th wedding anniversary this July. We met at a Fundamentalist Bible college. If nothing else good came out of our past, both of us would say — on most days — that our relationship was the best thing about our years in Evangelicalism. I would not want anyone to follow the same path we did, yet we do have six wonderful children and 11 awesome grandchildren. They indeed are the bright spots of the years we spent working in God’s coal mine. I have learned, or perhaps I am learning, to reflect on the good of the past, and use the bad things to fuel my writing and my attempts to help others avoid similar paths.

I will celebrate my 59th birthday in June. I have lived 12 years longer than my mother and five years longer than my dad. There are days when my body is so overwhelmed with pain that I wonder if I can live another day. The means of my demise are always nearby, yet despite my suffering I choose to live. Why? Because this is the only life I will ever have. I only have one opportunity to love Polly, Jason, Nathan, Jaime, Bethany, Laura, Josiah, my grandchildren, my brother and sister, and Polly’s mom and dad. I know that when I draw my last breath, there will be no family circle meeting in the sky — sorry Johnny! This is why I want to live each and every day to its fullest. This is not a cliché to me. This life matters. My wife, children, grandchildren, son-in-law, daughters-in-law, siblings, extended family, and friends matter to me. I know that I am only going to see them and enjoy their company in this life. There are places I want to go to and see. I want to enjoy and experience the fullness of what it means to be human. And since casting off the shackles of religion, I have been free to drink deeply of the human experience. No longer fearful of God’s judgment or hell, I am free to see, touch, taste, and hear the things I desire. Yes, there is that dirty word that dare not be spoken in Evangelical churches — desire. I spent way too many years denying passions, desires, wants, and needs, all for the sake of God, Jesus, the church, and the ministry. No more. It is wonderful to do something just because I want to. I do not have to pray about it or see if the Bible approves of it. Bruce approves, end of discussion.

When I write posts such as this, there are always a few horse-bridled Christians who let me know that there is coming a day when I will regret not bowing to the will of the S&M master, Jesus. Someday Bruce, Evangelical zealots tell me, God is going to make you pay for your attacks on Christianity. Someday, God is going to judge you for your wanton living and rejection of the Bible. Sometimes, I think Christians such as these people relish the day when God is going to give atheist Bruce Gerencser an eternal ass-whipping. I am sure they will be standing among the crowd cheering and saying to God, hit him again! He deserves it, Lord.

I have been blogging now for going on nine years. I left Christianity in 2008, and since then countless Evangelicals — along with a few Catholics — have attempted to win me back to Jesus through the use of Pascal’s Wager. The basic premise is this, Bruce, what if you are wrong? Good question. Since I am not infallible, nor do I have at my disposal the sum of all human knowledge and experience, all I can do is make reasoned, knowledgeable decisions based on the evidence at hand. I can tell readers this much: I have been wrong many, many times. Not only that, I have made enough mistakes that if you piled them up they would reach to the International Space Station. I am, after all, a feeble, frail, and at times contradictory, human being. I can, like all people, be led astray by my passions, judgments, or incomplete information. I am not immune to irrationality and cognitive dissonance. However, when it comes to Christianity and its promises of eternal life in heaven or judgment in hell, it is my educated opinion that the claims of Christianity are false. Trying to get me to choose Jesus just in case I am wrong makes a mockery of intellectual inquiry (and Christianity). Having spent most of my adult life in the Christian church and 25 years studying and preaching the Bible, I think it is safe to say that I know a good bit about Christianity. I cannot remember the last time that some Christian presented me with something I have not heard before. I am not being arrogant here — as I am sure some Christians will allege. I spent decades reading and studying the Bible — devouring countless Christian books. I immersed myself in Christianity and its teachings, so when I say I am no longer a Christian because I think the claims of Christianity and the Bible are false, my conclusions — unlike many Christian opinions of atheism — come from an educated, reasoned, well-thought-out position. Do I know everything there is to know about Christianity? Of course not, but I sure as hell know more than most the Christians (and preachers) I come in contact with on a day-to-day basis. My point is this: I am an atheist today, not out of ignorance, but because I weighed Christianity in the balance and found it wanting.

If Christians come up with new evidences for the veracity of their claims — and I doubt they ever will —  then I will gladly consider them. Until then, I am content to number myself among the godless. And when I die, I hope to leave this life knowing that I did what I could to be a help to others. I hope, on the day that my ashes are scattered along the shores of Lake Michigan, that my family and friends will speak well of me. I hope that none of them will have to lie, but that they will truly believe that my good works outweigh the bad. This is why I think that is important to finish well. I am sure Polly and my children have less-than-complimentary stories they could tell at my wake, but I hope, because I have made a concerted effort to be a better man, that they will share stories about a good man who just so happened to be an atheist.

I am often asked if I fear death. Yes and no. Since no one has died and come back to life — including Jesus — I do fear the blackness that awaits. There are been those times, late at night, when I have pondered being alive one moment and dead the next; going to sleep and never waking up. But this fear does not overwhelm me. I know that I cannot do anything about dying. It is, to quote the Lion King, the circle of life. We are born, we live, we die. End of story. All I know to do is to live a good life and be a good husband, father, grandfather, friend, and fellow citizen of earth. I have had the privilege of living at this time on humanity’s calendar, and when it comes time for me to draw my last breath, I hope my dying thoughts will be those of love. Love of family, love of friends, love of writing, love of photography, and love of all those who have made my life worth living. Will that not be what all of us desire? To love and to be loved? As dying pushes away all the minutia of life, what remains is love. For me, that will be enough.

Chronic Illness: Convincing Yourself Things Are Not as They Seem

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i am fine thanks

Regular readers know that I battle chronic illness and unrelenting pain from the moment I get up until the time I fitfully fall asleep in the wee hours of the morning. For those of you who are new readers, let me give you the short version of my medical resume:

I have Fibromyalgia, which causes pervasive fatigue and muscle pain. I also have nerve pain in my face, hands, and thighs, loss of motor function and strength, osteoarthritis in every joint, including my back, frequent loss of bladder control, diabetes, and high blood pressure. Since late last year I’ve gone through numerous tests in an attempt to figure out why I am losing weight and frequently don’t feel like eating. An endoscopic ultrasound found a lesion on my pancreas and enlarged lymph glands. So far, they have not turned cancerous. I’ve been treated twice this year for squamous cell carcinoma (hip and lip) and several years ago I had a basal cell carcinoma removed from my nose. I have a labrum tear in my right shoulder and joint damage in my left shoulder, feet, and knees.  I require the use of a wheelchair and/or a cane to get around.

This is my life. There’s little I can do to change it. I hunker down and try to live the best way I know how. It’s been a decade since I’ve had what I call a good day. These days, a good day is one where the pain is manageable and I can work in the office for a few hours and maybe go to a football game with my sons. A bad day is one where narcotic pain medications do little to ameliorate my pain and I am left curled up in bed wishing I were dead. Depression is the dark passenger in my life, and there are times when I fight the desire to end the suffering and pain.

I know there is no cure on the horizon, no magical drug that will make everything better. I’ve been tested, retested, and tested again, so much so that I glow in the dark. I have blood work at least six times a year.  My last blood draw required seven vials of blood, and that was after the phlebotomist stuck me three times trying to find one of my deep veins that would give enough flow to fill seven tubes. Despite all these tests, I remain, to some degree, an enigma to doctors, a patient with symptoms that don’t neatly fit into a specific diagnosis box.

As a skeptic, atheist, and humanist, I accept that life is what it is. I know that a deity isn’t going to magically heal me, and I’ve concluded neither are doctors. I have two choices in life; either endure whatever life bring my way or roll over and die. So far, I’ve chosen to endure, Yes, I hope for better days and I certainly desire for the good days to outnumber the bad days. But, regardless of my thoughts and desires, the die of my life is cast. In eighteen months I’ll be 60 years old. I’ve lived a decade longer than my father, who died of a stroke at age 49, and five years longer than my mother, who killed herself 23 years ago. I’ve watched death rob me of those I love, and I have little doubt that death is lurking in the shadow of my life, ready to claim me for its own. Death, like life, is certain, and as anyone who is chronically ill can tell you, the prospect of death is an ever-present reality.

Yet, I can have delusional moments where I pretend I’m not sick. There are times I become quite depressed as Polly goes off to work each day. As a man who was taught that the husband is supposed to be the breadwinner, I find it emotionally and mentally  painful to watch the most important person in my life go to work every day so we can have a roof over our head, food to eat, and all the trappings of a typical Midwestern lifestyle. I tell myself that Polly was a stay-at-home mom for many years and now our roles are reversed, but I still wish I could be the one kissing my spouse goodbye and saying I love you as I walk out the door for work. I know this will never be the case, but I can, at times, trick myself into believing that I can once again be Bruce Before Illness and Pain.

The chronically ill are known for convincing themselves that things are not as they seem. Put mind over matter, well-wishers tell the sick person. I’ve tried just such an approach many times over the years. Sickness be gone, pain depart, I say to myself. I can do anything I want to do. The only thing standing my way is me! Try as I might to convince myself that a wonderful new day has dawned, it’s not long before reality slaps me up the side of the head and asserts its rule over my life.

I continue to scan the help wanted ads, looking for the perfect job for a broken down, incapacitated old man. Every once in awhile, I’ll apply for this or that job, thinking that the prospective employer will be sure to call. Rarely does the phone ring. Recently, I applied for a job that required 2-5 hours every other week stocking display counters at the local Meijer. I sent the company my resume, and a week or so later they contacted me for an interview. On the day of my interview, I made sure I looked my best, donning a crisply pressed shirt and dockers. Not wanting to give off the cripple vibe, I left my cane at home and uprightly walked into Meijer for the interview. I was sure that this was the perfect job for me. Just enough work to restore a bit of my self-esteem and provide added income for our household budget.

The interview went well. I generally interview well. Having hired hundreds of people in my day, I know what an interviewer is looking for. I was pleasant, made eye contact, and asked the interviewer questions about herself, the company, and the job. She seemed to be excited about the prospect of hiring someone like me. Or perhaps, I just thought she was excited. Regardless, I left the interview thinking I would soon be stocking batteries at the local Meijer. A few days later I learned the company chose someone else for the job.

Not being chosen for an inconsequential, low paying job resulted in a weeks of depression and thoughts of suicide. Try as she might, Polly couldn’t rescue me and all my counselor could do was keep me holding on to the proverbial knot at the end of life’s rope. In time, the dark clouds lifted and I was able to put the rejection behind me.

I can convince myself that I can still work like I did before 1997, the year I was diagnosed with Fibromyalgia. I’ll convince myself that I can stand on my feet for hours at a time, even though I can rarely stand for more than an hour. Just shopping for groceries requires me leaning on a shopping cart, and by the time I leave the store my body is screaming in pain.

My body never lies, but I do. I lie to myself, and I often lie to Polly. I’ll tell Polly that I want to apply for a job at this or that store and she’ll give that look I’ve see uncounted times before. But I can do it, I tell her. I won’t know until I try, right?  The love of my life lets me drift on the sea of my delusion, knowing that I will sooner or later realize I can’t do what the job requires me to do. She never looks down on me or chides me for trying the impossible. She knows, based on almost 40 years of loving me, that I am a proud man, a man who has a hard time embracing his life as it now is.

Sometimes, I will inflict greater pain on myself, refusing to give in to what my body demands of me. Last Friday, my sons and I attended a local high school football game. The night before I got about 4 hours of sleep, and wisdom dictated that I cancel my plans to go to the game. So much for wisdom. I went to the game and endured three hours of being battered by people walking up and down the aisle. A man in back of me, thinking he still was in high school, spent the night cheering loudly and stomping his feet. Every time he stomped his feet my body rippled with painful shock waves. By the time the last touchdown was scored, I was ready to murder the man where he stood.

After the game was over, I haltingly made my way down to the ground. This particular school decided to build its football stadium a long distance from the parking lot, and I wondered if I was going to be able to make it back to the car. With head down, teeth gritted, I walked toward the car. My sons, still in their prime, quickly, even with grandchildren in tow, outdistanced me, and soon they were yards ahead of me. They stopped, allowing me to catch up, only to find me straggling behind a few minutes later.

During the game, we had been talking about Polly’s parents, her Dad’s upcoming hip replacement, and their unwillingness to change their way of life. Pride was their problem, we decided.  As I walked towards the car, a woman in a golf cart stopped and asked if I would like a ride to the car. Everything in my being said YES, but pride turned her offer of help away with a, no, I’m fine. Thank you. A few minutes later another woman in a golf cart stopped and  again asked if I needed a ride. I gave her the same answer I gave the first good Samaritan. My oldest son, watching my obstinate denial of reality, laughed and reminded me of my own pride. I chuckled, and then continued on my way to the car.

My son,of course, was right. It’s pride, the desire to rise above my illness and pain, that often brings more pain and debility. Try as I might to see my life as it is and embrace my new reality, I continue to have times when I attempt to conjure up the Bruce that existed before illness and pain took from me much of what made me a man. I look at old photographs and weep, lamenting a life that once was. And then I dry my eyes and remind myself that nothing I do can bring back that which is lost. The best I can do is embrace life as it is. I have a beautiful wife, six wonderful children, and ten awesome grandchildren. Surely, I’m blessed with that which many people would give anything for, I remind myself. I can choose to lament what’s been lost or rejoice over what I still have.

Today, I rejoice. Now, where’s the employment section of the paper?

[signoff]

Have You Tried (blank)?

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chronic illness

Because I am forthcoming about the health problems I have, well-meaning people often give me unsolicited medical advice. Sometimes, they don’t know what to say so have you tried ________________ becomes the secular version of I’ll pray for you. Other times, the person refuses to believe that what’s wrong with me can’t be fixed. Surely modern medicine, alternative practitioners, and witch doctors can fix anything, yes? Or so the thinking goes.

Many people have a simplistic view of health, sickness, and how the body works. They wrongly think that if I just eat right or takes this or that vitamin/supplement that every health problem I have will be cured. Some people think that doctors deliberately keep us sick so they can make money; that there is a grand conspiracy between doctors, hospitals, and pharmaceutical companies to keep people sick so they can profit from their sickness. According to people who think like this, I should see a herbalist, homeopath, reflexologist, acupuncturist, accupressurist, aromatherapist, chiropractor, or irridologist–anyone but a doctor. Armed with anecdotal, subjective stories about miraculous healing, they are certain if I would just get away from Western doctors that all would be well.

I am all for trying anything that is evidence-based and has a proven track record. What I’m not willing to do is waste my time on woo-woo (pseudoscience, quackery). Every week a family member, friend, or reader of this blog sends me an email with a link to a surefire cure for what ails me. They are certain, based on their superficial reading of an article, that if I will just try __________ I will be cured. Again, if there are peer-reviewed, double-blind-studied treatments that hold out the possibility of helping me, then I am all for  them. Sadly, most of the links sent to me are woo-woo.

When you’ve suffered for a long time and have to deal with unrelenting pain each and every day, it is easy to get upset when someone with good intentions says have you tried _______________. I try to be polite, realizing the person just wants me to be better, but the constant unsolicited medical advice does wear on me.  My health problems are very much a part of the fabric of my life and I think it is important for me to write about them, but I find I am less willing to do so because of the unsolicited medical advice that comes when I do.

I am well read on the subject of Fibromyalgia, auto-immune diseases, and arthritis. When I was first diagnosed with Fibromyalgia 17 years ago, I read every book about Fibromyalgia I could get my hands on. When new studies come out I read them and try to look at the methodology the study used to come to its conclusions. Many studies have come and gone, with most of them offering little hope to people with Fibromyalgia. While doctors and researchers continue to study the various diseases that afflict me, so far there are no cures.

Over the years, I’ve tried numerous drugs, supplements, and treatments, all to no avail (along with tens of thousands of dollars of tests). At this point in my life, I am satisfied that I have done all I can do. For someone like me, hope can be a cruel thing. Better to embrace life as it is than to constantly hope for that which will never happen. It’s unlikely that a new drug or a new treatment for Fibromyalgia will be found in my lifetime (and no, Lyrica is not a cure for Fibromyalgia). Researchers are a long way from definitively understanding what causes Fibromyalgia,  and even further away from coming up with a treatment for it. And even if a cure for Fibromyalgia is found, I would still be left to deal with arthritis, a disease that can be managed but not cured.

I appreciate every one of you who has supported me over the years. Your gentle encouragement and love mean the world to me. While doctors can do no more for me, your support  gives me strength and motivates me to get up in the morning (or early afternoon) and continue to write for this blog.  Thank you for making a real difference in my life.

Bruce

Note

Last night, Polly and I watched the first episode of The Daily Show with Trevor Noah. (It was awesome, BTW.) Comedian Kevin Hart was Noah’s guest. Noah asked Hart about his commitment to physical fitness and Hart told him that running was the most important part of his fitness regime. He then went on to say that he sees himself as an evangelist of all sorts for running.  Hart said, everyone can run!  I hollered, no, dumb shit, they can’t. I can’t run, nor can I walk long distances. I know I will never run again and I have no doubt that I will someday be wheelchair bound. As it is, I can walk or stand on my feet for, at most, an hour. When we go to the grocery, I must hold on to the cart so I can stand upright (it also keeps me from falling).  Fifteen to thirty minutes into our shopping, I will feel warm, stabbing pain in my upper thighs, face, and lower back. A few minutes later, these areas will burn and feel as your foot does  when it  falls asleep. Doctors theorize this has to do with my back and the numerous narrow disk spaces I have, especially in the lower back. So, run? Not a chance. I’m just happy to walk through Meijer without having to bend over the cart or sit down to relieve the pain.

One thing that would help is medical marijuana, but it is not legalized in Ohio.

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Why Are Some Evangelicals Obsessed With My Weight?

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Bruce Gerencser, 2015

Some Evangelicals who stumble upon this blog or find my page on Facebook take a look at my profile picture and, based on what they see, personally attack me by making derogatory comments about my weight or physical features. (see Did You Atheism Will Make You Fat?) Let me give you a good example of this. Several years ago, I received an email from a man named Bill Higgins. Higgins came to this blog via a Google search for “David Hyles Scandal.” His search gives away his religious preference; he is likely a Fundamentalist Baptist, the meanest and nastiest of the Christian species. Here’s what Higgins had to say:

I’m not that good of a Christian so I don’t mind saying this.

Why would you put a picture of you fat face on your website. I don’t respect fat people unless they have an excuse. I think you are just fat because you are lazy and spend to much time on your computer.

I don’t dare respond via email to people like Bill Higgins. To do so means I am giving a low-life like Higgins my email address and once I do that the emails never end.

I want to be clear about a few things. I know I am overweight, I am fat, obese, a lard-ass, whatever term people want to use for people like me. On most days, I am not ashamed of this fact. I don’t try to hide who I really am by using a picture of me taken 35 years ago. I am quite comfortable in my own skin, even if I have a lot more of it these days.

I wasn’t always overweight. When  I was 18 I was 6 foot tall and weighed 160 pounds. I played competitive sports all through school and continued to do so until I was in my early 30s. When Polly and I married in 1978 I weighed 180 pounds. After a few years of marriage, my weight reached 225 pounds and as long as I was physically active my weight stayed in the 225-250 pound range.

I have what people call a fire-plug build. My weight is pretty well-distributed from top to bottom. I don’t have a huge pot-gut like many men my size do. Ironically, because of my physical build, people often underestimate my weight. When I stopped playing competitive sports and started spending more time in the study, my weight began to climb. As I reached middle age, it became harder and harder to lose weight.

24 years ago, I came down with mononucleosis. My doctor treated me for months before he decided to do a mono test. By then, I was in big trouble and I ended up in the hospital. My liver and spleen were swollen, my tonsils and adenoids were white from the infection that was overrunning my body, and the internist told me there was nothing he could do for me. Unless my immune system kicked in and started fighting the infection, I would likely die. Well, it’s 2015, so it looks like I made it.

Mononucleosis in older adults is a serious matter. It can kill you. While I survived, the mono did a number on my body.  Mono left me with a severely compromised immune system and oddly it altered my  normal body temperature from 98.6  to 97.0. A few years later, I began to have widespread muscle and joint pain and I was fatigued all the time.  After a few years of seeing  specialists, they determined I have Fibromyalgia.  I was officially diagnosed with Fibromyalgia 18 years ago.

In 2006, I began to develop neurological problems; numbness in my thighs, face, arms and hands; loss of motor skills; memory problems. After tens of thousands of dollars of tests, several brain scans, MRI’s, CT scans,  and multiple specialists, it was determined that I have “we don’t know what the hell is wrong with you.”   While many of my symptoms point to multiple sclerosis, no doctor has been willing to say I have MS.

Last month, I wrote:

Earlier this week I saw the orthopedic doctor. He told me my body is like numerous wildfires. Put one out and others pop up. He gathered up my x-rays and MRI scans and we looked at them. He was quite blunt, telling me that I have arthritis in EVERY joint and that some of the damage is severe. Knees, shoulders, feet, hands, and back, all have arthritis that is causing joint damage. The why is unknown. Some days, the pain from the arthritis is severe, some days it is tolerable. Added to this is the muscle pain I have from Fibromyalgia. Every day is a pain day with some days worse than others. I haven’t had a pain-free day in almost twenty years.

We talked about options. He was quite frank with me, saying that because the arthritis is so pervasive that I was not a good candidate for surgery. Even with my knees and shoulders, scoping them could actually make things worse, resulting in more pain. I like this doctor because he doesn’t bullshit me. His advice? Live with it. Unless I want to have total joint replacements, surgeries that have a huge risk of complications for someone like me who has a compromised immune system, I must learn to live the pain, debility, and the ever so slow loss of function. All that he and other doctors can do for me is help manage the pain and try to improve my quality of life.

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Bruce Gerencser, 2015

Earlier this year I had an endoscopic ultrasound and a colonoscopy done in the hope that doctors could pinpoint why I have no appetite and why I am losing weight. (I’ve lost 50 pounds since Christmas 2014). While the weight loss has leveled off, I still have days where I have no appetite.  The tests found a lesion on my pancreas, and stones in my gallbladder. Good news? No cancer, though the lesion on my pancreas must be carefully monitored.

And then there’s my battle with skin cancer. Two months ago, I had a squamous cell carcinoma removed from my hip. In 2007, I had a basal cell carcinoma removed from my nose. I am currently going through topical chemotherapy treatment for cancer and precancer on my lower lip. My lower lip is a bloody, ugly mess, but it beats having to have invasive, disfiguring surgery done on my lip. Thanks to being a fair-skinned redhead  and repeated blistering burns as a child and young adult, I suspect I will be battling skin cancer the rest of my life.

As you can see, my health plate is full. I’ve resigned myself to the fact that unless someone comes up with a cure things won’t get better for me. I choose to embrace my life as it is. Wishing things were different doesn’t change how things are. The pervasive pain, muscle problems, and neurological problems, have debilitated me to such a degree that, on most days, it is all I can do to get up, do a little work in the office, and then spend the rest of the day in the recliner.

On the days when I think I am feeling better, I try to do some of the projects that need to be done around the house or yard. These activities tend to wear me out quickly and I often pay a heavy price for overdoing it. A few hours of work in the garage or yard often results in me having to spend a couple of days in bed or sitting in my recliner. Part of my problem is that I have never been good at doing anything halfway. Moderation? Not in my dictionary. Unfortunately, my inability or unwillingness to pace myself often extracts a hefty physical price from me. Like my friend Michael Mock told me, Bruce you are just one of those kind of people who just have to crash and burn. Out of the ashes I rise again only to start the process all over again.

An inability to do much of anything physically means I don’t burn off a lot of calories. I am not a glutton and Polly and I, for the most part, eat healthily. Because I am quite sedentary, it’s hard to have meaningful weight loss. It is not that I don’t do anything physically, but due to the physical problems I have I simply cannot do the physical things I want or need to do. It doesn’t help that I have to use a wheelchair or a cane to get around. I have turned into a slow-moving vehicle. I do what I can, but there are days and weeks that the pain is so severe that all the mind over matter pep talks in the world won’t help me move.

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Karah and Bruce Gerencser, 2015

Some days, I can’t even bear to have anyone touch me. It just hurts too much. I love it when the grand kids come over, but by the time they are done tramping by my recliner, bumping into me, and jumping in my lap, I feel like the day after a bruising football game. I love having my grand kids around and they are one of the big reasons I get up in the morning and face another day. When they are here I grin, grit, and bear it, giving praise to the gods, of Vicodin, Tramadol, Naproxen, and Zanaflex. I would rather die than not be able to have my grandchildren sit on my lap. (see Please, Don’t Touch Me)

Back to Bill Higgins and his comments about my weight. Yes, I am overweight and there is little I can do about it. I try to watch what I eat, limit my carbohydrate intake, and eat my veggies. Yes, I do spend a lot of time in front of the computer and I watch a lot of TV. I also spend hours a day blogging, answering email, and reading. I would probably do less of these things if I could, but I can’t, so I am grateful for being able to read, write, watch TV, and search the internet.

Of course, Higgins, and others like him, don’t care about any of these things. In their mind, I am a fat, lazy, worthless human being and they enjoy trying to destroy me with their words. Do Higgins’s words hurt? Sure. Like most people, I want to be liked and respected. No one like being verbally assaulted. The internet protects people like Higgins from being held accountable for what they say. There is nothing I can do about this. As long as I am a public figure and write about the things I do, I know I am going to attract people who take great pleasure in demeaning me. Little do they know that their hateful words say more about them than they do me.

Thanks for reading. This is not a plea for understanding or support or a request for links to the latest, greatest cure-all or diet. This is me talking out loud. Maybe someone will find a bit of encouragement or understanding from what I have written.

The Bruce and Polly Fantasy Game

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white birch clare michigan 2003
House we rented in White Birch, a wooded community north of Farwell, Michigan. At the time, I was pastoring Victory Baptist Church, Clare Michigan 2003

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House we rented in White Birch, a wooded community north of Farwell, Michigan. At the time, I was pastoring Victory Baptist Church, Clare Michigan 2003
Depression Sea is roiling today, my mind is twisting, turning, and dying.

She knows, she always knows. My face and body language tell a story she’s read time and again.

She worries that this time the story might have a different ending.

I’m at the doctor’s office.

Wasn’t I here last month? I already know the answer, having made the trip eight times and the year isn’t even half over.

As we wait for the nurse to call my name, we play the Bruce and Polly Fantasy Game®.

Playing the game allows me to change the monotonous, deadly channel that keeps playing over and over in mind.

We look at one another, smile, and begin the game.

The game always has the same answers, but we like to play anyway.

In the Bruce and Polly Fantasy Game®, we take shared places and experiences and meld them into one. A fantasy, to be sure, but who knows, maybe we’ll strike it rich, rob a bank, or write a book detailing where Jimmy Hoffa is buried.

Spring in Ohio, with its promise of new life and flowers.

Fall in Ohio, with its crisp air and changing colors.

Winter in Arizona, no snow for us, we survived the Blizzard of 78.

Summer in the Upper Peninsula , nestled as close to our Canadian friends as possible.

Our rented  house from White Birch, Michigan, with a 1970 green Nova SS sitting in the drive.

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Bruce putting water in 1970 Nova SS, March 1976, somewhere in Kentucky
Package these things together and magically move them to the eastern seaboard, to a small, out-of-the-way fishing community on the shore of the Atlantic.

Turn the house so it fronts the Ocean, allowing us to sit on our deck and watch the sunrise and the fishing boats making their way to the secret spots known only to those whose hands and face bear the weathered look of a lifetime spent fishing.

Nearby live our children and grandchildren. Not too close, yet not so far as to be beyond an invite to a Saturday night BBQ.

This is Bruce and Polly’s fantasy.

She remains worried, wondering if the slough of despondency will bury the man she loves.

All I want is for the pain to stop.

Is that too much to ask?

I already knows the answer. I always knows the answer.

The nurse calls my name and I  haltingly walk to the exam room.

No weight gain, medications the same, pulse 78, and blood pressure just a little high. Refills ordered, sure is hot, hate the humidity, how’s Bethany, he’ll be in to see you soon.

The doctor walks through the door and sits near me.  Eighteen years we’ve danced to this tune, both of us now dance much slower than we once did.

The doctor thinks I am chipper today, better than last month.  Little does he know what I’m really thinking. We talk about the Reds, Todd Frazier, Johnny Cueto, and the All Star game. I promised the nurse that we wouldn’t do our thing, our thing being shooting the breeze while other patients wait. I lied. He’s behind and I’m to blame.

We shake hands and afterward I put my hand gently on his shoulder.  I tell him, see you in two months. This sounds like a lie, a hollow promise with no hope of fulfillment.

I want to live.

I want to die.

We stop at St. John’s produce tent and buy some local strawberries. $3.50 a quart. We buy some Georgia peaches too, which will turn into pies for Sunday. The strawberries will top the angel food cake she will make in the morning; just like every other June 19th for the past thirty-seven years.

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Bruce and his mom, July 1957
June 19, 1957, in a building years ago torn down and replaced with a new one, at 9:01 AM I drew air into my lungs for the first time. A new life born into poverty in a nondescript rural Ohio community, delivered by a doctor who also worked as a veterinarian.

The path is now long and how much path remains is unknown.

Will the game be called today or will we get to play, for the nth time the Bruce and Polly Fantasy Game®?

I’m still betting on playing the game.

Note

For those who struggle with chronic pain and illness, a birthday can often lead to deep depression, a reminder of all that has been lost. While the healthy focus on all they have, those in pain and who suffer from years of chronic debility can, and often do, focus on how much they have lost. Yes, it is wonderful to have a sliver of life to hold on to, to have a spouse, children, and grandchildren who love you, but nothing can ameliorate the sense of loss.

This is not a cry for help. I am just talking out loud with friends.