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Category: Health

Bruce, Have You Tried . . .?

unsolicited medical advice

Every time I mention my health in a blog post — as sure as the sun comes up in the morning — I will receive emails and social media comments from readers offering me unsolicited, unwanted medical advice. These people mean well, but their “advice” is not welcome or helpful. Their advice says I am not doing something right; it is my fault I am sick and in pain. If I would just follow their “advice,” I would no longer be sick, nor would I be in pain.

Often, the “advice” I receive comes from proponents of alternative treatments — unproven treatments purveyors promise really, really, really work (for a price). There seems to be an assumption by the people who send me unsolicited medical advice that I am ignorant; that I have not investigated other treatments for gastroparesis, fibromyalgia, and osteoarthritis.

Last Saturday, I published a post titled, Health Update: I’m F**ked. In this article, I mentioned the results from an MRI I had last week:

I had X-rays. Normal. CT scan. Normal. And now an MRI of my thoracic spine. NOT normal. I have:

Disc herniation (T7,T8)

Disc herniation (T6,T7)

Central spinal canal stenosis (T9/T10, T10/T11)

Foraminal stenosis (T5,T6)

Disc degeneration/spondylosis (T1/T2 through T10/T11)

Facet Arthropathy throughout the spine, particularly at T2/T3, T3/T4, T5/T6, and T7/T8 through the T12/L1 levels.

Hypertrophic arthropathy at T9/T10

I quickly received several emails and comments telling me that I need to try this or that diet or supplement. These people have no idea about what my diet is or what, if any, supplements I take. They assume that because I am sick and in pain, that I must not be doing what they suggest I do. One long-time reader sent me a link to a video and suggested I go on the KETO diet. I tersely replied that I was on the no-food diet (gastroparesis); that I have lost 120 pounds; that my A1c is 5.3. She means well, but her emails and comments are NOT helpful. The same can be said for emails from people saying that if I just became a vegan, all would be well.

Let me be clear: I think Reiki, chiropractic treatment (with a few exceptions), homeopathy, supplementation, essential oils, acupuncture, magnets, faith healers, etc., are unproven, unscientific modalities. The same goes for diets that advocate unbalanced, unhealthy eating. There’s nothing wrong with my diet. I eat lots of vegetables, seafood, and other “healthy foods. Yet, I am still sick. Why? My problems are not diet related. There’s no diet or supplement known to man that will “cure” the structural damage in my back. Go to a chiropractor? Are you fucking kidding me? Think about that for a moment: a chiropractor pushing on my herniated discs. What could go wrong? The only solution is to treat and manage my pain.

I am a proponent of science-based medicine (SBM). I have confidence that my doctors are providing me the best possible treatment. I keep myself informed about the latest treatments and studies for my various maladies. I suspect I am better educated on gastroparesis, fibromyalgia, and osteoarthritis than are any of the people who offer me unsolicited medical advice. I have friends I trust who will send me links to reports or studies they have read. I have no problem with them doing this. What irritates the hell out of me is the unsolicited medical advice that subtly suggests that I am at fault; that if I would just do _______, my decades-long illnesses and pain would magically go away.

If you want to help me, continue to read my writing, leave pithy comments, and support my work financially. Leave my medical care to my doctors and me. Trust me, we have it under control. I know the limitations of modern medicine. I know that no magic treatment that will “cure” me is lurking around the next corner. I expect my doctors to do what they can, but I have never expected them to be miracle workers. Sometimes, life sucks. I am a realist. I know that I will battle chronic illness and pain until I die. Friends, family, and blog readers, genuinely wish I weren’t in pain. They tell me that things will get better in time. “Surely, better days lie ahead for me.” They think I need encouragement or happy visions of a seal bouncing a beach ball on his nose. I don’t. Sure, there are things people can do to help me, but how about asking me what help I need instead of assuming I need ______________?

Let me kindly ask again that readers do NOT send me unsolicited medical advice. And that includes leaving comments on this site, making comments on social media, or sending me private Facebook/Twitter messages. If you truly love and respect me, PLEASE stop.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Health Update: I’m F**ked

bruce gerencser and jesus

I have gastroparesis, fibromyalgia, and osteoarthritis (I’ve typed these words so many times, autocorrect remembers them). In addition, over the past four months, I’ve had excruciating pain in the middle of my back, left side, and under my left arm, into my shoulder, and down my arm. The pain is so severe that it affects everything I do. Some days, I can hardly use my left arm (and I’m left-handed).

I had X-rays. Normal. CT scan. Normal. And now an MRI of my thoracic spine. NOT normal. I have:

  • Disc herniation (T7,T8)
  • Disc herniation (T6,T7)
  • Central spinal canal stenosis (T9/T10, T10/T11)
  • Foraminal stenosis (T5,T6)
  • Disc degeneration/spondylosis (T1/T2 through T10/T11)
  • Facet Arthropathy throughout the spine, particularly at T2/T3, T3/T4, T5/T6, and T7/T8 through the T12/L1 levels.
  • Hypertrophic arthropathy at T9/T10

I knew I had osteoarthritis arthritis in my spine. I have arthritis everywhere. Why I have these other problems is unknown. Genetics (my sister has similar problems)? Injury? Age-related deterioration? God’s judgment (I already know Evangelicals are thinking this)? Too much sex (you will have to ask Polly)? 🙂 Sports-related damage? There’s no way of knowing the exact cause. And it doesn’t matter. Knowing the cause won’t change the fact that I have excruciating pain in the middle of my back.

My primary care doctor called me this morning to give me the MRI results. I could tell by his voice that the results were not good. He’s been my doctor for twenty-six years. Doc has literally watched me physically deteriorate over the years (he calls me an enigma — something that baffles understanding and can’t be explained). He genuinely cares about me and wants to alleviate my suffering. Unfortunately, there’s little he can do except treat the pain. Doc referred me to a pain management doctor in Fort Wayne. Hopefully, I will get in to see him soon.

After Doc gave me the verdict, I replied, in my gallows humor way, “I’m fucked.” He chuckled a bit — we’re friends — and then he reminded me of a scene in Planes, Trains, and Automobiles; the scene where Steve Martin repeatedly uses the F word.

Video Link

Today, I feel fucked. Hopefully, the pain doctor will help me feel less fucked soon.

It is what it is, but the spinning plate that I call life is overflowing. I’d pray if there were a God, but since there’s not, all I can do is endure. As I ponder my suffering, I am reminded that it could be worse. My friend, Eric, died several weeks ago from pancreatic cancer. In less than a year, he went from enjoying life with his grandchildren to excruciating pain and death. I have another friend who contracted COVID-19 before the vaccines were available. She’s in her forties. She had a stroke, heart problems, and had to have eye surgery. I’m concerned that she could end up blind. It is unlikely that she will ever work again. I have another dear friend, Tammy, who also contracted COVID. She was a spry, outgoing psychiatric nurse, that is until COVID left her incapacitated. She’s now on permanent disability. I could go on and on. Like it or not, suffering is part of our lives. Few people will escape this life without suffering at one point or another. It’s just the way it is.

Oh, did I tell you about the rash I have; that is so itchy I want to get out a butter knife and scratch myself to death? True story . . . years ago, Polly came home from work and found me in the middle of the floor, scratching my arms and legs with a butter knife. I had had a painful gallbladder attack that caused me to break out in hives. Thank the Gods for butter knives. And Benadryl. And corticosteroids.

I do have one bit of good news: I am retaking generic Lyrica. It is quite effective for the nerve pain in my legs. In fact, I now have NO nerve pain in my legs. In the past, taking Lyrica has caused weight gain, so much so that I had to stop taking the drug (twice). Gastroparesis has dramatically altered my physiology. I thought maybe my body would react differently to Lyrica this time. So far, no weight gain. Can I get an AMEN? And for that, I am grateful. Grateful to whom? Not God, that’s for sure. Loki? Maybe. 🙂 It is science that courses through my veins, lessening the pain in my legs. All praise be to science, the only God that makes its presence known.

Thank you for your continued love and support. Your kind words mean the world to me.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Bruce, You Must be Feeling Better

pain looks good on other people

Yesterday, long-time reader and friend, Charles, complimented me on some of my recent writing, saying:

The several articles you put up today are very timely—-news wise—–and they are some of your best work.

I always appreciate such comments. I have never been a good judge of the quality of my work, so kind, thoughtful comments are always appreciated.

What I want to address in this short post is what else Charles said. Let me be clear, I am NOT taking Charles to task for saying this. I love and appreciate Charles, but there’s a teachable moment here that I think readers might find helpful.

Before complimenting me, Charles said:

You must be feeling better Bruce.

As countless readers, friends, and family members do, Charles sees a connection between “good” writing and how I feel physically. If my writing is perceived as “good,” then I must be feeling better. However, as my editor and my wife can tell you, some of my best work was written on days when I was quite sick, even suicidal.

I no longer have good days. I have no prospect of feeling better. The health problems I struggle with aren’t going away, and, quite frankly, they aren’t, on most days, very well managed. Writing, then, becomes a distraction of sorts, a way to take my mind off my pain and suffering. As I sit here typing this post, my body pulses with pain — and that’s after taking this or that medication. What writing does is direct my mind away from the spectacle of my life. Writing can be, for me anyway, a pain reliever of sorts. Think of it this way: your foot is throbbing with pain. You pick up a hammer and hit your hand. Problem solved. Your foot doesn’t seem so painful. This is exactly what writing does for me; a distraction that, for the time I am clicking away on my IBM keyboard, mentally reduces my pain.

Two weeks ago, I had a procedure done to temporarily lessen or stop the pain I have from gastroparesis. Unfortunately, it did not work. What treatments are left for me? Just do a Google search on “treatments for gastroparesis.” Doing so left me in despair. I have concluded that I must find a way to live with this, or not. Today, I chose to eat lunch, knowing that it would leave me feeling like I had been slugged in the abdomen. I don’t plan to give readers a running commentary on my difficulties. I just don’t have the wherewithal to do so anymore. Know that when you don’t see me post for a few days, it is for one reason alone: I can’t. And when I do post, it’s not because I “feel better,” but I do feel well enough to drag my sorry ass from the couch to the office, turn on Spotify, and write a few words that I hope readers will find helpful.

I know readers such as Charles genuinely want what’s best for me. They want me to feel better or find relief from my pain. I make no judgment on the well-meaning words of others. It beats being told by an Evangelical critic that he hopes I die and burn in Hell for eternity.

There are no more “feeling better” days ahead for me. I have resigned myself to that fact. Unless a revolutionary cure or miraculous healing comes my way, I know what lies ahead for me. And that’s okay. Not really, but hell, what am I going to do about it? Pray? Seek out a faith healer?

When you see another post by me, I hope you will say, “awesome, Bruce, is among the living!” And when the day comes when I can no longer write, please know, I will be forever grateful for your love and support.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Connect with me on social media:

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Living with Fibromyalgia

fibromyalgia 2

I thought I would share with my readers a bit about living with fibromyalgia. In 1995, I started feeling fatigued and had a lot of muscle aches and pains — not from overwork or any of the daily physical activities I engaged in. I just felt tired all the time, and my body ached from head to toe. After months of feeling this away, I sought help from doctors; a two-year exercise in frustration and futility. One doctor suggested that it was all in my head; that I was still grieving for my mother who died in 1991. I blew up at this “esteemed” physician, shouting at him in no uncertain terms, IT’S NOT IN MY HEAD!

I was a thirty-five-year-old pastor who, up until that time, could physically do whatever he wanted to do; from playing sports to cutting wood to car repairs to construction work. Why was I fatigued? Why did I hurt all the time? Those are the questions I wanted answered.

In 1997, I saw a new doctor in Montpelier, Ohio. For the first time, I had a physician who actually listened to me. Twenty-five years later, this man is still my primary care doctor, and most all, my friend. Doc wasn’t a miracle worker. He found my symptoms troubling, yet tests came back normal. Of course, the reason for this is that fibromyalgia is a diagnosis of exclusion. Other diseases such as multiple sclerosis and polymyalgia must be ruled out before a doctor can determine whether a patient has fibromyalgia.

For several years, I sponsored and moderated a Christian email discussion list called CHARIS (the Greek word for grace). One of the list participants was a sickly man who was an invalid. After mentioning my health problems to list members, this man contacted me and suggested that I talk to my doctor about fibromyalgia. This “providential” conversation resulted in my doctor diagnosing me with fibromyalgia. Nothing changed for me, per se. Just because you have a diagnosis doesn’t mean that all of a sudden you are on the path to healing. What the diagnosis did say to me is that my pain was not in my head; that what I was dealing with was real.

There’s no cure for fibromyalgia. Symptoms vary widely, and most fibromyalgia sufferers are women. Twenty or so years ago, I drove to the Williams County Fairgrounds to attend a fibromyalgia support group. I felt, at the time, very alone. Few people seemed to understand what I was going through. Even my family was perplexed. What happened to Bruce, to Dad?

I arrived at the support group meeting thirty minutes early. Typical Bruce Gerencser behavior — always early. My children (and Polly) have oh-so-fond memories about my lectures on being on time; that you should always be early. As I sat in the fairground parking lot, I watched as people filed into the meeting. I quickly noticed that there were NO men, I mean none. Every group member was a woman. I thought, “these women will never understand what I am going through.” So, I decided to not attend the meeting and drove home. Years later, I started blogging, and my readers became my support group. I learned that woman with fibromyalgia did, in fact, have a lot to offer me, namely understanding.

No two fibromyalgia sufferers have the same symptoms. On a scale of 1-10, I am on the 10 side of the spectrum. Fibromyalgia has affected every aspect of my life, bit by bit robbing me of the man I once was. People in my life have a hard time accepting that fibromyalgia is an incurable disease; that all that can be done is to manage the symptoms. And yes, I have read the books that suggest otherwise. Just don’t . . . whatever book title you are going to suggest or website you think will really help me, trust me, I know about it. Twenty-five years of dealing with fibromyalgia have helped make me an expert on the disease. I have read numerous books, websites, and studies about fibromyalgia. I have had to deal with well-meaning fools who email me or send me stuff in the mail they believe will cure me. Even when I beg people NOT to do this, they do it anyway. “Just take this or that supplement, Bruce, and your fibromyalgia will go away!” “Have you tried __________?” The ill-informed judgment is that I have not, when, in fact, my primary care doctor and I have tried numerous medications, supplements, off-label drugs, treatments, etc. When I came into the office and said, “Doc, I read about this new fibromyalgia treatment, what do you think?” he always said, “let’s give it a try.” His goal today remains what it was twenty-five years ago: reduce my pain and improve the quality of my life.

Over the years, I developed other health problems, namely osteoarthritis that rages through my body like a wildfire, and peripheral neuropathy that causes numbness and pain in my legs and feet. The unholy trinity of fibromyalgia, osteoarthritis, and neuropathy have so afflicted me that I hurt from the crown of my head to the bottom of my feet. There are no pain-free days, just manageable pain days, and raging pain days that make me ponder killing myself (no this is not a cry for help). Throw in a degenerative lower back problem, a tear in my shoulder labrum, and bum knees thanks to abusing them playing basketball for twenty years, and I can safely say that I am a walking, talking train wreck of a man. I wish things were different for me, but all the wishing in the world won’t cure me. So, I accept and embrace what I call my “new normal.” And my “new normal” continues to change over time. I know Doc sees it. There are those times I have heard a brief sigh from Doc as I share a new problem. Not a sigh of exasperation or impatience, but one that says he knows that I am struggling for my life. I have told him numerous times, “I don’t expect you to fix what can’t be fixed.” “All I ask is that you do what you can for me.” And he has done just that over the past two and a half decades.

My treatment has settled into a rhythm of sorts: pain medications, potent muscle relaxers, sleep medications, light aerobic exercises and walking when I am able, and hot — and I mean hot — baths. The goal is decent sleep and the reduction of my pain to a tolerable level. Some days, it’s mission accomplished. Other days, not so much. And then there are those days when the meds don’t seem to work and muscle and joint pain batter me from head to toe for hours on end. The latter leave me in tears, wishing something, anything would make it stop. In these moments, I feel very alone, even though the love of my life is right next to me.

I am sixty-three-years-old. Thanks to the issues mentioned in this post and other health problems I won’t mention lest I sound like Granny Sue at church cataloging her afflictions, what I can do in life is limited. For years, my well-intentioned mother-in-law would ask Polly if I was “feeling better,” as if I had a temporary sickness that would soon disappear. She finally understands that I don’t have days when I “feel better.” Mom used to be a big proponent of “putting mind over matter.” That is until she had her own health problems; diseases that can’t be magically wished or prayed away.

Most days, I walk with a cane, but when we take trips or I am really fatigued, I have to use a wheelchair. I still refuse to use the motorized carts at the grocery. Irrational pride, to be sure, but I would rather slowly go through the store bent over the handle of a cart than ride around the store as an advertisement for infirmity. You see, people with fibromyalgia (and osteoarthritis) often look “normal.” I can’t tell you the times I’ve gotten glares when we pull into a handicapped parking space. I get out of the car and look “normal” so people think I am taking a parking space away from someone who could really use it.

I still struggle with self-worth as a result of fibromyalgia. In my mind, I am supposed to be the breadwinner instead of my wife. I am the one who is supposed to be taking care of everything. Having OCPD doesn’t help either. Fibromyalgia is a cruel oppressor. In my mind, I tell myself, “Bruce, you can do everything and anything you want to do!” Remember the line from the Waterboy? “You can do it!” And then I hear fibromyalgia and his sister osteoarthritis laughing and mocking me. “Sure, Bruce, go ahead and try.” And try I do, often working myself into bed for days on end from relentless pain and overwhelming fatigue. Fibromyalgia snickers and says, “See, Bruce, I told you! I am the boss in this story.”

One of the hardest things I have had to come to terms with is my physical and emotional limitations. When you spend most of your life as a workaholic, a man driven to perfection, it’s hard to admit that you are no longer in control of your storyline. I certainly haven’t mastered dealing with the realities of my life. I can, all too often, overwork, and this frustrates those who love me. I have never been good at finding balance in my life. I am more of an all-in kind of person, charging hell with a squirt gun, only to find out there’s no water in the gun. I want to think I have gotten better, but I suspect what’s really changed is that Polly is now willing to put her foot down and tell me no or suggest that I take off a day or two or four and rest. I also have friends such as Carolyn, my editor, who recognize my character flaws and try to keep me from self-destructive behavior. Carolyn can recount many times that I texted to tell her that I was going to go do this or that. She wisely encourages me to take it easy; to live for another day. And sometimes Carolyn sends see several smile emojis with a message that says, “you are going to do this anyway, aren’t you?” And sure enough, I do, and the next text she gets from me is one saying I won’t be doing any writing for a few days.

I haven’t worked a W-2 job since 2005. In recent years, I have done some web design and site management work for my sister’s trade school in Arizona. This provides me a bit of income, even though I feel guilty about taking her money. This blog, after expenses, also provides me a thousand or two dollars of income. And now that I am drawing social security, I feel as if I am contributing in some small way to our material well-being. That said, I can’t help but think when I see my wife of forty-two years walk out the door to go to work that I should be the one, pick in hand, heading for the coal mine.

This is the first comprehensive post I have written about my struggles with fibromyalgia. I hope you found it helpful, and it gave you a bit of knowledge and understanding about a disease that affects millions of people.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Connect with me on social media:

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Please Do Not Offer or Send Me Unsolicited Medical Advice

chronic illness

My health is very much a part of my story. It is impossible for readers to understand where I have come from and where I am today without me telling them about my struggles with chronic pain, fibromyalgia, and osteoarthritis. Over the past decade, I’ve not been shy about sharing with readers my health history. Unfortunately, in doing so, I have opened myself up to unsolicited medical advice from people who have diagnosed me from afar. In recent years, I have received emails, letters, telephone calls, texts, packages, and personal visits from people who are certain they know the cure for what ails me.

One woman — a former church member — would stop by my house every few weeks hoping to sell me super-duper, cure-all shakes that she was certain would return me to perfect health. I had to hide in my bedroom and have Polly lie to her about my availability. After months of attempts to evangelize me, the woman finally took the hint and stopped. At the time, she was on the shakes. Today? She has abandoned this miracle cure and continues to face debilitating health problems.

Well-meaning people have told me that this or that drug, this or that supplement, reiki, spinal adjustment, surgery, acupuncture, iridology, yoga, chakra alignment, mindfulness, homeopathic concoctions, essential oils, Native American rituals, magnets, diets — need I go on? — would infallibly cure me. Today, I received in the mail a list of books from a blog reader — some of which I have read — that, if followed, would supposedly put an end to my chronic pain. The gist of the books is this: your pain is all in your head.

I go out of my way to avoid interaction with readers when they put on lab coats and play doctors. I either ignore them altogether or I quickly say “thank you” and change the conversation. Yet, it seems no matter how many times I say, PLEASE DO NOT OFFER OR SEND ME UNSOLICITED MEDICAL ADVICE, people continue to ignore my request and offer advice anyway. What is it that says to some readers that they are free to disrespect me as a person? Is there anything ambiguous or unclear in PLEASE DO NOT OFFER OR SEND ME UNSOLICITED MEDICAL ADVICE? Do some readers think I am stupid or ignorant or lacking competent medical care?

I get it. I am the kind of writer who has swung open the door of his life, inviting such advice. However, I have politely asked that people not give me unsolicited medical advice. How hard can it be for readers (and family members) to respect my wishes and leave me alone? Can they not see that their tactics are no different from those used by Jehovah’s Witnesses or evangelizers from Independent Fundamentalist Baptist churches? “Sir, we are here today to offer you something that will change and transform your life!” Never mind the fact, that I am not ignorant about what they are peddling, be it Jesus or a “cure” for Fibromyalgia.

Let me be clear. I am under the care of a team of competent medical professionals. I am well-educated concerning my afflictions. Unless researchers come up with new treatments, I am going to die “Just as I am.” I have resigned myself to the fact that a combination of what ails me will eventually lead to my demise. And I am okay with that. I do what I can to manage my symptoms. If I read of something that “might” be helpful, I bring it up to my primary care doctor. In the twenty-three years he has cared for me, he has NEVER said no to me; never refused an off-label drug or treatment that “might” alleviate my pain and suffering. “Let’s try it and see if it works.”  My orthopedic doctor treats me in a similar manner. He knows, based on x-rays, CT scans, and MRIs, that I have arthritis from head to toe. He knows that surgery is not a good option for me, so he does what he can to alleviate my pain. The scans tell him that the pain is not in my head.

unsolicited medical adviceI know that writing this post and making it prominently available will do little to stop certain readers offering unsolicited medical advice. It is not like I can ban them or anything. As long as I have a widely read blog and make it easy for people to contact me, I am going to receive emails, letters, telephone calls, texts, packages, and personal visits from pretend doctors. That doesn’t mean, however, that I can’t bitch about it. Praise Loki for the power of bitching, amen? Amen!

Let me conclude this post with several excerpts from articles that address the issue of unsolicited medical advice. The first article is titled, Your Unsolicited Health Advice Isn’t Just Irritating. It’s Damaging. Sarah Blahovec writes:

You may be thinking, “These people [people who offer unsolicited medical advice] sound irritating, sure, but why are you making such a big fuss? They’re just trying to help!”

Of course, I get that they’re trying to help, and in some cases, it really is just a pet peeve that I’ll politely accept or decline and move on. But the thing is that constant unsolicited advice, questioning, and imploring to try something different becomes very invalidating. You don’t just hear a helpful tip to try, you hear that you aren’t trying hard enough, that using medication to treat your condition means that you’re giving up or aren’t willing to seek out a non-medicinal alternative. You hear that all of the work that you and your doctors have done, the tests, the procedures, the trial and error of different combinations of medications and treatments aren’t enough, and that you need to try a different path. You hear that if you did give these suggestions a shot in the past, you didn’t try long or hard enough, you weren’t following it correctly, or you bailed and took “the easy way out.”

It is frustrating to constantly hear the message that not only are you not trying hard enough to improve your own health, but that you and your doctors are not the most knowledgeable about your medical and lifestyle needs. A stranger or acquaintance took it upon themselves to say that they know more about your condition from a bit of Googling and a few books than your doctor with their experience and education, and you with your everyday, lived experience of actually having the medical condition. It is emotionally damaging to not only hear that you aren’t living with your disease correctly, but to always have to educate others on why their unsolicited advice is unwanted and harmful. Unfortunately, they usually just they reply that you’re overreacting and become offended that you won’t take their suggestion. This only adds to the emotional pain, and very often, the physical pain of a medical condition that can be triggered by stressful situations.

My message is this: please, please do not give advice when it is not specifically requested. If someone wants information about your lifestyle, your choice, or your product, they will ask you and they will do the research. If you do give advice and somebody says that they aren’t interested or asks you to stop, just respect their wishes. Nobody should be coerced into trying something they don’t want to try, and if you push forward with your advice, not only would they not listen, but they may become stressed, hurt, and invalidated by your inability to respect their wishes.

Trust that disabled and chronically ill people and their medical teams are the most knowledgeable about their own health and their medical and lifestyle needs. Trust that they will seek out you or the proper sources if they’re interested in what you have to offer. And out of respect for disabled and chronically ill people everywhere, please stop forcing your unsolicited advice upon those who don’t want it.

In an article titled, Please Give Me Your Support, Not Unsolicited Medical Advice, Megan Klenke writes:

I would rather spend the rest of my days banging my head against a wall than to continue trying to explain to people that their essential oils and kale will not cure me. OK, I’m being dramatic, but not as much as you might think!

If you’re anything like me, when you first became chronically ill (if you’re reading this as someone who’s sick), you possibly went through a naive stage early on in your illness. The stage where you believed the random person in an elevator who’s known you for two whole minutes who said that snake oil was God’s gift to the ill, or your aunt’s cousin’s brother’s half-sister who swears by this new detox where you only eat eggs for a month and every illness ever will be reversed, or some crap like that.

But seriously, there was a period of time at the beginning of me being sick that I desperately held onto the belief that I had control and would get better, so I tried anything and everything anyone presented to me. The worst was this “joint juice” concoction my dad ordered off an infomercial that tasted worse than words can describe. Yuck.

After awhile, it became something I did out of spite. Eventually there were few things left that I hadn’t tried, but when someone offered me something new, I would try it to prove to them how wrong they were.

When people constantly offer up these things, especially after I’ve spent time telling them my story, it doesn’t come off as helpful. I know, I know. People generally mean well. Sure. I’d like to say I believe that. But there’s condescension there almost always. And disbelief. And disrespect. It’s a smack in the face. It’s basically people saying to me that I just must not be doing enough or else I’d be better.

We as humans don’t like to lose control. We don’t. I certainly don’t. It’s not fun. We try to control every aspect of our lives. We love to plan out how every minute of everyday is meant to be spent and we think we can control that.

But the truth is, we can’t control everything. We cannot always control our bodies and our health. I know it’s scary to realize this, but it’s true. And I think that’s a big reason why one of the most common reactions people have to finding out that I’m chronically ill is to give me advice (that I didn’t ask for) on how to get better (from my incurable diseases). They want to help, but they want even more to keep up the illusion of control in their world. They’d rather believe that it’s essentially my fault that I’m not better because I’m not doing something right, because I don’t have the proper self-control, than to acknowledge the lack of control we have over our lives.

So what all of this unsolicited advice says to me is, “I didn’t listen to anything you just said because I’m scared of facing our lack of control and my mortality. I think you just don’t know what you’re talking about. I know better.”

That’s the truth of it. So the next time you’re thinking about offering up unsolicited advice to someone who’s chronically ill, it’s probably best to just…not.

Thank you for your love, kindness, and support. Many of you have come alongside me and brought understanding and encouragement during difficult times. It is enough for me to know that people care.

About Bruce Gerencser

Bruce Gerencser, 62, lives in rural Northwest Ohio with his wife of 41 years. He and his wife have six grown children and twelve grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

Are you on Social Media? Follow Bruce on Facebook and Twitter.

Thank you for reading this post. Please share your thoughts in the comment section. If you are a first-time commenter, please read the commenting policy before wowing readers with your words. All first-time comments are moderated. If you would like to contact Bruce directly, please use the contact form to do so.

Donations are always appreciated. Donations on a monthly basis can be made through Patreon. One-time donations can be made through PayPal.

An Example of Our Broken, Costly Healthcare System

healthcare system

Last January, my wife was admitted to the hospital and later diagnosed with ulcerative colitis. In July, she was told she had bladder cancer and a fistula that had created a path between the colon and bladder (resulting in feces in the urine). A urologist and colorectal doctor planned to do surgery sometime in August. On August 1, I rushed Polly to the emergency room. Her catheter had come out — more precisely, blown out — and she was, to put it bluntly, shitting all over herself and the floor. After six days at the Community Hospital and Wellness Center (Bryan Hospital), the surgeons decided Polly’s surgery would have to be done at Parkview Regional Medical Center in Fort Wayne, Indiana.

Late on August 6, Polly was transferred by Williams County EMS — the only ambulance service in the county —  to Parkview. Polly would later have successful bladder and colon surgery. All told, she spent eighteen days in the hospital. Total cost for the January and August hospitalizations? $200,000. And that’s what our insurance paid, not what the various service providers billed. The sheer amount of the billings and various providers is mind-boggling, even to a man who spent most of his adult life handling church and secular business finances.

Our annual insurance deductible is $3,400. Our maximum out of pocket is $6,750. On top of that, we pay $84 a week for family medical coverage. Polly’s employer pays another $19,000 a year to provide our family insurance.  This means that we personally paid $11,118 this year for medical expenses. Add what Polly’s employer pays to this amount, and our total medical costs exceed $30,000. And, all praise be to the God of American Capitalism, this starts all over again come January 1. Well, with one change: our insurance premiums go up again, as they have most years over the past two decades! (Some years, premiums remained the same, and deductible and out of pocket maximums were increased. Over the past two decades, our deductible has increased 1,000% and our family maximum out of pocket has increased over 500%)

Polly’s surgeries were a success. Last Friday, she had a colonoscopy to determine whether her colectomy could be reversed. The surgeon reported that her colon was free of inflammation and that the colectomy could be reversed. Surgery is planned for March 2020. The bladder cancer? The pathologist made a “mistake.” Polly doesn’t have cancer. The pathologist’s negligence caused untold grief for us. His error triggered a hospital-level tumor board review. The urologist who resected Polly’s bladder sent tissue samples to the University of Michigan for examination. The samples were cancer-free.

Polly having surgery in March 2020 means, of course, that we will have to meet our annual insurance deductible and maximum out of pocket again. This means that, once again, we will spend $11,118 for medical costs. Of course, this has been the norm more years than not for us over the past decade. The only difference this year is that it is Polly’s medical bills, and not mine, that are running up the tab.

And, that’s not all . . . (think of Billy Mays doing a late-night OxiClean infomercial).

We have almost $3,000 of medical bills that the insurance company didn’t pay. I spent several hours on the phone today, trying to figure out why these bills weren’t paid. Right now, my emotions run the range of going postal and weeping, wondering when we will get out from under the weight of medical costs. The EMS bill balance of $965 is ours to pay (the total billed amount for transport was almost $1,900). Polly’s transport was medically necessary and Williams County EMS was the only provider in the county. What were we to do, right? I asked both the hospitalist and nurse to make sure that the transport was covered by our insurance. They assured me that it was. And it was, with one big fuck you. Williams County EMS accepts our insurance, BUT they do not accept insurance adjustments and assignments. Polly’s insurance company paid what Medicare customarily pays, leaving us with a substantial balance. I am also dealing with pathology and radiology bills that were rejected by the insurance company due to incomplete paperwork, lack of reports, etc. Trying to find someone who could actually “fix” these problems for me proved futile. It’s up to me to contact the various players and make sure proper documents are submitted to the insurance company.

The American healthcare system is broken. And it will remain this way until our government leaders are willing to overhaul the system and take the profit out of medical care.  As long as insurance companies and large “non-profit” health care providers are in the driver’s seat, we shouldn’t expect change. In the meantime, all I know to do is send out monthly checks of $25, $50, and $100 to service providers as payment for our outstanding balances. One provider, Parkview Hospital and Physicians Group, refuses to accept payments for more than a twelve-month period. Owe them $2,400? Your monthly minimum payment is $200. Yes, they offer bill reduction if you are poor, but unfortunately, we are just over income line they use to determine eligibility. Our local hospital, thankfully, did provide us a partial bill reduction (and was, overall, substantially cheaper than Parkview). They also don’t demand exorbitant monthly payments. We have been paying them $100 a month for, it seems, forever.

I know our story is not any different from those of other Americans facing serious medical problems. We are held captive by a system that prioritizes profit over care; a system that is almost impossible to navigate. Until government leaders put the healthcare needs of their constituents first, we shouldn’t expect things to change. While the Affordable Care Act was a step in the right direction, Congress, along with the Federal Courts, are going out of their way to burn “Obamacare” to the ground. President Trump and Republicans promised Americans awesome health insurance if the Affordable Care Act is invalidated. I can safely say that no such “awesomeness” is forthcoming. For the Gerencsers, 2020 will be yet another year of mounting healthcare costs; just as it will be for millions of Americans. We are all dying, one medical bill at a time.

On October 2, 2019, Michael Hicks. professor of economics and the director of the Center for Business and Economic Research at Ball State University, wrote an editorial in the Fort Wayne Journal Gazette castigating Parkview and other Indiana Hospitals for their excessive medical care costs. (We live in rural northwest Ohio. Toledo and Fort Wayne are our “big” cities, 40 miles or so in either direction.) Here’s what Hicks had to say:

Several weeks ago, a concerned citizen sent me a financial summary of Indiana’s not-for-profit hospitals. He asked that I look into the issue of excessive profits by these systems.

I was skeptical that the issue would be relevant. Profits are critical to an economy; they serve as a guide to pricing and investment decisions and reward the men and women who create value. The demonization of profits is a sure sign of unformed thought. Moreover, not-for-profit hospitals have explicitly chosen to forgo profits as part of their operations, so I doubted the financial summary would reveal anything important.

I was mistaken.

What I discovered will deeply anger every Hoosier and should embarrass most hospital administrators and board members. I also expect it to cause significant changes to state policy with respect to these hospitals. This is likely to change the way we tax them, regulate their competitors and enforce antitrust laws. It will surely lead to civil litigation involving billions of dollars of excess profits.

It turns out the not-for-profit hospital industry and its network of clinics is the single most profitable industry in Indiana. These profits are so large that, when accumulated, they account for roughly 9% of the state’s total economy. As of 2017, this industry had accrued more than $27 billion – yes, billion. Yet, the not-for-profit industry in Indiana pays virtually no taxes and invests almost none of those profits locally. That money is invested in Wall Street, not Main Street.

However, they do charge Hoosiers a premium to access health care.

Earlier this year, a Rand Corporation study found that hospitals in Indiana were charging among the highest prices in the nation. While the hospital association has been fighting this excellent study, it is surely correct. I am confident the Rand study is right because I mapped these hospitals and compared the Rand price data with the lack of competition in each health care market.

In places where there is little competition, such as Fort Wayne, consumers pay more than twice the cost for a typical medical treatment as they do in places with the most competition. This is how these hospitals accrued excess profits that are roughly 12 times larger than the entire state of Indiana’s Rainy Day Fund.

This windfall of profits has happened fairly recently. In 1998, the typical Hoosier spent $330 less than the average American for health care. We now pay $819 more per person than does the average American. The only factor that can explain this is growing monopoly power among our not-for-profit hospitals.

If you are not shocked by this, nothing can shock you. In a typical post-recession year, these excess profits were so large that they shaved almost 30% off economic growth in the state. Let me highlight some particularly egregious examples.

Parkview Hospital is the most blatant example. In one recent year, Parkview Hospital in Wabash earned a 48% profit rate. By comparison, Walmart, which also has a store in Wabash, had a profit rate of 3.12% that year. Parkview Hospital’s profit absorbed a full 4.1% of the county’s gross domestic product.

Using data from a ProPublica investigative website, I found IU Ball Memorial Hospital enjoyed a lavish 23.8% profit in that year. This was more than $100 million, or a full 2.5% of the county’s GDP. Despite this, the president of Ball Memorial recently begged the city of Muncie to subsidize new luxury apartments so his doctors could live downtown.

That subsidy will cost Muncie Community Schools more than $2 million, which just so happens to be about two days of profits at the not-for-profit IU Ball Memorial Hospital.

There are literally dozens of other outrageous examples reflecting an appalling lack of governance at not-for-profit hospitals.

To be fair, there are a few hospitals that choose not to participate in this plunder of their patients and communities. These good actors, along with the not-for-profit community as a whole, are hapless victims of this outrageous monopolization of health care in our state. I feel especially sorry for the faith-based community which will surely be linked unfairly to some of these institutions. They should be among the first to call for legislative intervention and governance change in these hospitals.

Local governments are also victims. The most profitable industry in our state pays no property tax and no income tax, but overcharges schools, and city and county governments for health care. There is almost certainly a tax reckoning coming for not-for-profit hospitals, which will add much to the coffers of local government.

Maybe the only good news in all of this is that this situation is a plaintiff attorney’s dreamscape. There is a $27 billion settlement pool alongside the most abundant evidence of anti-competitive behavior I have ever seen. If you lead a school, business or municipal government that has paid health care expenses in Indiana, find a good trial lawyer, or better yet a class-action specialist.

This news about Indiana is now attracting national attention as an example of a health care system run amok. This is the most shocking thing I have seen in more than two decades of public policy research.

Monopoly pricing at hospitals is likely a contributor to our state’s nearly 10-place decline in health rankings over the past two decades.

The most similar modern phenomenon I have witnessed is the effect of strip-mining on many Appalachian communities.

To place this in historical context, the profit rates at Indiana’s not-for-profit hospitals are larger than anything the Gilded Age robber barons were able to secure. In this observation is a final lesson.

In the process of vetting this study with several colleagues, I shared it with one lifetime Republican and veteran of two GOP administrations. His response was simply that this is the single best argument for Warren/Sanders-style health care reform he had ever seen. He is not wrong, and that alone should prompt quick legislative, regulatory and legal action.

Hicks’ editorial, along with my plight, demonstrate some of the greatest reasons for a major overhaul of our nation’s healthcare system. But let us not hold our collective breaths waiting for that to happen. It seems the health of constituents is not a priority in Congress.

About Bruce Gerencser

Bruce Gerencser, 62, lives in rural Northwest Ohio with his wife of 41 years. He and his wife have six grown children and twelve grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

Are you on Social Media? Follow Bruce on Facebook and Twitter.

Thank you for reading this post. Please share your thoughts in the comment section. If you are a first-time commenter, please read the commenting policy before wowing readers with your words. All first-time comments are moderated. If you would like to contact Bruce directly, please use the contact form to do so.

Donations are always appreciated. Donations on a monthly basis can be made through Patreon. One-time donations can be made through PayPal.

Updated: Local Southern Baptist Pastor Steve Eyers Opposes Helping People Suffering From Chronic Pain

medical marijuana suffering new jersey
Cartoon by Drew Sheneman, featuring anti-marijuana crusader Chris Christie

Four years ago, the Village of Hicksville, Ohio banned the establishment of medical marijuana facilities within its borders. The Defiance Crescent-News reports:

On Monday evening the Hicksville Village Council passed an ordinance prohibiting the establishment and operation of medical marijuana facilities within the village limits.

This is in response to previous sessions in which the possibility of such facilities coming to town was addressed, although no definite plans had been revealed to council by any such entities. Council had received strong support against these facilities by Police Chief Mark Denning and pastor Steve Eyers; no one has spoken out in their favor at any recent council sessions.

In February 2019, the Hicksville village council held a hearing on the matter. The Crescent-News reported at the time:

Pastor Steve Eyers of Lifeline Connect Church stated he has done sizeable research on medical marijuana since the last meeting and believed the jury to still be out, with no solid documentation existing substantiating positive claims about such facilities; he did observe that medical marijuana is not on the “approved” list of the Food and Drug Administration.

Eyers suggested council speak to state lawmakers and those in other municipalities which have approved medical marijuana production facilities about the results of such places, noting, “Once you open the door it will be difficult to close.”

As readers will note, the main objector to medical marijuana was Steve Eyers, pastor of Lifeline Connect Church. At a previous council meeting, Eyers, a Fundamentalist Southern Baptist, used the “slippery slope” canard to argue against medical marijuana. In Eyers’ world, every perceived negative (sinful) behavior is a step farther down the slippery slope that leads to Hell. I am sure Eyers believes that marijuana is a gateway drug, and once people start toking mary jane they will soon be hooked on crack, cocaine, heroin, or other highly addictive drugs. Funny how Eyers’ “sizeable research” didn’t turn up any evidence to the contrary:

The “gateway hypothesis” or theory refers to the idea that one substance — marijuana, in this case — leads to subsequently use and/or abuse other drugs. If [Governor Chris] Christie’s point is simply that the use of marijuana tends to precede the use of other drugs, then he is correct — but that’s not the whole story.

Though studies of large populations of people have indeed found that those who smoke marijuana are more likely to use other drugs, these studies show a correlation without showing causation — a commonly misunderstood phenomenon in science. In short, just because marijuana smokers might be more likely to later use, say, cocaine, does not imply that using marijuana causes one to use cocaine.

A 1999 report from the Institute of Medicine, which is part of the National Academy of Sciences, laid out this issue clearly (see pages 100-101): “In the sense that marijuana use typically precedes rather than follows initiation into the use of other illicit drugs, it is indeed a gateway drug. However, it does not appear to be a gateway drug to the extent that it is the cause or even that it is the most significant predictor of serious drug abuse; that is, care must be taken not to attribute cause to association.”

We spoke with several experts and reviewed the available scientific literature on gateway theory. Christie’s definitive statement is unsupported by evidence — there is some evidence in favor of a gateway effect, but the scientific community shares no consensus on the issue and there is little evidence on the underlying cause of that effect. — Factcheck.org.

Evidently, the good pastor was absent the day his teacher covered correlation and causation in science class.

There is no question that medical marijuana can and does help with many medical maladies, including chronic pain. Numerous readers of this blog can testify to medical marijuana’s efficacy and how it has improved their quality of life. It is absurd to oppose any drug (or treatment) that will reduce pain and suffering. But, Bruce, people might get “addicted’ if they start using medical marijuana. So what? Should it matter that a drug is “addictive” IF it’s helpful? Shouldn’t the goal be reducing pain and improving quality of life? Besides, moral crusaders such as Eyers usually confuse addiction with dependency. Addicts misuse drugs, using them for the sole purpose of getting high. Most people who use medical marijuana (and opioids such as Hydrocodone and Oxycontin) are not addicts. They use the drugs as prescribed to relieve pain and improve the quality of their lives. Long-term users can become dependent on such drugs, but, again, why does that matter? I have been on narcotic pain management drugs for fifteen years. Does this make me an addict? Of course not. I take the medications as prescribed by my family doctor. I have taken a variety of pain relievers over the years, but I have not, one time, abused them. Using these drugs for long periods has certainly made me physically dependent on them. If I were to stop taking Hydrocodone, for example, I would go through withdrawal. And believe me, that’s not fun. Several years ago, I stopped taking Tramadol. I had been using Tramadol on and off for managing mild pain for over a decade. It took months of suffering to successfully wean myself off of the drug. The withdrawal symptoms were so severe that I had to sleep in the living room so my thrashing and crying wouldn’t keep my wife awake. Yes, I survived, but at no time was I addicted to Tramadol. Dependent, yes. Addicted, no.

Count me as one person who is fucking tired of moralizing preachers such as Steve Eyers. First, they are hypocrites. Why did Eyers decide to take a stand against medical marijuana and not the drugs that are widely abused by Hicksville residents, including nicotine, caffeine, alcohol, and religion? Alcohol, in particular, causes all sorts of physical and social problems. Yet, crusading preachers are eerily silent on the subject — outside of an occasional anti-booze sermon. Why is that? Second, they attempt to force their personal or sectarian moral codes on others. There are times I wish that the Steve Eyerses of the world would come down with a debilitating, painful disease; one where relief could only be found through using narcotics or marijuana. Then, and only then, would they understand why chronic pain sufferers need drugs. Of course, I wouldn’t actually wish that on anyone, but there’s nothing like first-hand experience for revealing ignorant beliefs.

If Eyers and others like him want to live in pain, have at it. Taken literally as a moral prescription for living, the Bible encourages enduring pain and suffering. Just pray to God and trust that Jesus will be with you every step of the way, right? No thanks. As a humanist, my goal is to reduce suffering and pain, not only for humans, but all living animals. The greater goal is happiness and well-being for all. While suffering and pain can and do teach us valuable lessons, only Evangelical/Catholic sadomasochists think pain is desirable or necessary. Of course, when you believe the world is a shit hole ruined by sin, that all humans are born sinners/haters of God, that life is to be endured until the rapture, and that the grand goal is eternal life in Heaven, it should come as no surprise, then, that you don’t put much emphasis on the here and now.

Medical marijuana sale and use is legal in Ohio, and there’s movement towards making all use of weed legal (it could be on the ballot this November), All praise be to Shiva. Sadly, some Republican state legislators — who are overwhelmingly Christians — and regulators have gone out of their way to impede the opening of medical marijuana growers, processors, and sellers. Just over the border in Michigan, marijuana use is legal and much cheaper than Ohio’s medical weed. Sellers abound. Further, here in the Land of God, Guns, and Republicans, most doctors refuse to write prescriptions for medical marijuana. The insane government war against opioids has scared the shit out of medical professionals — fearing the loss of their licenses — so they refuse to act in the best interest of their patients. Ohioans can go to one of the few doctors approved to write medical marijuana prescriptions, but this could cause them all sorts of problems with their primary care doctors — including the refusal to treat in the future. (Please see How the War on Opioids Hurts People With Chronic PainPlease Stop the War on Chronic Pain SufferersMedical Marijuana and Relieving Pain and SufferingHow Fundamentalist Prohibitions Cause Needless Suffering and Pain,  and Understanding and Helping Those Who Live With Chronic Pain.)

Years ago, I helplessly watched a devout Evangelical man suffer horrific pain as he slowly died of bowel cancer. He refused to take pain medications because he believed Jesus was better than morphine; that his suffering had some sort of redemptive value. My late father-in-law often went without pain relief because he believed drug “addiction” (I tried to explain to him the difference between addiction and dependence to him, without success) was sinful. As a pastor, I watched countless dying congregants forgo narcotic pain management because they wanted to be clear-headed when they entered the pearly gates. They needlessly suffered, and for what? Remove God and the afterlife from the equation, and I suspect most people will say YES to anything that reduces their pain.

If Steve Eyers wants to suffer for Jesus, have at it. All that I ask is that he not stand in the way of other people getting the help they need. Jesus is called the Great Physician. The gospels detail many of the healing miracles the Son of God purportedly performed while walking the dusty roads of Palestine. Be like Jesus, Steve, Be like Jesus. If you can’t heal people, Steve, at least let the sick and hurting among you have access to people and drugs who can.

Pastor Eyers lost his battle against weed. Four years after his lies and distortions before the Hicksville Village Council, a new marijuana dispensary opened ten miles from his church in the village of Sherwood. Hicksville said no to the dispensary, as did the village I live in. Both Ney and Hicksville council members put their religious and personal beliefs before what was good for their communities. Tax money that could have helped fund local services went — dare I say it? — up in smoke.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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How NOT to Talk to Someone With Chronic Pain or Debilitating Illness

new pain schedule

Several days ago, I received an unsigned letter from a sixty-four year old atheist woman. After reading my member introduction in the September 2017 Freedom From Religion Foundation newsletter, Freethought Today,  and rooting through my blog looking for personal health information, this woman decided to send me a typed two-page letter detailing her uneducated, ill-founded opinion of my weight and health, along with numerous paragraphs detailing what I should do to regain the Bruce of the 1970s.  At the end of her deconstruction of my physical being, she spent thirty-eight words complimenting me on my beard and thanking me for my story in the newsletter.

I sat on this letter for several days, waiting for my anger to calm before answering it. Yesterday, I talked to my counselor about the letter and why it is that people who don’t know me and don’t know my health background think it is appropriate to send me letters such as this one. It would be one thing if someone who was close to me talked to me about this or that health matter, but even then, no one, not even my wife, knows the depth and complexities of my health problems. People only know what I tell them, and trust me, there is a lot I don’t talk about. That I am willing to talk about my struggles with chronic pain and debilitating illness at all is deemed by zealots and nuts as an opening for them to preach their gospel — complete with shaming me for “sin” and using my children and grandchildren as bait to attract me to their particular way of life or “cure.”

I have received numerous letters from people offering unsolicited medical and lifestyle advice. Over the years, I have been told that the following will “cure” me or transform my pain and illness to a mere afterthought: essential oils, chiropractic care, magnets, acupuncture, reiki massage, homeopathic remedies, meditation, getting my chakras aligned, drinking magical shakes, and taking this or that supplement — more times than I can count. According to many of the people offering advice, Western medicine is evil, drug companies are out to kill me, and medical professionals are deliberately withholding care and treatment  that would cure me because they want to make money off my pain and health.

My latest letter writer takes a more simplistic approach, albeit she is every bit as ignorant of the latest science related to my health as the purveyors of the woo mentioned above. She contends that if I would just exercise more, lessen calorie intake, and not drink soda pop my life would be transformed. She assumes, of course, that I am NOT already doing these things, choosing instead to look at my photograph, seeing that I am fat/overweight/obese, and conclude that I am not following her prescription for having a born-again experience. The letter writer assumes that what worked for her will work for everyone else. She ignores the fact that human bodies are complex and what may work for one person won’t work for others.. She also ignores genetic and environmental factors, choosing instead to focus on my body size. In many ways, she is much like Evangelicals who attempt to deconstruct my life, refusing to allow me to tell my own story. Instead she takes her atheistic religious health experiences and uses them as a standard by which to judge me.

Simply put, the letter writer is not in the position to make ANY judgments about my health or offer ANY advice as to proper treatment. I have a primary care doctor, along with medical specialists who provide me necessary and adequate care. I am satisfied with their care, knowing that the health problems I have, for the most part, cannot be cured. All my doctors can do for me is try to improve my quality of life and lessen my pain. I have told my primary care doctor several times that I don’t expect him to fix what can’t be fixed. I have accepted that this is my life — live with it, Bruce! I know that my health problems began when I was a slim, trim athletic fourteen-year-old teen. Genetics, exposure to dangerous chemicals that landed me in the emergency room, and communicable diseases set the stage for how things are for me today. A near-death experience with mononucleosis in 1991 and two bouts with pneumonia left my immune system wrecked beyond repair. The letter writer understood none of these things, choosing instead to just see a fat guy who, she thinks, eats too much.

The letter writer is offended by my stoic, matter-of-fact approach to my life and health. I was diagnosed with Fibromyalgia twenty years ago, and with neurological problems in 2007. For a time, doctors thought I might have multiple sclerosis. The symptoms fit, but the tests, so far, are inconclusive. Over the past two decades, osteoarthritis has slowly marched its way through my skeletal system. A visit to an orthopedic specialist last year revealed osteoarthritis in my hands, knees, feet, lower spine, neck, and shoulders. In other words — everywhere. The combination of these three diseases (and joint injuries) has left me disabled — another word the letter writer hates. Tough shit. That’s what I am: d-i-s-a-b-l-e-d.  Most days, I walk with a cane, steadying myself so I don’t fall and break something. Sometimes, I use a wheelchair — a sign to the letter writer that I am giving up. (Want to guess how many times I wanted to say go fuck yourself as I read her letter? You will need all your fingers and toes.)

The letter writer spends most of her sermon preaching about my weight. Evidently, she doesn’t care for fat people, nor does she understand that body shaming is no longer considered acceptable conduct in polite company. Friends accept people as they are. I know I would never, ever write someone a letter like the one this woman wrote to me. Perhaps she thinks that because she is in her sixties, she has earned the right to say whatever she wants. I want to give her the benefit of the doubt, but it is hard to do so when I view her letter as a personal attack — an assault on who and what I am.

The letter writer reveals that she really doesn’t understand current scientific evidence about body weight and weight loss. She wrongly says that weight loss is as simple as reducing caloric intake. This thinking is patently false, and can, at times, be dangerous or even life-threatening. She also assumes that I don’t manage caloric intake and eat healthily. I do, about ninety-five percent of the time. Since last November, I have lost forty pounds. Massive bowel movements? Fluid loss? I don’t really care. I try to eat healthily, and when I do not, I don’t lose one moment of sleep over it. Life is too short. If eating ice cream is going to be the end of me, so be it. Praise Jesus, I will leave this life with the sweet taste of rocky road ice cream on my lips!

The letter writer tells me in capital letters, DO NOT EAT IN RESTAURANTS. This must be one of her religion’s commandments, and if it is, NO THANK YOU. Polly and I spent the first twenty-five years of marriage rarely eating out. We couldn’t afford it. Now we can, and me and the Mrs. plan on enjoying as much good food (and wine) as we possibly can. At home, my wife is a first-rate gourmet cook. She has the pans, knives, oven and cookbooks to prove it. Only food zealots would have a problem with what we eat.

The letter writer also shows a lack of understanding about pain and how narcotics work — wrongly believing that narcotics make pain go away. Sorry, but that’s not how it works. Massive amounts of narcotics might take pain away, but they also render people unable to do much of anything but sleep. I have been on a pain management regimen for twelve years. The goal is to break the pain cycle so I can have a better quality of life. Pain levels, rise and fall, but the pain never goes away. I haven’t had a pain-free day in years.

The letter writer tells me that a pain-free life is overrated, that I shouldn’t take narcotics (take aspirin or ibuprofen instead), and that since I AM taking narcotics I shouldn’t need to use a cane or wheelchair. According to her, if I would just lose weight, exercise more, all would be well and I would no longer have to use my cane or wheelchair. Calling my pain medications a crutch, she implores me to let pain have its way with me. This woman has serious health problems herself, including a major bout with cancer. I wonder how she might have felt had I come into the room after her surgery and told her what she had told me about pain. No need for morphine! Own your pain! Just take Aleve!

I am of the opinion that there is little value in ignoring pain or embracing it because there is some sort of nobility gained from not taking pain medications. Sorry, but I choose to live as pain-free of a life as possible. I choose to embrace my pain, but I am sure as hell not going to let it ruin my life by reducing me to an old man curled up in a fetal position wishing he could die. By properly managing my pain (and other aspects of my health), I have the ability most days to do the things I want to do. Some days, the pain meds simply don’t work. On such days, I endure, knowing that surely better days lie ahead. And if they don’t? Then I will embrace the present as my new normal.

you can do it

Finally, the letter writer should have plumbed the depths of my personality before sending her sermon my way. Had she done so, she would not have taken the motivational YOU CAN DO IT, OH YES YOU CAN approach. I loathe such approaches to life, and when someone tries to “motivate” me this way, their attempt always fails. I am a rationalist who approaches life in a matter-of-fact way. I don’t need anyone to cheer me on. I am quite capable of determining for myself what I need to do, and then doing it. And if I do ever need a bit of Richard Simmons-like motivation, I look to my wife, children, and grandchildren for reasons to get up in the morning and keep moving. I drove my ex-daughter-in-law crazy (as did her husband) because I wasn’t happy as a seal with a ball at parties and family events. I tend to be quite reserved emotionally, choosing to show my gratitude or praise with words such as fine, that’s good, good job, thank you, or I appreciate it. I don’t get all wide-eyed and slap-happy. People who know me understand that when I say something is fine, that is a high praise coming from me (except when I say fine when answering, How are you doing? Then, I am usually lying). I, for one, am quite tired of being treated as if there is something wrong with me if I don’t have excitable emotional outbursts when expressing my approval of people or events. Who decided that being all jacked up on Mountain Dew is the only proper way to respond to things?  (Please read Bright-sided: How Positive Thinking is Undermining America by Barbara Ehrenreich.) Fuck that. I am who I am, and I am quite happy with being the one and only Bruce Gerencser on planet earth. Woo! Hoo! Ain’t I a special snowflake!

Let me be clear, when it comes to my health and the medical treatment I receive, please keep your thoughts, opinions, sermons, and dogma to yourself. You may have stayed in a Holiday Inn, but you are not my doctor. I’m fine with close friends or family members sending me links and asking me if I have read this or that report or study. Most often, since I am an INFORMED sufferer of chronic pain and debilitating illness, I have already read the report/study. I appreciate that they genuinely care about me and hope that something will come along and improve my lot in life (money, lots of money – that will work). For everyone else? Please don’t. Don’t email me, don’t write me letters, and don’t post on my Facebook wall whatever it is you think will transform my life. Chances are it won’t, or I have already tried it without success. Love me as I am and when you hear of my demise, be it today, tomorrow, or ten years from now, I hope you will remember me for the good I have done. Like everyone else, I want acceptance and respect from others. This letter writer demonstrated neither.

About Bruce Gerencser

Bruce Gerencser, 60, lives in rural Northwest Ohio with his wife of 39 years. He and his wife have six grown children and eleven grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist. For more information about Bruce, please read the About page.

Bruce is a local photography business owner, operating Defiance County Photo out of his home. If you live in Northwest Ohio and would like to hire Bruce, please email him.

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Facing Life and Death Without God

life

Christianity offers its followers the promise of life after death. No matter how difficult and painful this life is, Christians are promised wonderful lives after death living with Jesus and their fellow Christians in a perfect, pain-free heaven. While I wonder how heavenly it is to spend your life prostrate before God worshiping him, Christians live in the hope that someday they will take possession of a room in the Father’s house, built especially just for them. (John 14) Without the promise of life after death in heaven, I wonder if most Christians would still be willing to forgo the pleasures of this life? While some Christians would argue that living according to the laws, teachings, and precepts of the Bible is still a good way to live, I suspect most Christians — without the promise of eternal life and bliss — would quickly abandon their houses of worship, joining people such as myself at the local pub or the church of the NFL. After all, even the apostle Paul said, If in this life only we have hope in Christ, we are of all men most miserable. (1 Corinthians 15:19) Evidently, Paul thought that in this life only Christianity had little to offer. And so Sunday after Sunday, Christian preachers promise parishioners a home awaits them in heaven. According to the Bible, God promises some day to give Christians the desires of their hearts. Wait. Does that mean there will be booze, porn, cigars, dirt track racing, and hunting in heaven? Will heavenly citizens spend their days playing Nintendo or Xbox games? Will God really give Christians the desires of their hearts? Hmm, this got me thinking about the whole going-to-heaven thing. I know a con job when I hear it. What better way to get people to buy what you are selling than to promise them that they will have a wonderful life if they will just sign on the dotted line. A wonderful life, that is, someday, after you have made the 666 monthly payments and died.

Atheism offers no such promises. Atheism is rooted in a humanistic and secularist view of the world. No promises of a divine life in the sweet by and by. Life is hard, and then you die. No promises of blessings in this life or the life to come. Some have argued that atheists have a cold, sterile outlook on life. To some degree this is true. Atheists are realists, knowing they only get one shot at life— best get to living it. Life is what we make it, and even when hard times come (and they will most certainly come), atheists find a way to make the most of it. I could spend my days whining and complaining about my health problems, but what good would that do? Instead, I turn my pain and suffering into a platform for helping others. I can look at the five decades I spent in the Christian church and say, what a waste, but I choose to use these experiences as an opportunity to help others. I know that this is the only life I have, and it is up to me to make the most of it. Spending time wondering about what might have been accomplishes nothing. As my family has heard me say many times, it is what it is. Sure, if there were some magical way to redo certain things from my past I might do it. But maybe not. Polly and I will celebrate our 38th wedding anniversary this July. We met at a Fundamentalist Bible college. If nothing else good came out of our past, both of us would say — on most days — that our relationship was the best thing about our years in Evangelicalism. I would not want anyone to follow the same path we did, yet we do have six wonderful children and 11 awesome grandchildren. They indeed are the bright spots of the years we spent working in God’s coal mine. I have learned, or perhaps I am learning, to reflect on the good of the past, and use the bad things to fuel my writing and my attempts to help others avoid similar paths.

I will celebrate my 59th birthday in June. I have lived 12 years longer than my mother and five years longer than my dad. There are days when my body is so overwhelmed with pain that I wonder if I can live another day. The means of my demise are always nearby, yet despite my suffering I choose to live. Why? Because this is the only life I will ever have. I only have one opportunity to love Polly, Jason, Nathan, Jaime, Bethany, Laura, Josiah, my grandchildren, my brother and sister, and Polly’s mom and dad. I know that when I draw my last breath, there will be no family circle meeting in the sky — sorry Johnny! This is why I want to live each and every day to its fullest. This is not a cliché to me. This life matters. My wife, children, grandchildren, son-in-law, daughters-in-law, siblings, extended family, and friends matter to me. I know that I am only going to see them and enjoy their company in this life. There are places I want to go to and see. I want to enjoy and experience the fullness of what it means to be human. And since casting off the shackles of religion, I have been free to drink deeply of the human experience. No longer fearful of God’s judgment or hell, I am free to see, touch, taste, and hear the things I desire. Yes, there is that dirty word that dare not be spoken in Evangelical churches — desire. I spent way too many years denying passions, desires, wants, and needs, all for the sake of God, Jesus, the church, and the ministry. No more. It is wonderful to do something just because I want to. I do not have to pray about it or see if the Bible approves of it. Bruce approves, end of discussion.

When I write posts such as this, there are always a few horse-bridled Christians who let me know that there is coming a day when I will regret not bowing to the will of the S&M master, Jesus. Someday Bruce, Evangelical zealots tell me, God is going to make you pay for your attacks on Christianity. Someday, God is going to judge you for your wanton living and rejection of the Bible. Sometimes, I think Christians such as these people relish the day when God is going to give atheist Bruce Gerencser an eternal ass-whipping. I am sure they will be standing among the crowd cheering and saying to God, hit him again! He deserves it, Lord.

I have been blogging now for going on nine years. I left Christianity in 2008, and since then countless Evangelicals — along with a few Catholics — have attempted to win me back to Jesus through the use of Pascal’s Wager. The basic premise is this, Bruce, what if you are wrong? Good question. Since I am not infallible, nor do I have at my disposal the sum of all human knowledge and experience, all I can do is make reasoned, knowledgeable decisions based on the evidence at hand. I can tell readers this much: I have been wrong many, many times. Not only that, I have made enough mistakes that if you piled them up they would reach to the International Space Station. I am, after all, a feeble, frail, and at times contradictory, human being. I can, like all people, be led astray by my passions, judgments, or incomplete information. I am not immune to irrationality and cognitive dissonance. However, when it comes to Christianity and its promises of eternal life in heaven or judgment in hell, it is my educated opinion that the claims of Christianity are false. Trying to get me to choose Jesus just in case I am wrong makes a mockery of intellectual inquiry (and Christianity). Having spent most of my adult life in the Christian church and 25 years studying and preaching the Bible, I think it is safe to say that I know a good bit about Christianity. I cannot remember the last time that some Christian presented me with something I have not heard before. I am not being arrogant here — as I am sure some Christians will allege. I spent decades reading and studying the Bible — devouring countless Christian books. I immersed myself in Christianity and its teachings, so when I say I am no longer a Christian because I think the claims of Christianity and the Bible are false, my conclusions — unlike many Christian opinions of atheism — come from an educated, reasoned, well-thought-out position. Do I know everything there is to know about Christianity? Of course not, but I sure as hell know more than most the Christians (and preachers) I come in contact with on a day-to-day basis. My point is this: I am an atheist today, not out of ignorance, but because I weighed Christianity in the balance and found it wanting.

If Christians come up with new evidences for the veracity of their claims — and I doubt they ever will —  then I will gladly consider them. Until then, I am content to number myself among the godless. And when I die, I hope to leave this life knowing that I did what I could to be a help to others. I hope, on the day that my ashes are scattered along the shores of Lake Michigan, that my family and friends will speak well of me. I hope that none of them will have to lie, but that they will truly believe that my good works outweigh the bad. This is why I think that is important to finish well. I am sure Polly and my children have less-than-complimentary stories they could tell at my wake, but I hope, because I have made a concerted effort to be a better man, that they will share stories about a good man who just so happened to be an atheist.

I am often asked if I fear death. Yes and no. Since no one has died and come back to life — including Jesus — I do fear the blackness that awaits. There are been those times, late at night, when I have pondered being alive one moment and dead the next; going to sleep and never waking up. But this fear does not overwhelm me. I know that I cannot do anything about dying. It is, to quote the Lion King, the circle of life. We are born, we live, we die. End of story. All I know to do is to live a good life and be a good husband, father, grandfather, friend, and fellow citizen of earth. I have had the privilege of living at this time on humanity’s calendar, and when it comes time for me to draw my last breath, I hope my dying thoughts will be those of love. Love of family, love of friends, love of writing, love of photography, and love of all those who have made my life worth living. Will that not be what all of us desire? To love and to be loved? As dying pushes away all the minutia of life, what remains is love. For me, that will be enough.

A Few Thoughts on Abortion and the Planned Parenthood Videos

planned parenthood

I’ve been asked to give my take on the Planned Parenthood videos.

When it comes to Planned Parenthood’s mission, to provide healthcare to women, I am 100% in their corner. Providing abortions is a small part of Planned Parenthood’s services, and defunding Planned Parenthood would have a deleterious effect on the health of poor women. Attempts to defund Planned Parenthood are driven by religious belief and bad science. We live in a secular state, one that supposedly separates church and state and one that values science; yet, when it comes to abortion, the debate is framed by religious claims that result in skewed interpretations of science.

Strident pro-lifers, based on their religious beliefs, say that abortion is murder. I have written about this before in a post titled 25 Questions for Those Who Say Abortion is Murder. The abortion-is-murder view is irrational and is a denial of what science tells about fetal development and life. Just last week, Mike Huckabee, a Baptist preacher and a candidate for President, said he supports personhood for zygotes (see Personhood USA). That’s right, Huckabee wants constitutional protection conveyed the moment a man’s sperm unites with a woman’s egg. This means that Mike Huckabee, along with those who support personhood for fetuses and believe abortion is murder, think that the following should be considered a person protected by the constitution and those aborting them are murderers:

3 day old human embyro
Three Day Old Human Embryo.

4 week old fetus
Fetus at 28 days

human fetus
Fetus at 56 days, 1/2 inch long

Fact: 63% of abortion take place within eight weeks of pregnancy.

This is what a fetus looks like at 12 weeks:

12 week fetus
Fetus at 12 week

Fact: 89% of abortions take place within 12 weeks (first trimester) of pregnancy.

When I look at the science along with the aforementioned photographs, I see potential life. I don’t see a person, one deserving constitutional protection. (Please see Abortion Facts, Lies, and Contractions.) All the religious posturing and moralizing in the world won’t change my view on this matter. Why? Because it is rooted in scientific fact and reason.

As the fetus continues to grow it moves from being potential life to actual life. Usually this is around weeks 20-24. Fetuses can and do survive when born prematurely, and it is for this reason I support greater protection for them under the law. The state has a vested interest in protecting human life, not potential life. I do not agree that abortion after viability should be a decision made between a woman and her doctor without any regard to the fetus. Once viability is reached there is a third party — the baby — who should have rights. Not absolute rights, mind you. There are times, due to health concerns or fetal abnormality, that is it medically prudent to terminate a pregnancy after viability. Since the overwhelming majority of abortions occur before viability (98.8%) or post viability as a result of health concerns or fetal abnormality, I see no reason to oppose abortion.

Why is it that pro-life groups rarely use the aforementioned photographs to make their case? Why do they always graphically display fetuses aborted late in a pregnancy? Shock value. I wonder if some who say abortion is murder would think differently if they were presented with a picture of a zygote and not a picture of a full term fetus?

The recent videos concerning Planned Parenthood are disturbing. The group behind the videos are using highly edited footage, releasing them over a long period of time in hopes of maximizing the damage, inflaming passion, and bolstering the campaigns of pro-life candidates for President. (Please see People of the American Way post  The Activists and the Ideology Behind the Latest Attack on Planned Parenthood.)

Despite my opposition to the group behind the videos, I do find the videos troubling. Is Planned Parenthood selling fetus parts? Yes and no. Yes, in the sense that they are selling at cost various fetus parts to researchers, but no in the sense that it isn’t a huge revenue stream for Planned Parenthood. What Planned Parenthood is doing is legal, no different from harvesting organs for transplant.

I am sure someone is going to say, but Bruce, look at how nonchalant the Planned Parenthood people were on the videos. I agree, this is troubling, but is their crassness any reason for the government to defund Planned Parenthood or for abortion to be outlawed or criminalized? Of course not. Again, I go back to the science. Like it or not, in most cases, the aborted fetus is a blob of developing cells. Since these developing cells are potential life, not human life, why shouldn’t researchers be permitted to use these cells and developing organs to find cures or treatments for diseases that are afflicting and killing humans?

I think the crassness displayed on the videos is troubling, but explainable. Take doctors. Doctors are around sickness and death every day. Imagine a group of doctors sitting around a table talking shop. How do you think the discussion would go? A bit of morbidity, humor, and deflection? This is their way of coping with the work they have been called to do (and yes, I think many of the people who work in abortion clinics have a sense of calling, a deep desire to help women in a time of great need). The same could be said for coroners, morticians, homicide detectives, crime scene investigators, CDC investigators, and crime scene cleaners. As someone who lives with the ugly specter of death lurking in the shadows, I have a gallows sense of humor about death. Some family members and friends are appalled by my humor, yet it is how I cope with the reality that death is stalking me and will ultimately seize me as its prey. People who are around death often use humor to cope and often seem detached from their work, and I think that is exactly what is shown on the Planned Parenthood videos.

What Planned Parenthood has is an optic problem. They allowed themselves to be snookered by ideologically driven religious nut jobs who want to make abortion, along with birth control, illegal. Planned Parenthood needs to do a better job of vetting whom they are talking to. They also need to put some of their workers and executives through sensitivity training. We say that getting an abortion is a monumental decision for a women. If this is true, then our behavior and demeanor should reflect this, not unlike our response to someone who is dying and has decided to stop medical treatment.

I am sure those on either side of this issue will disagree with me and that’s why I have been hesitant to write about it. My position on abortion is informed and quite developed, so I don’t waste my time arguing about it. I recently had several dust-ups on Facebook with people who think anyone who is pro-choice or supports Planned Parenthood is a sick, vile, evil, murderer. Rather than continue to read such drivel, I unfriended 30 or so people, including family members (and yes, I tried to educate them before I unfriended them).

I find it interesting that the same people who are so ardently pro-life are very same people who are pro-war, pro capital punishment, anti-homosexual, anti-same sex marriage, anti-immigration, and anti virtually anything that has to do with care and compassion post-birth. It seems the only life they care about is the one in the womb. These same people say they are anti-abortion, yet they oppose free birth control and standardized sex education, two things that we know reduce the need for an abortion. There’s one word for people who think like this: hypocrite.

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Bruce Gerencser