As you may have noticed, I haven’t posted a meaningful post in nine days. Outside of my life partner, Polly, and my writing partner, Carolyn, I haven’t talked to family or friends about my current health status.
For new readers who may not know what’s ailing me, I am battling several diseases: gastroparesis (an incurable stomach disease that causes vomiting, nausea, satiation, weight loss); exocrine pancreatic insufficiency (a disease of the pancreas causing the insufficient production of digestive enzymes, leading to diarrhea, weight loss, and malnutrition); severe axonal neuropathy (a painful nerve disease in my legs and feet causing burning, numbness, and increased falls and injury); fibromyalgia (a chronic disease that causes widespread muscle pain/weakness and fatigue); osteoarthritis (a chronic degenerative disease affecting my joints causing pain and debility); degenerative spine disease (affecting my neck and spine causing pain and limited mobility); skin cancer (I have had five cancer surgeries and chemotherapy treatments, the last being surgery on my neck for melanoma three weeks ago). I am also being treated for high blood pressure and diabetes—both of which are well managed. My latest a1c was 5.8.
Of late, my pain levels have been impossible to manage. I could always take more narcotics—they work—but then I will spend my days unable to do anything other than exist and sleep. The rest of the stuff is out of my control. I regularly see my primary care doctor, take prescribed medications, eat properly, and sleep when I can. “Sleep when I can” means I sleep in short 1-3 hour blocks throughout the night, and then nap throughout the day. I am never not tired or fatigued.
Of late, I’ve been losing weight again. I have lost a total of 120 pounds. I’m down to what I weighed 30 years ago. I have little to no appetite, so eating has been reduced to “eating because I have too” unless I want to starve myself to death. My diarrhea and vomiting have gotten to the point that I fear going out in public lest I have an accident. Two weeks ago, I had an abdominal CT scan, with contrast. Down went the contrast, up came the contrast, in a waiting room of people. I was so embarrassed to make such a public scene. I’m a private person, so there’s the added psychological stress from embarrassing myself in front of others.
My daily life has come to a standstill. Three weeks of unopened mail sits on my desk. I haven’t filed our taxes—which I’ve done for 50 years. I contacted one local man about doing our taxes, but he wanted $250 to do them (W-2 wages, social security, one Schedule C for my blog income/expenses). That’s not going to happen, so I need a “good” day soon to file. Blog-wise, I haven’t answered reader emails in several months, and my writing output has declined 90 percent. Writing is one of the few pleasures I have in life, so I find the inability to do so distressing.
There’s no cure on the horizon. All doctors can do for me is help to manage my symptoms. There are days when I feel “this is it.” A week ago, for some unknown reason, my blood pressure dropped to 98/50, with a 120 resting pulse rate. I also had dangerously low blood sugar. I woke Polly up, stammering and unable to talk in complete sentences. She got me a Coke and some high carb junk food to eat, and my blood sugar rebounded to a low normal level. Polly took the day off of work to care for her dilapidated, but still s-e-x-y, man. Gotta have some humor, right? 😂
There are other problems I’m dealing with health-wise, but they are inconsequential compared to what I’ve shared above. I suspect it’s time to ask family to come in and help, but I find it difficult to make my problems theirs. They have their own lives to live. My family will say of me: “Bruce/Dad/Grandpa is a stubborn, prideful man who doesn’t like to ask for help.” When I was a strong buck, I was the master of my domain, but such is no longer the case. As anyone with chronic pain/health problems will tell you, one of the biggest problems to deal with is the inability to be self sufficient.
I hope to do some writing tomorrow. Of course, I’ve told Carolyn that every day for a week. Maybe Tuesday will be the day! 😂 I texted Carolyn earlier, “As you might have divined, rough days and nights lately. Still I hope, so tomorrow is another day to write.”
Bruce Gerencser, 69, lives in rural Northwest Ohio with his wife of 48 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.
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