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Tag: Fibromyalgia

Eating “Right”

Bruce Gerencser 17 Comments
food police

Recently, I wrote a post titled Humor: How You Know You Have Gastroparesis. Any time I write about my health problems, someone will either leave a comment or send me an email about what I need to do “fix” what ails me. I have repeatedly asked people not to do this, but much like Evangelical zealots they are determined to evangelize for the gospel of “eating natural,” homeopathy, keto, vegetarianism, veganism, supplements, or countless other “diets.” I’ve even written posts about not offering me unsolicited medical advice:

Bruce, Have You Tried . . .?

Please Do Not Offer or Send Me Unsolicited Medical Advice

Have You Tried (blank)?

The Similarities Between Food Fundamentalists and IFB Zealots

Leave it to Fake Dr. David Tee to ignore all that I have written on this subject and offer me “advice” anyway:

I am just curious. You do know that antibiotics wipes out both good and bacteria in your digestive system. Have you thought of going to the following foods and spices to help restore some balance- pepper (good for inflammation), cinnamon (not a lot), Greek style yogurt, pure honey, relish, dark chocolate and similar foods. These items work on restoring the good bacteria your stomach needs as well as help with bloating and inflammation.

If you have don’t bite my head off and if you haven’\t talk to your doctor about more natural remedies

Sigh

There are several assumptions that people make about my health problems.

First, I am to blame for my health problems. While lifestyle and environmental factors certainly play a part in diabetes and high blood pressure, how am I in any way to blame for gastroparesis, fibromyalgia, and osteoarthritis? How am I to blame for the herniated discs in my upper back and neck? How am I to blame for the plethora of problems I have with my spine? Or the Morton neuromas in my feet? What could I have done differently that would have resulted in a better outcome?

For the record, my diabetes and high blood pressure are managed with diet and medication. Last A1c? 5.4. And my cholesterol? Normal, across the board.

Second, because I am overweight, I must have a “bad” diet or eat the wrong things.

Third, my reliance on evidence-based, science-based medicine keeps me sick.

If I would just eat better and eschew Western medicine, my health would improve overnight; my stomach would magically “cure” itself; the arthritis and degenerative disease in my spine, feet, and hands would magically disappear; my fibromyalgia would magically recede into the background of my life, never to be heard from again.

If only life were that simple, right?

Fake Dr. Tee assumes that there’s something wrong with my diet; that if I would eat the right things I would be magically cured. He provides no empirical evidence for his claims, no double-blind studies that show the efficacy of his magical foods. Just personal opinion.

Here’s the thing, my diet is just fine. In fact, it’s more than just fine.

Currently, on our kitchen counter and in the refrigerator you will find:

Veggies: carrots, asparagus, cabbage, Brussel sprouts, broccoli, lettuce, beets, red potatoes, yellow potatoes, russet potatoes, sweet onions, red onions, green onions, green peppers, mushrooms, celery

Fruit: apples, bananas, lemons, oranges, tomatoes

Damn, Bruce, you and Polly must like eating veggies and fruit. Yep, and we have eaten this way since the late 1990s — twenty-two years. So much for “food” being the problem.

I even take a few supplements, even though science clearly shows that taking supplements is largely a colossal waste of time and money. The only time we need to take supplements is when we have deficiencies.

I take:

  • Potassium for low potassium levels, likley due to the blood pressure medicines I take.
  • B12 for low B12 levels; the cause is unknown. I have had low B12 levels for 20+ years
  • Iron for anemia, caused by gastroparesis. This remains an ongoing concern as the supplements have not appreciably raised my red blood cell counts.
  • Vitamin C, taken to help with the absorption of Iron

Fake Dr. Tee also mentions spices. I will let the following photos from Polly’s kitchen tell you everything you need to know:

pollys spices (1)
pollys spices (2)
pollys spices (3)

Time for dinner! Tonight, I am eating Oreos, mint chocolate chip ice cream, and a Snickers, washed down with A&W Root Beer and a double shot of Jameson. I’ll sprinkle some cayenne pepper on the ice cream so the food police will be happy. 🙂

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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The Genesis of My Battle with Pain

Bruce Gerencser 6 Comments
garfield pain

In the spring of 1971, my dad took me to see a female doctor. I was having pain in my elbows, legs, and feet. The doctor gave me an exam, including checking me for a hernia. Asked to drop my pants so she could check my testicles, I briefly passed out when she touched my genitals. She was the first and only woman who would ever see/touch my genitals until I married my wife, Polly, at age twenty-one (I did not pass out then). 🙂 The doctor concluded my pain was nothing to worry about. I had “growing” pains.

The pain in my elbows became so bad that I missed part of my freshman baseball season. The pain later went away, but I view this experience as the genesis of my pain problems. The next year, I missed weeks of school because I had mumps and chickenpox. That summer, I was exposed to chemicals in a swimming hole frequented by my friends and me. Chemical barrels had been dumped in the water, exposing us to harmful substances. Several of my friends ended up in the hospital. I was fortunate. I had large blisters on my skin, much like the blisters fair-skinned people get from a bad sunburn. A year later, I started having a problem with painful, debilitating swelling in my big toes. A doctor in Sierra Vista diagnosed this as gout — elevated uric acid levels. I took Zyloprim for several years and the gout went away. A rheumatologist would later cast doubt on my gout diagnosis. His explanation? I don’t know.

By the time I was in my twenties, I was having widespread joint pain, especially in my feet, legs, and back. My primary care doctor at the time blamed my pain on arthritis and sports injuries. I played competitive baseball, basketball, and softball until my early thirties. I also played racquetball and tackle football (without pads/helmets). I have injured every joint in my body — or so it seems, anyway — numerous times. I would walk out the door in fine shape, telling Polly I was going to the Y to play basketball, only to return home crippled and beat up. Some of these injuries required medical attention, including drawing fluid off my knees. I stopped playing competitive sports after an orthopedic doctor told me my knees were so bad that I was going to end up in a wheelchair if I didn’t stop playing basketball.

Over time, my pain problems became more pervasive. In 1997, I was, after two years of doctoring, diagnosed with fibromyalgia (widespread fatigue, pain). In the early 2000s, I was diagnosed with osteoarthritis (pain in the spine, feet, neck, shoulders, hands, knees), and in 2020, after extensive testing, I was diagnosed with gastroparesis (nausea, vomiting). In 2021, after seeing a doctor for excruciating pain, a CT scan and MRI revealed four herniated discs in my upper back.

Today, pain is my ever-present “friend.” I accept that this is my lot in life. I have two choices in life, keep moving or roll over and die. I choose, at least for today, to take narcotic pain medications, potent muscle relaxers, and other drugs that help me to keep moving forward. The goal is an improvement of quality of life. There’s no miraculous healing forthcoming — Jesus, you had your chance and did absolutely nothing — so I choose to embrace life as it is. Sure, I wish I didn’t live with constant pain. Sure, I wish I could sleep through the night. Sure, I wish I didn’t have to use a wheelchair or walk with a cane. Sure, I wish I could play with my grandchildren and not feel like I’ve been assaulted in a dark alley by an MMA fighter. But wishing and hoping change nothing, so I choose to accept my life as it is. What more can any of us do?

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Learning to Say “No”

Bruce Gerencser 11 Comments
no

I was the type of pastor who could never say no. Over the course of twenty-five years in the ministry, numerous pastors extended invitations to me to preach at their churches. I never said no, even when doing so would cause economic hardship. Church members knew that they could always count on me to say yes to whatever they needed me to do, even if it was an inconvenience for me or my family. If someone needed a loan, I always gave it to them, even when I knew it was unlikely they would pay me back. Need someone to watch your six kids? Just ask Pastor Bruce and Polly– they will do it. Need transportation to the doctor’s office, work, or the hospital? The Pastor Bruce Taxi Company provided a ride, free of charge. Need tools to fix your car or do a home repair? Borrow Pastor Bruce’s tools, and then fail to return them. The stories are endless. I recognize by telling these stories that a few readers might think that I am trying to paint myself as some sort of super saint, but I think anyone who knows me well would testify to the fact that I have always had a hard time saying no. Several years ago, my mother-in-law chided me for being so willing to give things to others. Quickly realizing how her comment might be interpreted, she said, “I suppose there are worst habits to have.” Why is it that I have such a hard time saying no?

My mother taught me always to be polite and respectful. My father was a salesman and business owner, so he taught me to always give the customers what they wanted. Generally, politeness and respectfulness are good things. Polly and I both taught our children to never be cross or disrespectful towards others. Doing so has served them well as adults. There are times, though, when I wonder if being taught always to be polite and respectful keeps us from properly responding to people who are assholes. Assholes tend to be narcissistic bullies who love to attack people who go through life trying to be decent and kind. I have learned — rather late in life — that sometimes it is okay to be impolite or disrespectful. Some people do not deserve politeness or respect. Over the years, I allowed countless church members to bully and berate me. I could spend the next hour writing about members who stormed in my office to give me a piece of their mind — what little of it they had. They would rant and rave, attacking my preaching, leadership, family, and even how I dressed. One church member was upset over the way Polly crinkled up her nose at him (I kid you not). Most often, I would try to appease them, not wanting to lose church members. Looking back on it now, I wish I had been more willing to tell them to get the hell out of my office and out of the church. These kinds of members rarely stayed in the church for the long term. Sooner or later I did something that so offended them that they picked up their toys and moved on to a new religious playground. Through the grapevine, I would hear that they blamed me for them having to leave the church. Rarely do such people accept responsibility for their own behavior.

I think my view of Jesus also impeded my ability to say no. I saw Jesus as a kind, compassionate, lover of people. Feeding the hungry, healing the sick, and compassionately helping those who crossed his path, Jesus seemed to have had a hard time with saying no too. Like Jesus, I was driven by the fact that there was a deadline that awaited me — death. Knowing that after death I would be judged by God for what I had done in this life, I feared that by saying no I might miss doing something that God wanted me to do. So, I never said no. Well, I never said no to anyone but Polly and our children. They heard the word no all the time. Church members and the demands of the ministry got the best of their husband and father, so when it came time for him to spend time with them or help them with their needs, he far too often said no. I will always regret not putting the needs of my family first. Perhaps this is why I rarely tell my grandchildren no. They have become my do-over of sorts, and they know it. Nana is harder to manipulate than I am, so when the grandkids really want something they come running to Grandpa.

I suspect that my inability to say no will always be with me. Having watched Polly suffer through decades-long economic deprivation, I am determined to make the rest of her life one of comfort. If she wants something, I do everything I can to make sure she gets it. Fortunately, Polly does not abuse my willingness to give her what she wants/needs/desires. I know that life is short and there is no eternal reward beyond the grave, so why not enjoy the fruits of our labor? I know that I will be dead sooner than later. Ecclesiastes says we should enjoy life and the fruits of our labor. Why? Because tomorrow we die. Certainly, we must live life within the parameters of our financial and physical abilities, but there is no award for waiting to live life until you are too old or too sick to enjoy it. I know there is coming a day when physically, I will likely be unable to walk or ride in a car. Knowing this motivates me to walk and ride while I can. I am grateful that I have a partner who is willing to drive me where I want to go and walk with me, even if it means pushing my big ass in a wheelchair.

I am slowly beginning to recognize that it is in my best interest — psychologically and physically — to say no. I now have five grandchildren who are playing competitive sports. I have no doubt that someday eight or nine of them could easily be involved in school activities that I would like to attend. If I had my way, I would attend every one of their games. I thoroughly enjoy watching them play. But, I know that I cannot attend each and every game, especially in the COVID era. If I did so, I would be so physically worn out that I would not be able to do anything else. So, I have to say no when my heart says yes. It is the same with birthday parties and other family gatherings. I ALWAYS want to spend time with my family. We are very close and I want to spend as much time as possible with them, knowing that there is coming a day when all I will be is a memory in their minds and a photograph hanging on the wall. But, I also know that I cannot do everything, and there are times for the sake of my health that I have to say no. Polly’s mom is in declining health. While we have made several trips to Newark — a seven-hour round-trip — I feel guilty over not going to visit her more often. These trips are physically excruciating, and by the time we get home I often feel like I met Mike Tyson in an alley fight and lost. As much as I want to visit Mom every weekend, as we did years ago, I know I can’t. This is perhaps the best example of my physical limitations forcing me to say no.

Bit by bit I am learning that is okay to tell people no. It is not narcissistic to put self first. I am the only one who knows what it feels like to walk in my skin. Outwardly, I look like a typical overweight old man, one who certainly should not need to park in handicapped spaces. But inwardly, virtually every joint and muscle in my body hurts. Some days the pain medications work well, other days they don’t. These days no usually means I can’t. To quote the Bible, “the spirit is willing but the flesh is weak.”

Do you have a hard time saying no? Are you a people pleaser? Please share your experiences in the comments section.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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You can email Bruce via the Contact Form.

Four Things I Learned About Shitting After Being Diagnosed with Gastroparesis

Bruce Gerencser 11 Comments
santa on toilet

A year ago, I was diagnosed with gastroparesis — an incurable stomach disease. I have battled chronic illness and pain for years, thanks to fibromyalgia and osteoarthritis, along with herniated discs in my upper back and neck. Every day is a painful struggle for me. Gastroparesis is what I call a value-added disease. I was already sick enough before my gastroparesis diagnosis, and now every waking moment is a challenge.

I have lost 110 pounds over the past 18 months, primarily due to constant nausea, vomiting, and loss of appetite. (My weight loss has leveled off in recent months.) Eating food is one of the few joys I still have, yet gastroparesis is doing its damnedest to rob of my love for food. I feel so sorry for my wife. She will cook a wonderful meal which I either can’t eat or throw up after I eat it. Imagine going out to a fancy restaurant with your hot wife, only to not be able to eat or, if I do eat, feeling immediately nauseous — regardless of what type of food I am eating. I have developed coping skills to deal with nausea. Medicine helps too — sometimes. And . . . sometimes, no matter what I do, I end up with my face in a porcelain throne. I do my best to make it home before vomiting. I HATE having to use a public restroom.

For some people with gastroparesis, the symptoms become so severe that they decide to have a feeding tube installed. A drastic choice, to be sure. I know several people in their 20s who have feeding tubes — and will likely have them the rest of their lives.

Gastroparesis, also called stomach paralysis, causes all sorts of bowel problems. What should be a normal, daily activity becomes an adventure — and not a good one either.

What follows are four things I learned about shitting after being diagnosed with gastroparesis.

Trips outside of the home require knowing exactly where store/restaurant restrooms are located

You never know when you are going to have to shit. This past summer, we took a trip to Findlay to eat and hang out at Riverside Park. As we were walking in the park, I told Polly I need to find a bathroom — now. I mean right now. I made it to the bathroom and took care of business. As I walked out of the restroom, I had the most terrible feeling I have bowl-wise: the mother of all shits is coming. I quickly turned, saying no! no! no! Halfway into the restroom, I realized I wasn’t doing to make it. I quickly pulled my suspenders and pants down and boom! shit went everywhere. On the floor, on my shoes, on my pants, on my underwear, on my suspenders — everywhere. After I was done, I cleaned up the floor the best I could, silently saying sorry to the janitor who would later have to clean up after me. I rinsed out my clothes and wiped off my shoes and suspenders. I then walked out of the restroom, underwear in hand. I looked at Polly, handed her the underwear to put in a bag. No words were needed.

Several months ago, I had a similar experience at a Whole Foods store in Toledo. This time, I made it to the toilet, splattering shit all over the stool. I cleaned up my mess the best I could, once again saying sorry to the janitor who would later have to clean up after me.

I can have multiple bowel movements a day and then be constipated for a week

It should be IMPOSSIBLE for me to be constipated. I eat a fiber-rich diet. I take fiber twice a day and use stool softeners every night. Despite all of this, I can have diarrhea one day and then be constipated for a week. After two or three days of constipation, I typically resort to enemas (and cursing) to get things moving. Prior to being diagnosed with gastroparesis, I had normal, daily bowel movements.

I have learned farting can result in shitting

Earlier this week, Polly woke up in the dead of the night to find me cleaning the bed. What should have been an ordinary, routine fart turned into a shit. Insert jokes about shitting the bed here. At least I didn’t stumble and dump my urinal all over myself or on the bed.

I have learned my body will lie to me

I will have cramps, thinking I need to take a shit. Nothing. The next time I have cramps, I will have the mother of all bowel movements. With gastroparesis, there’s no reliable way to know when you should defecate.

And now you know the rest of the story. If you ever see me running through a local store, just remember this post. And . . . avoid the restroom for an hour or so. 🙂

Coming soon, my latest blockbuster book, Adventures in Shitting. 🙂

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Blog News and Health Update

Bruce Gerencser 12 Comments
blogging

I apologize for the lack of content over the past week or so. Without going into a lengthy treatise on my health problems, let me say, I am sick — really, really sick. The trifecta of fibromyalgia, osteoarthritis, and gastroparesis are hammering me day and night — with no end in sight this side of the grave. And then there’s my back (Please see Health Update: I’m F**ked). Cue Billy Mays . . . and that’s not all. I had an MRI of my neck last Friday. I received the results today. Yep. I have disc herniations in my neck too. I see my pain doctor tomorrow. We shall see . . .

I am nauseated every day. Up until four days ago, I have been able to manage my gastroparesis fairly well. Since last Friday, I have had daily violent bouts of vomiting. Think herniated discs in your back and neck . . . and vomiting. Not fun. Okay, enough of this . . .

I plan to keep writing, but I can’t promise when and how often. I will do what I can. I will get everyone’s questions answered — eventually. I owe several of you guest posts for your sites. I will get them done too — eventually. Emails? Social media responses? Donation acknowledgments? I will get them done too — eventually. Are you sensing a trend?

I do plan to give a private speech on “Why I Am an Atheist” to a Mennonite group on Thursday and a podcast interview on Saturday. I find it physically easier to “talk” than write. Polly agrees. 🙂

Thank you for your continued love and support.

signature

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

Connect with me on social media:

Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

The Cart

Bruce Gerencser 12 Comments
bruce gerencser august 2021
Front Yard of Our Home, August 31, 2021

The old man and his wife pull into the store parking lot. The ride to Toledo from their home in Ney was excruciating for the old man. Wracked with pain, the old man felt every bump, thump, and bang as they drove down Toledo’s neglected streets. Narcotic pain medication helps, but nothing takes the pain away. Healthy people are often ignorant about how pain meds work. They wrongly think that taking drugs such as Hydrocodone or Oxycontin makes pain go away. Two Vicodin, thirty minutes, and voila! pain magically disappears. Or so people think. People with chronic pain know better; pain meds reduce pain, but don’t make it disappear. The old man had taken extra pain medications, preparing for the hour ride to the Glass City and back.

A recent MRI report said:

  • Disc herniation (T7,T8)
  • Disc herniation (T6,T7)
  • Central spinal canal stenosis (T9/T10, T10/T11)
  • Foraminal stenosis (T5,T6)
  • Disc degeneration/spondylosis (T1/T2 through T10/T11)
  • Facet Arthropathy throughout the spine, particularly at T2/T3, T3/T4, T5/T6, and T7/T8 through the T12/L1 levels.
  • Hypertrophic arthropathy at T9/T10

These diagnoses gave voice to the excruciating pain the old man had in his thoracic spine for months. Yet, this diagnosis drove the old man further into the throes of depression. Fibromyalgia, osteoarthritis, gastroparesis, and now serious back problems. “Does it ever end?” the old man wonders, knowing that the answer to his existential question was “no.” No cure. No pain-free days. No better tomorrow. Just pain, suffering, and struggling with death in the hope of living another day.

The old woman parked the car, opening her door, and walking to the raised hatch on the back of their SUV. The old man no longer drives, so it’s up to the old woman to drive them everywhere they go. The old man partially opens his door, pushing it open with his cane. Then, with great difficulty, he stands up and then haltingly walks to the back of the car.

The old man and woman knew this day would come, the day when the old man finally gave in and gave up, resigning himself to using a wheelchair full-time. The old man’s pain and debility is such that walking is difficult and dangerous (risking falls and injuries). Unable to pick up more than a pound or two, the old man cannot remove his wheelchair from the trunk of their car. The old woman carries so much of the old man’s weight these days, yet she never says a word. Forty-three years ago, she stood before God and man and said to her husband:

I, Polly Shope, take thee, Bruce Gerencser, to be my wedded Husband, to have and to hold from this day forward, for better for worse, for richer for poorer, in sickness and in health, to love, cherish, and to obey, till death us do part, according to God’s holy ordinance; and thereto I give thee my troth.

Little did she know what these words would mean in the years to come.

The old woman has her own health problems. Two major bowel surgeries, A-fib, knee problems, all in the past three years. She needs to retire, but she can’t. The old man needs health insurance. Without it, medical bills would bankrupt them. Even with insurance, they paid over $40,000 over the past five years for health care.

The old woman pulled the wheelchair from the car, pushing on the wheelchair’s arms to expand its seat. She puts a gel cushion on the seat and a bedroom pillow she brought from home where the old man will soon put his back. “Where are the feet?” the old woman says to her thirty-one-year-old daughter with Down syndrome. She already knows the answer to her question. The feet for the wheelchair are sitting on the dining room floor, fifty miles away.

Without the feet, the old man can’t use the wheelchair. “I’ll just walk,” he tells the old woman. “I can do it,” he says, seeing the doubt and worry in the old woman’s eyes.

Sure enough, by the time the old man reaches the front door of the store, he knows he will be unable to walk its aisles. “Fuck,” the old man says in the way only the old woman understands. Not far from the couple is the answer to the old man’s inability to walk. “Nope. I am not going to do it. Goddammit, no! What will people think of me? I’m not a cripple. Dammit! I’m just as strong as I was in my athletic days.” The old man struggles in his mind with accepting things as they are, and not as he wishes they were. He lives according to the mantra, “it is what it is.” The old man knows he is facing yet another “it is what it is” moment.

Finally, the old man walks over to the battery-powered carts. The old woman had begged him to use one of the carts when they were shopping for several years. He refused, too prideful to ride around the store in a beeping advertisement that screamed he was a cripple. Today, it was the old man’s Waterloo. Either the old man will sit in the car while the old woman shops, or he will swallow his pride and use a cart.

The old man sits down on the cart, and soon he’s driving the store’s aisles. While using a cart solved the old man’s “walking” problem, its sudden starting and stopping only increased his pain. The wheelchair with its feet attached will be his chariot the next time he and the old woman go shopping. What changed this day was how the old man viewed and understood his future. Sometimes, giving in is the only thing you can do. The old man learned that he would have to sacrifice his pride if he wanted to “live.”

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Bruce, Have You Tried . . .?

Bruce Gerencser 22 Comments
unsolicited medical advice

Every time I mention my health in a blog post — as sure as the sun comes up in the morning — I will receive emails and social media comments from readers offering me unsolicited, unwanted medical advice. These people mean well, but their “advice” is not welcome or helpful. Their advice says I am not doing something right; it is my fault I am sick and in pain. If I would just follow their “advice,” I would no longer be sick, nor would I be in pain.

Often, the “advice” I receive comes from proponents of alternative treatments — unproven treatments purveyors promise really, really, really work (for a price). There seems to be an assumption by the people who send me unsolicited medical advice that I am ignorant; that I have not investigated other treatments for gastroparesis, fibromyalgia, and osteoarthritis.

Last Saturday, I published a post titled, Health Update: I’m F**ked. In this article, I mentioned the results from an MRI I had last week:

I had X-rays. Normal. CT scan. Normal. And now an MRI of my thoracic spine. NOT normal. I have:

Disc herniation (T7,T8)

Disc herniation (T6,T7)

Central spinal canal stenosis (T9/T10, T10/T11)

Foraminal stenosis (T5,T6)

Disc degeneration/spondylosis (T1/T2 through T10/T11)

Facet Arthropathy throughout the spine, particularly at T2/T3, T3/T4, T5/T6, and T7/T8 through the T12/L1 levels.

Hypertrophic arthropathy at T9/T10

I quickly received several emails and comments telling me that I need to try this or that diet or supplement. These people have no idea about what my diet is or what, if any, supplements I take. They assume that because I am sick and in pain, that I must not be doing what they suggest I do. One long-time reader sent me a link to a video and suggested I go on the KETO diet. I tersely replied that I was on the no-food diet (gastroparesis); that I have lost 120 pounds; that my A1c is 5.3. She means well, but her emails and comments are NOT helpful. The same can be said for emails from people saying that if I just became a vegan, all would be well.

Let me be clear: I think Reiki, chiropractic treatment (with a few exceptions), homeopathy, supplementation, essential oils, acupuncture, magnets, faith healers, etc., are unproven, unscientific modalities. The same goes for diets that advocate unbalanced, unhealthy eating. There’s nothing wrong with my diet. I eat lots of vegetables, seafood, and other “healthy foods. Yet, I am still sick. Why? My problems are not diet related. There’s no diet or supplement known to man that will “cure” the structural damage in my back. Go to a chiropractor? Are you fucking kidding me? Think about that for a moment: a chiropractor pushing on my herniated discs. What could go wrong? The only solution is to treat and manage my pain.

I am a proponent of science-based medicine (SBM). I have confidence that my doctors are providing me the best possible treatment. I keep myself informed about the latest treatments and studies for my various maladies. I suspect I am better educated on gastroparesis, fibromyalgia, and osteoarthritis than are any of the people who offer me unsolicited medical advice. I have friends I trust who will send me links to reports or studies they have read. I have no problem with them doing this. What irritates the hell out of me is the unsolicited medical advice that subtly suggests that I am at fault; that if I would just do _______, my decades-long illnesses and pain would magically go away.

If you want to help me, continue to read my writing, leave pithy comments, and support my work financially. Leave my medical care to my doctors and me. Trust me, we have it under control. I know the limitations of modern medicine. I know that no magic treatment that will “cure” me is lurking around the next corner. I expect my doctors to do what they can, but I have never expected them to be miracle workers. Sometimes, life sucks. I am a realist. I know that I will battle chronic illness and pain until I die. Friends, family, and blog readers, genuinely wish I weren’t in pain. They tell me that things will get better in time. “Surely, better days lie ahead for me.” They think I need encouragement or happy visions of a seal bouncing a beach ball on his nose. I don’t. Sure, there are things people can do to help me, but how about asking me what help I need instead of assuming I need ______________?

Let me kindly ask again that readers do NOT send me unsolicited medical advice. And that includes leaving comments on this site, making comments on social media, or sending me private Facebook/Twitter messages. If you truly love and respect me, PLEASE stop.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Health Update: I’m F**ked

Bruce Gerencser 63 Comments
bruce gerencser and jesus

I have gastroparesis, fibromyalgia, and osteoarthritis (I’ve typed these words so many times, autocorrect remembers them). In addition, over the past four months, I’ve had excruciating pain in the middle of my back, left side, and under my left arm, into my shoulder, and down my arm. The pain is so severe that it affects everything I do. Some days, I can hardly use my left arm (and I’m left-handed).

I had X-rays. Normal. CT scan. Normal. And now an MRI of my thoracic spine. NOT normal. I have:

  • Disc herniation (T7,T8)
  • Disc herniation (T6,T7)
  • Central spinal canal stenosis (T9/T10, T10/T11)
  • Foraminal stenosis (T5,T6)
  • Disc degeneration/spondylosis (T1/T2 through T10/T11)
  • Facet Arthropathy throughout the spine, particularly at T2/T3, T3/T4, T5/T6, and T7/T8 through the T12/L1 levels.
  • Hypertrophic arthropathy at T9/T10

I knew I had osteoarthritis arthritis in my spine. I have arthritis everywhere. Why I have these other problems is unknown. Genetics (my sister has similar problems)? Injury? Age-related deterioration? God’s judgment (I already know Evangelicals are thinking this)? Too much sex (you will have to ask Polly)? 🙂 Sports-related damage? There’s no way of knowing the exact cause. And it doesn’t matter. Knowing the cause won’t change the fact that I have excruciating pain in the middle of my back.

My primary care doctor called me this morning to give me the MRI results. I could tell by his voice that the results were not good. He’s been my doctor for twenty-six years. Doc has literally watched me physically deteriorate over the years (he calls me an enigma — something that baffles understanding and can’t be explained). He genuinely cares about me and wants to alleviate my suffering. Unfortunately, there’s little he can do except treat the pain. Doc referred me to a pain management doctor in Fort Wayne. Hopefully, I will get in to see him soon.

After Doc gave me the verdict, I replied, in my gallows humor way, “I’m fucked.” He chuckled a bit — we’re friends — and then he reminded me of a scene in Planes, Trains, and Automobiles; the scene where Steve Martin repeatedly uses the F word.

Video Link

Today, I feel fucked. Hopefully, the pain doctor will help me feel less fucked soon.

It is what it is, but the spinning plate that I call life is overflowing. I’d pray if there were a God, but since there’s not, all I can do is endure. As I ponder my suffering, I am reminded that it could be worse. My friend, Eric, died several weeks ago from pancreatic cancer. In less than a year, he went from enjoying life with his grandchildren to excruciating pain and death. I have another friend who contracted COVID-19 before the vaccines were available. She’s in her forties. She had a stroke, heart problems, and had to have eye surgery. I’m concerned that she could end up blind. It is unlikely that she will ever work again. I have another dear friend, Tammy, who also contracted COVID. She was a spry, outgoing psychiatric nurse, that is until COVID left her incapacitated. She’s now on permanent disability. I could go on and on. Like it or not, suffering is part of our lives. Few people will escape this life without suffering at one point or another. It’s just the way it is.

Oh, did I tell you about the rash I have; that is so itchy I want to get out a butter knife and scratch myself to death? True story . . . years ago, Polly came home from work and found me in the middle of the floor, scratching my arms and legs with a butter knife. I had had a painful gallbladder attack that caused me to break out in hives. Thank the Gods for butter knives. And Benadryl. And corticosteroids.

I do have one bit of good news: I am retaking generic Lyrica. It is quite effective for the nerve pain in my legs. In fact, I now have NO nerve pain in my legs. In the past, taking Lyrica has caused weight gain, so much so that I had to stop taking the drug (twice). Gastroparesis has dramatically altered my physiology. I thought maybe my body would react differently to Lyrica this time. So far, no weight gain. Can I get an AMEN? And for that, I am grateful. Grateful to whom? Not God, that’s for sure. Loki? Maybe. 🙂 It is science that courses through my veins, lessening the pain in my legs. All praise be to science, the only God that makes its presence known.

Thank you for your continued love and support. Your kind words mean the world to me.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Giving In When It’s The Only Thing You Can Do

Bruce Gerencser 17 Comments

If you are a sports fan, you have likely heard the late Jim Valvano’s speech at the 1993 Espy Awards. Valvano had terminal cancer. He died six weeks after giving his speech at the Espy’s. Valvano started The V Foundation for Cancer Research. Its motto is “Don’t give up. Don’t ever give up.” The idea behind this motto is that life is always to be valued above death, that we must keep fighting until the very end, that we must never give in or give up. This sort of thinking is on prominent display on social media and in countless books; a sentiment I can’t embrace.

Barbara Ehrenreich, author of Bright-Sided: How the Relentless Promotion of Positive Thinking Has Undermined America, had this to say about the positive thinking culture that permeates our society:

In other words, it [positive thinking] requires deliberate self-deception, including a constant effort to repress or block out unpleasant possibilities and ‘negative’ thoughts. The truly self-confident, or those who have in some way made their peace with the world and their destiny within it, do not need to expend effort censoring or otherwise controlling their thoughts.

Speaking of having breast cancer, Ehrenreich wrote:

Breast cancer, I can now report, did not make me prettier or stronger, more feminine or spiritual. What it gave me, if you want to call this a “gift,” was a very personal, agonizing encounter with an ideological force in American culture that I had not been aware of before—one that encourages us to deny reality, submit cheerfully to misfortune, and blame only ourselves for our fate.

Read your local newspaper’s obituaries, and you will find references to the dead battling, fighting, and persevering to the end. We know differently. Most people die with a whimper; the life sucked out of them by the diseases that afflict the human race.

I am dying. Maybe not today or tomorrow, but I am nearing the end of my life. Well-wishers tell me to keep fighting. Preachers of positive thinking tell me that I need to think good thoughts. It seems that people want me to deny reality and construct a false narrative, one of rainbows, puppy dogs, and happiness. People mean well, but as I become sicker, I find their cheerful, syrupy words unhelpful. In fact, I often find their words irritating and depressing. I find myself thinking, “can’t you see me?” Perhaps they can’t bear the thought of me dying. They can’t imagine their world without me. And so, the mass delusion continues.

Even if I were a healthy sixty-four, I am still nearing the time when I join Toto over the rainbow. If I lived to be 70, my life is 91% over; if I live to 80, 80% of my life is in the rearview mirror. I am not, however, healthy, and I never will be. I see no magical treatment on the horizon, no drug that cures me of what ails me. All my doctors can do is treat my symptoms and try to reduce my pain. Yesterday, I saw my primary care doctor. I had an EKG, a chest X-ray, and blood work. I will likely have a CT scan soon.

Four months ago, I started having pain in my left side. Typically, when I have such pains, I think “fibromyalgia.” However, such pains typically ebb and flow. This excruciating pain has, instead, spread to the middle of my back and under my arm. I spend most of my waking hours on the couch, trying to lie just right to lessen the pain. Pain medications are not effective with this pain, so I endure.

As you may know, I was diagnosed with gastroparesis — an incurable disease — earlier this year. I have lost 115 pounds, have little appetite, and frequent bouts of vomiting. I take medications that “help” to some degree with the symptoms, but there’s no cure for gastroparesis, so this is my life.

And then there’s Uncle Arthur — osteoarthritis. The X-rays I had done yesterday showed more arthritis in the spine. I am beginning to wonder if it would be simpler to list the places where I DON’T have arthritis.

I write this post, not to solicit sympathy, but to make a point about why it is okay to give in when it is all you can do. A week or so ago, we went to Whole Foods in Toledo. As I haltingly walked in the door, I veered to the left, away from Polly to the motorized carts. Polly watched as I stood there for what seemed the longest time. She came over to me and asked, “what are you doing?” I replied, “I am thinking about using a cart.” You see, I have never used a motorized cart or my wheelchair in a store. Whether due to pride or some sort of warrior complex, I refuse to use a cart.

I know that the no-cart/no-wheelchair days are over. No amount of positive mental thinking will change the fact that my body is broken beyond repair. IF I want to go to the store with Polly, I must use a cart. The battle, then, is psychological, not physical. I must embrace life as it is. I must be willing to give in.

I choose to embrace my life as it is, not how I might want it to be or how others want it to be. I choose to be a realist and a pragmatist. Bruce, this post is so damn depressing. Yep, and so is life. All I know to do is accept what comes my way. Unlike Jim Valvano, I have come to see that it is okay to give in; that I am not weak or a failure if I do so. In the end, Valvano and I will end up in the same place.

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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I’m Tired . . .

Bruce Gerencser 32 Comments

My vision is increasingly blurred. Short distances, long distances, it matters not. I stopped wearing my glasses months ago. I’ve been to the eye doctor twice in the past month. She’s been my doctor for years. Yet, she doesn’t understand my health problems. This is the doctor who showed how clueless she was when she told me that the “cure” for fibromyalgia is removing my amalgam (mercury) fillings. Her source? Her aunt, who had fibromyalgia, was miraculously cured after having her amalgam fillings replaced with resin fillings.

On my first visit last month, I told her that I was recently diagnosed with gastroparesis — an incurable disease. She had the same level of understanding about this disease as she did fibromyalgia. No big deal. She not a medical doctor, a neurologist, or a gastroenterologist. It would be nice if she educated herself on gastroparesis and fibromyalgia, but she’s busy, and these diseases aren’t health problems she typically deals with. However, when attempting to explain why I’m having blurry vision and my prescription has dramatically changed, she suggested that these things could be caused by, you guessed it, the gastroparesis and fibromyalgia she knows nothing about.

What astounded me most was when she told me that she hoped I got better soon. I am used to such well-wishing by non-medical professionals. People feel the need to say “something,” so they send good thoughts my way or tell me they hope I will be better soon. However, when I’m paying doctors good money to provide me competent, educated care, I expect honesty, not meaningless well-wishing.

I’m sick, I’m tired, and I’m tired of being sick and tired.

I love Polly.

I love my six children and their spouses.

I love my thirteen grandchildren.

I love my friends.

I love watching the birds at our feeders.

I love watching wildlife stop by at night, eating whatever food scraps we have put out for them.

I love watching the feral cats frequent our yard, eating the food we put in the “cat” house for them.

I love writing for this blog.

I’ve even grown to love some of you.

Yet, no matter how much I love others and want to live another day for their sake, I’m increasingly tired. There’s no hope of better days — just better bad days. A good day is one when I don’t throw up.

Every day, and I mean EVERY day, is a struggle. The pain, nausea, and debility, never go away. There’s no “better” tomorrow for me. No miraculous healing forthcoming. I’m a pragmatist, a realist. I see things as they are, not as I wish them to be. Maybe I’ll live a year or two or even ten years. Maybe not. Maybe I will die of “natural” causes or maybe I will die by my own hand. Or maybe, I will trip over the damn cat and break my neck on the way to bathroom.

Love is what sustains me. Today, that is enough.

But, I’m tired . . .

Bruce Gerencser, 66, lives in rural Northwest Ohio with his wife of 45 years. He and his wife have six grown children and thirteen grandchildren. Bruce pastored Evangelical churches for twenty-five years in Ohio, Texas, and Michigan. Bruce left the ministry in 2005, and in 2008 he left Christianity. Bruce is now a humanist and an atheist.

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Your comments are welcome and appreciated. All first-time comments are moderated. Please read the commenting rules before commenting.

You can email Bruce via the Contact Form.

Bruce Gerencser